Belonging: A qualitative, longitudinal study of what matters for persons after stroke during one year of rehabilitation

Journal of Rehabilitation Medicine

Volumn 42, Issue 9, 2010, Pages 831-838

  Erikson, Anette ^a   Park, Melissa ^a   Tham, Kerstin ^a  

^a KAROLINSKA INSTITUTE   (Sweden)

Author keywords

Occupational therapy; Participation; Qualitative research

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; DAILY LIFE ACTIVITY; FEMALE; HUMAN; HUMAN RELATION; LONGITUDINAL STUDY; MALE; MIDDLE AGED; OCCUPATIONAL THERAPY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SOCIAL BEHAVIOR; SOCIAL SUPPORT; STROKE; SUBARACHNOID HEMORRHAGE; TIME;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADULT; FEMALE; HUMANS; INTERPERSONAL RELATIONS; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; OCCUPATIONAL THERAPY; QUESTIONNAIRES; SOCIAL IDENTIFICATION; SOCIAL SUPPORT; STROKE; SUBARACHNOID HEMORRHAGE; TIME FACTORS;

EID: 77957354630     PISSN: 16501977     EISSN: None     Source Type: Journal    
DOI: 10.2340/16501977-0608     Document Type: Article

References (40)

1. Murray C, Harrison B. The meaning and experience of being a stroke survivor: an interpretive phenomenological analysis. Disabil Rehabil 2004;26:808-816. (Pubitemid 39069739)
2. Visser-Meily A, Post, M, van de Port, I, Maas, C, Forstberg-Wärleby, G, Lindeman, E. Psychosocial functioning of spouses of patients with stroke from initial inpatient rehabilitation to 3 years post stroke: course and relations with coping strategies. Stroke 2009;40:1399.
3. Murray J, Ashworth R, Forster A, Young J. developing a primary care-based stroke service: a review of the qualitative literature. Br J Gen Pract 2003;53:137-142. (Pubitemid 36187501)
4. Rittman M, Boylstein KC, Hinojosa R, Hinojosa MS, Haun J. Transition experiences of stroke survivors following discharge home. Top Stroke Rehabil 2007;14:21-31. (Pubitemid 46651520)
5. Hunt d, Smith JA. The personal experience of carers of stroke survivors: an interpretative phenomenological analysis. disabil Rehabil 2004;26:1000-1011. (Pubitemid 39214183)
6. Wyller TB, Thommessen B, Sodring KM, Sveen u, Pettersen A M, Bautz-Holter E. Emotional well-being of close relatives to stroke survivors. Clin Rehabil 2003;17:410-417. (Pubitemid 36621953)
7. Socialstyrelsen. [National guidelines for medical care after stroke.] [updated 2009] Available from: http://www.socialstyrelsen. se/ nationellariktlinjerforstrokesjukvard (in Swedish).
8. Von Koch L, Widén Holmqvist L, Wohlin Wottrich A, Tham K, de Pedro-Cuesta J. Rehabilitation at home after stroke: a descriptive study of an individualized intervention. Clin Rehabil 2000;14:547-583.
9. Ekstam L, Tham K, Borell L. Couples' approaches to changes in everyday life during the first year after stroke. Scand J Occup Ther 2010; Mar. 31 [Epub ahead of print].
10. Erikson A, Park M, Tham K. Place integration through daily activities: one year of rehabilitation after stroke. oTJR, occup Particip Health 2010;30:68-77.
11. Johansson u, Tham K. The meaning of work after acquired brain injury. Am J occup Ther 2006;60:60-69. (Pubitemid 43341529)
12. Smith J, Forster A, Young J. Cochrane review: information provision for stroke patients and their caregivers. Clin Rehabil 2009;23:195-206.
13. Turner BJ, Fleming JM, ownsworth TL, Cornwell PL. The transition from hospital to home for individuals with acquired brain injury: a literature review and research recommendations. disabil Rehabil 2008;30:1153-1176.
14. Johansson u, Högberg H, Bernspång B. Participation in everyday occupations in a late phase of recovery after brain injury. Scand J occup Ther 2007;14:116-125. (Pubitemid 46887879)
15. Lawlor MC. The significance of being occupied: the social construction of childhood occupations. Am J occup Ther 2003;57:424-435.
16. Lawlor MC. Narrative, development, and engagement: Intersections in therapeutic practices. In: U Jensen & C Mattingly, editors. Narrative, self, and social practices. Aarhus: Aarhus university Press, Philisophia.
