Prospective study of health-related quality of life and restorative proctocolectomy in children

Diseases of the Colon and Rectum

Volumn 53, Issue 10, 2010, Pages 1388-1392

  Lillehei, Craig W ^a   Masek, Bruce J ^b   Shamberger, Robert C ^a  

^a BOSTON CHILDREN S HOSPITAL   (United States)

^b MASSACHUSETTS GENERAL HOSPITAL   (United States)

Author keywords

Health related Quality of Life; Pediatric; Restorative proctocolectomy; Ulcerative colitis

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CLINICAL ARTICLE; COLON RESECTION; CONTROLLED STUDY; FAMILIAL COLON POLYPOSIS; FEMALE; HUMAN; MALE; MENTAL HEALTH; OUTCOME ASSESSMENT; PROCTOCOLECTOMY; PROSPECTIVE STUDY; QUALITY OF LIFE; SCHOOL CHILD; SHORT FORM 36; ULCERATIVE COLITIS; AGE; COLON POLYPOSIS; FOLLOW UP; HEALTH SURVEY; PSYCHOLOGICAL ASPECT; SOCIAL BEHAVIOR; TREATMENT OUTCOME;

ADENOMATOUS POLYPOSIS COLI; ADOLESCENT; AGE FACTORS; CHILD; COLITIS, ULCERATIVE; FEMALE; FOLLOW-UP STUDIES; HEALTH SURVEYS; HUMANS; MALE; PROCTOCOLECTOMY, RESTORATIVE; PROSPECTIVE STUDIES; QUALITY OF LIFE; SOCIAL BEHAVIOR; TREATMENT OUTCOME;

EID: 78049373831     PISSN: 00123706     EISSN: 15300358     Source Type: Journal    
DOI: 10.1007/DCR.0b013e3181e8efc5     Document Type: Article

References (23)

1. Lillehei C, Leichtner A, Bousvaros A, et al. Restorative proctocolectomy and ileal pouch-anal anastomosis in children. Dis Colon Rectum. 2009;52:1645-1649.
2. Shamberger R, Masek B, Leichtner A, et al. Quality of life assessment following ileoanal pullthrough for ulcerative colitis and familial adenomatous polyposis. J Pediatr Surg. 1999;34:163-166.
3. Ware J, Kosinski M, Dewey J. How to Score Version Two of the SF-36 Health Survey. Lincoln, RI: Quality Metric, Inc.; 2000.
4. Ware JE, Snow KK, Kosinski M, Gandek B. SF-36 Health Survey Manual and Interpretation Guide. Boston, MA: New England Medical Center, The Health Institute; 1993.
5. Fry E. A readability formula that saves time. J Reading. 1968;11: 265-271.
6. Landgraf J, Ware J. Child Life Questionnaire: A User's Manual. Boston, MA: New England Medical Center, The Health Institute; 1996.
7. Raat H, Bonsel G, Essink-Bot M, et al. Reliability and validity of comprehensive health status measures in children: the child health questionnaire in relation to the health utilities index. J Clin Epidemiol. 2002;55:67-76.
8. Carmon E, Keidar A, Ravid A, et al. The correlation between quality of life and functional outcome in ulcerative colitis patients after proctocolectomy ileal pouch anal anastomosis. Colorectal Dis. 2003;5:228-232.
9. Delaney C, Fazio V, Remzi F, et al. Prospective, age-related analysis of surgical results, functional outcome, and quality of life after ileal pouch-anal anastomosis. Ann Surg. 2003;238:221-228.
10. Fazio V, O'Riordain M, Lavery I, et al. Long-term functional outcome and quality of life after stapled restorative proctocolectomy. Ann Surg. 1999;230:575-584.
11. Robb B, Pritts T, Gang G, et al. Quality of life in patients undergoing ileal pouch-anal anastomosis at the University of Cincinnati. Am J Surg. 2002;183:353-360.
12. Davies R, Chir M, O'Connor B, et al. A prospective evaluation of sexual function and quality of life after ileal pouch-anal anastomosis. Abst Colorectal Dis. 2008:1032-1035.
13. Thirlby R, Sobrino M, Randall J. The long-term benefit of surgery on health-related quality oflife in patients with inflammatory bowel disease. Arch Surg. 2001;136:521-527.
14. Muir A, Edwards L, Sanders L, et al. A prospective evaluation of health-related quality of life after ileal pouch anal anastomosis for ulcerative colitis. Am J Gastroenterol. 2001;96:1480-1485.
15. Farouk R, Pemberton J, Wolff B, et al. Functional outcomes after ileal pouch-anal anastomosis for chronic ulcerative colitis. Ann Surg. 2000;231:919-926.
16. Stavlo P, Libsch K, Rodeberg D, et al. Pediatric ileal pouch-anal anastomosis: functional outcomes and quality of life. J Pediatr Surg. 2003;38:935-939.
17. Wewer V, Hesselfeldt P, Qvist N, et al. J-pouch ileoanal anastomosis in children and adolescents with ulcerative colitis: functional outcome, satisfaction and impact on social life. J Pediatr Gastroenterol Nutr. 2005;40:189-193.
18. Pakarinen M, Natunen J, Ashorn M, et al. Long-term outcomes of restorative proctocolectomy in children with ulcerative colitis. Pediatrics. 2009;123:1377-1382.
19. Larson D, Dozois R, Piotrowicz K, et al. Laparoscopic-assisted vs open ileal pouch-anal anastomosis: functional outcome in a case-matched series. Dis Colon Rectum. 2005;48:1845-1850.
20. Polle S, Dunker M, Slors J, et al. Body image, cosmesis, quality of life, and functional outcome of hand-assisted laparoscopic versus open restorative proctocolectomy: long-term results ofa randomized trial. SurgEndosc. 2007;21:1301-1307.
21. Clarke S, Eiser C. The measurement of health-related quality of life (QOL) in paediatric clinical trials: a systematic review. Health Qual Life Outcomes. 2004;2:66-70.
22. Turner D, Otley A, Mack D, et al. Development, validation, and evaluation of a pediatric ulcerative colitis activity index: a prospective multicenter study. Gastroenterology. 2007;133:423-432.
23. Turner D, Hyams J, Markowitz J, et al. Appraisal of the pediatric ulcerative colitis activity index (PUCAI). Inflamm Bowel Dis. 2009;15:1218-1223.