An investigation into the social participation of stroke survivors with aphasia

Disability and Rehabilitation

Volumn 32, Issue 20, 2010, Pages 1678-1685

  Dalemans, Ruth J P ^a   De Witte, Luc P ^b   Beurskens, Anna J H M ^c   Van Den Heuvel, Wim J A ^d   Wade, Derick T ^e  

^a ZUYD UNIVERSITY OF APPLIED SCIENCES   (Netherlands)

^b Department of Physical Therapy   (Netherlands)

^c Centre of Expertinse on Autonomy and Participation   (Netherlands)

^d MAASTRICHT UNIVERSITY   (Netherlands)

^e OXFORD CENTRE FOR ENABLEMENT   (United Kingdom)

Author keywords

aphasia; Participation; stroke

Indexed keywords

ADULT; AGED; APHASIA; ARTICLE; CROSS-SECTIONAL STUDY; FEMALE; HUMAN; MALE; MIDDLE AGED; MULTIVARIATE ANALYSIS; NETHERLANDS; SOCIAL ADAPTATION; SOCIAL SUPPORT; STATISTICAL MODEL; STROKE;

ADULT; AGED; AGED, 80 AND OVER; APHASIA; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; LINEAR MODELS; MALE; MIDDLE AGED; MULTIVARIATE ANALYSIS; NETHERLANDS; SOCIAL ADJUSTMENT; SOCIAL SUPPORT; STROKE;

EID: 77956041440     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638281003649938     Document Type: Article

References (40)

