Palliative care for people with advanced dementia: The need for a collaborative, evidence-based approach

Alzheimer's Care Quarterly

Volumn 7, Issue 1, 2006, Pages 49-57

  Hancock, Karen ^a   Chang, Esther ^b   Johnson, Amanda ^b   Harrison, Kathleen ^c   Daly, John ^b   Easterbrook, Sally ^c   Noel, Michael ^c   Luhr Taylor, Megan ^d   Davidson, Patricia M ^c  

^a UNIVERSITY OF SYDNEY   (Australia)

^b UNIVERSITY OF WESTERN SYDNEY   (Australia)

^c SYDNEY SOUTH WEST AREA HEALTH SERVICE   (Australia)

^d Sydney West Area Health Services   (Australia)

Author keywords

Advanced dementia; Evidence based guidelines; Improving quality of care palliative care

Indexed keywords

EID: 33745660773     PISSN: 15253279     EISSN: 15503240     Source Type: Journal    
DOI: None     Document Type: Conference Paper

References (53)

1. Moss MB, Braunschweig HM, Rubinstein RL. Terminal care for nursing home residents with dementia. Alz Care Q. 2002;3:233-246.
2. Shuster J. Palliative care for advanced dementia. Clin Geriatr Med. 2000;17:377-391.
3. Smith S. Dementia. In: Dahlin C, ed. Treatment of End Stage Non-Cancer Diagnoses. Pittsburgh, Pa: Hospice and Palliative Nurses Association; 2000:63-66.
4. Luddington L, Cox S, Higginson I, Livesley B. The need for palliative care for patients with non-cancer diseases: a review of the evidence. Int J Palliat Nurs. 2001;7:221-226.
5. Stevens J, McFarlane J, Stirling K. Ageing and dying. In: Kellehear A, ed. Death and Dying in Australia. Melbourne: Oxford University Press; 2001:173-189.
6. Ahronheim J, Morrison R, Morris J, Baskin S, Meier D. Palliative care in advanced dementia: a randomised controlled trial and descriptive analysis. J Palliat Med. 2000;3:265-273.
7. World Health Organization. National Cancer Control Programmes: Policies and Managerial Guidelines. Geneva: World Health Organization; 2002.
8. Aminoff B, Adunsky A. Dying dementia patients: too much suffering, too little palliation. Am J Alzheimer's Dis Demen. 2004;19:243-247.
9. Head B. Hospice today. End-stage dementia: hospice offers expert interdisciplinary care for end-stage dementia. Home Healthc Nurse. 2003;21:150-151.
10. Franks P, Salisbury C, Bosanquet N, et al. The level of need for palliative care: a systematic review of the literature. Palliat Med. 2000;14:93-104.
11. Zerzan J, Stearns S, Hanson L. Access to palliative care and hospice care in nursing homes. JAMA. 2000;284:2489-2494.
12. Brancati F, Chow J, Wagener MM, Vacarello SJ, Yu VL. Is pneumonia really the old man's friend? Two-year prognosis after community-acquired pneumonia. Lancet. 1993;342:30-33.
13. Fedson D, Waida A, Nicol J, Roos LL. The old man's friend. Lancet. 1993;342:561.
14. Lo R, Woo J. Palliative care in old age. Rev Clin Gerontol. 2001;11:149-157.
15. McAnn R, William J, Groth-Juncker A. Comfort for terminally ill patients: the appropriate use of nutrition and hydration. JAMA. 1994;272:1263-1266.
16. Finucane T, Christmas C, Travis K. Tube feeding in patients with advanced dementia: a review of the evidence. JAMA. 1999;282:1365-1370.
17. Evans B. Improving palliative care in the nursing home: from a dementia perspective. J Hosp Palliat Nurs. 2002;4:91-102.
18. van der Steen J, Ooms M, van der Wal G, Ribbe M. Pneumonia: the demented patient's best friend? Discomfort after starting or withholding antibiotic treatment. JAGS. 2002;50:1681-1688.
19. van der steen J, Kruse R, Ooms M, et al. Treatment of nursing home residents with dementia and lower respiratory tract infection in the United States and the Netherlands: an ocean apart. JAGS. 2004;52:691-699.
20. Volicer L, Cantor M, Derse A, et al. Advance care planning by proxy for residents of long-term care facilities who lack decision-making capacity. JAGS. 2002;50:761-766.
21. Molloy D, Guyatt G, Russo R, et al. Systematic implementation of an advance directive program in nursing homes: a randomized controlled trial. JAMA. 2000;283:1437-1444.
22. Johns J. Advance directives and opportunities for nurses. Image Nurs Sch. 1996;28:149-153.
23. Rubin S, Strull W, Fialkow M, Weiss S, Lo B. Increasing the completion of the durable power of attorney for health care: a randomized, controlled trial. JAMA. 1994;271:209-212.
24. High D. Advance directives and the elderly: a study of intervention strategies to increase use. Gerontologist. 1993;33:342-349.
25. Shore A, Rubin H, Haisfield M, McGuire D, Zabora J, Krun S. Health care providers' and cancer patients' preferences regarding disclosure of information about advance directives. J Psychosoc Oncol. 1993;11:39-53.
