메뉴 건너뛰기




Volumn 7, Issue 1, 2010, Pages 26-33

Caregiving and adults with intellectual disabilities affected by dementia

Author keywords

Caregiving; Dementia; Intellectual disabilities; Interventions; Services

Indexed keywords


EID: 77956079539     PISSN: 17411122     EISSN: 17411130     Source Type: Journal    
DOI: 10.1111/j.1741-1130.2010.00244.x     Document Type: Review
Times cited : (24)

References (56)
  • 2
    • 0035487503 scopus 로고    scopus 로고
    • Interventions to reduce the burden of caregiving for an adult with dementia: A meta-analysis
    • Acton G J, Kang J. Interventions to reduce the burden of caregiving for an adult with dementia: A meta-analysis. Research in Nursing and Health 2001, 24:349-360.
    • (2001) Research in Nursing and Health , vol.24 , pp. 349-360
    • Acton, G.J.1    Kang, J.2
  • 3
    • 0036076832 scopus 로고    scopus 로고
    • Aromatherapy as a safe and effective treatment for the management of agitation in severe dementia: The results of a double blind, placebo controlled trial
    • Ballard C G, O'Brien J T, Reichelt K, Perry E K. Aromatherapy as a safe and effective treatment for the management of agitation in severe dementia: The results of a double blind, placebo controlled trial. Journal of Clinical Psychiatry 2002, 63:553-558.
    • (2002) Journal of Clinical Psychiatry , vol.63 , pp. 553-558
    • Ballard, C.G.1    O'Brien, J.T.2    Reichelt, K.3    Perry, E.K.4
  • 4
    • 0038070244 scopus 로고    scopus 로고
    • Meta-analysis of psychosocial interventions for caregivers of people with dementia
    • Brodaty H, Green A, Koschera A. Meta-analysis of psychosocial interventions for caregivers of people with dementia. Journal of the American Geriatrics Society 2003, 51:657-664.
    • (2003) Journal of the American Geriatrics Society , vol.51 , pp. 657-664
    • Brodaty, H.1    Green, A.2    Koschera, A.3
  • 5
    • 84993788530 scopus 로고    scopus 로고
    • Adults with Down syndrome and Alzheimer's disease: Comparison of services received in group homes and in special care units
    • Chaput J. Adults with Down syndrome and Alzheimer's disease: Comparison of services received in group homes and in special care units. Journal of Gerontological Social Work 2002, 38:197-211.
    • (2002) Journal of Gerontological Social Work , vol.38 , pp. 197-211
    • Chaput, J.1
  • 6
    • 0037320372 scopus 로고    scopus 로고
    • Donepezil use in the treatment of dementia associated with Down's syndrome
    • Cipriani G, Bianchetti A, Trabucchi M. Donepezil use in the treatment of dementia associated with Down's syndrome. Archives of Neurology 2003, 60:292.
    • (2003) Archives of Neurology , vol.60 , pp. 292
    • Cipriani, G.1    Bianchetti, A.2    Trabucchi, M.3
  • 7
    • 0036727877 scopus 로고    scopus 로고
    • Work stress and people with Down syndrome and dementia
    • Donaldson S. Work stress and people with Down syndrome and dementia. Down Syndrome Research and Practice 2002, 8:74-78.
    • (2002) Down Syndrome Research and Practice , vol.8 , pp. 74-78
    • Donaldson, S.1
  • 8
    • 0029794389 scopus 로고    scopus 로고
    • Further evaluation of the Dementia Questionnaire for Persons with Mental Retardation (DMR)
    • Evenhuis H M. Further evaluation of the Dementia Questionnaire for Persons with Mental Retardation (DMR). Journal of Intellectual Disability Research 1996, 40:369-373.
    • (1996) Journal of Intellectual Disability Research , vol.40 , pp. 369-373
    • Evenhuis, H.M.1
  • 9
    • 34347236565 scopus 로고    scopus 로고
    • The use of dementia care mapping in people with a learning disability and dementia
    • Finnamore T, Lord S. The use of dementia care mapping in people with a learning disability and dementia. Journal of Intellectual Disabilities 2007, 11:157-165.
