Social inclusion of persons with moderate head injuries: The points of view of adolescents with brain injuries, their parents and professionals

Brain Injury

Volumn 24, Issue 9, 2010, Pages 1087-1097

  Gauvin Lepage, Jérme ^a,b,c   Lefebvre, Hélne ^a,c  

^a UNIVERSITÉ DE MONTRÉAL   (Canada)

^b JEWISH REHABILITATION HOSPITAL   (Canada)

^c Centre for Interdisciplinary Research in Rehabilitation of Greater Montreal   (Canada)

Author keywords

Adolescents; Perceptions; Qualitative study; Social inclusion; Traumatic brain injury

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CASE REPORT; ENVIRONMENT; FAMILY; FEMALE; FRIEND; HUMAN; MALE; PARENT; PERSONAL EXPERIENCE; SCHOOL; SEMI STRUCTURED INTERVIEW; SOCIAL ASPECT; TRAUMATIC BRAIN INJURY;

EID: 77955447834     PISSN: 02699052     EISSN: 1362301X     Source Type: Journal    
DOI: 10.3109/02699052.2010.494593     Document Type: Article

References (60)

1. Lefebvre H, Levert MJ. Traumatisme craniocerebral, de la souffrance a la resilience. Frontieres 2005;17:77-85.
2. Lefebvre H, Pelchat D, Kalubi JC, Michallet B. Experience distinctive de parents, de professionnels et de medecins lors de l'annonce de la deficience motrice cerebrale. In: Tetrault S, Beaupre P, Kalubi JC, Michallet B, editors. Famille et situation de handicap. Comprendre pour mieux intervenir. Sherbrooke: Editions du CRP; 2002. pp 27-48.
3. Lefebvre H, Pelchat D, Swaine B, Gelinas I, Levert MJ. Le traumatisme craniocerebral suite a un accident de la route: Les mots des personnes, des familles, des medecins et des professionnels. Recherche en Soins Infirmiers 2004;78: 14-34.
4. Pelchat D, Lefebvre H. Apprendre ensemble. Le PRIFAM, programme d'intervention interdisciplinaire et familiale. Montreal: Cheneliere McGraw-Hill; 2004. p 196.
5. DePalma JA. Measuring quality of life of patients of traumatic brain injury. Critical Care Nursing Quarterly 2001;23:42-51.
6. Khan F, Baguley IJ, Cameron ID. Rehabilitation after traumatic brain injury. Rehabilitation Medicine 2003;178: 290-295.
7. Taylor HG, Wade SL, Stancin T, Yeates KO, Drotar D, Minich N. A prospective study of short- and long-term outcomes after traumatic brain injury in children: Behavior and Achievement. Neuropsychology 2002;16:15-27. (Pubitemid 34132154)
8. Colantonio A, Dawson DR, McLellan BA. Head injury in young adults: Long-term outcome. Archives of Physical Medicine and Rehabilitation 1998;79:550-558.
9. Levin HS, Hanten G. Executive functions after traumatic brain injury in children. Pediatric Neurology 2005;33:79-93.
10. Anderson VA, Catroppa C, Haritou F, Morse S, Rosenfeld JV. Identifying factors contributing to child and family outcome 30 months after traumatic brain injury in children. Journal of Neurology, Neurosurgery and Psychiatry 2005;76:401-408.
11. Hanks RA, Temkin N, Machamer J, Sureyya MA, Dikmen S. Emotional and behavioral adjustment after traumatic brain injury. Archives of Physical Medicine and Rehabilitation 1999;80:991-997.
12. Alvin P. L'annonce du handicap a l'adolescence. Paris: Viubert; 2005. p 127.
13. Cimon L, Tetrault S, Beaupre P. Preparer les familles a la transition du jeune vers la vie adulte. In: Beaupre P, Kalubi JC, Trahan J, Gratton M, editors. Partenariat en recherche: Un atout pour les intervenants et les familles des personnes vivant avec des incapacites. Montreal: Editions nouvelles; 2000. pp 47-58.
