Differences in the execution/ nonexecution of advance directives by community dwelling adults

Research in Nursing and Health

Volumn 23, Issue 4, 2000, Pages 319-333

  DeLuca Havens, Gail Ann ^a  

^a PENNSYLVANIA STATE UNIVERSITY   (United States)

Author keywords

Decisional capacity; Durable powers of attorney for health care; Living wills; Mail survey; Patient self determination act; Stages of change model

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO DEATH; DECISION MAKING; FEMALE; FREEDOM; HUMAN; LIVING WILL; MALE; MIDDLE AGED; MORALITY; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; SOCIOECONOMICS; UNITED STATES;

ADULT; ADVANCE DIRECTIVES; AGED; AGED, 80 AND OVER; ATTITUDE TO DEATH; DECISION MAKING; FEMALE; FREEDOM; HUMANS; MALE; MIDDLE AGED; MODELS, PSYCHOLOGICAL; MORALS; SOCIOECONOMIC FACTORS; VERMONT;

EID: 0034241949     PISSN: 01606891     EISSN: None     Source Type: Journal    
DOI: 10.1002/1098-240x(200008)23:4<319::aid-nur8>3.0.co;2-6     Document Type: Article

References (63)

1. Ballam, E. (1994, April 28). With Nixon's passing, interest in living wills renewed. Valley News. p. A11.
2. Beauchamp, T.L., & Childress, J.F. (1994). Principles of biomedical ethics (4th ed.). New York: Oxford University Press.
3. Callahan, D. (1996). Controlling the costs of health care for the elderly - Fair means and foul. The New England Journal of Medicine, 335, 744-746.
4. Churchill, J. (1989). Advance directives: Beyond respect for freedom. In C. Hackler, R. Moseley, & D.E. Vawter (Eds.), Advance directives in medicine (pp. 171-179). New York: Praeger.
5. Colenda, C., Jensen, M., Foster, J., Kendrick, B., Mewhinney. K., & Messick, C. (1998). Variables predicting the completion of advance directives by older adults. Annals of Long Term Care, 6(3), 83-91.
6. Department of Health and Human Services. (1992). Medicare and Medicaid programs: advance directives. Federal Register, 57, 8194-8204.
7. Dexter, P.R., Wolinsky, F.D., Gramelspacher, G.P., Zhou, X., Eckert, G.J., Waisburd, M., & Tierney, W.M. (1998). Effectiveness of computer-generated reminders for increasing discussions about advance directives and completion of advance directive forms: A randomized, controlled trial. Annals of Internal Medicine, 128, 102-110.
8. DiClemente, C.C., Prochaska, J.O., Fairhurst, S.K., Velicer, W.F., Velasquez, M.M., & Rossi, J.S. (1991). The process of smoking cessation: An analysis of precontemplation, contemplation, and preparation stages of change. Journal of Consulting and Clinical Psychology, 59, 295-304.
9. Duffield, P., & Podzamsky, J.E. (1996). The completion of advance directives in primary care. The Journal of Family Practice, 42, 378-384.
10. Emanuel, E.J., Weinberg, D.S., Gonin, R., Hummel, L.R., & Emanuel, L.L. (1993). How well is the Patient Self-Determination Act working?: An early assessment. The American Journal of Medicine, 95, 619-628.
11. Emanuel, L.L., Barry, M.J., Stoeckle, J.D., Ettelson, L.M., & Emanuel, E.J. (1991). Advance directives for medical care - A case for greater use. The New England Journal of Medicine, 324, 889-895.
12. Fine, R.L. (1991). Personal choices - communication among physicians and patients when confronting critical illness. Texas Medicine/The Journal, 87(9), 76-82.
13. Fischer, G.S., Tulsky, J.A., Rose, M.R., Siminoff, L.A., & Arnold, R.M. (1998). Patient knowledge and physician predictions of treatment preferences after discussion of advance directives. Journal of General Internal Medicine, 13, 447-454.
14. Forsyth, B.H., & Lessler, J.T. (1991). Cognitive laboratory methods: A taxonomy. In PB. Biemer, R.M. Groves, L.E. Lyberg, N.A. Mathiowetz, & S. Sudman (Eds.), Measurement errors in surveys (pp. 393-418). New York: Wiley.
15. Fowler, F.J., Jr. (1993). Survey research methods (2nd ed.). Newbury Park, CA: Sage.
16. Galambos, C.M. (1998). Preserving end-of-life autonomy: The Patient Self-Determination Act and the Uniform Health Care Decisions Act. Health & Social Work, 23, 275-281.
