'It's very difficult to get respite out here at the moment': Australian findings on end-of-life care for Indigenous people

Health and Social Care in the Community

Volumn 14, Issue 2, 2006, Pages 147-155

  McGrath, Pam ^a   Patton, Mary Anne ^a   McGrath, Zoë ^a   Olgivie, Katherine ^a   Rayner, Robert ^b   Holewa, Hamish ^a  

^a CENTRAL QUEENSLAND UNIVERSITY   (Australia)

^b Tasmania Health   (Australia)

Author keywords

Indigenous health; Palliative care; Respite; Rural and remote

Indexed keywords

ABORIGINE; ARTICLE; AUSTRALIA; CROSS-SECTIONAL STUDY; HUMAN; INTERVIEW; PALLIATIVE THERAPY; RESPITE CARE; RURAL POPULATION; TERMINAL CARE;

CROSS-SECTIONAL STUDIES; HUMANS; INTERVIEWS; NORTHERN TERRITORY; OCEANIC ANCESTRY GROUP; PALLIATIVE CARE; RESPITE CARE; RURAL POPULATION; TERMINAL CARE;

EID: 33645115272     PISSN: 09660410     EISSN: 13652524     Source Type: Journal    
DOI: 10.1111/j.1365-2524.2006.00604.x     Document Type: Article

References (44)

