An evaluation of the domiciliary occupational therapy service in palliative cancer care in a community trust: A patient and carers perspective

European Journal of Cancer Care

Volumn 14, Issue 3, 2005, Pages 232-243

  Kealey, P ^a,c   Mcintyre, I ^b  

^a Northern Ireland Hospice   (United Kingdom)

^b UNIVERSITY OF ULSTER   (United Kingdom)

^c Iveagh Buildings   (United Kingdom)

Author keywords

Cancer; Community; Occupational therapy; Palliative care; Service users

Indexed keywords

ADULT; AGED; CANCER MORTALITY; CANCER PALLIATIVE THERAPY; CANCER PATIENT; CLINICAL ARTICLE; COPING BEHAVIOR; FEMALE; HEALTH CARE PERSONNEL; HEALTH CARE QUALITY; HOME CARE; HOSPICE; HOSPITAL CARE; HUMAN; INTERVIEW; MALE; OCCUPATIONAL THERAPY; REVIEW; SAMPLING; SOCIAL WELFARE;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; AGED; CAREGIVERS; FEMALE; HEALTH SERVICES ACCESSIBILITY; HOME CARE SERVICES; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; OCCUPATIONAL THERAPY; PALLIATIVE CARE; PATIENT SATISFACTION; PROFESSIONAL-PATIENT RELATIONS; SOCIAL BEHAVIOR;

EID: 20744436042     PISSN: 09615423     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-2354.2005.00559.x     Document Type: Review

References (69)

