The public production and sharing of medical information. An Australian perspective

Journal of Science Communication

Volumn 9, Issue 1, 2010, Pages 1-10

  Henry, C H Ko ^a  

^a MONASH UNIVERSITY   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 77955896083     PISSN: None     EISSN: 18242049     Source Type: Journal    
DOI: None     Document Type: Article

References (68)

1. Victorian Quality Council, (2007), Consumer leadership. Report of the findings of a literature review and consultation process into consumer leadership, February 2007, D.o.H.S. Victoria ed., Rural and Regional Health and Aged Care Services Division, Melbourne. p. 1-78.
2. Victorian Quality Council, (2007), Consumer leadership. A literature review, D.o.H.S. Victoria ed., Rural and Regional Health and Aged Care Services Division: Melbourne, p. 1-78.
3. E. Anderson, M. Shepherd, and C. Salisbury, (2006), 'Taking off the suit': Engaging the community in primary health care decision-making, Health Expectations 9: 70-80.
4. Department of Human Services Victoria, (2005), Consultation paper: Participation in your health service system, Department of Human Services Victoria, Melbourne
5. T. Friedman, (2007), The world is flat, 3.0: A brief history of the twenty-first century, Picador, USA.
6. National Library of Medicine, http://www.ncbi.nlm.nih.gov/pubmed/.
7. Public Library of Science, http://www.plos.org/.
8. D. Bowling, (2001), Engaging citizens in the Danish health care sector, in Citizens as partners: Information, consultation and public participation in policy making, J. Caddy ed., Organisation for Economic Co-operation and Development, Paris. p. 107-123.
9. Health Canada, (2000), Health Canada policy toolkit for public involvement in decision making, Health Canada: Ottowa
10. D. Horey and S. Hill, (2005), Engaging consumers in health policy, in Australian Institute for Health Policy Studies Health Policy Roundtable, Australian Institute for Health Policy Studies, Canberra.
11. M Nisbet and C. Mooney, (2007), Framing science, Science 316(5821): 56.
12. A. Gunther and K. Schmitt, (2004), Mapping boundaries of the hostile media effect, Journal of Communication 54(1): 55-70.
13. T. Caulfield, (2004), Biotechnology and the popular press: hype and the selling of science, Trends in Biotechnology 22(7): 337-9.
14. L Rothenberg, (1994), Biotechnology's issue of public credibility, Trends in Biotechnology 12(11): p. 435-438.
15. J Gregory and Australian Institute of Health Policy Studies (AIHPS), (2007), Conceptualising consumer engagement: a review of the literature, in Consumer engagement in Australian health policy: Investigating current approaches and developing new models for more effective consumer participation, Australian Institute of Health Policy Studies (AIHPS): Melbourne. p. 1-69.
16. National Medicines Symposium, http://www.nps.org.au/all_events/all_events/national_medicines_symposium_2008.
17. Second Joint Medicines Policy Conference, http://www.medicinesaustralia.com.au/pages/page132.asp.
18. Australian Commission on Safety and Quality in Health Care, http://www.safetyandquality.gov.au/.
19. Australian Commission on Safety and Quality in Health Care, (2009), Discussion paper on achieving the directions established in the proposed national safety and quality framework, Australian Commission on Safety and Quality in Health Care, Sydney
20. E. Einsiedel, (2008), Public engagement and dialogue: a research review, in Handbook of Public Communication on Science and Technology, M. Bucchi and B. Smart eds., Routledge: London. p. 173-184.
21. Consumers Health Forum of Australia, http://www.chf.org.au.
22. Cancer Voices Australia, http://www.cancervoicesaustralia.org.au/.
23. Health Consumer Council, http://www.hconc.org.au/.
24. A.E. Clarke et al., (2003), Biomedicalization: Technoscientific transformations of health, illness, and US biomedicine, American Sociological Review 68(2): p. 161-194.
25. National Prescibing Service, http://www.nps.org.au.
26. Health Issues Centre, http://www.healthissuescentre.org.au/.
27. Cancer Council Australia, http://www.cancer.org.au/Home.htm.
28. National Prescribing Service and Federation of Ethnic Communities Councils of Australia, Multicultural community quality use of medicines program, http://www.fecca.org.au/MCQUM.cfm.
29. Health Insite. An Australian Government Initiative, http://www.healthinsite.gov.au/.
30. Cosmos Magazine Australia, http://www.cosmosmagazine.com/.
31. Australiasian Science Magazine, http://www.control.com.au/.
32. Expert Patients Program Community Interest Company, (2009), Expert Patients Program CIC - Self managing long-term health conditions, available from http://www.expertpatients.co.uk/.
33. D. Johnstone and C. Campbell-Jones, (2003), Skills for regeneration: Learning by community champions, Educe UK Department for Education and Skills, London.
34. M Taylor et al., (2005), Making connections: An evaluation of the community participation programmes, Research Report 15, UK Office of the Deputy Prime Minister, London.
35. D. Johnstone et al., (2005), Neighbourhood Renewal Advisers: Skills and Knowledge Programme Evaluation Background Report 3, Educe UK Office of the Deputy Prime Minister, London.