1. Addington-Hall J., Macdonald L., Anderson H. & Freeling P. (1991) Dying from cancer: the views of bereaved family and friends about the experiences of terminally ill patients. Palliative Medicine 5, 207-214.
2. Arksey H. & Weatherly H. (2004) Respite care and short breaks: what works and at what costs? Journal of Dementia 12 (5), 33-38.
3. Australian Bureau of Statistics Population and Housing, Urban Centres and Locations (2001) cat. no.2076.7, Census of Population and Housing: Selected Characteristics for Urban Centres and Localities, Northern Territory, Australian Bureau of Statistics, Canberra.
4. Australian Institute of Aboriginal and Torres Strait Islander Health Research (2004) Ethical Guidelines for Research, [WWW document]. URL www.aiatsis.gov.au/corp/docs/EthicsGuideA4.pdf.
5. Bennett M. (1988) An Aboriginal model of care. Nursing Times 84 (19), 56-58.
6. Bradley S. (1996) AIDS. Providing respite care in a rural environment. Nursing Standard 11 (4), 53-55.
7. Burman M., Steffes M. & Weinert C. (1993) Cancer home care in Montana. Home Health Care Services Quarterly 14 (2-3), 37-52.
8. Burns C., Clough A., Currie B., Thomsen P. & Wuridjal R. (1998) Resource requirements to develop a large, remote aboriginal health service: whose responsibility? Australian and New Zealand Journal of Public Health 22 (1), 133-139.
9. Coffey A. & Atkinson P. (1996) Making Sense of Qualitative Data: Complementary Research Strategies. Sage, Thousand Oaks, CA.
10. Cope D. (2003) Survey of caregivers reveals that they often need respite care. Clinical Journal of Oncology Nursing 7 (2), 136.
11. Crombie I. (1996) Research in Health Care. John Wiley & Sons, New York.
12. Department of Health and Ageing (DHA) (2005) Budget 2005-06, Health and Ageing, [WWW document]. URL www.budget.gov.au/2005-06/ministerial/html/dotars11. htm. (30 September 2005).
13. Department of Human Services (DHS) (2004) Challenges for Health Services in Rural, Regional and Remote South Australia: Achieving Better Health Outcomes, Background Paper. Government of South Australia, Adelaide.
14. Field D. & James N. (1993) Where and how people die. In: D. Clark (Ed) The Future of Palliative Care: Issues of Policy and Practice, pp. 6-29. Open University Press, Buckingham.
15. Flynn R. & Patel P. (2003) Ensuring access to short breaks by black disabled children and their families. Journal of Integrated Care 11 (1), 16-21.
16. Grbich C. (1999) Qualitative Research in Health. Allen & Unwin, Sydney.
17. Greenhalgh T. & Taylor R. (1997) Papers that go beyond numbers (Qualitative Research). British Medical Journal 315, 740-743.
18. Harding R. & Higginson I. (2003) What is the best way to help caregivers in cancer and palliative care? A systematic litereature review of interventions and their effectiveness. Palliative Medicine 17, 63-74.
19. Hinton J. (1994) Can home care maintain an acceptable quality of life for patients with terminal cancer and their relatives? Palliative Medicine 8, 183-196.
20. Holloway I. (1997) Basic Concepts for Qualitative Research. Blackwell Science, Oxford.
21. Karner T. & Hall L. (2002) Successful strategies for serving diverse populations. Home Health Care Services Quarterly 21 (3/4), 107-131.
22. Kelly M., Sellick S. & Linkewich B. (2003) Rural nonphysician providers' perspectives on palliative care services in northwestern Ontario, Canada. Journal of Rural Health 19 (1), 55-62.
23. Kitzes J. & Domer T. (2003) Palliative care: an emerging issue for American Indians and Alaskan Natives. Journal of Pain and Palliative Care Pharmacotherapy 17 (3/4), 201-211.
24. Kristjanson L., Cousins K., White K., et al. (2004) Evaluation of a night respite community palliative care service. International Journal of Palliative Nursing 10 (2), 84-90.
25. Lee C. & Gray L. (1992) Respite service to family caregivers by the senior companion program: an urban-rural comparison. Journal of Applied Gerontology 11 (4), 395-406.
26. Levin E., Sinclair I. & Gorbach P. (1989) Families, Services and Confusion in Old Age. Gower, Aldershot, UK.
27. Mahdy H. (2004) Realities of respite care. Health Services Management Research 17 (4), 272-275.
28. Marshall A. & Rossman G. (1995) Designing Qualitative Research, 2nd edn. Sage Publications, London.
29. McGrath P., Ogilvie K., Rayner R., Holewa H. & Patton M. (2005) The 'right story' to the 'right person': communication issues in end-of-life care for indigenous people. Australian Health Review 29 (3), 306-316.
30. McGrath P., Watson J., Derschow B., Murphy S. & Rayner R. (2004a) Indigenous Palliative Care Service Delivery - A Living Model. UniPrint, Charles Darwin University, Darwin NT. (www.mcgrathresearch.net.au).
31. McGrath P., Watson J., Derschow B., Murphy S. & Rayner R. (2004b) Indigenous Palliative Care Service Delivery - A Living Model: Companion Book. UniPrint, Charles Darwin University, Darwin, NT. (www.mcgrathresearch.net.au).
32. National Respite for Carers Program (NRCP) (2005) Commonwealth Carer Respite Centres and Commonwealth Carer Resource Centres, Australian Government/ Department of Health and Ageing, [WWW document], http://www.health.gov.au/ internet/wcms/publishing.nsf/content/ageing-publicatqcoa-05info.htm/ $FILE/05_ncrp.pdf
33. National Health and Medical Research Council Values & Ethics (2004) Guidelines for Ethical Conduct in Aboriginal and Torres Strait Islander Health Research, [WWW document]. URL www7.health.gov.au/nhmrc/publications/pdf/e52.pdf.
34. Neale B. (1993) Informal care and community care. In: D. Clark (Ed.) The Future of Palliative Care: Issues of Policy and Practice, pp. 52-67. Open University Press, Buckingham.
35. News Section (NS) (1998) Carers' support inadequate. Australian Nursing Journal 6 (1), 9.
36. Nicoll M., Ashworth M., McNally L. & Newman S. (2002) Satisfaction with respite care: a pilot study. Health and Social Care in the Community 10 (6), 479-484.
37. Polit D. & Hungler B. (1995) Nursing Research: Principles and Methods, 5th edn. Lippincott, Philadelphia.
38. Reed D. & Weicherding M. (1999) Factors of caregiver isolation in rural Midwest area. Home Health Care Services Quarterly 17 (4), 13-24.
39. Streubert K. & Carpenter D. (1995) Qualitative Research in Nursing: Advancing the Humanistic Imperative. Lippincott, Philadelphia.
40. Sullivan K. (2003) National Indigenous Palliative Care Needs Study: Final Report. The National Palliative Care Program, Australian Government Department of Health and Ageing, Canberra.
41. Warren S., Kerr J., Smith D., Godkin D. & Schalm C. (2003) The impact of adult day programs on family caregivers of elderly relatives. Journal of Community Health Nursing 20 (4), 209-221.
42. Whittier S., Scharlach A. & Dal Santo T. (2005) Availability of caregiver support services: implications for implementation of the National Family Caregiver Support program. Journal of Aging and Social Policy 17 (1), 45-62.
43. Wiles R., Payne S. & Jarrett N. (1999) Improving palliative care services: a pragmatic model for evaluating services and assessing unmet need. Palliative Medicine 13, 131-137.
44. Zelewsky M. & Deitrick E. (1987) Rx for care givers: respite care. Journal of Community Health Nursing 4 (2), 77-84.