The care strategy for families of terminally ill cancer patients who become unable to take nourishment orally: Recommendations from a nationwide survey of bereaved family members' experiences

Journal of Pain and Symptom Management

Volumn 40, Issue 5, 2010, Pages 671-683

  Yamagishi, Akemi ^a,b,c   Morita, Tatsuya ^d   Miyashita, Mitsunori ^e   Sato, Kazuki ^a,e   Tsuneto, Satoru ^f   Shima, Yasuo ^g  

^a UNIVERSITY OF TOKYO   (Japan)

^b KEIO UNIVERSITY   (Japan)

^c NATIONAL CANCER CENTER HOSPITAL EAST   (Japan)

^d Seirei Mikatahara Hospital   (Japan)

^e TOHOKU UNIVERSITY   (Japan)

^f OSAKA UNIVERSITY   (Japan)

^g TSUKUBA MEDICAL CENTER HOSPITAL   (Japan)

Author keywords

Anorexia; Artificial hydration; Cancer; End of life; Family

Indexed keywords

ADULT; AGED; ARTICLE; BEREAVEMENT; BEREAVEMENT COUNSELING; CANCER PATIENT; DEHYDRATION; DIETARY INTAKE; DYING; EMOTIONAL STRESS; FAMILY COUNSELING; FEMALE; GUILT; HEALTH SURVEY; HELPLESSNESS; HUMAN; MAJOR CLINICAL STUDY; MALE; PROFESSIONAL PRACTICE; TERMINAL DISEASE;

ANOREXIA; CAREGIVERS; CROSS-SECTIONAL STUDIES; EMOTIONS; FAMILY; HUMANS; JAPAN; NEOPLASMS; QUESTIONNAIRES; STRESS, PSYCHOLOGICAL; TERMINAL CARE; TERMINALLY ILL;

EID: 78349271633     PISSN: 08853924     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2010.02.025     Document Type: Article

References (33)

