A clinical trial of peer-based culturally responsive person-centered care for psychosis for African Americans and Latinos

Clinical Trials

Volumn 7, Issue 4, 2010, Pages 368-379

  Tondora, Janis ^a   O'Connell, Maria ^a   Miller, Rebecca ^a   Dinzeo, Tom ^b   Bellamy, Chyrell ^a   Andres Hyman, Raquel ^a   Davidson, Larry ^a  

^a YALE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b ROWAN UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AFRICAN AMERICAN; ARTICLE; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; EMPOWERMENT; ETHNICITY; FEMALE; HEALTH CARE ACCESS; HISPANIC; HUMAN; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH CARE; OUTPATIENT; PATIENT SATISFACTION; PEER REVIEW; PRIORITY JOURNAL; PSYCHOSIS; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; TREATMENT PLANNING;

ADULT; AFRICAN AMERICANS; COMMUNITY MENTAL HEALTH CENTERS; CULTURAL COMPETENCY; FEMALE; HISPANIC AMERICANS; HUMANS; MALE; MENTAL DISORDERS; MIDDLE AGED; PATIENT SATISFACTION; PATIENT-CENTERED CARE; PEER GROUP; QUALITY OF LIFE; SOCIOECONOMIC FACTORS;

EID: 77955579352     PISSN: 17407745     EISSN: 17407753     Source Type: Journal    
DOI: 10.1177/1740774510369847     Document Type: Article

References (81)

