Hospice utilization and end-of-life care decision making of African Americans

American Journal of Hospice and Palliative Medicine

Volumn 27, Issue 8, 2010, Pages 560-566

  Mazanec, Polly M ^a,b   Daly, Barbara J ^a   Townsend, Aloen ^c  

^a CASE WESTERN RESERVE UNIVERSITY   (United States)

^b UNIVERSITY HOSPITALS OF CLEVELAND   (United States)

^c CASE WESTERN RESERVE UNIVERSITY   (United States)

Author keywords

African American community; end of life decision making; family systems theory; hospice utilization

Indexed keywords

AFRICAN AMERICAN; ATTITUDE TO HEALTH; CULTURAL COMPETENCE; DECISION MAKING; ETHNOLOGY; HEALTH CARE DISPARITY; HOSPICE; HUMAN; HUMAN RELATION; PSYCHOLOGICAL MODEL; REVIEW; TERMINAL CARE; TRUST; UNITED STATES; UTILIZATION REVIEW;

AFRICAN AMERICANS; ATTITUDE TO HEALTH; CULTURAL COMPETENCY; DECISION MAKING; HEALTHCARE DISPARITIES; HOSPICES; HUMANS; MODELS, PSYCHOLOGICAL; PROFESSIONAL-FAMILY RELATIONS; TERMINAL CARE; TRUST; UNITED STATES;

EID: 78249251218     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049909110372087     Document Type: Review

References (42)