1. WHO. ICF international homepage. Internet. 2001. Electronic Citation. http://www.who.int/classifications/icf/site/icftem plate.cfm?myurl=introduction. html%20&mytitle=Introduc tion. Last accessed February 2010.
2. Alexander MP. Medical, Neurologic and functional outcome of stroke survivors. In: Mills VM, Cassidy JW, Katz DI, editors. Neurological rehabilitation: a guide to diagnosis, prognosis and treatment planning. Cambridge: Blackwell Science; 1997. pp 29-59.
3. Van Heugten C, editor. Revalidatie na een beroerte: richtlijnen en aanbevelingen voor zorgverleners. Den Haag: Nederlandse Hartstichting; 2001. 146 p.
4. Lyon J, Shadden BB. Treating life consequences of aphasia's chronicity. In: Chapey R, editor. Language intervention strategies in adults. 4th ed. Baltimore, MD: Williams and Wilkins; 2001. pp 297-315.
5. Simmons-Mackie N, Threats TT, Kagan A. Outcome assessment in aphasia: a survey. J Commun Disord 2005;38:1-27.
6. Parr S. Living with severe aphasia: tracking social exclusion. Aphasiology 2007;21:198-1123
7. Dalemans RJP, de Witte L, van Den Heuvel W, Wade D. A description of social participation in working age people with aphasia: a review of the literature. Aphasiology 2008;22:1071-1091.
8. Barrow R. Listening to the voice of living life with aphasia: Anne's story. Int J Lang Commun Disord 2008;43(S1):30-46.
9. Davidson B, Howe T, Worrall L, Hickson L, Togher L. Social participation for older people with aphasia: the impact of communication disability on friendships. Top Stroke Rehabil 2008;15:325-340.
10. Holland AL. Living successfully with aphasia: three variations on the theme. Top Stroke Rehabil 2006;13:44-51.
11. Natterlund BS. A new life with aphasia: everyday activities and social support. Scand J Occup Ther 2009;16:1-13.
12. Code C. The quantity of life for people with chronic aphasia. Neuropsychol Rehabil 2003;13:379-390.
13. Worrall L, Hickson LMH. Quantifying aphasia people's social lives in the context of non-aphasic peers. Aphasiology 2006;20:1210-1225.
14. Hilari K, Northcott S. Social support in people with chronic aphasia. Aphasiology 2006;20:17-36.
15. Byng S, Pound C, Parr S. Living with aphasia: a framework for therapy interventions. In: Papathanasiou I, editor. Acquired neurological communication disorders: a clinical perspective. London: Whurr; 2000. pp.49-75.
16. Kimbarow ML. Integrating life participation approaches to aphasia treatment with adult learning theory: a synergistic approach. Top Lang Disord 2007;27:318-323.
17. Chapey R, Duchan JF, Elman RJ, Garcia LJ, Kagan A, Lyon J, Simmons Mackie N. Internet. 2009. Electronic Citation. Life participation approach for people with aphasia: a statement of values for the future. American Speech-Language- Hearing Association. http://journals.lww.com/topicsinlanguage disorders/Abstract/2007/10000/Integrating-Life-Participation- Approaches-to.5.aspx. Last accessed February 2010.
18. Shadden BB, Hagstrom F. The role of narrative in the life participation approach to aphasia. Top Lang Disord 2007; 27:324-338.
19. Williams SE. Supporting social participation for individuals with significant communication disabilities. Center on disabilities: technology and persons with disabilities conference 2005. Northridge, CA: California State University Northridge; 2005.
20. Dalemans RJP, de Witte L, Wade D, van Den Heuvel W. Social participation through the eyes of people with aphasia. Int J Lang Commun Disord. Electronic Citation. 2009. http:// informahealthcare.com/doi/abs/10.3109/13682820903223633? journalCode=lcd. Last accessed October 2009.
21. Dalemans RJP, Wade D, Van Den Heuvel W, De Witte L. Facilitating the participation of people with aphasia in research: a description of strategies. Clin Rehabil 2009;23: 948-959.
22. Enderby P, Crow E. Frenchay aphasia screening test: validity and comparability. Disabil Rehabil 1996;18:238-240.
23. Collin C, Wade DT, Davies S, Horne V. The Barthel ADL Index: a reliability study. Int Disabil Stud 1988;10:61-63.
24. Green J, Forster A, Young J. A test-retest reliability study of the Barthel Index, the Rivermead Mobility Index, the Nottingham Extended Activities of Daily Living Scale and the Frenchay Activities Index in stroke patients. Disabil Rehabil 2001;23:670-676.
25. Van Weel C. Functional status in primary care: COOP/ WONCA charts. Disabil Rehabil 1993;15:96-101.
26. Kinnersley P, Peters T, Stott N. Measuring functional health status in primary care using the COOP-WONCA charts: acceptability, range of scores, construct validity, reliability and sensitivity to change. Br J Gen Pract 1994;44:545-549.
27. Willer B, Ottenbacher KJ, Coad ML. The Community Integration Questionnaire: a comparitive examination. Am J Phys Med Rehabil 1994;73:103-111.
28. Dalemans RJP, de Witte L, Beurskens S, van Den Heuvel W, Wade D. Psychometric properties of the CIQ adjusted for people with aphasia. Arch Phys Med Rehabil 2009. (In press).
29. Cruice M, Worrall L, Hickson LMH. Quantifying aphasic people's social lives in the context of non-aphasic peers. Aphasiology 2006;20:1210-1225.
30. Wood RL, Rutterford NA. Psychosocial adjustment 17 years after severe brain injury. J Neurol Neurosurg Psychiatry 2006;77:71-73.
31. Rath JF, Hennessy JJ, Diller L. Social problem solving and community integration in postacute rehabilitation outpatients with traumatic brain injury. J Adv Nurs 2003;48:137-144.
32. Black-Schaffer RM, Osberg JS. Return to work after stroke: development of a predicitive model. Arch Phys Med Rehabil 1990;71:285-290.
33. Schepers VP, Visser-Meily AM, Ketelaar M, Lindeman E. Prediction of social activity 1 year poststroke. Arch Phys Med Rehabil 2005;86:1472-1476.
34. Tilling K, Sterne JAC, Rudd AG, Glass TA, Wityk RJ, Wolfe CDA. A New method for predicting recovery after stroke. Stroke 2001;32:2867-2873.
35. Howe T, Worrall L, Hickson L. Interviews with people with aphasia: environmental factors that influence their community participation. Aphasiology 2008;22:1-29.
36. Howe T, Worrall L, Hickson L. et al. Observing people with aphasia: environmental factors that influence their community participation Aphasiology 2008;22:618-643.
37. Brown K, McGahan L, Alkhaledi M, Seah D, Howe T, Worrall L. Environmental factors that influence the community participation of adults with aphasia: the perspective of service industry workers. Aphasiology 2006;20:595-615.
38. Brumfitt S. Psychosocial aspects of aphasia: speech and language therapists' views on professional practice. Disabil Rehabil 2006;28:523-534.
39. Whiteneck GG, Gerhart KA, Cusick CP. Identifying environmental factors that influence the outcomes of people with traumatic brain injury. J Head Trauma Rehabil 2004;19: 191-204.
40. Jelsma J. Use of the International Classification of Functioning, Disability and health: a literature survey. J Rehabil Med 2009;41:1-12.