    • (2007) Journal of Intellectual Disabilities , vol.11 , pp. 157-165
    • Finnamore, T.1    Lord, S.2
  • 10
    • 55049122097 scopus 로고    scopus 로고
    • Physical activity programs for persons with dementia: Cochrane Database of Systematic Reviews
    • Issue 3. DOI: 10.1002/14651858.CD006489.pub2
    • Forbes D, Forbes S, Morgan D G, Markle-Reid M, Wood J, Culum I. Physical activity programs for persons with dementia: Cochrane Database of Systematic Reviews. 2008, Issue 3. DOI: 10.1002/14651858.CD006489.pub2
    • (2008)
    • Forbes, D.1    Forbes, S.2    Morgan, D.G.3    Markle-Reid, M.4    Wood, J.5    Culum, I.6
  • 12
    • 0032865918 scopus 로고    scopus 로고
    • Adverse effects of donepezil in treating Alzheimer's disease associated with Down's syndrome
    • Hemingway-Eltomey J M, Lerner A J. Adverse effects of donepezil in treating Alzheimer's disease associated with Down's syndrome. American Journal of Psychiatry 1999, 156:1470.
    • (1999) American Journal of Psychiatry , vol.156 , pp. 1470
    • Hemingway-Eltomey, J.M.1    Lerner, A.J.2
  • 13
    • 55749106908 scopus 로고    scopus 로고
    • Diagnosis and treatment of dementia: 5. Nonpharmacologic and pharmacologic therapy for mild to moderate dementia
    • Hogan D B, Bailey P, Black S, Carswell A, Chertkow H, Clarke B. Diagnosis and treatment of dementia: 5. Nonpharmacologic and pharmacologic therapy for mild to moderate dementia. CMAJ 2008, 179:1019-1026.
    • (2008) CMAJ , vol.179 , pp. 1019-1026
    • Hogan, D.B.1    Bailey, P.2    Black, S.3    Carswell, A.4    Chertkow, H.5    Clarke, B.6
  • 14
    • 0141724809 scopus 로고    scopus 로고
    • Aromatherapy for dementia: Cochrane Database of Systematic Reviews
    • Issue 1. DOI: 10.1002/14651858.CD003150
    • Holt F E, Birks T P H, Thorgrimsen L M, Spector A E, Wiles A, Orrell M. Aromatherapy for dementia: Cochrane Database of Systematic Reviews. 2009, Issue 1. DOI: 10.1002/14651858.CD003150
    • (2009)
    • Holt, F.E.1    Birks, T.P.H.2    Thorgrimsen, L.M.3    Spector, A.E.4    Wiles, A.5    Orrell, M.6
  • 15
    • 0034198889 scopus 로고    scopus 로고
    • Prevalence of dementia and impact on intellectual disability services
    • Janicki M P, Dalton A J. Prevalence of dementia and impact on intellectual disability services. Mental Retardation 2000, 38:276-288.
    • (2000) Mental Retardation , vol.38 , pp. 276-288
    • Janicki, M.P.1    Dalton, A.J.2
  • 16
    • 84993790814 scopus 로고    scopus 로고
    • Group home care for adults with intellectual disabilities and Alzheimer's disease
    • Janicki M P, Dalton A J, McCallion P, Baxley D, Zendell A. Group home care for adults with intellectual disabilities and Alzheimer's disease. Dementia 2005, 4:361-385.
    • (2005) Dementia , vol.4 , pp. 361-385
    • Janicki, M.P.1    Dalton, A.J.2    McCallion, P.3    Baxley, D.4    Zendell, A.5
  • 18
    • 84993727624 scopus 로고    scopus 로고
    • Dementia related care decision-making in group homes for persons with intellectual disability
    • Janicki M P, McCallion P, Dalton A J. Dementia related care decision-making in group homes for persons with intellectual disability. Journal of Gerontological Social Work 2002, 38:179-196.
    • (2002) Journal of Gerontological Social Work , vol.38 , pp. 179-196
    • Janicki, M.P.1    McCallion, P.2    Dalton, A.J.3
  • 20
    • 77956125383 scopus 로고    scopus 로고
    • Coping with dementia and older families of adults with Down syndrome: Dementia
    • in press
    • Janicki M P, Zendell A, DeHaven K. Coping with dementia and older families of adults with Down syndrome: Dementia. in press
    • Janicki, M.P.1    Zendell, A.2    DeHaven, K.3
  • 22
    • 84993820029 scopus 로고    scopus 로고
    • The content of available practice literature in dementia and intellectual disability
    • Jokinen N. The content of available practice literature in dementia and intellectual disability. Dementia 2005, 4:327-339.
    • (2005) Dementia , vol.4 , pp. 327-339
    • Jokinen, N.1
  • 23
    • 33845746788 scopus 로고    scopus 로고
    • Effects of training on controllability attributions of behavioural excesses and deficits shown by adults with Down syndrome and dementia
    • Kalsy S, Heath R, Adams D, Oliver C. Effects of training on controllability attributions of behavioural excesses and deficits shown by adults with Down syndrome and dementia. Journal of Applied Research in Intellectual Disabilities 2007, 20:64-68.
