Perceptions of Japanese patients and their family about medical treatment decisions

Nursing and Health Sciences

Volumn 12, Issue 3, 2010, Pages 314-321

  Ito, Misae ^a   Tanida, Noritoshi ^b   Turale, Sue ^c  

^a KAWASAKI UNIVERSITY OF MEDICAL WELFARE   (Japan)

^b Faculty of System Control Medicine   (Japan)

^c YAMAGUCHI UNIVERSITY GRADUATE SCHOOL OF MEDICINE   (Japan)

Author keywords

Decision making; Ethics; Family; Japan; Patient autonomy

Indexed keywords

ADULT; AGED; ARTICLE; CHI SQUARE DISTRIBUTION; DECISION MAKING; DEVELOPMENTAL DISORDER; ETHICS; FAMILY; FEMALE; HUMAN; JAPAN; MALE; MENTAL CAPACITY; MIDDLE AGED; NONPARAMETRIC TEST; PATIENT; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE;

ADULT; AGED; AGED, 80 AND OVER; CHI-SQUARE DISTRIBUTION; DECISION MAKING; DEVELOPMENTAL DISABILITIES; FAMILY; FEMALE; HUMANS; JAPAN; MALE; MENTAL COMPETENCY; MIDDLE AGED; PATIENTS; QUESTIONNAIRES; STATISTICS, NONPARAMETRIC;

EID: 77955789178     PISSN: 14410745     EISSN: 14422018     Source Type: Journal    
DOI: 10.1111/j.1442-2018.2010.00532.x     Document Type: Article

References (47)