26. Bradley E, Peirus V, Wetle T. Discussions about end-of-life care in nursing homes. JAGS. 1998;46:1235-1241.
27. Grbich C, Maddocks I, Parker D, et al. Palliative Care in Aged Care Facilities for Residents With Non-cancer Diagnoses. Adelaide: Department of Palliative and Support Services, School of Medicine, Flinders University; 2003.
28. Hanson L, Danis M, Garrett J. What is wrong with end-of-life care? L Am Geriatr Soc. 1997;45:1339-1344.
29. Hurley A, Volicer L, Rempusheski V, Fry S. Reaching consensus: the process of recommending treatment decisions for Alzheimer's patients. Adv Nurs Sci. 1995;18:33-43.
30. Volicer L, Hurley A, Blasi Z. Characteristics of dementia end-of-life care across care settings. Am J Hosp Palliat Care. 2003;20:191-200.
31. Crawford G, Price S. Team working: palliative care as a model of interdisciplinary practice. MJA. 2003;179:S32-S34.
32. Glare P, Auret K, Aggarwal G, Clark K, Pickstock S, Lickiss J. The interface between palliative medicine and specialists in acute-care hospitals: boundaries, bridges and challenges. MJA. 2003;196:S29-S31.
33. Lloyd-Williams M, Payne S. Can multidisciplinary guidelines improve the palliation of symptoms in the terminal phase of dementia? Int J Palliative Nurs. 2002;(8)8:370-375.
34. Shega J, Levin A, Hougham G, et al. Palliative excellence in Alzheimer care efforts (PEACE): a program description. J Palliat Med. 2003;6:315-320.
35. Kristjanson L, Toye C, Dawson S. New dimensions in palliative care: a palliative approach to neurodegenerative diseases and final illnesses in older people. MJA. 2003;179:S41-S43.
36. Thomas B, Starr J, Whalley L. Death certification in treated cases of presenile Alzheimer's disease and vascular dementia in Scotland. Age Ageing. 1997;26:401-406.
37. Molsa P, Marttila R, Rinne U. Survival and cause of death in Alzheimer's disease and multi-infarct dementia. Acta Neurol Scand. 1986;74:103-107.
38. Morrison R, Siu A. Survival in end-stage dementia following acute illness. JAMA. 2000;284:47-52.
39. Brauner D, Muir J, Sachs G. Treating nondementia illnesses in patients with dementia. JAMA. 2000;283:3230-3235.
40. Volicer L, Rheaume Y, Browne J, Fabiszewski K, Brady R. Hospice approach to the treatment of patients with advanced dementia of the Alzheimer type. JAMA. 1986;256:2210-2213.
41. Luchins D, Hanrahan P. What is appropriate health care for end-stage dementia? JAGS. 1993;41:25-30.
42. Hurley A, Volicer B, Volicer L. Effect of fever-management strategy on the progression of dementia of the Alzheimer type. Alzheimer Dis Assoc Disord. 1996;10:5-10.
43. Kovach C, Wilson S, Noonan P. The effects of hospice interventions on behaviours, discomfort, and physical complications of end stage dementia nursing home residents. Am J Alzheimer's Dis. July/August 1996; 11(4):7-15.
44. Kovach C, Weissman D, Groffie J, Matson S, Muchja S. Assessment and treatment of discomfort for people with late stage dementia. J Pain Symptom Manage. 1999;18:412-419.
45. Fabiszewski K, Volicer B, Volicer L. Effect of antibiotic treatment on outcome of fevers in institutionalised Alzheimer patients. JAMA. 1990;263:3168-3172.
46. Hanrahan P, Luchins D. Access to hospice programs for end-stage dementia: a national survey of hospice programs. JAGS. 1995;43:56-59.
47. The Support Principal Investigators. A controlled trial to improve care for seriously ill hospitalised patients. JAMA. 1995;274:1591-1598.
48. Lloyd-Williams M. An audit of palliative care in dementia. Eur J Cancer Care. 1996;5:53-55.
49. McCarthy M, Addington-Hall J, Altmann D. The experience of dying with dementia: a retrospective study. Int J Geriatric Psych. 1997;12:404-409.
50. Alzheimer's Organisation. The Dementia Epidemic: Economic Impact and Positive Solutions for Australia. Canberra, Australia: Alzheimer's Organisation; 2003.
51. Pearson A. Evidence-based practice in palliative care. In: O'Connor M, Aranda S, eds. Palliative Care Nursing: A Guide to Practice. Melbourne, Australia: Ausmed Publications Pty Ltd; 2003:7-22.
52. Commonwealth Department of Health and Ageing. Guidelines for a Palliative Approach for Residential Aged Care. Canberra, Australia: Commonwealth Department of Health and Ageing; 2004.
53. Paull G, Introna K, Cockburn J, et al. Integrated, collaborative palliative care in heart failure: the St George heart failure service experience 1999-2002. J Cardiovasc Nurs. 2004;19(1):68-74.