    • (2007) Journal of Applied Research in Intellectual Disabilities , vol.20 , pp. 64-68
    • Kalsy, S.1    Heath, R.2    Adams, D.3    Oliver, C.4
  • 24
    • 56649117209 scopus 로고    scopus 로고
    • Responding to the pain experiences of older people with a learning difficulty and dementia
    • Retrieved July 27, 2007, from.
    • Kerr D, Cunningham C, Wilkinson H. Responding to the pain experiences of older people with a learning difficulty and dementia. 2006, http://www.jrf.org.uk/publications/pain-management-older-people-with-learning-difficulties-and-dementia, Retrieved July 27, 2007, from.
    • (2006)
    • Kerr, D.1    Cunningham, C.2    Wilkinson, H.3
  • 27
    • 0036311075 scopus 로고    scopus 로고
    • Down syndrome and Alzheimer disease: Response to Donepezil
    • Lott I T, Osann K, Doran E, Nelson L. Down syndrome and Alzheimer disease: Response to Donepezil. Archives of Neurology 2002, 59:1133-1136.
    • (2002) Archives of Neurology , vol.59 , pp. 1133-1136
    • Lott, I.T.1    Osann, K.2    Doran, E.3    Nelson, L.4
  • 28
    • 4344666689 scopus 로고    scopus 로고
    • "Why are my friends changing?" Explaining dementia to people with learning disabilities
    • Lynggaard H, Alexander N. "Why are my friends changing?" Explaining dementia to people with learning disabilities. British Journal of Learning Disabilities 2004, 32:30-34.
    • (2004) British Journal of Learning Disabilities , vol.32 , pp. 30-34
    • Lynggaard, H.1    Alexander, N.2
  • 30
    • 17444374962 scopus 로고    scopus 로고
    • A measure of subjective burden for dementia care: The Caregiving Difficulty Scale-Intellectual Disability
    • McCallion P, McCarron M, Force L. A measure of subjective burden for dementia care: The Caregiving Difficulty Scale-Intellectual Disability. Journal of Intellectual Disability Research 2005, 49:365-371.
    • (2005) Journal of Intellectual Disability Research , vol.49 , pp. 365-371
    • McCallion, P.1    McCarron, M.2    Force, L.3
  • 31
    • 84993734411 scopus 로고    scopus 로고
    • A comparison of reports of caregiver burden between foster family care providers and staff caregivers in other settings: A pilot study
    • McCallion P, Nickle T, McCarron M. A comparison of reports of caregiver burden between foster family care providers and staff caregivers in other settings: A pilot study. Dementia 2005, 4:401-412.
    • (2005) Dementia , vol.4 , pp. 401-412
    • McCallion, P.1    Nickle, T.2    McCarron, M.3
  • 32
    • 77956123406 scopus 로고    scopus 로고
    • A revised stress and coping framework for staff carers of persons with intellectual disabilities and dementia
    • McCarron M, McCallion P. A revised stress and coping framework for staff carers of persons with intellectual disabilities and dementia. Journal of Policy and Practice in Intellectual Disabilities 2005, 2:139-148.
    • (2005) Journal of Policy and Practice in Intellectual Disabilities , vol.2 , pp. 139-148
    • McCarron, M.1    McCallion, P.2
  • 33
    • 34247108296 scopus 로고    scopus 로고
    • End-of-life care challenges for persons with intellectual disability and dementia: Making decisions about tube feeding
    • McCarron M, McCallion P. End-of-life care challenges for persons with intellectual disability and dementia: Making decisions about tube feeding. Intellectual and Developmental Disabilities 2007, 45:128-131.
    • (2007) Intellectual and Developmental Disabilities , vol.45 , pp. 128-131
    • McCarron, M.1    McCallion, P.2
  • 34
    • 0036854673 scopus 로고    scopus 로고
    • A pilot study of the reliability and validity of the Caregiver Activity Survey-Intellectual Disability (CAS-ID)
    • McCarron M, Gill M, Lawlor B, Begley C. A pilot study of the reliability and validity of the Caregiver Activity Survey-Intellectual Disability (CAS-ID). Journal of Intellectual Disability Research 2002a, 46:605-612.
    • (2002) Journal of Intellectual Disability Research , vol.46 , pp. 605-612
    • McCarron, M.1    Gill, M.2    Lawlor, B.3    Begley, C.4
  • 35
    • 0036741059 scopus 로고    scopus 로고
    • Time spent caregiving for persons with the dual disability of Down's syndrome and Alzheimer's dementia: Preliminary findings
    • McCarron M, Gill M, Lawlor B, Begley C. Time spent caregiving for persons with the dual disability of Down's syndrome and Alzheimer's dementia: Preliminary findings. Journal of Learning Disabilities 2002b, 6:263-279.
