Family Beliefs Regarding the Nutritional Care of a Terminally Ill Relative: A Qualitative Study

Journal of Palliative Medicine

Volumn 6, Issue 5, 2003, Pages 737-748

  McClement, Susan Elaine ^a   Degner, Lesley Faith ^a   Harlos, Michael Steven ^b  

^a UNIVERSITY OF MANITOBA   (Canada)

^b WINNIPEG REGIONAL HEALTH AUTHORITY   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ANOREXIA; ARTICLE; ATTITUDE; CACHEXIA; CANCER PALLIATIVE THERAPY; CANCER PATIENT; CAREGIVER; CLINICAL ARTICLE; CONTROLLED STUDY; EDUCATION; FAMILY; FEMALE; HEALTH CARE PERSONNEL; HUMAN; INTERVIEW; MALE; MEDICAL RESEARCH; NUTRITIONAL SUPPORT; QUALITATIVE ANALYSIS; TERMINAL CARE; TERMINAL DISEASE; ADOLESCENT; ATTITUDE TO HEALTH; CANADA; HISTORY; MIDDLE AGED; NEOPLASM; PALLIATIVE THERAPY; PSYCHOLOGICAL ASPECT; TERMINALLY ILL PATIENT;

ADOLESCENT; ADULT; CANADA; FAMILY; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HISTORY, 18TH CENTURY; HUMANS; INTERVIEWS; MALE; MIDDLE AGED; NEOPLASMS; NUTRITIONAL SUPPORT; PALLIATIVE CARE; TERMINALLY ILL;

EID: 1542750259     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/109662103322515248     Document Type: Article

References (44)

