Awareness in dementia: Ethical and legal issues in relation to people with dementia

Aging and Mental Health

Volumn 9, Issue 5, 2005, Pages 423-429

  Woods, Bob ^a   Pratt, Rebekah ^b  

^a BANGOR UNIVERSITY   (United Kingdom)

^b UNIVERSITY OF EDINBURGH   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

AMNESIA; AWARENESS; CLINICAL RESEARCH; COGNITIVE DEFECT; DECISION MAKING; DEMENTIA; EMOTIONAL STRESS; ETHICS; INFORMED CONSENT; LEGAL ASPECT; MENTAL CAPACITY; PATERNALISM; PRIORITY JOURNAL; REVIEW; SELF CARE; SELF CONCEPT; SOCIAL INTERACTION;

COGNITION; DEMENTIA; ETHICS, MEDICAL; HUMANS; MENTAL COMPETENCY; PERSONAL AUTONOMY; SELF CONCEPT;

EID: 23244458995     PISSN: 13607863     EISSN: None     Source Type: Journal    
DOI: 10.1080/13607860500143125     Document Type: Review

References (43)

1. Allan, K. (2001). Communication and consultation: Exploring ways for staff to involve people with dementia in developing services. Bristol: Policy Press.
2. Baldwin, C., Hughes, J., Hope, T., Jacoby, R., & Ziebland, S. (2003). Ethics and dementia: Mapping the literature by bibliometric analysis. International Journal of Geriatric Psychiatry, 18, 41-54.
3. Bamford, C., Lament, S., Eccles, M., Robinson, L., May, C., & Bond, J. (2004). Disclosing a diagnosis of dementia: A systematic review. International Journal of Geriatric Psychiatry, 19, 151-169.
4. Bennett, R., & Harris, J. (2000). Dementia and end of life decisions. In J. O'Brien, D. Ames, & A. Burns (Eds.), Dementia (2nd ed., pp. 279-281). London: Arnold.
5. Berghmans, R. L. P., & Ter Meulen, R. H. J. (1995). Ethical issues in research with dementia patients. International Journal of Geriatric Psychiatry, 10, 647-651.
6. Bond, J., Corner, L., Lilley, A., & Ellwood, C. (2002). Medicalization of insight and caregivers' response to risk in dementia. Dementia, 1, 313-328.
7. Bravo, G., Paquet, M., & Dubois, M. F. (2003). Opinions regarding who should consent to research on behalf of an older adult suffering from dementia. Dementia, 2, 49-65.
8. Clare, L. (2002a). We'll fight it as long as we can: Coping with the onset of Alzheimer's disease. Aging & Mental Health, 6, 139-148.
9. Clare, L. (2002b). Developing awareness about awareness in early-stage dementia: The role of psychosocial factors. Dementia, 1, 295-312.
10. Clare, L. (2003). Managing threats to self: Awareness in early-stage Alzheimer's disease. Social Science and Medicine, 57, 1017-1029.
11. Clare, L. (2004). The construction of awareness in early-stage Alzheimer's disease: A review of concepts and models. British Journal of Clinical Psychology, 43, 155-175.
12. Cox, J. (2003). Why do we ignore these ethical issues? Journal of Dementia Care, 11, 25-28.
13. Downs, M., Clibbens, R., Rae, C., Cook, A., & Woods, R. (2002). What do general practitioners tell people with dementia and their families about the condition? A survey of experiences in Scotland. Dementia, 1, 47-58.
14. Fazel, S. (2002). Competence. In R. Jacoby & C. Oppenheimer (Eds.), Psychiatry in the elderly (3rd ed., pp. 941-950). Oxford: Oxford University Press.
15. Forbat, L. (2003). Relationship difficulties in dementia care: A discursive analysis of two women's accounts. Dementia, 2, 67-84.
16. Froggatt, A. (1988). Self-awareness in early dementia. In: Gearing, B., Johnson, M., & Heller, T. (Eds), Mental health problems in an old age: a reader. Chichester: Wiley. University Press Paper 16.
17. Gillies, B. (1995). The subjective experience of dementia. University of Dundee.
18. Gillies, B. (2000). A memory like clockwork: accounts of living through dementia. Aging & Mental Health, 4, 366-374.
19. Holden, U. P., & Woods, R. T. (1995). Positive approaches to dementia care (3rd ed.). Edinburgh: Churchill Livingstone.
