Pediatric palliative care: Describing hospice users and identifying factors that affect hospice expenditures

Journal of Palliative Medicine

Volumn 12, Issue 3, 2009, Pages 223-229

  Knapp, Caprice A ^a,b   Shenkman, Elizabeth A ^a   Marcu, Mircea I ^a   Madden, Vanessa L ^a   Terza, Joseph V ^a  

^a UNIVERSITY OF FLORIDA   (United States)

^b UNIVERSITY OF FLORIDA COLLEGE OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CAUSE OF DEATH; CHILD; CHILD CARE; CONTROLLED STUDY; EMERGENCY WARD; FEMALE; HEALTH CARE COST; HEALTH SERVICE; HOSPICE CARE; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAID; PALLIATIVE THERAPY; PHARMACY; PRESCHOOL CHILD; RACE DIFFERENCE; SCHOOL CHILD; UNITED STATES;

ADOLESCENT; AGE FACTORS; CAUSE OF DEATH; CHILD; CHILD WELFARE; CHILD, PRESCHOOL; CROSS-SECTIONAL STUDIES; FEMALE; FLORIDA; HEALTH EXPENDITURES; HOSPICE CARE; HUMANS; INFANT; MALE; MEDICAID; MULTIVARIATE ANALYSIS; PALLIATIVE CARE; PEDIATRICS; REGRESSION ANALYSIS; RETROSPECTIVE STUDIES; UNITED STATES; YOUNG ADULT;

EID: 61649092018     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2008.0248     Document Type: Article

References (48)

