Disclosures of Huntington disease risk within families: Patterns of decision-making and implications

American Journal of Medical Genetics, Part A

Volumn 143, Issue 16, 2007, Pages 1835-1849

  Klitzman, Robert ^a,d   Thorne, Deborah ^a   Williamson, Jennifer ^b   Chung, Wendy ^a   Marder, Karen ^c  

^a Columbia University ^*  (United States)

^b Taub Institute for Research on Alzheimer's Disease and the Aging Brain and the Gertrude H Sergievsky Center   (United States)

^c Och Spine at New York Presbyterian Hospitals   (United States)

^d HIV Center   (United States)

Author keywords

Children; Decision making; Disclosure; Ethics; Families; Genetic discrimination; Genetics; Huntington disease; Kinship; Privacy confidentiality; Secrets; Stigma

Indexed keywords

ARTICLE; CLINICAL ARTICLE; CONFIDENTIALITY; DECISION MAKING; ETHICS; EXTENDED FAMILY; FAMILY; FAMILY INTERACTION; FEMALE; GENE MUTATION; GENETIC ANALYSIS; GENETIC COUNSELING; GENETIC RISK; HEALTH CARE PERSONNEL; HIGH RISK POPULATION; HUMAN; HUNTINGTON CHOREA; INTERPERSONAL COMMUNICATION; MALE; MEDICAL ASSESSMENT; PRIORITY JOURNAL; RISK FACTOR; SEMI STRUCTURED INTERVIEW; SYMPTOM;

DECISION MAKING; FAMILY HEALTH; FEMALE; GENETIC COUNSELING; GENETIC SCREENING; HEALTH PERSONNEL; HUMANS; HUNTINGTON DISEASE; MALE; TRUTH DISCLOSURE;

EID: 34547615218     PISSN: 15524825     EISSN: 15524833     Source Type: Journal    
DOI: 10.1002/ajmg.a.31864     Document Type: Article

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