1. Armitage K. & Crowther L. (1999) The role of the Occupational Therapist in Palliative Care. European Journal of Palliative Care 6, 154-157.
2. Ballinger C. & Davey C. (1998) Designing a questionnaire: an overview. British Journal of Occupational Therapy 5, 40-45.
3. Baum C.M. (1993) The Environment: Providing opportunities for the future. American Journal of Occupational Therapy 45, 487-490.
4. Beaver K., Luker K. & Woods S. (1999) Conducting research with the terminally ill: challenges and considerations. International Journal of Palliative Nursing 5, 13-17.
5. Beaver K., Luker K. & Woods S. (2000) Primary care services received during terminal illness. International Journal of Palliative Nursing 6, 220-227.
6. Boateng P. (1998) Speech to the College of Occupational Therapists, 1998.
7. Broadwell D.C. (1987) Rehabilitation needs of the patient with cancer. Cancer 60, 563-568.
8. Brunelli C., constantini M., DiGuilio P., Gallucci M., Fusco F., Miccinese G., Paci E., Peruselli C., Morino P., Piazza M., Tanburini M. & Toscani F. (1998) Quality of life evaluation: when do terminal cancer patients and health care professionals agree? Journal of Pain and Symptom Management 15, 151-158.
9. Bucher J.A., Houts P.S., Nezu C.M. & Nezu A.M. (1999) Improving problem solving skills of family caregivers through group education. Journal of Psychosocial Oncology 16, 73-84.
10. Bye R. (1998) When clients are dying, occupational therapy perspective. Occupational Therapy Journal of Research 18, 3-24.
11. Calman K. & Hine D. (1995) A Policy Framework for Commissioning Cancer Services. A Report by the Expert Advisory Group on Cancer to the Chief Medical Officer for England and Wales.
12. Campbell H. (1996) Cancer Services Investing for the Future. Report of the Cancer Working Group, DHSS.
13. Clumpus L. & Hill A. (1999) Exploring the views of carers of cancer patients in an inner city locality. International Journal of Palliative Nursing 5, 116-123.
14. Compton S. (2000) Fulfilling lives: Rehabilitation in Palliative Care. National Council for Hospice and Specialist Palliative Care Services.
15. Cooper J. (1992) Is palliative rehabilitation a waste of time? Proceeding of Rehabilitation Symposium, 7th International Conference on Cancer Nursing, Harrow, Scutari Projects, 8-11.
16. Cooper J. (1998) Occupational Therapy in Oncology and Palliative Care. Whurr Publications Limited, London.
17. Dawson S. (1982) The role of occupational therapy in palliative care. Australian Occupational Therapy Journal 29, 119-124.
18. Dawson S. (1993b) The role of occupational therapy groups in an Australian hospice. American Journal of Hospice and Palliative Care 10, 13-17.
19. Dawson S. & Barker J. (1995) Hospice and palliative care: a Delphi survey of occupational therapists' roles and training needs. Australian Occupational Therapy Journal 42, 119-127.
20. Department of Health (DOH) (1998) A First Class Service, Quality in the New NHS. Stationery Office, London.
21. Department of Health (DOH) (2000) The National Cancer Plan: A Plan for Investment, a Plan for Reform. Stationery Office, London.
22. Department of Health, Social Services and Public Safety (2000) Partnership in Caring - Standards for Service: A Review of Palliative Care Services. http://www.dhsspsni.gov.uk/ publications/archived/2000/pallcare.pdf
23. Department of Health and Social Services (DHSS) (1996) Cancer Services, A Framework for the Multidisciplinary Contribution to Cancer Care in Northern Ireland. Belfast.
24. Doyle D. & Jeffrey D. (2000) Palliative Care in the Home. Oxford University Press, Oxford.
25. Eva G.E. (2001) Occupational therapy outcomes: perspectives of patients with advanced cancer. School of Cancer Care. Oxford Brookes University, Oxford.
26. Fakhoury W.K.H. (1998) Satisfaction with palliative care: what should we be aware of? International Journal of Nursing Studies 35, 171-176.
27. Fakhoury W.K.H. & Mr Carthy M. (1998) Can the experience of caring at home affect carers' retrospective evaluation of community care services. Scandinavian Journal of Caring Services 12, 179-185.
28. Fellowes D., Wilkinson S. & Moore P. (2002) Communication Skills Training for Health Care Professionals Working with Cancer Patients, their Families and for Carers (Protocol for a Cochrane Review). The Cochrane Library, Issue 3. Update Software, Oxford.
29. Fisher R.A. & McDaid P. (1996) Occupational therapy. Palliative Day Care 2, 13-21.
30. Grande G.E., Todd C.J., Barclay S.I.G. & Doyle J.H. (1996) What terminally ill patients value in support provided by GPs, district and McMillan nurses. International Journal of Palliative Nursing 2, 138-143.
31. Griffin J. (1991) Dying with Dignity. London Office of Health Economics, London.
32. Heck S.A. (1987) The effect of purposeful activity on pain tolerance. American Journal of Occupational Therapy 42, 577-581.
33. Henn J. (1999) Psychological care of the terminally ill: theory and application. Clinical Psychology Department, East Anglia 50, 9291.