1. National Center for Health Statistics: www.cdc.gov/nchs (Last accessed November 10, 2006).
2. Hoyert D, Matthews T, Menacker F, Strobino D, Guyer B: Annual summary of vital statistics: 2004. Pediatrics 2006;117:168-183.
3. Himelstein B, Hilden J, Boldt A, Weissman D: Pediatric palliative care. N Engl J Med 2004;250:1752-1762.
4. Hynson J, Gillis J, Collins J, Irving H, Trethewie S: The dying child: How is care different? Med J Aust 2003;179:S20-S22.
5. Field, M, Behrman, R (eds): When Children Die: Improving Palliative Care and End-of-Life Care for Children and their Families. Washington, D.C.: National Academy Press, 2002.
6. American Academy of Pediatrics: Committee on Bioethics and Committee on Hospital Care: Palliative care for children. Pediatrics 2000;106:351-357.
7. Goldman A: Recent advances in palliative care. Importance of palliative care for children is being increasingly recognized. BMJ 2001;322:234.
8. National Association of Hospice and Palliative Care Organization: www.nhpco.org (Last accessed July 15, 2008).
9. Feudtner C, Silveira M, Christakis D: Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998. Pediatrics 2002;109:656-660.
10. Feudtner C, Silveira M, Shabbout M, Hoskins R: Distance from home when death occurs: A population-based study of Washington State, 1989-2002. Pediatrics 2006;117;932-939.
11. Copnell B: Death in the pediatric ICU: Caring for children and families at the end of life. Crit Care Nurs Clin North Am 2005;17:349-360.
12. Feudtner C, DiGiuseppe D, Neff J: Hospital Care for children and young adults in the last year of life: A population-based study. Biomed Cent Med 2003;12:1-3.
13. Emanuel E, Ash A, Yu W, Gazelle G, Levinsky N, Saynina O, McClellan M, Moskowitz M: Managed care, hospice use, site of death, and medical expenditures in the last year of life. Arch Intern Med 2002;162:1722-1728.
14. Campbell D, Lynn J, Louis T, Shugarman L: Medicare program expenditures associated with hospice use. Ann Intern Med 2004;140:269-277.
15. Taylor D, Ostermann J, Van Houtven C, Tulsky J, Steinhauser K: What length of hospice use maximizes reduction in medical expenditures near death in the US Medicare program? Soc Sci Med 2007;65:1466-1478.
16. Pyenson B, Connor S, Fitch K, Kinzbrunner B: Medicare cost in matched hospice and non-hospice cohorts. J Pain Symptom Manage 2004;28:200-210.
17. Lo J: The impact of hospice on health care expenditures - The case of Taiwan. Soc Sci Med 2002;64:981-991.
18. Simon A, Chan K, Forrest C: Assessment of children's health related quality of life in the United States with a multidimensional index. Pediatrics 2008;121:e118-126.
19. Florida Office of Vital Statistics: Community Health Assessment Resource Tool Set: www.doh.state.fl.us/planning-eval/vital-statistics/deaths.htm (Last accessed October 2, 2007).
20. Krieger N: Analyzing socioeconomic and racial/ethnic patterns in health and health care. Am J Public Health 1993;83:1086-1087.
21. Connor S, Elwert F, Spence C, Christakis N: Geographic variation in hospice use in the United States in 2002. J Pain Symptom Manage 2007;34:277-285.
22. Rural Health Research Center: http://depts.washington.edu/uwruca/index. html (Last accessed February 1, 2007).
23. Shenkman E, Knapp C, Sappington D, Vogel B, Schatz D: Persistence of high health care expenditures among children in Medicaid. Med Care Res Rev 2007;64:304-330.
24. Dick A, Brach C, Allison R, Shenkman E, Shone L, Szilagyi P, Klein J, Lewit E: SCHIP's Impact in three states: How do the most vulnerable children fare? Health Aff (Millwood) 2004;23:63-75.
25. Office of Vital Statistics: Florida Vital Statistics Code Manual for Death. Jacksonville, FL: 2007.
26. Manning W, Newhouse J, Duan N, Keeler E, Leibowitz A, Marquis M: Health insurance and the demand for medical care: Evidence from a randomized experiment. Am Econ Rev 1987;77:251-277.
27. Duan N, Manning W, Morris C, Newhouse P: A comparison of alternative models for demand of health care. J Bus Econ Stat 1983;1:115-126.
28. Huh S, Rice T, Ettner S: Prescription drug coverage and effects on drug expenditures among elderly Medicare beneficiaries. Health Serv Res 2008;43:810-832.
29. Powers C, Meyer C, Roebuck M, Vaziri B: Predictive modeling of total healthcare costs using pharmacy claims data: A comparison of alternative econometric cost modeling techniques. Med Care 2005;43:1065-1072.
30. Han E, Liu G: Racial disparities in prescription drug use for mental illness among population in U.S. J Ment Health Policy Econ 2005;8:131-143.
31. Krause J, Terza J: Injury and Demographic Factors Predictive of Disparities in Earnings after Spinal Cord Injury. Arch Phys Med Rehab 2007;87:1318-1326.
32. Statistical Analysis Software for Professionals, Release 9: www.stata.com/products/overview.html (Last accessed July 15, 2008).
33. Children's Hospice International: www.chionline.org/ (Last accessed October 2, 2007).
34. Feeg V, Elebiary H: Exploratory study on end-of-life issues: Barriers to palliative care and advance directives. Am J Hosp Palliat Care 2005;22:119-124.
35. Bruena E, De Lima L, Wenk R, Farr W (eds): Palliative Care in the Developing World. Houston, TX: IAHPC Press, 2004.
36. Kurashima A, Latorre M, Teixeira S, De Carmargo B: Factors associated with location of death of children with cancer in palliative care. Palliat Support Care 2005;3:115-119.
37. Lieu T, Newacheck P, McManus M: Race, ethnicity, and access to ambulatory care among US adolescents. Am J Public Health 1993;83:960-965.
38. Newacheck P, Stoddard J, McManus M: Ethnocultural variations in the prevalence and impact of childhood chronic conditions. Pediatrics 1993;91:1031-1039.
39. Newacheck P, Inkelas M, Kim S: Health services use and health care expenditures for children with disabilities. Pediatrics 2004;114:79-85.
40. Greiner K, Perera S, Ahluwalia J: Hospice usage by minorities in the last year of life: Results from the National Mortality Followback Survey. J Am Geriatr Soc 2003;51:970-978.
41. Ngo-Metzger Q, Phillips R, McCarthy E: Ethnic disparities in hospice use among Asian America and Pacific Islander patients dying with cancer. J Am Geriatr Soc 2008;56:139-144.
42. Welch L, Teno J, Mor V: End-of-life care in black and white: Race matters for medical care of dying patients and their families. J Am Geriatr Soc 2005;53:1145-1153.
43. Colon M, Lyke J: Comparison of hospice use and demographics among European Americans, African Americans, and Latinos. Am J Hosp Palliat Care 2003;20:182-190.
44. Florida's Agency for Health Care Administration: 2006 Hospice Rates. www.ahca.myflorida.com/Medicaid/cost-reim/hospice-rates.shtml (Last accessed July 15, 2008).
45. Emanual E, von Gunten C, Ferris F: Gaps in end-of-life care. Arch Intern Med 2000;9:1166-1180.
46. 3Iwashyna T, Christakis N: Signs of death. J Palliat Med 2001;4:451-452.
47. Basu A, Polsky D, Manning E: Use of propensity scores in non-linear models: The case for health care expenditures. NBER Working Paper No. 14086, 2008.
48. Kaiser State Health Facts: www.statehealthfacts.org/ (Last accessed October 2, 2007).