1. Akamine Y, Akamine K. Consideration of issues concerning terminal cancer disclosure. Prim. Care 2002, 25:19-28.
2. Anderlik MR, Pentz RD, Hess KR. Revisiting the truth-telling debate: a study of disclosure practices at a major cancer center. J. Clin. Ethics 2000, 11:251-259.
3. Arnold RM, Kellum J. Moral justifications for surrogate decision-making in the intensive care unit: implications and limitations. Crit. Care Med. 2003, 31:347-353.
4. Asai A, Kishino M, Tsuguya F. A report from Japan: choices of Japanese patients in the face of disagreement. Bioethics 1998, 12:162-172.
5. Barnes DM, Davis AJ, Moran T. Informed consent in a multicultural cancer patient population: implications for nursing practice. Nurs. Ethics 1998, 5:412-423.
6. Beauchamp TL, Childress JF. Principles of Biomedical Ethics 2001, 5th, edn, New York, Oxford
7. Blackhall LJ, Murphy ST, Frank G. Ethnicity and attitudes toward patient autonomy. JAMA 1995, 274:820-825.
8. Dierckx de Casterle B, Izumi S, Godfrey NS, Denhaerynck K. Nurses' responses to ethical dilemmas in nursing practice: meta-analysis. J. Adv. Nurs. 2008, 63:540-549.
9. Ditto PH, Danks JH, Smucker WD. Advance directives as acts of communication: a randomized controlled trial. Arch. Intern. Med. 2001, 161:421-430.
10. Elwyn TS, Fetters MD, Gorenflo W, Tsuda T. Cancer disclosure in Japan: historical comparisons, current practices. Soc. Sci. Med. 1998, 46:1151-1163.
11. Elwyn TS, Fetters MD, Sasaki H, Tsuda T. Responsibility and cancer disclosure in Japan. Soc. Sci. Med. 2002, 54:281-293.
12. Emanuel EJ, Emanuel LL. Four models of the physician-patient relationship. JAMA 1992, 267:2221-2226.
13. Ende J, Kazis L, Ash A, Moskowitz MA. Measuring patients' desire for autonomy: decision making and information-seeking preferences among medical patients. J. Gen. Intern. Med. 1989, 4:23-30.
14. Fetters MD. The family in medical decision-making: Japanese perspectives. J. Clin. Ethics 1998, 9:132-146.
15. Fetters MD, Churchill L, Danis M. Conflict resolution at the end of life. Crit. Care Med. 2001, 29:921-925.
16. Informing and Involving Patients in Medical Decisions: The Primary Care Physicians' Perspective. 2009, http://www.informedmedicaldecisions.org/pdfs/FinalwhitepaperPCPSurvey.pdf, Foundation for Informed Medical Decision Making (FIMDM), White paper, Cited 20 Mar 2009.] Available from URL: .
17. Harrowing JN, Spiers J, Kulig J, Kipp W. Culture, context and community: ethical considerations for global nursing research. Int. Nurs. Rev. 2010, 57:70-77.
18. Hashimoto N. Disclosure of the cancer diagnosis. J. Jpn Med. Assoc. 1995, 113:937-942. in Japanese
19. Hattori T. End-of-life care and advance directives in Japan. J. Int. Bioethique 2005, 16:135-142. 198
20. Horikawa N, Yamazaki T, Sagawa M, Nagata T. Changes in disclosure of information to cancer patients in a general hospital in Japan. Gen. Hosp. Psychiatry 2000, 22:37-42.
21. Ishikawa H, Yamazaki Y. How applicable are Western models of patient-physician relationship in Asia?: changing patient-physician relationship in contemporary Japan. Int. J. Jap. Sociol. 2005, 14:84-93.
22. Izumi S. Bridging Western ethics and Japanese local ethics by listening to nurses' concerns. Nurs. Ethics 2006, 13:275-283.
23. Kai I, Ohi G, Yano E. Communication between patients and physicians about terminal care: a survey in Japan. Soc. Sci. Med. 1993, 36:1151-1159.
24. Kendall S. Being asked not to tell: nurses' experiences of caring for cancer patients not told their diagnosis. J. Clin. Nurs. 2006, 15:1149-1157.
25. Konishi E, Davis AJ. Japanese nurses' perceptions about disclosure of information at the patients' end of life. Nurs. Health Sci. 1999, 1:179-187.
26. Long SO. Public passages, personal passages, and reluctant passages: notes on investigating cancer disclosure practices in Japan. J. Med. Humanit. 2000, 21:3-13.
27. Long SO, Long BD. Curable cancers and fatal ulcers. Attitudes toward cancer in Japan. Soc. Sci. Med. 1982, 16:2101-2108.
28. Matsumura S, Bito S, Liu H. Acculturation of attitudes toward end-of-life care: a cross-cultural survey of Japanese Americans and Japanese. J. Gen. Intern. Med. 2002, 17:531-539.
29. Miyata H, Takahashi M, Saito T. Disclosure preferences regarding cancer diagnosis and prognosis: to tell or not to tell? J. Med. Ethics 2005, 31:447-451.
30. Mobeireek AF, Al-Kassimi F, Al-Zahrani K. Information disclosure and decision-making: the Middle East versus the Far East and the West. J. Med. Ethics 2008, 34:225-229.
31. Nelson JL. Physicians and family interests. Crit. Care Med. 2003, 31:2072-2073.
32. Nolan MT, Hughes M, Narendra DP. When patients lack capacity: the roles that patients with terminal diagnoses would choose for their physicians and loved ones in making medical decisions. J. Pain Symptom Manage. 2005, 30:342-353.
33. Ohki M, Fukuhara S. Development and validation of the autonomy preference index for Japanese subjects. Jap. Health Psychol. 1995, 3:11-24.
34. Ohki M, Fukuhara S. Measurement of information seeking preference of Japanese in clinical settings. Jap. J. Health Psychol. 1997, 10:1-10. in Japanese
35. Quill TE, Brody H. Physician recommendations and patient autonomy: finding a balance between physician power and patient choice. Ann. Intern. Med. 1996, 125:763-769.
36. Sahlberg-Blom E, Ternestedt BM, Johansson JE. Patient participation in decision-making at the end of life as seen by a close relative. Nurs. Ethics 2000, 7:296-313.
37. Sasaki J, Nagai Y, Okamoto T. Cancer notification in specialized cancer hospitals. Jap. J. Cancer Clin. 1999, 45:1027-1033. in Japanese
38. Seckler AB, Meier DE, Mulvihill M, Paris BE. Substituted judgment: how accurate are proxy predictions? Ann. Intern. Med. 1991, 115:92-98.
39. Sehgal AR, Weisheit C, Miura Y. Advance directives and withdrawal of dialysis in the United States, Germany, and Japan. JAMA 1996, 276:1652-1656.
40. Sekimoto M, Asai A, Ohnishi M. Patients' preferences for involvement in treatment decision making in Japan. BMC Family Prac. 2004, 5. http://www.biomedcentral.com/1471-2296/5/1, Cited 20 Jan 2008.] Available from URL: .
41. Suhl J, Simons P, Reedy T, Garrick T. Myth of substituted judgment. Surrogate decision-making regarding life support is unreliable. Arch. Intern. Med. 1994, 154:90-96.
42. Sulmasy DP, Terry PB, Weisman CS. The accuracy of substituted judgments in patients with terminal diagnoses. Ann. Intern. Med. 1998, 128:621-629.
43. Suominen T, Leino-Kilpi H, Laippala P. Breast cancer patients' perceived participation in health care: how do patients themselves and nurses assess this participation? Nurs. Ethics 1994, 1:96-109.
44. Terry PB, Vettese M, Song J. End-of-life decision-making: when patients and surrogates disagree. J. Clin. Ethics 1999, 10:286-293.
45. Turale S. Ethical concerns in international qualitative health research. Qual. Res. 2007, 18:1-13.
46. Uchitomi Y, Yamawaki S. Truth-telling practice in cancer care in Japan. Ann. N. Y. Acad. Sci. 1997, 809:290-299.
47. Wros P, Doutrich D, Izumi S. Ethical concerns: comparison of values from two cultures. Nurs. Health Sci. 2004, 6:131-140.