Frontotemporal dementias: Development of an integrated care pathway through an experiential survey of patients and carers

International Journal of Care Pathways

Volumn 14, Issue 2, 2010, Pages 65-69

  Davies, M ^a   Larner, A J ^a  

^a WALTON CENTRE FOR NEUROLOGY AND NEUROSURGERY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 77958170471     PISSN: 20404026     EISSN: 20404034     Source Type: Journal    
DOI: 10.1258/jicp.2010.010010     Document Type: Article

References (45)

1. American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders. 4th edn, text revision (DSM-IV-TR). Washington: American Psychiatric Association, 2000
2. Kurlan R, ed. Handbook of Secondary Dementias. New York: Taylor & Francis, 2006
3. Larner AJ. Neuropsychological Neurology: The Neurocognitive Impairments of Neurological Disorders. Cambridge: Cambridge University Press, 2008
4. Naidoo M, Bullock R. An Integrated Care Pathway for Dementia. Best Practice for Dementia Care. London: Mosby International, 2001
5. Larner AJ. Integrated care pathways in dementia: challenge to National Institute for Health and Clinical Excellence/Social Care Institute for Excellence guidance. J Integr Care Pathways 2007;11:95-9
6. Department of Health. Living Well With Dementia: A National Dementia Strategy. London: Department of Health, 2009:22
7. Snowden JS, Neary D, Mann DMA. Fronto-Temporal Lobar Degeneration: Fronto-Temporal Dementia, Progressive Aphasia, Semantic Dementia. Edinburgh: Churchill Livingstone, 1996
8. Hodges JR, ed. Frontotemporal Dementia Syndromes. Cambridge: Cambridge University Press, 2008
9. Neary D, Snowden JS, Gustafson L, et al. Frontotemporal lobar degeneration: a consensus on clinical diagnostic criteria. Neurology 1998;51: 1546-54
10. McKhann GM, Albert MS, Grossman M, Miller B, Dickson D, Trojanowski JQ. Clinical and pathological diagnosis of frontotemporal dementia. Report of the Work Group on Frontotemporal Dementia and Pick's disease. Arch Neurol 2001;58:1803-9
11. Davies M, Larner AJ. Clinical misdiagnosis of Alzheimer's disease: getting it wrong again. Eur J Neurol 2009;16(Suppl.):351 (abstract 2036)
12. Varma AR, Snowden JS, Lloyd JJ, et al. Evaluation of the NINCDS-ADRDA criteria in the differentiation of Alzheimer's disease and frontotemporal dementia. J Neurol Neurosurg Psychiatry 1999;66:184-8
13. Rosness TA, Haugen PK, Passant U, Engedal K. Frontotemporal dementia - a clinically complex diagnosis. Int J Geriatr Psychiatry 2008;23:837-42
14. Mendez MF, Lauterbach EC, Sampson SM, ANPA Committee on Research. An evidence-based review of the psychopathology of frontotemporal dementia: a report of the ANPA Committee on Research. J Neuropsychiatry Clin Neurosci 2008;20:130-49
15. Mendez MF, Shapira JS, Woods RJ, Licht EA, Saul RE. Psychotic symptoms in frontotemporal dementia: prevalence and review. Dement Geriatr Cogn Disord 2008;25:206-11
16. Larner AJ. Delusion of pregnancy in frontotemporal lobar degeneration with motor neurone disease (FTLD/MND). Behav Neurol 2008;19: 199-200
17. Larner AJ. Neurologists still have a role in the dementia care pathway. Clin Med 2007;7:528-9
18. Sathasivam S, Doran M, Larner AJ. Frontotemporal lobar degeneration with motor neurone disease (FTLD/MND): presentations in psychiatric practice. Int J Psychiatry Clin Pract 2008;12:138-41
19. Larner AJ. Impact of NICE/SCIE dementia guidelines in a neurology-led memory clinic. Clin Med 2009;9:197-8
20. Larner AJ. Intrafamilial clinical phenotypic heterogeneity with MAPT gene splice site IVS10+ 16C.T mutation. J Neurol Sci 2009;287:253-6
21. Larner AJ. Awareness and use of complementary therapies for AD. Prog Neurol Psychiatry 2007;11:27,29
22. Bozeat S, Gregory CA, Lambon Ralph MA, Hodges JR. Which neuropsy-chiatric and behavioural features distinguish frontal and temporal variants of frontotemporal dementia from Alzheimer's disease? J Neurol Neurosurg Psychiatry 2000;69:178-86
