What does respite care mean for palliative care service users and carers? Messages from a conceptual mapping

International Journal of Palliative Nursing

Volumn 16, Issue 8, 2010, Pages 388-392

  Wolkowski, Anna ^a,b   Carr, Susan M ^b,c   Clarke, Charlotte L ^b  

^a Clinical Services   (United Kingdom)

^b NORTHUMBRIA UNIVERSITY   (United Kingdom)

^c UNIVERSITY OF NEW ENGLAND   (Australia)

Author keywords

Carers; Concept maps; Palliative care; Person centred care; Public health approach; Relationship centred care; Respite care

Indexed keywords

CAREGIVER; EVIDENCE BASED PRACTICE; HEALTH SERVICE; HOSPICE; HUMAN; NONBIOLOGICAL MODEL; PALLIATIVE THERAPY; PSYCHOLOGY; RESPITE CARE;

CAREGIVERS; EVIDENCE-BASED PRACTICE; HEALTH SERVICES NEEDS AND DEMAND; HOSPICES; HUMANS; MODELS, ORGANIZATIONAL; PALLIATIVE CARE; RESPITE CARE;

EID: 77957936988     PISSN: 13576321     EISSN: None     Source Type: Journal    
DOI: 10.12968/ijpn.2010.16.8.388     Document Type: Review

References (36)

1. Barrett M, Wheatland B, Haselby P, Larson A, Kristjanson L, Whyatt D (2009) Palliative respite services using nursing staff reduces hospitalization of patients and improves acceptance among carers. Int J Palliat Nurs 15(8): 389-95
2. Bliss J (2006) What do informal carers need from district nursing services? Br J Community Nurs 11(6) : 251-4
3. Carr S (2004) A framework for understanding clinical reasoning in community nursing. J Clin Nurs 13(7): 850-7
4. Clarke C (1999) Dementia care partnerships: knowledge, ownership and exchange. In: Adams T, Clarke C, eds. Dementia Care, Developing Partnerships in Practice. Bailliere Tindall, London: 5-35
5. Department of Health (2005) National Service Frame-work for Long Term Conditions. DH, London
6. Department of Health (2006) Your health, your care, your say-Research report. DH, London
7. Department of Health (2008a) Carers at the heart of 21st century families and communities. DH, London
8. DOH (2008b) End of Life Care Strategy-promoting high quality care for all adults at the end of life. DH, London
9. European Association for Palliative Care (2009) Family Carers in Palliative Care -White Paper. EAPC, Milan
10. Forbat L (2008) Social policy and relationship-centred dementia nursing. In: Adams T, ed. Dementia Care Nursing, Promoting Wel-being in People with Dementia and their Families. Palgrave Macmillan, Basingstoke: 227-42
11. Grande G, Stajduhar K, Aoun A et al (2009) Supporting lay carers in end of life care: current gaps and future priorities. Palliat Med 23(4): 339-14
12. Harding R, Higginson I (2001) Working with ambivalence: informal caregivers of patients at the end of life. Support Care Cancer 9(8): 642-5
13. Harding R, Higginson I (2003) What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliat Med 17(1): 63-74
14. Hicks F, Corcoran G (1993) Should hospice's offer respite admissions to patients with MND? Palliat Med 7(2): 145-50
15. Honea N, Brintnall R, Given B et al (2007) Putting evidence into practice: Nursing assessment and interventions to reduce family caregiver strain and burden. Clin J Oncol Nurs 12(3): 507-16
16. Ingleton C, Payne S, Nolan M, Carey I (2003) Respite in palliative care: a review and discussion of the literature. Palliat Med 17(7): 567-75
17. Kellehear A (2009) Understanding the social and cultural dimensions of family caregiving. In: Hudson P, Payne S, eds. Family Carers in Palliative Care. A Guide for Health and Social Care Professionals. Oxford University Press, Oxford: 21-36
18. Kristjanson L, Cousins K, White K et al (2004) Evaluation of a night respite community palliative care service. Int J Palliat Nurs 10(2): 84-90
19. McGrath P, Patton M, McGrath Z, Olgivie K, Rayner R, (2006) It's very difficult to get respite out here at the moment : Australian findings on end-of-life care for indigenous people. Health Soc Care Community 14(2): 147-55
20. McNally S, Benshlomo S, Newman S (1999) The effects of respite care on informal carers' wellbeing: a systematic review. Disabil Rehabil 21(1): 1-14
21. National Audit Office (2008) Patient and Carer Experiences Regarding End of Life Care in England. Final report. NAO, London
22. National Institute for Clinical Excellence (2004) Guidance on Cancer Cervices: Improving Supportive and Palliative Care for Adults with Cancer. The manual. NICE, London
23. Newton M, Bell D, Lambert S, Fearing A (2002) Concerns of hospice patient care givers. ABNF J 13(6): 140-44
24. Nolan M, Keady J, Aveyard B (2001) Relationship-centred care is the next logical step. Br J Nurs 10(12): 757
25. Novak J (1991) Clarify with concept maps. Science Teacher 58(7): 44-9
26. Owen E, Johnson M (2005) A neurological respite programme in a specialist palliative care setting. European Journal Palliative Care 12(5): 194-197
27. Payne S, Ingleton C, Scott G, Steele K, Nolan M, Carey I (2004) A survey of the perspectives of specialist palliative care providers in the UK of inpatient respite. Palliat Med 18(8): 692-7
28. Payne S (2007) Resilient carers and caregivers. In: Monroe S, Oliviere D, eds. Resilience in Palliative Care. Oxford University Press, Oxford: 83-97
29. Payne S, Seymour J (2008) Overview. In: Payne S, Seymour J, Ingleton C, eds. In: Palliative Care Nursing, Principles and Evidence for Practice, 2nd edn. Oxford University Press, Maidenhead: 19-38.
30. Palliative Care Australia (2005) A Guide to Palliative Care service Development: A Population Based Approach. PCA, Canberra
31. Samar A, Kristjanson L, Currow D, Hudson P (2005) Caregiving for the terminally ill: at what cost? Palliat Med 19(7): 551-5
32. Satterley G (2007) An audit of respite provision in a palliative care setting. European J Palliative Care 14(2): 68-9
33. Skilbeck J, Payne S, Ingleton M, Nolan M, Carey I, Hanson A (2005) An exploration of family carers' experience of respite services in one specialist palliative care unit. Palliat Med 19(8): 610-8
34. Strang V, Koop P, Peden J (2002) The experience of respite during home based family care giving for persons with advanced cancer. Journal of Palliative Care 18(2): 97-104
35. Van Excel J, Moree M, Koopmanschap M, Goedheijt T, Brouwer W (2006) Respite care-an explorative study of demand and use in Dutch informal caregivers. Health Policy 78(2-3): 194-208
36. Zapart S, Kenny P, Hall J, Servis B, Wiley S (2007) Home-based palliative care in Sydney, Australia: The carer's perspective on the provision of informal care. Health Soc Care Community 15(2): 97-107