36. J Gregory and Australian Institute of Health Policy Studies (AIHPS), (2008), Consumer engagement in Australian health policy: Final report of the AIHPS research project, in Consumer engagement in Australian health policy: Investigating current approaches and developing new models for more effective consumer participation, Australian Institute of Health Policy Studies (AIHPS): Melbourne. p. 1-99.
37. A. Watson et al., (2004), Evaluation of the community champions fund, ASW Consulting, UK Department for Education and Skills, London.
38. International Alliance of Patients' Organisations, http://www.patientsorganizations.org/.
39. Consumers Advancing Patient Safety, http://www.patientsafety.org/.
40. WHO World Alliance for Patient Safety, http://www.who.int/patientsafety/en/.
41. Regional Telecommunications Independent Review Committee, (2008), Regional telecommunicatons review: Framework for the future, Australian Government Attorney General's Department: Barton
42. S Cunningham-Burley, (2006), Public knowledge and public trust, Community Genetics 9(3): p. 204-210.
43. National Health and Medical Research Council, (2006), Guide to effective participation of consumers and communities in developing and disseminating health information, National Health and Medical Research Council Australian Government, Canberra
44. Department of Human Services Victoria, (2006), Doing it with us not for us, D.o.H.S. Victoria ed., Rural and Regional Health and Aged Care Services: Melbourne. p. 1-100.
45. D.T. Zallen, (1994), The public as a partner at the laboratory bench, Trends in Biotechnology 12(4): 107-108.
46. R. Borchelt and K. Hudson, (2008), Engaging the scientific community with the public, Science Progress, Spring/Summer: p. 78-81.
47. M Powell, (2008), Building citizen capacities for participation in nanotechnology decision-making: the democratic virtues of the consensus Conference model, Public Understanding of Science 17(3): 329-348
48. J Besley et al., (2008), Interpersonal discussion following citizen engagement about nanotechnology, Science Communication 30(2): 209-235.
49. T. Rogers-Hayden, (2007), Moving engagement "upstream"? Nanotechnologies and the Royal Society and Royal Academy of Engineering's inquiry, Public Understanding of Science 16(3): 345-364.
50. J Barnett, H. Cooper and V. Senior, (2007), Belief in public efficacy, trust, and attitudes towards modern genetic science, Risk Analysis 27(4): 921-933.
51. L Cairncross et al., (2002), Tenants managing: an evaluation of tenant management organisations in England, Office of the Deputy Prime Minister: London.
52. D. Hills et al., (2007), The Evaluation of the Big Lottery Fund Healthy Living Centres Programme, Tavistock Institute and Bridge Consortium: London.
53. J Tunstill et al. (2005), Sure Start local programmes: Implications of case study data from the national evaluation of Sure Start, Children and Society 19: 158-171.
54. P. Sturgis, H. Cooper and C. Fife-Schaw, (2005), Attitudes to biotechnology: estimating the opinions of a better-informed public. New Genetics and Society, 24(1): 31-56.
55. Consumers Health Forum of Australia, (2009), Submission to the Draft Guideline for Levels and Kinds of Evidence of Listed Medicines with Indications and Claims for Weight Loss, Consumers Health Forum of Australia:,Canberra. p. 8.
56. B. Wynne, (2006), Public engagement as a means of restoring public trust in science--hitting the notes, but missing the music? Community Genetics 9(3): 221-220.
57. J Wilsdon and R. Willis, (2004), See-through science: why public engagement needs to move upstream, Demos, London.
58. E. Allen and L. Hood, (2000), Biotechnology, inquiry, and public education, Trends in Biotechnology 18(8): 329-30.
59. E. Cohen et al. (2008), Public engagement on global health challenges, BMC Public Health 20(8).
60. K.G. Davies and J. Wolf-Phillips, (2006), Scientific Citizenship and good governance: implications for biotechnology, Trends in Biotechnology 24(2): 57-61.
61. Australian Health Care Reform Alliance, (2005), Action plan for health care reform in Australia, Paper IV: Community consultation and engagement, Australian Health Care Reform Alliance
62. UK National Institute for Health and Clinical Excellence (NICE), (2008), Community engagement to improve health. NICE public health guidance 9, in NICE public health guidance, U. Nice ed., UK NICE, London, p. 1-91.
63. S Oliver et al., (2004), Involving consumers in research and development agenda setting for the NHS: developing an evidencebased approach, Health Technology Assessment 8(15): 1-154.
64. B. O'Brien, A. Alderice and J. Hales, Evaluation of the effectiveness of the community advisory committees to boards of Victorian public health services, Final report. 2008, Department of Human Services Victoria and Health Outcomes International, Melbourne, p. 1-71.
65. A. Chisholm, K. Briggs and J. Askham, (2009), Not NICE. Can PCTs engage patients and the public in commissioning new health technologies? Picker Institute Europe, Oxford, p. 1-45.
66. K Jones, R. Baggot and J. Allsop, (2006), Influencing the national policy process: The role of health consumer groups, Health Expectations 7: 18-28.
67. F Scutchfield, L. Hall and C. Ireson, (2006), The public and public health organizations: Issues for community engagement in public health, Health Policy 77(1): 76-85.
68. F Scutchfield, C. Ireson and L. Hall, (2004), The voice of the public in public health policy and planning: The role of public judgement, Journal of Public Health Policy 25(2): 197-205.