Interactions between rheumatologists and cardio-/pulmonologists in the assessment and use of outcome measures in pulmonary arterial hypertension related to systemic sclerosis

Clinical and Experimental Rheumatology

Volumn 28, Issue 2 SUPPL. 58, 2010, Pages

  Huscher, Doerte ^a   Pittrow, David ^b   Distler, Oliver ^c   Denton, Christopher P ^d   Foeldvari, Ivan ^e   Humbert, Marc ^f   Matucci Cerinic, Marco ^g   Kowal Bielecka, Otylia ^h   Avouac, Jerome ⁱ   Behrens, Frank ^j   Nash, Peter ^k   Opitz, Christian F ^l   Rubin, Lewis J ^m   Seibold, James R ⁿ   Strand, Vibeke ^o   Furst, Daniel E ^p  

^a German Rheumatism Research Centre   (Germany)

^b DRESDEN UNIVERSITY OF TECHNOLOGY   (Germany)

^c UNIVERSITY HOSPITAL ZURICH   (Switzerland)

^d ROYAL FREE AND UNIVERSITY COLLEGE MEDICAL SCHOOL   (United Kingdom)

^e General Hospital Eilbek   (Germany)

^f HÔPITAL ANTOINE BÉCLÈRE   (France)

^g UNIVERSITY OF FLORENCE   (Italy)

^h MEDICAL UNIVERSITY OF BIALYSTOK   (Poland)

ⁱ RDU   (France)

^j GOETHE UNIVERSITY   (Germany)

^k UNIVERSITY OF QUEENSLAND   (Australia)

^l German Red Cross Hospital   (Germany)

^m UNIVERSITY OF CALIFORNIA   (United States)

ⁿ UNIVERSITY OF MICHIGAN HEALTH SYSTEM   (United States)

^o STANFORD UNIVERSITY   (United States)

^p UNIVERSITY OF CALIFORNIA   (United States)

more..

Author keywords

Delphi; Outcome measures; Pulmonary arterial hypertension; Systemic sclerosis

Indexed keywords

ARTICLE; CARDIOLOGIST; DELPHI STUDY; DISEASE ASSOCIATION; DYSPNEA; EXERCISE; HEALTH SURVEY; HEART FUNCTION; HUMAN; OUTCOME ASSESSMENT; PERCEPTION; PHYSICIAN; PRIORITY JOURNAL; PULMONARY HYPERTENSION; QUALITY OF LIFE; RHEUMATOLOGY; SYSTEMIC SCLEROSIS; CONTROLLED STUDY; HEALTH ASSESSMENT QUESTIONNAIRE; PHYSICIAN ATTITUDE; PULMONOLOGIST; RHEUMATOLOGIST; CARDIOLOGY; ORGANIZATION AND MANAGEMENT; PATIENT CARE; PULMONOLOGY;

CARDIOLOGY; DELPHI TECHNIQUE; HUMANS; HYPERTENSION, PULMONARY; PATIENT CARE TEAM; PULMONARY MEDICINE; RHEUMATOLOGY; SCLERODERMA, SYSTEMIC;

EID: 77956642407     PISSN: 0392856X     EISSN: 1593098X     Source Type: Journal    
DOI: None     Document Type: Article

References (15)

1. GALIE N, HOEPER MM, HUMBERT M et al.: Guidelines for the diagnosis and treatment of pulmonary hypertension: The Task Force for the Diagnosis and Treatment of Pulmonary Hypertension of the European Society of Cardiology (ESC) and the European Respiratory Society (ERS), endorsed by the International Society of Heart and Lung Transplantation (ISHLT). Eur Heart J 2009; 30: 2493-537.
2. BARST RJ, GIBBS JS, GHOFRANI HA et al.: Updated evidence-based treatment algorithm in pulmonary arterial hypertension. J Am Coll Cardiol 2009; 54 (Suppl.): S78-84.
3. MACCHIA A, MARCHIOLI R, MARFISIR et al.: A meta-analysis of trials of pulmonary hypertension: a clinical condition looking for drugs and research methodology. Am Heart J 2007; 153: 1037-47.
4. HOEPER MM, OUDIZ RJ, PEACOCK A et al.: End points and clinical trial designs in pulmonary arterial hypertension: clinical and regulatory perspectives. J Am Coll Cardiol 2004; 43 (Suppl. S): 48S-55S.
5. MCLAUGHLIN VV, BADESCH DB, DELCROIX M et ai: End Points and Clinical Trial Design in Pulmonary Arterial Hypertension. J Am Coll Cardiol 2009; 54 (Suppl. S):S97-107.
6. FURST D, KHANNA D, MATUCCI-CERINIC M, PITTROW D, STRAND V: Systemic sclerosis - continuing progress in developing clinical measures of response. J Rheumatol 2007; 34: 1194-200.
7. MERKEL PA, CLEMENTS PJ, REVEILLE JD, SUAREZ-ALMAZOR ME, VALENTINI G, FURST DE: Current status of outcome measure development for clinical trials in systemic sclerosis. Report from OMERACT 6. J Rheumatol 2003; 30: 1630-47.
8. KOWAL-BIELECKA O, AVOUAC J, PITTROW D et al.: Echocardiography as an outcome measure in scleroderma-related pulmonary arterial hypertension: a systematic literature analysis by the EPOSS group. J Rheumatol 2010; 37: 105-15.
9. HSU VM, MOREYRA AE, WILSON AC et al.: Assessment of pulmonary arterial hypertension in patients with systemic sclerosis: comparison of noninvasive tests with results of right-heart catheterization. J Rheumatol 2008; 35: 458-65.
10. CHOW S, POPE JE, MEHTA S: Lack of correlation of the health assessment questionnaire disability index with lung parameters in systemic sclerosis associated pulmonary arterial hypertension. Clin Exp Rheumatol 2008; 26: 1012-7.
11. DISTLER O, BEHRENS F, PITTROW D et al.: Defining appropriate outcome measures in pulmonary arterial hypertension related to systemic sclerosis: A Delphi consensus study with cluster analysis. Arthritis Rheum 2008; 59: 867-75.
12. GIBBS J, HIGENBOTTAM T: Recommendations on the management of pulmonary hypertension in clinical practice. Heart 2001; 86:i1-i13.
13. BLACK C: Pulmonary arterial hypertension: are we doing enough to identify systemic sclerosis patients at high risk of this rare condition? Rheumatology 2005; 44: 141-2.
14. LUTTERBACH J, PAGENSTECHER A, SPREER J et al.: The brain tumor board: lessons to be learned from an interdisciplinary conference. Onkologie 2005; 28: 22-6.
15. LINSTONE H, TUROFF M (Eds.), The Delphi Method. Techniques and Applications: New Jersey Institute of Technology, California, USA; 2002.