20. Holroyd, S., Turnbull, Q., & Wolf, A. M. (2002). What are patients and their families told about the diagnosis of dementia? Results of a family survey. International Journal of Geriatric Psychiatry, 17, 218-221.
21. Hughes, J. C. (2002). Ethics and the psychiatry of old age. In R. Jacoby & C. Oppenheimer (Eds.), Psychiatry in the elderly (3rd ed., pp. 863-895). Oxford: Oxford University Press.
22. Hughes, J. C., Hope, T., Savulescu, J., & Ziebland, S. (2002). Carers, ethics and dementia: A survey and review of the literature. International Journal of Geriatric Psychiatry, 17, 35-40.
23. James, I. A., Powell, I., Smith, T., & Fairbairn, A. (2003). Lying to residents: Can the truth sometimes be unhelpful for people with dementia? PSIGE Newsletter, 82, 26-28.
24. Jha, A., Tabet, N., & Orrell, M. (2001). To tell or not to tell: Comparison of older patients' reaction to their diagnosis of dementia and depression. International Journal of Geriatric Psychiatry, 16, 879-885.
25. Ready, J., & Nolan, M. (1995) IMMEL: Assessing coping responses in the early stages of dementia. British Journal of Nursing, 4, 309-380.
26. Kitwood, T. (1995a). Exploring the ethics of dementia research: A response to Berghmans and ter Meulen. International Journal of Geriatric Psychiatry, 10, 655-657.
27. Kitwood, T. (1995b). Positive long-term changes in dementia: some preliminary observations. Journal of Mental Health, 4, 133-144.
28. Kitwood, T. (1997). The experience of dementia. Aging & Mental Health, 3, 179-183.
29. Lord Chancellor's Department (1999). Making decisions: The government's proposals for making decisions on behalf of mentally incapacitated adults. London: HMSO.
30. Lyman, K. (1989). Bringing the social back in: A critique of the biomedicalization of dementia. Gerontologist, 29, 597-604.
31. Maguire, C. P., Kirby, M., Wen, R., Coakley, D., Lawlor, B. A., & O'Neill, D. (1996). Family members' attitudes towards telling the patient with AD their diagnosis. BMJ, 313, 529-530.
32. Marková, I. S., Clare, L., Wang, M., Romero, B., & Kenny, G. (2005). Awareness in dementia: conceptual issues. Aging & Mental Health, 9 (5), 386.
33. O'Neill, D. (2000). Driving. In J. O'Brien, D. Ames, & A. Burns (Eds.), Dementia (2nd ed., pp. 282-289). London: Arnold.
34. O'Neill, D. (2002). Driving and psychiatric illness in later life. In R. Jacoby & C. Oppenheimer (Eds.), Psychiatry in the elderly (3rd ed., pp. 966-976). Oxford: Oxford University Press.
35. Posener, H., & Jacoby, R. (2002). Testamentary capacity. In R. Jacoby & C. Oppenheimer (Eds.), Psychiatry in the elderly (3rd ed., pp. 932-940). Oxford: Oxford University Press.
36. Pratt, R. (2002). "Nobody's ever asked how I felt." In H. Wilkinson (Ed.), The perspectives of people with dementia: Research methods and motivations. London: Jessica Kingsley Publishers.
37. Pratt, R., & Wilkinson, H. (2001). "Tell me the truth": The effect of being told the diagnosis of dementia from the perspective of the person with dementia. London: Mental Health Foundation.
38. Pratt, R., & Wilkinson, H. (2003). A psychosocial model of understanding the experience of receiving a diagnosis of dementia. Dementia, 2, 181-199.
39. Sabat, S. (2001). The experience of Alzheimer's disease: Life through a tangled veil. Oxford: Blackwell.
40. Sinason, V. (1992). The man who was losing his brain. In V. Sinason (Ed.), Mental handicap and the human condition: New approaches from the Tavistock (pp. 87-110). London: Free Association Books.
41. Wilber, K. H., & Zarit, S. H. (1999). To decide or not to decide for others: Competency, choice and consequences. Aging & Mental Health, 3, 277-280.
42. Woods, B. (1999). The person in dementia care. Generations, 23, 35-39.
43. Woods, R. T. (2001). Discovering the person with Alzheimer's disease: Cognitive, emotional and behavioural aspects. Aging & Mental Health, 5, S7-S16.