    • (2002) Journal of Learning Disabilities , vol.6 , pp. 263-279
    • McCarron, M.1    Gill, M.2    Lawlor, B.3    Begley, C.4
  • 36
    • 84993767808 scopus 로고    scopus 로고
    • Alzheimer's dementia in persons with Down's syndrome: Predicting time spent on day-to-day caregiving
    • McCarron M, Gill M, McCallion P, Begley C. Alzheimer's dementia in persons with Down's syndrome: Predicting time spent on day-to-day caregiving. Dementia 2005, 4:521-538.
    • (2005) Dementia , vol.4 , pp. 521-538
    • McCarron, M.1    Gill, M.2    McCallion, P.3    Begley, C.4
  • 37
    • 34447253304 scopus 로고    scopus 로고
    • What does the literature tell us about death, dying and palliative care for people with intellectual disabilities?
    • McKechnie R. What does the literature tell us about death, dying and palliative care for people with intellectual disabilities? Progress in Palliative Care 2006, 14:255-259.
    • (2006) Progress in Palliative Care , vol.14 , pp. 255-259
    • McKechnie, R.1
  • 39
    • 35048904636 scopus 로고    scopus 로고
    • Donepezil, galantamine, rivastigmine (review) and memantine for the treatment of Alzheimer's disease
    • National Institute for Health and Clinical Excellence (NICE), Retrieved on November 20, 2009, from
    • Donepezil, galantamine, rivastigmine (review) and memantine for the treatment of Alzheimer's disease. 2007, http://www.nice.org.uk/TA111, National Institute for Health and Clinical Excellence (NICE), Retrieved on November 20, 2009, from
    • (2007)
  • 40
    • 0036119913 scopus 로고    scopus 로고
    • A 24-week, double-blind, placebo-controlled trial of Donepezil in patients with Down syndrome and Alzheimer's disease-Pilot study
    • Down Syndrome Ageing Study Group
    • Prasher V, Huxley A, Haque M. A 24-week, double-blind, placebo-controlled trial of Donepezil in patients with Down syndrome and Alzheimer's disease-Pilot study. International Journal of Geriatric Psychiatry 2002, 17:270-278. Down Syndrome Ageing Study Group
    • (2002) International Journal of Geriatric Psychiatry , vol.17 , pp. 270-278
    • Prasher, V.1    Huxley, A.2    Haque, M.3
  • 41
    • 0038168889 scopus 로고    scopus 로고
    • Long term safety and efficacy of Donepezil in the treatment of dementia in Alzheimer's disease in adults with Down syndrome: Open label study
    • Prasher V P, Adams C, Holder R. Long term safety and efficacy of Donepezil in the treatment of dementia in Alzheimer's disease in adults with Down syndrome: Open label study. International Journal of Geriatric Psychiatry 2003, 18:549-551.
    • (2003) International Journal of Geriatric Psychiatry , vol.18 , pp. 549-551
    • Prasher, V.P.1    Adams, C.2    Holder, R.3
  • 42
    • 19144364648 scopus 로고    scopus 로고
    • Rivastigmine in the treatment of dementia in Alzheimer's disease in adults with Down syndrome
    • Prasher V P, Fung N, Adams C. Rivastigmine in the treatment of dementia in Alzheimer's disease in adults with Down syndrome. International Journal of Geriatric Psychiatry 2005, 20:496-497.
    • (2005) International Journal of Geriatric Psychiatry , vol.20 , pp. 496-497
    • Prasher, V.P.1    Fung, N.2    Adams, C.3
  • 43
    • 33749067148 scopus 로고    scopus 로고
    • The effect of acetyl-L-carnitine administration on persons with Down syndrome
    • Pueschel S. The effect of acetyl-L-carnitine administration on persons with Down syndrome. Research in Developmental Disabilities 2006, 27:599-604.
    • (2006) Research in Developmental Disabilities , vol.27 , pp. 599-604
    • Pueschel, S.1
  • 44
    • 0034917715 scopus 로고    scopus 로고
    • Learning disabilities and dementia: A pilot therapy group
    • Rosewarne M. Learning disabilities and dementia: A pilot therapy group. Journal of Dementia Care 2001, 9:18-20.
    • (2001) Journal of Dementia Care , vol.9 , pp. 18-20
    • Rosewarne, M.1
  • 45
    • 0036884311 scopus 로고    scopus 로고
    • Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts
    • Schalock R, Brown I, Brown R I, Cummins R, Felce D, Matikka L. Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts. Mental Retardation 2002, 40:457-470.
