Development and preliminary evaluation of the KIDCLOT PAC QL©: A new health-related quality of life measure for pediatric long-term anticoagulation therapy

Thrombosis Research

Volumn 126, Issue 2, 2010, Pages

  Bruce, A A K ^a   Bauman, M E ^a   Black, K ^b   Newton, A ^a   Legge, L ^c   Massicotte, M P ^a  

^a UNIVERSITY OF ALBERTA   (Canada)

^b STOLLERY CHILDREN S HOSPITAL   (Canada)

^c CHILDREN S HOSPITAL RESEARCH INSTITUTE OF MANITOBA   (Canada)

Author keywords

Adherence; Anticoagulation; Children; Quality of life; Warfarin

Indexed keywords

WARFARIN;

ADOLESCENT; ANTICOAGULANT THERAPY; ARTICLE; CHILD; CLINICAL ARTICLE; CONTENT VALIDITY; FACE VALIDITY; FEMALE; HUMAN; INTERNAL CONSISTENCY; KIDS INFORMED DECREASE COMPLICATIONS LEARNING ON THROMBOEMBOLISM PEDIATRIC ANTICOAGULATION QUALITY OF LIFE INVENTORY; LONG TERM CARE; MALE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; PARENT; PRESCHOOL CHILD; PRIORITY JOURNAL; QUALITY OF LIFE; SCHOOL CHILD; TEST RETEST RELIABILITY; THROMBOSIS; THROMBOSIS PREVENTION;

ADOLESCENT; ANTICOAGULANTS; CHILD; CHILD, PRESCHOOL; FEMALE; HUMANS; INFANT; MALE; PARENTS; PSYCHOMETRICS; QUALITY OF LIFE; WARFARIN;

EID: 77955708704     PISSN: 00493848     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.thromres.2010.05.026     Document Type: Article

References (28)

1. P. Monagle, A. Chan, and P. Massicotte Antithrombotic therapy in neonates and children: the Eighth ACCP Conference on Antithrombotic and Thrombolytic Therapy Chest 133 6 Suppl June 2008 645S 687S
2. W. Streif, M. Andrew, and V. Marzinotto Analysis of warfarin therapy in pediatric patients: A prospective cohort study of 319 patients Blood 94 9 Nov 1 1999 3007 3014
3. E. Sabaté Adherence to Long-Term Therapies: Evidence for action 2003
4. M.E. Jenney, and S. Campbell Measuring quality of life Arch Dis Child 77 4 Oct 1997 347 350
5. P.A. Newcombe, J.K. Sheffield, and E.F. Juniper Development of a parent-proxy quality-of-life chronic cough-specific questionnaire: clinical impact vs psychometric evaluations Chest 133 2 Feb 2008 386 395
6. J.W. Varni, T.M. Burwinkle, and M.M. Lane Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application Health & Quality of Life Outcomes. 3 2005 34
7. J.W. Varni, T.M. Burwinkle, and M. Seid The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity Ambulatory Pediatrics 3 6 Nov-Dec 2003 329 341
8. J.W. Varni, and C.A. Limbers The pediatric quality of life inventory: measuring pediatric health-related quality of life from the perspective of children and their parents Pediatr Clin N Am 56 4 Aug 2009 843 863
9. B.S. Marino, D. Shera, and G. Wernovsky The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease Qual Life Res 17 4 May 2008 613 626
10. G. Samsa, D.B. Matchar, and R.J. Dolor A new instrument for measuring anticoagulation-related quality of life: Development and preliminary validation Health Qual Life Outcomes 2004 2
11. P.T. Sawicki A structured teaching and self-management program for patients receiving oral anticoagulation. A randomized controlled trial J of the Am Med Assoc 281 2 1999 145 150
12. H. Voller, U. Taborski, and C. Dovifat ProTime self-management yielding improvement of fluency and quality of life Thromb Haemost 98 4 2007 889 895
13. P.V. Burkhart, and E. Sabate Adherence to long-term therapies: evidence for action J Nurs Scholarsh 35 3 2003 207 (Pubitemid 38591659)
14. J. Campbell Illness is a point of view;The development of children's concept of illness Child Dev 46 1 March 1975 92 100
15. C. Hart, and R. Chesson Children as consumers Br Med J 316 7144 1998 1600 1603
16. R. Limbo, W. Petersen, and K. Pridham Promoting safety of young children with guided participation processes Journal of Pediatric Health Care Official Publication of National Association of Pediatric Nurse Associates & Practitioners. 17 5 2003 245 251
17. J.M. Valderas, A. Kotzeva, and M. Espallargues The impact of measuring patient-reported outcomes in clinical practice: A systematic review of the literature Qual Life Res 17 2 2008 179 193
18. (1991) W-H-OSWHO. Child Health and Development: Health of the Newborn; 1991, 1991.
19. C. Eiser, and R. Morse Can parents rate their child's health-related quality of life? Results of a systematic review Qual Life Res 10 4 2001 347 357
20. C. Eiser, and R. Morse Quality-of-life measures in chronic diseases of childhood Health Technol Assess 5 4 2001
21. R.M. Baars, S.M. van der Pal, and H.M. Koopman Clinicians' perspective on quality of life assessment in paediatric clinical practice Acta Paediatr 93 10 Oct 2004 1356 1362
22. P. Casais, S.S. Meschengieser, and A. Sanchez-Luceros Patients' perceptions regarding oral anticoagulation therapy and its effect on quality of life Current Medical Research & Opinion 21 7 Jul 2005 1085 1090
23. M.H. Becker, L.A. Maiman, and J.P. Kirscht Patient perceptions and compliance: Recent studies of the health belief model 1979 John Hopkins University Press Baltimore
24. B.R. Cassileth, R.V. Zupkis, and K. Sutton-Smith Information and participation preferences among cancer patients American College of Physicans-American Society of Internal Medicine 92 6 Jun 1980 832 836
25. J. Guevara, F. Wolf, and G CM Effects of educational interventions for self management of asthma in children and adolescents: systematic review and meta-analysis Br Med J 326 7402 2003 1308 1309
26. M. Cole, and S. Cole In The Development of Children 4 ed. 2001 Worth Publisher New York
27. G. Makoul, P. Arntson, and T. Schofield Health promotion in primary care: physician-patient communication and decision making about prescription medications Social Science and Medicine 41 9 Nov 1995 1241 1254
28. T.D. Christensen Self-management of oral anticoagulant therapy: a review Journal of Thrombosis & Thrombolysis 18 2 Oct 2004 127 143