1. U.S. Department of Health and Human Services. Mental Health: Culture, Race, and Ethnicity - A Supplement to Mental Health: A Report of the Surgeon General. US Department of Health and Human Services, Public Health Service, Office of the Surgeon General, Rockville, MD, 2001.
2. U.S. Department of Health and Human Services. Mental Health: A Report of the Surgeon General. U.S. Department of Health and Human Services, Substance Abuse and Mental Health Services Administration, Center for Mental Health Services, National Institutes of Health, National Institute of Mental Health, Rockville, MD, 1999.
3. A practical guide for implementing the recommended national standards for culturally and linguistically appropriate services in healthcare. [homepage on the Internet]. 2001. Available at: http://www.omhrc.gov/clas/guide3a.asp (accessed on 7 September 2009).
4. Tondora J., Pocklington S., Gregory Gorges A., et al. Implementation of person-centered care and planning: how philosophy can inform practice. Unpublished paper, Substance Abuse and Mental Health Services Administration, Rockville, MD, 2005.
5. Institute of Medicine (IOM). Crossing the Quality Chasm: A New Health System for the 21st Century. Institute of Medicine, National Academy Press, Washington, D.C., 2001.
6. Gerteis M., Edgman-Levitan L., Daley Jl, Delbanco TL Medicine and health from the patients perspective. In In Gerteis M, Edgman-Levitan L, Daley J l, Delbanco TL. (eds). Through the Patients Eyes. Jossey-Bass, Inc., San Francisco, CA, 1993, pp. 1-15.
7. OBrien J., Lovett H. Finding a Way Toward Everyday Lives: The Contribution of Person Centered Planning. Pennsylvania Office of Mental Retardation, Harrisburg, PA, 1993.
8. OBrien C., OBrien J. The Origins of Person-Centered Planning: A Community of Practice Perspective. Responsive Systems Associates, Inc., Syracuse, NY, 2000.
9. Rapp C. The strengths model of case management: results from twelve demonstrations. Psychosoc Rehabil J 1989 ; 13: 23-30.
10. Vandiver BJ Psychological nigrescence revisited: introduction and overview. J Multicult Couns Devel 2001 ; 29: 165.
11. Casas JM, Pytluk SD Hispanic identity development: implications for research and practice. In Ponterotto JG, Casas JM, Suzuki LA, et al. (eds). Handbook of Multicultural Counseling. Sage Publications, Inc, Thousand Oaks, CA, 1995, pp. 155-180.
12. Pope-Davis DB, Liu WM, Ledesma-Jones S., Nevitt J. African American acculturation and black racial identity: a preliminary investigation. J Multicult Couns Devel 2000 ; 28: 98-112.
13. Strauss JS, Carpenter W. The prediction of outcome in schizophrenia, II. Relationships between predictor and outcome variables: a report from the WHO international pilot study of schizophrenia. Arch Gen Psychiatry 1974 ; 31: 37-42.
14. Carpenter WT, Kirkpatrick B. The heterogeneity of the long-term course of schizophrenia. Schizophr Bull 1988 ; 14: 645-652.
15. Davidson L., McGlashan TH The varied outcomes of schizophrenia. Can J Psychiatry 1997 ; 42: 34-43.
16. McGlashan TH Early detection and intervention of schizophrenia: rationale and research. Br J Psychiatry 1998 ; 172: 3-6.
17. Mueser KT, Meyer PS, Penn DL, et al. The illness management and recovery program: rationale, development, and preliminary findings. Schizophr Bull 2006 ; 32: S32-43.
18. Drake RE, Mueser KT Psychosocial approaches to dual diagnosis. Schizophr Bull 2000 ; 26: 105-118.
19. Marrone J., Hoff D., Helm DT Person-centered planning for the millennium: were old enough to remember when PCP was just a drug. J Vocat Rehabil 1997 ; 8: 285-297.
20. Davidson L., Chinman M., Kloos B., et al. Peer support among individuals with severe mental illness: a review of the evidence. Clin Psychol Sci Pract 1999 ; 6: 165-187.
21. Magura S., Cleland C., Vogel H., et al. Effects of dual focus mutual aid on self-efficacy for recovery and quality of life. Adm Policy Ment Health & Ment Health Serv Res 2007 ; 34: 1-12.
22. Rowe M., Bellamy C., Baranoski M., et al. A peer-support, group intervention to reduce substance use and criminality among persons with severe mental illness. Psychiatr Serv 2007 ; 58: 955-961.
23. Hebert M., Rosenheck R., Drebing C., et al. Integrating peer support initiatives in a large healthcare organization. Psychol Serv 2008 ; 5: 216-227.
24. Felton C., Stastny P., Shern D., et al. Consumers as peer specialists on intensive case management teams: impact on client outcomes. Psychiatr Serv 1995 ; 46: 1037-1044.