1. The SUPPORT Principal Investigators. A controlled trial to improve care for seriously ill hospitalized patients. JAMA. 1995;274(20):1591-1598.
2. Cohen L. Racial/ethnic disparities in hospice care: a systematic review. J Palliat Med. 2008;11(5):763-768.
3. Rosenfeld P., Dennis J., Hanen S.,et al.Are there racial differences in attitudes toward hospice care? A study of hospice-eligible patients at the visiting nurse service of New York. Am J Hosp Palliat Med. 2007;24(5):408-416.
4. NHPCO Facts and Figures: Hospice Care in America, 2008. http://www.nhpco.org/files/public/statistics_research/NHPCO_facts_and_figures.pdf.AccessedMarch20,2010.
5. WHO Definition of Palliative Care. https://www.who.int/cancer/palliative/definition/en/.AccessedMarch20,2010.
6. Colon M., Lyke J. Comparison of hospice use and demographics among European Americans, African Americans, and Latinos. Am J Hosp Palliat Care. 2003;20(3):182-190.
7. Griener KA, Perera S., Ahulawalia JS Hospice usage by minorities in the last year of life: results from the National Mortality Followback Survey. J Am Geriatr Soc. 2003;51():970-978.
8. Krakauer E., Creneer C., Fox K. Barriers to optimum end-of-life care for minority patients. J Am Geriatr Soc. 2002;50(1):182-190.
9. Bach P., Schrag D., Brawley O., Galaznik A., Yaken S., Begg C. Survival of blacks and whites after a cancer diagnosis. JAMA. 2002;287(16):2106-2113.
10. NCI. http://crchd.cancer.gov/.AccessedMarch20,2010.
11. Payne R., Medina E., Hampton JW. Quality of life concerns in patients with breast cancer. Cancer. 2003;97(1 suppl): 311-317.
12. Smedley B., Stith A., Nelson A. Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care (Report of the Institute of Medicine). Washington, DC: National Academy Press; 2003.
13. Gross CP, Smith BD, Wolf E., Andersen M. Racial disparities in cancer therapy: did the gap narrow between 1992 and 2002? Cancer. 2008;112(4):900-908.
14. Shugarman LR, Mack K., Sorbero ME,et al.Race and sex differences in the receipt of timely and appropriate lung cancer treatment. Med Care. 2009;47(7):774-781.
15. Murthy V., Krumholz H., Gross C. Participation in cancer clinical trials: race, sex, and age-based disparities. JAMA. 2004;291(22): 2720-2726.
16. Gamble VN Under the shadow of Tuskegee: African Americans and health care. Am J Public Health. 1997;87(11):1773-1778.
17. Dula A. African American suspicion of the healthcare system is justified: what do we do about it? Camb Q Healthc Ethics. 1994; 3(3):347-357.
18. Kagawa-Singer M., Blackhall L. Negotiating cross-cultural issues at the end of life. JAMA. 2001;286(23):2993-3001.
19. Brandt AM Racisim and research: the case of the Tuskegee syphilis study. Hastings Cent Rep. 1978;8(6):21-29.
20. Bullock K., McGraw SA, Blank K., Bradley EH What matters to older African Americans facing end-of-life decisions? A focus group study. J Soc Work End Life Palliat Care. 2005;1(3):3-18.
21. Cort MA Cultural mistrust and use of hospice care: challenges and remedies. J Palliat Med. 2004;7(1):63-71.
22. Crawley L., Payne R., Bolden J., Payne T., Washington P., Williams S. Palliative and end-of-life care in the African American community. JAMA. 2000;284(19):2518-2521.
23. Johnson K., Kuchibhatal M., Tanis D., Tulsky J. Racial differences in hospice revocation to pursue aggressive care. Arch Intern Med. 2008;168(2):218-224.
24. Torke AM, Garas NS, Sexson W., Branch WT Medical care at the end of life: views of African American patients in an urban hospital. J Palliat Med. 2005;8(3):593-602.
25. Bernabei R., Gambassi G., Lapane K.,et al.Management of pain in elderly patients with cancer. JAMA. 1998;279(23):1877-1882.
26. Cleeland C., Gonin R., Hatfield A.,et al.Pain and its treatment in outpatients with metastatic cancer. N Engl J Med. 1999; 330(9): 592-596.
27. Anderson K., Mendoza T., Valero V., Richman S., Russell C., Hurley J. Minority cancer patients and their providers: pain management attitudes and practice. Cancer. 2000;88(8): 1929-1938.
28. van Ryn M., Burke J. The effect of patient race and socio-economic status on physicians' perceptions of patients. Soc Sci Med. 2000; 50(6):813-828.
29. Morrison RS, Wallenstein S., Natale D., Senzel RS, Huang LL "We don't carry that"-failure of pharmacies in predominantly nonwhite neighborhoods to stock opioid analgesics. N Engl J Med. 2000;342(14):1023-1026.
30. Taxis JC Attitudes, values, and questions of African Americans regarding participation in hospice programs. J Hosp Palliat Nurs. 2006;8(3):77-85.
31. Crawley L., Marshall P., Lo B., Koenig B. Strategies for culturally effective end-of-life care. Ann Inter Med. 2002;136(9):673-679.
32. Kwak J., Haley W. Current research findings on end-of-life decision making among racially or ethnically diverse groups. Gerontologist. 2005;45(5):634-641.
33. Hines P. The American lifecycle of African American families living in poverty. In: Carter B, McGoldrick M, eds. The Expanded Family Life Cycle, Individual, Family, and Social Perspectives. 3rd ed. Boston, MA: Allyn & Bacon/ Pearson Education; 2005: 327-343.
34. Hines P., Preto N., McGoldrick M., Almeida R., Weltman S. Culture and the family life cycle. In: Carter B, McGoldrick M, eds. The Expanded Family Life Cycle, Individual, Family, and Social Perspectives. 3rd ed. Boston, MA: Allyn & Bacon/Pearson Education; 2005:69-87.
35. Jenkins C., Lapelle N., Zapka JG, Kurent JE End-of-life care and African Americans: voices from the community. J Palliat Med. 2005;8(3):585-591.
36. Hines P., Boyd-Franklin N. African American families. In: McGoldrick M, Giorano J, Pearce JK, eds. The Expanded Family Life Cycle: Individual, Family, & Community Perspectives. Boston, MA: Allyn & Bacon.
37. Ersek M., Kagawa-Singer M., Barnes D., Blackhall L., Koenig B. Multicultural considerations in the use of advanced directive. Oncol Nurs Forum. 1998;25(10):1683-1689.
38. Hern H., Koenig B., Moore L., Marshall P. The differences culture can make in end-of-life decision-making. Camb Q Healthc Ethics. 1998;7(1):27-40.
39. Branch W., Torke A., Brown-Haithco. The importance of spirituality in African Americans' end-of-life experience. J Gen Intern Med. 2006;21(11):1203-1205.
40. Holt CL, Caplan L., Schulz E.,et al.Role of religion in cancer coping among African Americans: a qualitative examination. J Psychosoc Oncol. 2009;27(2):248-73.
41. Winter L., Dennis M., Parker B. Religiosity and preferences for life-prolonging medical treatments in African-American and white elders: a mediation study. Omega. 2007;56(3):273-288.
42. Zoucha R. The keys to culturally sensitive care. Am J Nurs. 2000; 100(2):24GG-24II.