17. Cutchin MP. The process of mediated aging-in-place: a theoretically and empirically based model. Soc Sci Med 2003;57:1077-1090. (Pubitemid 36876073)
18. Cutchin MP. using deweyan philosophy to rename and reframe adaptation to environment. Am J occup Ther 2004;58:303-312. (Pubitemid 40326453)
19. WHO. International Classification of Functioning, Disability and Health: ICF. Geneva: World Health organization; 2001.
20. Rowles Gd. Beyond performance: being in place as a component of occupational therapy. Am J occup Ther 1991;45:265-271.
21. Dickie V, Cutchin MP, Humphrey R. Occupation as transactional experience: a critique of individualism in occupational science. J Occup Sci 2006;13:83-93. (Pubitemid 43695527)
22. Charmaz K. Constructing grounded theory: a practical guide through qualitative analysis. London: Sage Publications; 2006, p. 1-208
23. Glaser BG, Strauss AL. The discovery of grounded theory. Strategies for qualitative research. Mill Valley, CA: Sociology Press; 1967, p. 1-271.
24. Hammell KW. dimensions of meaning in the occupations of daily life. Can J occup Ther 2004;71:296-303.
25. Levett-Jones T, Lathlean J, Maguire J, McMillan M. Belongingness: a critique of the concept and implications for nursing education. Nurse Educ Today 2007;27:210-218.
26. Häggström A, Lund ML. The complexity of participation in daily life: a qualitative study of the experiences of persons with acquired brain injury. J Rehabil Med 2008;40:89-95. (Pubitemid 351403992)
27. Park M. Making scenes: imaginative practices for a child with autism in an occupational therapy session. Med Anthropol Quart 2008;22:234-256.
28. Björkdahl A, Nilsson ÅL, Sunnerhagen KS. Can rehabilitation in the home setting reduce the burden of care for the next-of-kin of stroke victims? J Rehabil Med 2007;39:27-32.
29. Lund ML, Lexell J. Perceived participation in life situations in persons with late effects of polio. J Rehabil Med 2008;40:659-664.
30. Perenboom RJM, Chorus AMJ. Measuring participation according to the International Classification of Functioning, Disability and Health (ICF). disabil Rehabil 2003;25:577-587. (Pubitemid 36806191)
31. Greenwood N, Mackenzie A, Cloud GC, Wilson N. Informal carers of stroke survivors - factors infuencing carers: a systematic review of quantitative studies. disabil Rehabil 2008;30:1329-1349.
32. Lawlor MC, Mattingly C. understanding family perspectives on illness and disability experiences. In: Crepeau E, Cohn E, Schell B, editors. Willard & Spackman's occupational therapy, 11th edn. Philadelphia: JB Lippincott; 2009, p. 33-44.
33. Nyman A, Lund LM. Influences of the social environment on engagement in occupations: the experience of persons with heumatoid arthritis. Scand J occupat Ther 2007;14:63-72. (Pubitemid 46404295)
34. Bruun Wyller T, Thommessen B, Sodring KM, Sveen u, Pettersen AM, Bautz-Holter E, et al. Emotional well-being of close relatives to stroke survivors. Clin Rehabil 2003;17:410-417. (Pubitemid 36621953)
35. Guidetti S, Asaba E, Tham K. The lived experience of recapturing self-care. Am J occup Ther 2007;61:303-310.
36. Polit dF, Beck CT, Hungler BP. Essentials of nursing research. Methods, appraisal, and utilization, 5th edn. Philadelphia: Lippincott Williams & Wilkins; 2001.
37. Patton MQ. Qualitative research & evaluation methods, 3rd edn. Mill Valley, CA: Sage Publications; 2002.
38. Chiovitti R, Piran N. Rigour and grounded theory research. J Adv Nurs 2003;44:427-435. (Pubitemid 37465392)
39. Barskova T, Wilz G. Interdependence of stroke survivors' recovery and their relatives' attitudes and health: a contribution to investigating the causal effects. disabil Rehabil 2007;29:1481-1491. (Pubitemid 47456954)
40. Mattingly C. Healing dramas and clinical plots: the narrative structure of experience. New York: Cambridge University; 1998.