17. Gallup, G., & Newport, F. (1991, January 6). Mirror of America: Fear of dying. The Gallup Poll News Service, 5, 1-6.
18. Gambetta, D. (1988). Can we trust trust? In D. Gambetta (Ed.), Trust: Making and breaking cooperative relations (pp. 213-237). Oxford, UK: Basil Blackwell.
19. Glock, C.Y. (1958). The religious revival in America? In J.C. Zahn (Ed.), Religion and the face of America (pp. 25-42). Berkeley, CA: University Extension, University of California.
20. Gordon, N.P., & Shade, S.B. (1999). Advance directives are more likely among seniors asked about end-of-life care preferences. Archives of Internal Medicine, 159, 701-704.
21. High, D.M. (1993). Why are elderly people not using advance directives. Journal of Aging and Health, 5, 497-515.
22. Hines, S.C., Glover, J.J., Holley, J.L., Babrow, A.S., Badzek, L.A., & Moss, A.H. (1999). Dialysis patients' preferences for family-based advance care planning. Annals of Internal Medicine, 130, 825-828.
23. Janis, I.L., & Mann, L. (1977). Decision making: A psychological analysis of conflict, choice, and commitment, New York: Free Press.
24. Johnston, S.C., Pfeifer, M.P., & McNutt, R., for the End of Life Study Group. (1995). The discussion about advance directives: Patient and physician opinions regarding when and how it should be conducted. Archives of Internal Medicine, 155, 1025-1030.
25. King, N.M.P. (1991). Making sense of advance directives. Dordrecht, The Netherlands: Kluwer Academic.
26. King, N.M.P. (1996). Making sense of advance directives (Rev. ed.). Washington, DC: Georgetown University Press.
27. Kittay, E.F., & Meyers, D.T. (1987). Introduction. In E.F. Kittay & D.T. Meyers (Eds.), Women and moral theory (pp. 3-16). Savage, MD: Rowman & Littlefield.
28. Kviz, F.J., & Flaskerud, J.H. (1984). An evaluation of the Index of Medical Underservice: Results from a rural consumer survey. Medical Care, 22, 877-889.
29. Landry, F.J., Krienke, K., & Lucas, C. (1997). Increasing the use of advance directives in medical outpatients. Journal of General Internal Medicine, 12, 412-415.
30. Lavrakas, P.J. (1993). Telephone survey methods: Sampling, selection, and supervision. Newbury Park, CA: Sage.
31. Leming, M.R. (1979-80). Religion and death: A test of Homans' thesis. Omega, 10, 347-364.
32. Leming, M.R., & Dickinson, G.E. (1985). Understanding dying, death, and bereavement. New York: Holt, Reinhart and Winston.
33. Leming, M.R., & Dickinson, G.E. (1990). Understanding dying, death, and bereavement (2nd ed.). New York: Holt, Reinhart and Winston.
34. Lepkowski, J.M. (1988). Telephone sampling methods in the United States. In R.M. Groves, P.P. Biemer, L.E. Lyberg, J.T. Massey, W.L. Nicholls II, & J. Waksberg (Eds.), Telephone survey methodology (pp. 73-98). New York: Wiley.
35. Mansell, D., Kazis, L., Glantz, L., & Heeren, T. (1999). Roles of physicians, attorneys, and illness experience in advance directives. Southern Medical Journal, 92, 197-203.
36. Meier, D.E., Gold, G., Mertz, K., Taylor, B., Cammer-Paris, B.E., Seckler, A., & Mulvihill, M. (1996). Enhancement of proxy appointment for older persons: Physician counselling in the ambulatory setting. Journal of the American Geriatrics Society, 44, 37-43.
37. Meyer, M.S., Altmaier, E.M., & Burns, C.P., (1992). Religious orientation and coping with cancer. Journal of Religion and Health, 35, 273-279.
38. Microsoft Word [Computer software]. (1991). Redmond, WA: Microsoft (Version 5.0).
39. Miles, S.H., Koepp, R., & Weber, E.P. (1996). Advance end-of-life treatment planning: A research review. Archives of Internal Medicine, 156, 1062-1068.
40. Murphy, S.T., Palmer, J.M., Azen, S., Frank, G., Michel, V., & Blackhall, L.J. (1996). Ethnicity and advance directives. Journal of Law, Medicine & Ethics, 24, 108-117.
41. Nixon and Onassis deaths move public toward advance directives. (1994, July/August). Hospital Ethics, 10(4), 7.