    • (2002) Mental Retardation , vol.40 , pp. 457-470
    • Schalock, R.1    Brown, I.2    Brown, R.I.3    Cummins, R.4    Felce, D.5    Matikka, L.6
  • 46
    • 84993798213 scopus 로고    scopus 로고
    • Considerations in care for individuals with intellectual disability with advanced dementia
    • Service K. Considerations in care for individuals with intellectual disability with advanced dementia. Journal of Gerontological Social Work 2002, 38:213-224.
    • (2002) Journal of Gerontological Social Work , vol.38 , pp. 213-224
    • Service, K.1
  • 48
    • 77956097562 scopus 로고    scopus 로고
    • Dementia in older adults with Intellectual Disabilities: epidemiology, presentation and diagnosis: Journal of Policy and Practice in Intellectual Disabilities
    • in press
    • Strydom A, Shooshtari S, Lee L, Raykar V, Torr J, Tsiouris J, Jokinen N, Courtenay K, Bass N, Sinnema M. Dementia in older adults with Intellectual Disabilities: epidemiology, presentation and diagnosis: Journal of Policy and Practice in Intellectual Disabilities. in press
    • Strydom, A.1    Shooshtari, S.2    Lee, L.3    Raykar, V.4    Torr, J.5    Tsiouris, J.6    Jokinen, N.7    Courtenay, K.8    Bass, N.9    Sinnema, M.10
  • 51
    • 34447291022 scopus 로고    scopus 로고
    • Practitioner-raised issues and end-of-life care for adults with Down syndrome and dementia
    • Watchman K. Practitioner-raised issues and end-of-life care for adults with Down syndrome and dementia. Journal of Policy and Practice in Intellectual Disabilities 2005, 2:156-162.
    • (2005) Journal of Policy and Practice in Intellectual Disabilities , vol.2 , pp. 156-162
    • Watchman, K.1
  • 52
    • 77953983830 scopus 로고    scopus 로고
    • Changes in accommodation experienced by people with Down syndrome and dementia in the first five years after diagnosis
    • Watchman K. Changes in accommodation experienced by people with Down syndrome and dementia in the first five years after diagnosis. Journal of Policy and Practice in Intellectual Disabilities 2008, 5:65-68.
    • (2008) Journal of Policy and Practice in Intellectual Disabilities , vol.5 , pp. 65-68
    • Watchman, K.1
  • 53
    • 1842543213 scopus 로고    scopus 로고
    • Dementia in people with learning disabilities: A preliminary study into care staff knowledge and attributions
    • Whitehouse R, Chamberlain P, Tunna K. Dementia in people with learning disabilities: A preliminary study into care staff knowledge and attributions. British Journal of Learning Disabilities 2000, 28:148-153.
    • (2000) British Journal of Learning Disabilities , vol.28 , pp. 148-153
    • Whitehouse, R.1    Chamberlain, P.2    Tunna, K.3
  • 54
    • 0036206517 scopus 로고    scopus 로고
    • The Edinburgh Principles with accompanying guidelines and recommendations
    • Wilkinson H, Janicki M. The Edinburgh Principles with accompanying guidelines and recommendations. Journal of Intellectual Disability Research 2002, 46:279-284.
    • (2002) Journal of Intellectual Disability Research , vol.46 , pp. 279-284
    • Wilkinson, H.1    Janicki, M.2
  • 55
    • 38949176575 scopus 로고    scopus 로고
    • Home for good? Preparing to support people with a learning disability in a residential setting when they develop dementia
    • Retrieved November 20, 2009, from
    • Wilkinson H, Kerr D, Cunningham C, Rae C. Home for good? Preparing to support people with a learning disability in a residential setting when they develop dementia. 2004, http://www.jrf.org.uk/bookshop/eBooks/1841961272.pdf, Retrieved November 20, 2009, from
    • (2004)
    • Wilkinson, H.1    Kerr, D.2    Cunningham, C.3    Rae, C.4
  • 56
    • 33645440999 scopus 로고    scopus 로고
    • Reminiscence therapy for dementia: Cochrane Database of Systematic Reviews
    • Issue 2. DOI: 10.1002/14651858.CD001120.pub2
    • Woods B, Spector A, Jones C, Orrell M, Davies S. Reminiscence therapy for dementia: Cochrane Database of Systematic Reviews. 2005, Issue 2. DOI: 10.1002/14651858.CD001120.pub2
    • (2005)
    • Woods, B.1    Spector, A.2    Jones, C.3    Orrell, M.4    Davies, S.5


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.