25. Davidson L., Chinman M., Sells D., Rowe M. Peer support among adults with serious mental illness: a report from the field. Schizophr Bull 2006 ; 32: 443-450.
26. Bellamy CD, Garvin C., MacFarlane P., et al. An analysis of groups in consumer-centered programs. Am J Psychiatr Rehabil 2006 ; 9: 1-22.
27. Young AS, Chinman M., Forquer SL, et al. Use of a consumer-led intervention to improve provider competencies. Psychiatr Serv 2005 ; 56: 967-975.
28. Chinman M., Rosenheck R., Lam J., Davidson L. Comparing consumer and nonconsumer provided case management services for homeless persons with serious mental illness. J Nerv Ment Dis 2000 ; 188: 446-453.
29. Carlson LS, Rapp CA, McDiarmid D. Hiring consumer-providers: barriers and alternative solutions. Community Ment Health J 2001 ; 37: 199-213.
30. Sells D., Davidson L., Jewell C., et al. The treatment relationship in peer-based and regular case management services for clients with severe mental illness. Psychiatr Serv 2006 ; 57: 1179-1184.
31. Clarke GN, Herincks HA, Kinney RF, et al. Psychiatric hospitalizations, arrests, emergency room visits, and homelessness of clients with serious and persistent mental illness: findings from a randomized trial of two ACT programs vs. usual care. Ment Health Serv Res 2000 ; 2: 155-164.
32. Rowe M., Bellamy C., Baranoski M., et al. A peer-support, group intervention to reduce substance use and criminality among persons with severe mental illness. Psychiatr Serv 2007 ; 58: 955-961.
33. Mead S., Hilton D., Curtis L. Peer support: a theoretical perspective. Psychiatr Rehabil J 2001 ; 25: 134.
34. Salzer MS, Shear SL Identifying consumer-provider benefits in evaluations of consumer-delivered services. Psychiatr Rehabil J 2002 ; 25: 281.
35. Besio SW, Mahler J. Benefits and challenges of using consumer staff in supported housing services. Hosp Community Psychiatry 1993 ; 44: 490-491.
36. Moxley PD, Mowbray CT Consumers as Providers in Psychiatric Rehabilitation. International Association of Psychosocial Rehabilitation Services, Columbia, MD, 1997.
37. Campbell S. Experimental and Quasi-Experimental Designs for Research. Rand McNally, Chicago, IL, 1962.
38. Torrey WC, Drake RE, Dixon L., et al. Implementing evidence-based practices for persons with severe mental illnesses. Psychiatr Serv 2001 ; 52: 45-50. (Pubitemid 32039804)
39. Stayner D., Davidson L., Tebes JK Supported partnerships: a pathway to community life for persons with serious psychiatric disabilities. Community Psychologist 1996 ; 29: 14-17.
40. Davidson L., Shahar G., Stayner DA, et al. Supported socialization for people with psychiatric disabilities: lessons from a randomized controlled trial. J Community Psychol 2004 ; 32: 453-477.
41. Cook JA, Razzano L. Vocational rehabilitation for persons with schizophrenia: recent research and implications for practice. Schizophr Bull 2000 ; 26: 87-103.
42. Becker D., Drake R. Individual placement and support: a community mental health center approach to vocational rehabilitation. Community Ment Health J 1994 ; 30: 193-206.
43. Mowbray CT, Collins M., Bybee D. Supported education for individuals with psychiatric disabilities: long-term outcomes from an experimental study. Soc Work Res 1999 ; 23: 89-100.
44. Collins ME, Bybee D., Mowbray CT Effectiveness of supported education for individuals with psychiatric disabilities: results from an experimental study. Community Ment Health J 1998 ; 34: 595-613.
45. McDiarmid D., Rapp C., Ratzlaff S. Design and initial results from a supported education initiative: the kansas consumer as provider program. Psychiatr Rehabil J 2005 ; 29: 3-9.
46. Bell MD, Bryson G. Work rehabilitation in schizophrenia: does cognitive impairment limit improvement? Schizophr Bull 2001 ; 27: 269-279.
47. Wexler BE, Bell MD Cognitive remediation and vocational rehabilitation for schizophrenia. Schizophr Bull 2005 ; 31: 931-941.
48. Drake RE, Becker DR, Bond GR Recent research on vocational rehabilitation for persons with severe mental illness. Curr Opin Psychiatry 2003 ; 16: 451-455.
49. Brown MA, Ridgway P., Anthony WA, Rogers ES Comparison of outcomes for clients seeking and assigned to supported housing services. Hosp Community Psychiatry 1991 ; 42: 1150-1153.
50. Rog DJ The evidence on supported housing. Psychiatr Rehabil J 2004 ; 27: 334-344.
51. Bellack AS Skills training for people with severe mental illness. Psychiatr Rehabil J 2004 ; 27: 375-391.