23. Mathuranath PS, Nestor PJ, Berrios GE, Rakowicz W, Hodges JR. A brief cognitive test battery to differentiate Alzheimer's disease and frontotem-poral dementia. Neurology 2000;55:1613-20
24. Mioshi E, Dawson K, Mitchell J, Arnold R, Hodges JR. The Addenbrooke's Cognitive Examination Revised (ACE-R): a brief cognitive test battery for dementia screening. Int J Geriatr Psychiatry 2006;21:1078-85
25. Pérez-Martinez D, Porta-Etessam J, Anaya B, Puente-Muñoz AI. Digit span index: a new diagnostic tool to differential diagnosis [sic] between Alzheimer's disease and frontotemporal dementia. J Neurol 2006;253(Suppl. 2):II/93 (abstract P364)
26. Siri S, Benaglio I, Frigerio A, Binetti G, Cappa SF. A brief neuropsycholo-gical assessment for the differential diagnosis between frontotemporal dementia and Alzheimer's disease. Eur J Neurol 2001;8:125-32
27. Walker AJ, Meares S, Sachdev PS, Brodaty H. The differentiation of mild frontotemporal dementia from Alzheimer's disease and healthy aging by neuropsychological tests. Int Psychogeriatr 2005;17:57-68
28. Hutchinson AD, Mathias JL. Neuropsychological deficits in frontotem-poral dementia and Alzheimer's disease: a meta-analytic review. J Neurol Neurosurg Psychiatry 2007;78:917-28
29. Bier JC, Ventura M, Donckels V, et al. Is the Addenbrooke's Cognitive Examination effective to detect frontotemporal dementia? J Neurol 2004;251:428-31
30. Larner AJ. Addenbrooke's Cognitive Examination (ACE) for the diagnosis and differential diagnosis of dementia. Clin Neurol Neurosurg 2007;109:491-4
31. Dubois B, Slachevsky A, Litvan I, Pillon B. The FAB: a Frontal Assessment Battery at bedside. Neurology 2000;55:1621-6
32. Kertesz A, Nadkarni N, Davidson W, Thomas AW. The Frontal Behavioural Inventory in the differential diagnosis of frontotemporal dementia. J Int Neuropsychol Soc 2000;6:460-8
33. De Deyn PP, Engelborghs S, Saerens J, et al. The Middelheim Frontality Score: a behavioural assessment scale that discriminates frontotemporal dementia from Alzheimer's disease. Int J Geriatr Psychiatry 2005;20:70-9
34. Wedderburn C, Wear H, Brown J, et al. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry 2008;79:500-3
35. Larner AJ, Hancock P. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. See http://jnnp.bmj.com/cgi/eletters/79/5/500 (last checked 29 May 2008)
36. Barrash J, Anderson SW. The Iowa Rating Scales of Personality Change. Iowa City: University of Iowa, 1993
37. Larner AJ. Can IQCODE differentiate Alzheimer's disease and frontotem-poral dementia? Age Ageing 2010;39:392-4
38. Larner AJ. 'Frontal variant Alzheimer's disease': a reappraisal. Clin Neurol Neurosurg 2006;108:705-8
39. Taylor KI, Probst A, Miserez AR, Monsch AU, Tolnay M. Clinical course of neuropathologically confirmed frontal variant Alzheimer's disease. Nat Clin Pract Neurol 2008;4:226-32
40. Larner AJ, Doran M. Genotype-phenotype relationships of presenilin-1 mutations in Alzheimer's disease: an update. J Alzheimers Dis 2009;14:259-65
41. Doran M, du Plessis DG, Ghadiali EJ, Mann DMA, Pickering-Brown S, Larner AJ. Familial early-onset dementia with tau intron 10 + 16 mutation with clinical features similar to those of Alzheimer disease. Arch Neurol 2007;64:1535-9
42. Larner AJ. Mutation negative 'early-onset familial Alzheimer disease': consider screening for tau gene mutations. Alzheimer Dis Assoc Disord 2008;22:194-5
43. Larner AJ. A 50-year-old man with deteriorating cognitive function and impaired movement. PLoS Med 2009;6:e19
44. Rascovsky K, Hodges JR, Kipps CM, et al. Diagnostic criteria for the behavioural variant of frontotemporal dementia (bvFTD): current limitations and future directions. Alzheimer Dis Assoc Disord 2007;21:S14-8
45. Blass DM. Frontotemporal dementia. In: Lyketsos CG, Rabins PV, Lipsey JR, Slavney PR, eds. Psychiatric Aspects of Neurologic Diseases. Practical Approaches to Patient Care. New York: Oxford University Press, 2008:235-50