42. Ott, B.B., & Hardie, T.L. (1997). Readability of advance directive documents. Image: Journal of Nursing Scholarship, 29, 53-57.
43. Prochaska, J.O., & DiClemente, C.C. (1983). Stages and processes of self-change of smoking: Toward an integrative model of change. Journal of Consulting and Clinical Psychology, 51, 390-395.
44. Prochaska, J.O., & DiClemente, C.C. (1984). The transtheoretical approach: Crossing traditional boundaries of therapy. Homewood, IL: Dow Jones-Irwin.
45. Prochaska, J.O., DiClemente, C.C. & Norcross, J.C. (1992). In search of how people change: Applications to addictive behavior. American Psychologist, 47, 1102-1114.
46. Prochaska, J.O., Velicer, W.F., Guadagnoli, E., Rossi, J.S., & DiClemente, C.C. (1991). Patterns of change: Dynamic typology applied to smoking cessation. Multivariate Behavioral Research, 26(1), 83-107.
47. Rich, B.A. (1998). Advance directives: The next generation. The Journal of Legal Medicine, 19, 63-97.
48. Robinson, M.K., DeHaven, M.J., & Koch, K.A. (1993). Effects of the Patient Self-Determination Act on patient knowledge and behavior. The Journal of Family Practice, 37, 363-368.
49. Rohrbaugh, J., & Jessor, J. (1975). Religiosity in youth: A personal control against deviant behavior. Journal of Personality, 43, 136-155.
50. Sabatino, C.P. (1993). Surely the Wizard will help us, Toto? Implementing the Patient Self-Determination Act. Hastings Center Report, 23(1), 12-16.
51. Stelter, K.L., Elliott, B.A., & Bruno, C.A., (1992). Living will completion in older adults. Archives of Internal Medicine, 152, 954-959.
52. Stevens, J. (1992). Applied multivariate statistics for the social sciences (2nd ed.). Hillsdale, NJ: Lawrence Erlbaum.
53. Sulmasy, D.P., Terry, P.B., Weisman, C.S., Miller, D.J., Stallings, R.Y., Vettese, M.A., & Haller, K.B. (1998). The accuracy of substituted judgments in patients with terminal diagnoses. Annals of Internal Medicine, 128, 621-629.
54. Teno, J.M., Nelson, H.L., & Lynn, J. (1994). Advance care planning: Priorities for ethical and empirical research. Hastings Center Report, 24(6), S32-S36.
55. Tulsky, J.A., Fischer, G.S., Rose, M.R., & Arnold, R.M. (1998). Opening the black box: How do physicians communicate about advance directives? Annals of Internal Medicine, 129, 441-449.
56. Tyler, B.A., Perry, M.J., Lofton, T.C., & Millard, F. (1997). The quest to die with dignity: An analysis of Americans' values, opinions and attitudes concerning end-of-life care. Appleton, WI: American Health Decisions.
57. U.S. Bureau of the Census. (1992a). 1990 Census of population: General population characteristics: Vermont. (U. S. Department of Commerce Publication No. CP-1-47). Washington, DC: U.S. Government Printing Office.
58. U.S. Bureau of the Census. (1992b). 1990 Census of population and housing: Population and housing characteristics for Congressional Districts of the 103rd Congress: Vermont. (U.S. Department of Commerce Publication No. CPH-4-47). Washington, DC: U.S. Government Printing Office.
59. U.S. Bureau of the Census. (1994). Statistical abstract of the United States: 1994 (114th ed.). Washington, DC: U.S. Government Printing Office.
60. U.S. General Accounting Office. (1995). Report to the ranking minority member, Subcommittee on Health, Committee on Ways and Means, House of Representatives. Patient Self-Determination Act: Providers offer information on advance directives but effectiveness uncertain (GAO/HEHS Publication No. 95-135). Washington, DC: Author.
61. Vermont Ethics Network. (1997). Vermont voices on care of the dying. Montpelier, VT: Author.
62. Waltz, C.F., Strickland, O.L., & Lenz, E.R. (1991). Measurement in nursing research (2nd ed)., Philadelphia: F.A. Davis.
63. Winland-Brown, J.E. (1998). Death, denial, and defeat: Older patients and advance directives. Advanced Practice Nursing Quarterly, 4(2), 36-40.