52. Davidson L., Roe D. Recovery from versus recovery in serious mental illness: one strategy for lessening confusion plaguing recovery. J Ment Health 2007 ; 16: 459-470.
53. Tondora J., OConnell MJ The treatment planning questionnaire assessing person-centered aspects of service and treatment planning. Unpublished measure, Yale Program for Recovery and Community Health, New Haven, CT, 2005.
54. McMillan DW, Chavis DM Sense of community: a definition and theory. J Community Psychol 1986 ; 14: 6-23.
55. Chavis DM, Newbrough JR The meaning of community in community psychology. J Community Psychol 1986 ; 14: 335-340.
56. Costa PTJ, McCrae RR Stability and change in personality assessment: the revised NEO personality inventory in the year 2000. J Pers Assess 1997 ; 68: 86-94.
57. Oyserman D., Saltz E. Competence, delinquency, and attempts to attain possible selves. J Pers Soc Psychol 1993 ; 65: 360-374.
58. Oyserman D. The lens of personhood: viewing the self and others in a multicultural society. J Pers Soc Psychol 1993 ; 65: 993-1009.
59. Oyserman D., Bybee D., Terry K., HartJohnson T. Possible selves as roadmaps. J Res Pers 2004 ; 38: 130-149.
60. Phinney JS The multigroup ethnic identity measure: a new scale for use with diverse groups. J Adolesc Res 1992 ; 7: 156-176.
61. Malcarne VL, Chavira DA, Fernandez S., Liu P. The scale of ethnic experience: development and psychometric properties. J Pers Assess 2006 ; 86: 150-161.
62. Utsey SO, Adams EP, Bolden M. Development and initial validation of the Africultural coping systems inventory. J Black Psychol 2000 ; 26: 194-215.
63. Carver CS You want to measure coping but your protocols too long: consider the brief COPE. Int J Behav Med 1997 ; 4: 92-100.
64. Hatcher RL, Gillaspy JA Development and validation of a revised short version of the working alliance inventory. Psychother Res 2006 ; 16: 12-25.
65. Williams G., Freedman Z., Deci E. Supporting autonomy to motivate patients with diabetes for glucose control. Diabetes Care 1998 ; 21: 1644-1651.
66. OConnell M., Tondora J., Croog G., et al. From rhetoric to routine: assessing perceptions of recovery-oriented practices in a state mental health and addiction system. Psychiatr Rehabil J 2005 ; 28: 378-386.
67. Green H., Fletcher L. Social Capital Harmonised Question Set: A Guide to Questions for Use in the Measurement of Social Capital. Social and Vital Statistics Division, Office for National Statistics, UK, 2003.
68. Wowra SA, McCarter R. Validation of the empowerment scale with an outpatient mental health population. Psychiatr Serv 1999 ; 50: 959-961.
69. Babyak MA, Snyder CR, Yoshinobu L. Psychometric properties of the hope scale: a confirmatory factor analysis. J Res Pers 1993 ; 27: 154-169.
70. Snyder CR, Harris C., Anderson JR, et al. The will and the ways: development and validation of an individual-differences measure of hope. J Pers Soc Psychol 1991 ; 60: 570-585.
71. Brookings JB, Bolton B. Confirmatory factor analysis of the interpersonal support evaluation list. Am J Community Psychol 1988 ; 16: 137-147.
72. Cohen S., Hoberman HM Positive events and social supports as buffers of life change stress. J Appl Soc Psychol 1983 ; 13: 99-125.
73. Rosenberg M. Conceiving the Self. Basic Books, New York, NY, 1979.
74. Nguyen TD, Attkisson CC, Stegner BL Assessment of patient satisfaction: development and refinement of a service evaluation questionnaire. Eval Program Plann 1983 ; 6: 299-314.
75. Lehman AF A quality of life interview for the chronically mentally ill. Eval Program Plann 1988 ; 11: 51-62.
76. Derogatis LR, Rickels K., Rock AF The SCL-90 and the MMPI: a step in the validation of a new self-report scale. Br J Psychiatry 1976 ; 128: 280-289.
77. McLellan AT, Luborsky L., Woody G., OBrien CP An improved diagnostic evaluation instrument for substance abuse patients: the addiction severity index. J Nerv Ment Dis 1980 ; 268: 26-33.
78. McLellan AT New data from the addiction severity index: reliability and validity in three centers. J Nerv Ment Dis 1985 ; 173: 412-423.
79. Hall RCW. Global assessment of functioning: a modified scale. Psychosomatics 1995 ; 36: 267-275.
80. Tondora J., Davidson L. Practice Guidelines for Recovery-Oriented Behavioral Health Care. Connecticut Department of Mental Health and Addiction Services, Hartford, CT, 2006.
81. Anthony WA, Cohen MR, Farkas MD Psychiatric Rehabilitation. Center for Psychiatric Rehabilitation, Sargent College of Health and Rehabilitation Sciences, Boston University, Boston, MA, 2002.