1. DeWys, WD, Begg D, Lavin PT: Prognostic effect of weight loss prior to chemotherapy in cancer patients. Am J Med 1980;69:491-497.
2. Bruera, E, MacDonald, RN: Nutrition in cancer patients: An update and review of our experience. J Pain Sympt Manage 1988;3:133-140.
3. McClement SE, Woodgate RL: Care of the terminally ill cachectic cancer patient: interface between nursing and psychological anthropology. Eur J Cancer Care 1997;6:295-303.
4. Alexander HR, Norton JA: Pathophysiology of Cancer Cachexia. In: Doyle D, Hanks GWC, MacDonald N (eds): Oxford Textbook of Palliative Medicine. Oxford: Oxford University Press, 1995, pp. 316-329.
5. Bruera, E, Fainsinger R. Clinical Management of Cachexia and Anorexia. In: Doyle D, Hanks GWC, MacDonald, N (eds): Oxford Textbook of Palliative Medicine. Oxford: Oxford University Press, 1995, pp. 330-337.
6. Bruera E, Higginson I (eds): Cachexia-Anorexia in Cancer Patients. Oxford: Oxford University Press, 1996.
7. Holden CM: Anorexia in the terminally ill cancer patient: The impact on the patient and the family. Hospice J 1991;7:73-84.
8. Baker C, Wuest J, Stern PN: Method slurring: The grounded theory phenomenology example. J Adv Nurs 1992;17:1355-1360.
9. Streubert HJ, Carpenter DR: Qualitative Research in Nursing: Advancing the Humanistic Imperative. Philadelphia: Lippincott, 1999.
10. Strauss A, Corbin J: Basics of Qualitative Research: Grounded Theory Procedures and Techniques. Newbury Park: Sage, 1990.
11. Hutchinson S: Grounded theory: The method. In: Munhall PL, Oiler CJ (eds): Nursing Research: A Qualitative Perspective. Norwalk, CT: Appleton Century Crofts, 1986, pp. 11-13.
12. Lincoln YS, Guba EG. Naturalistic Inquiry. Newbury Park, CA: Sage, 1985.
13. Sandelowski M: The problems of rigor in qualitative research. Adv Nurs Sci 1986;8:27-37.
14. Singer PA, Martin, DK Kelner M: Quality end-of-life care: patients' perspectives. JAMA 1999;281:163-168.
15. Fagerhaugh SY: Analyzing data for basic social processes. In: Chenitz WC, Swanson JM, (eds): From Practice to Grounded Theory: Qualitative Research in Nursing. Menlo Park: Addison-Wesley, 1986, pp. 133-145.
16. Kastenbaum R: As we think about death. In: Kastenbaum R (ed): Death, Society, and Human Experience. Toronto: Allyn and Bacon, 1998, pp. 1-23.
17. Rando TA: Grief, Dying, and Death: Clinical Interventions for Caregivers. Champaign IL: Research Press, 1984.
18. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA: Factors considered important at the end of life by patients, family physicians, and other care providers. JAMA 2000;294:2476-2482.
19. Callahan D: Ethics and the medical ambivalence toward death. Humane Med 1994;10:177-183.
20. Kristjanson LJ: Generic Versus Specific Palliative Care Services. Report prepared for the Health Care Issues Directorate; Health Canada, 1997.
21. Vachon MLS, Freedman K, Formo A: The final illness in cancer: the widow's perspective. Can Med J Assoc 1997;117:1151.
22. Benner P, Wrubel J: The Primacy of Caring: Stress and Coping in Health and Illness. Menlo Park, CA: Addison-Wesley, 1989, 256-308.
23. Meares CJ: Primary caregiver perceptions of intake cessation in patients who are terminally ill. Oncol Nurs Forum 1997;24:1751-1757.
24. Welch D: Planning nursing interventions for family members of adult cancer patients. Cancer Nurs 1981; 4:365-369.
25. Kristjanson LJ, Sloan JA, Dudgeon D, Adaskin E: Family members' perceptions of palliative care: Predictors of family functioning and family members' health. J Palliat Care 1996;12:10-20.
26. Cassileth BR, Lusk E, Strouse TB, Miller D, Brown L, Cross P: A psychological analysis of cancer patients and their next-of-kin. Cancer 1985;55:72-76.
27. Kristjanson LJ: Indicators of quality care from a family perspective. J Palliat Care 1986;2:8-17.
28. Lynn J (ed): By No Extraordinary Means: The Choice to Forgo Life-sustaining Food and Water. Bloomington, IL: Indianapolis Press, 1989.
29. Helwar PK: Critical Nurse Behaviours in Care of the Adult Dying of Cancer in the Community [master's thesis]. University of Manitoba, 1995.
30. McClement SE, Degner LF: Expert nursing behaviours in care of the dying adult in the intensive care unit. Heart Lung 1993;24:408-419.
31. Degner LF, Gow CM: Preparing nurses for care of the dying. Cancer Nurs 1988;11:160-169.
32. Lobchuk M: Humanistic reflections of a research nurse in a longitudinal study: A personal essay. Can Oncol Nurs J 1999;9:71-73.
33. Breu C, Dracup K: Helping the spouses of critically ill patients. Am J Nurs 1978;78:50-53.
34. Haggmark C: Attitudes to increased involvement of relatives in the care of cancer patients: evaluation of an activation program. Cancer Nurs 1990;13:39-47.
35. Lewandowski W, Jones SL: The family with cancer: nursing interventions throughout the course of living with cancer. Cancer Nurs 1988;11:313-321.
36. Herth K: Hope in the family caregiver of terminally ill people. J Adv Nurs 1993;18:538-548.
37. Greisinger AJ, Lorimor RJ, Aday LA, Winn RJ, Baile WF: Terminally ill cancer patients: their most important concerns. Cancer Pract 1997;5:147-154.
38. Harbeck JE: Critical Nursing Behaviours in Care for the Dying on Adult Medical Units [master's thesis]. University of Manitoba, 1995.
39. Weisman AD: On Dying and Denying: A Psychiatric Study of Terminality. New York: Behavioral Publications, 1972.
40. Mays N, Pope C: Qualitative research: Observational methods in health care settings. BMJ 1995;311:182-184.
41. McSweeney JC, Allan JD, Mayo K: Exploring the use of explanatory models in nursing research and practice. Image J Nurs Scholarship 1997;29:243-248.
42. Kleinman AM, Eisenberg L, Good B: Culture, illness, and care: clinical lessons from anthropologic and cross-cultural research. Ann Intern Med 1978;88:251-258.
43. Bravata DM, Rastegar A, Horowitz RE: How do women make decisions about hormone replacement therapy? Am J Med 2002;113:22-29.
44. Hall P, Stone G, Fiset VJ: Palliative care: How can we meet the needs of our multicultural communities? J Palliat Care 1998;14:46-49.