1. J. Addington-Hall, and M. McCarthy Dying from cancer: result of national population-based investigation Palliat Med 9 1995 295 305
2. C. Hawkins Anorexia and anxiety in advanced malignancy: the relative problem J Hum Nutr Diet 13 2000 113 117
3. J.B. Hopkinson, D.N. Wright, J.W. McDonald, and J.L. Corner The prevalence of concern about weight loss and change in eating habits in people with advanced cancer J Pain Symptom Manage 32 2006 322 331
4. J. Potter, F. Hami, T. Bryan, and C. Quigley Symptoms in 400 patients referred to palliative care services: prevalence and patterns Palliat Med 17 2003 310 314
5. T. Morita, K. Hirai, Y. Sakaguchi, S. Tsuneto, and Y. Shima Family-perceived distress about appetite loss and bronchial secretion in the terminal phase J Pain Symptom Manage 27 2004 98 99
6. K. Poole, and K. Froggatt Loss of weight and loss of appetite in advanced cancer: a problem for the patient, the carer, or the health professional? Palliat Med 16 2002 499 506
7. F. Strasser, J. Binswanger, T. Cerny, and A. Kesselring Fighting a losing battle: eating-related distress of men with advanced cancer and their female partners. A mixed-methods study Palliat Med 21 2007 129 137
8. E. Davies, I.J. Higginson, The solid facts: Palliative care 2004 World Health Organization Regional Office for Europe Copenhagen 14
9. F. Bozzetti, D. Amadori, and E. Bruera Guidelines on artificial nutrition versus hydration in terminal cancer patients. European Association for Palliative Care Nutrition 12 1996 163 167
10. National Council for Hospice and Specialist Palliative Care Services Artificial hydration (AH) for people who are terminally ill Eur J Palliat Care 27 1997 98 99
11. American Society for Parenteral and Enteral Nutrition Guidelines for the use of parenteral and enteral nutrition in adult and pediatric patients JPEN J Parenter Enteral Nutr 15 2001 12 19
12. B. Biswas, K. Dunphy, and J. EllershAw Ethical decision-making in palliative care: Artificial hydration for people who are terminally ill 1994 National Council for Hospice and Specialist Palliative Care Services London, UK
13. C. Ripamonti, R. Twycross, and M. Baines Clinical-practice recommendations for the management of bowel obstruction in patients with end-stage cancer Support Care Cancer 9 2001 223 233
14. P. Bachmann, C. Marti-Massoud, and M.P. Blanc-Vincent Summary version of the standards, options and recommendations for palliative or terminal nutrition in adults with progressive cancer Br J Cancer 1 2003 107 110
15. Japanese Society for Palliative Medicine. Guidelines for artificial hydration. Therapy of Cancer Patients at the End of Life, 2006. Available from http://www.jspm.ne.jp/guidelines/glhyd/glhyd01.pdf.
16. J. Hopkinson, and J. Corner Helping patients with advanced cancer live with concerns about eating: a challenge for palliative care professionals J Pain Symptom Manage 31 2006 293 305
17. S.E. McClement, L.F. Degner, and M.S. Harlos Family beliefs regarding the nutritional care of a terminally ill relative: a qualitative study J Palliat Med 6 2003 737 748
18. C.J. Meares Primary caregiver perceptions of intake cessation in patients who are terminally ill Oncol Nurs Forum 24 1997 1751 1757
19. R. Parkash, and F. Burge The family's perspective on issues of hydration in terminal care J Palliat Care 13 1997 23 27
20. R.M. McCann, W.J. Hall, and A. Groth-Juncker Comfort care for terminally ill patients. The appropriate use of nutrition and hydration JAMA 272 1994 1263 1266
21. J. Souter Loss of appetite: a poetic exploration of cancer patients' and their carers' experiences Int J Palliat Nurs 11 2005 524 532
22. S. McClement, and L.F. Degner Family responses to declining intake and weight loss in terminally ill relative. Part 1. Fighting back J Palliat Care 20 2004 93 100
23. J.M. Clayton, P.N. Butow, R.M. Arnold, and M.H. Tattersall Discussing end-of-life issues with terminally ill cancer patients and their carers: a qualitative study Support Care Cancer 13 2005 589 599
24. M. Miyashita, T. Morita, S. Tsuneto, K. Sato, and Y. Shima The Japan HOspice and Palliative Care Evaluation study (J-HOPE study): study design and characteristics of participating institutions Am J Hosp Palliat Care 25 2008 223 232
25. T. Morita, T. Akechi, and M. Ikenaga Terminal delirium: recommendations from bereaved family members' experiences J Pain Symptom Manage 34 2007 579 589
26. T. Morita, M. Ikenaga, and I. Adachi Family experience with palliative sedation therapy for terminally ill cancer patients J Pain Symptom Manage 28 2004 557 565 (Pubitemid 39626100)
27. T. Shinjo, T. Morita, and K. Hirai Care for imminently dying cancer patients: family members' experiences and recommendations J Clin Oncol 28 2010 142 148
28. T. Morita, T. Akechi, and M. Ikenaga Communication about the ending of anticancer treatment and transition to palliative care Ann Oncol 15 2004 1551 1557
29. S.E. McClement, and L.F. Degner Expert nursing behaviors in care of the dying adult in the intensive care unit Heart Lung 24 1995 408 419
30. T. Morita, I. Hyodo, and T. Yoshimi Association between hydration volume and symptoms in terminally ill cancer patients with abdominal malignancies Ann Oncol 16 2005 640 647
31. P. Good, J. Cavenagh, M. Mather, and P. Ravenscroft Medically assisted hydration for palliative care patients Cochrane Database Syst Rev 2 2008 CD006273
32. L. Cerchietti, A. Navigante, A. Sauri, and F. Palazzo Hypodermoclysis for control of dehydration in terminal-stage cancer Int J Palliat Nurs 6 2000 370 374
33. E. Bruera, R. Sala, and M.A. Rico Effects of parenteral hydration in terminally ill cancer patients: a preliminary study J Clin Oncol 23 2005 2366 2371