34. Higginson I.J. (1997) Palliative and Terminal Care in Health Care Needs Assessment (eds Stevens A. & Rafferty J.I. Radcliffe Medical Press, Oxford.
35. Higginson I.J. (2000) Place of care in advanced cancer: a qualitative systematic literature review of patient preferences. Journal of Palliative Medicine 3, 287-300.
36. Higginson I., Wade A. & McCarthy M. (1990) Palliative care: views of patients and their families. British Medical Journal 1, 277-281.
37. Hopkins K.F. & Tookman A.J. (2000) Rehabilitation and specialist palliative care. International Journal of Palliative Nursing 6, 123-130.
38. Johnston G. (1997) Assessing psychosocial and spiritual well-being in palliative cancer care. PHD, Dundee, 48-1797.
39. Johnston B. & Plant H. (1996) Collecting data from people with cancer and their families: what are the implications? In: Nursing Research. An Ethical and Legal Appraisal (ed. De Raeve L), pp. 85-100. Bailliere-Tindell, London.
40. Karlsen S. & Addington-Hall J. (1998) How do cancer patients who die at home differ from those who die elsewhere? Palliative Medicine 12, 279-286.
41. Krishnasamy M. (1997) Exploring the nature and impact of fatigue in advanced cancer. International Journal of Palliative Nursing 3, 126-131.
42. Kristyanson L.J. (1991) Family satisfaction with palliative care - 'a test of four alternative theories'. University of Arizona PHD, 188.
43. Lloyd C. (1989) Managing occupational role performance with the terminally ill patient. British Journal of Occupational Therapy 52, 227-231.
44. Loge J.H. & Kaasa S. (1998) Cancer related fatigue, 'a holistic view'. Progress in Palliative Care 6, 43-47.
45. Lyons M., Orozovic N., Davis J. & Newman J. (2002) Doing-being-becoming: occupational experiences of persons with life-threatening illnesses. The American Journal of Occupational Therapy 56, 285-295.
46. Mason J. (1996) Qualitative Researching. Sage, London.
47. McClements S. (2001) Carers bear burden of home care. International Journal of Palliative Nursing 7, 520.
48. McKinnon A.L. (2000) Client values and satisfaction with occupational therapy. Scandinavian Journal of Occupational Therapy 7, 99-106.
49. Nail L.M. & Winningham M.L. (1995) Fatigue and weakness in cancer patients: The symptom experience. Seminars in Oncology Nursing. 11(4) 272-278.
50. Nail L.M. & Jones L.S. (1995) Fatigue as a side effect of cancer treatment: impact on quality of life. Quality of Life: A Nursing Challenge 4, 8-13.
51. Norris A. (1999) A Pilot study of an outcome measure in palliative care. International Journal of Palliative Nursing 5, 40-45.
52. Office of National Statistics (1996) Mortality Statistics. DHI (27). HMSO, London.
53. Oliviere D. (2001) User Involvement in Palliative Care Services. European Journal of Palliative Care 8, 238-241.
54. Oppenheim A.N. (1992) Questionnaire Design, Interviewing and Attitude Measurements. Printer Publishers, London.
55. Payne S., Smith P. & Dean S. (1999) Identifying the concerns of informal carers in palliative care. Palliative Medicine 13, 37-44.
56. Penfold S.L. (1996) The role of the occupational therapists in oncology. General and Supportive Care, Cancer Treatment Reviews 22, 75-81.
57. Rahman H. (2000) Journey of palliative care in hospice: perspectives of occupational therapists. Qualitative Health Research 10, 806-818.
58. Richardson A. & Ream E. (1998) Recent progress in understanding cancer related fatigue. International Journal of Palliative Nursing 4, 192-198.
59. Smith F. (1997a) Survey research (1): design, samples and response. International Journal of Pharmacy Practice 5, 152-166.
60. Smith F. (1997b) Survey research (2): survey instruments, reliability and validity. International Journal of Pharmacy Practice 5, 216-226.
61. Smith P.C. (2000) Family caregivers in palliative care: perspective of their role and sources of support. PHD, Southampton 50-16562.
62. Stone D.H. (1993) Design a questionnaire. British Medical Journal 307, 1264-1266.
63. Strong J. (1987) Occupational therapy and cancer rehabilitation. British Journal of Occupational Therapy 50, 4-6.
64. Tong S.T. (2000) Meanings of dying at home for Chinese patients in Taiwan with terminal cancer: a literature review. Cancer Nursing 23, 367-367.
65. Townsend J., Frank A.O., Fermont D., Dyer S., Karran O., Walgrove A. & Piper M. (1990) Terminal cancer care and patients preference for place of death: a prospective study. British Medical Journal 301, 415-417.
66. Wilcox A. (1998) Reflections on doing, being and becoming. Canadian Journal of Occupational Therapy 65, 256.
67. Wilkinson E.K., Salisbury C., Bosanquet N., Franks P.J., Kite S., Lorentzon M. & Naysmith A. (1999) Patients and carer preference for, and satisfaction with, specialist models of palliative care: a systematic literature review. Palliative Medicine 13, 197-216.
68. Wood C. (1999) Cancer care in the community. Primary Health Care 9, 13-15.
69. Yerxa E. (1998) Health and the human spirit for occupation. American Journal of Occupational Therapy 52, 412-418.