14. Laloua F. Quelle evaluation chez l'adolescent ou l'adulte jeune traumatise cranien grave quand se pose le probleme de la scolarite? In: Pradat-Diehl P, Peskine A, editors. Evaluation des troubles neuropsychologiques en vie quotidienne. Paris: Springer-Verlag; 2006. pp 109-116.
15. Lovasik D, Kerr ME, Alexander S. Traumatic brain injury research: A review of clinical studies. Critical Care Nursing Quarterly 2001;23:24-41.
16. Albrecht SL, Chadwick BA, Jacobson CK. Social Psychology. 2nd ed. New York: Prentice-Hall; 1986. p 696.
17. Heiss I. Learning and enacting roles. In: Zurcher JA, editor. Social roles: Conformity, conflict and creativity. California: Sage; 1993. p 11.
18. Bronfenbrenner U. The ecology of human development: Experiment by nature and design. Cambridge: Harvard University Press; 1979. p 330.
19. Bronfenbrenner U. Ecology of the family as a context for human development: Research perspectives. Developmental Psychology 1986;22:733-742.
20. Fortin MF, Cote J, Filion F. Fondements et etapes du processus de recherche. Montreal: Cheneliere education; 2006. p 485.
21. Loiselle CG, Profetto-McGrath J, Polit DF, Beck CT. Methodes de recherche en sciences infirmieresApproches quantitatives et qualitatives. Montreal: ERPI; 2007. p 591.
22. Fawcett J. The relationship of theory and research. 3rd ed. Philadelphia: FA Davis; 1999. p 398.
23. Poupart J, Deslauriers JP, Groulx LH, Lapperriere A, Mayer R, Pires A. La recherche qualitativeEnjeux epistemo- logiques et methodologiques. Boucherville: Gaetan Morin; 1997. p 405.
24. Tochon FV. Rappel stimuli, objectivation clinique, reflexion partagrée. Fondements methodologiques et applications pratiques de la retroaction video en recherche et en formation. Revue des sciences de l'education 1996;22: 467-502.
25. Crotty M. The foundations of social research: Meaning and perspective in the research process. California: Sage; 1998. p 248.
26. Guba EG, Lincoln YS. Naturalistic inquiry. California: Sage; 1985. p 416.
27. Guba EG, Lincoln YS. Fourth generation evaluation. California: Sage; 1989. p 294.
28. Neuman W. Social research methods: Qualitative and quantitative approaches. 6th ed. Boston: Pearson/AandB; 2006. p 592.
29. Schwandt TA. Dictionary of qualitative inquiry. 2nd ed. California: Sage; 2001. p 322.
30. Burns N, Grove SK. The practice of nursing research: Appraisal, synthesis, and generation of evidence. 6th ed. Toronto: Saunders; 2009. p 750.
31. Mucchielli A. Dictionnaire des methodes qualitatives en sciences humaines et sociales. 3rd ed. Paris: Armand Colin; 2009. p 303.
32. Patton MQ. Qualitative research & evaluation methods. 3rd ed. Etats-Unis: Sage; 2002. p 598.
33. Denzin NK, Lincoln YS. Collecting and interpreting qualitative materials. 3rd ed. California: Sage; 2008. p 701.
34. Friedman D, Schopflocher C. Comprendre la neurotrauma- tologie chez les enfants et adolescentsL'htjpital de Montreal pour enfants. Montreal: Associes libres; 1999. p 43.
35. Hawley CA, Ward AB, Magnay AR, Mychalkiw W. Return to school after brain injury. Archives of Disease in Childhood 2004;89:136-142.
36. Light R, McCleary C, Asarnow R, Satz P, Zaucha K, Lewis R. Mild closed-head injury in children and adolescents: Behavior problems and academic outcomes. Journal of Consulting and Clinical Psychology 1998;66:1023-1029.
37. Ponsford J, Willmott C, Rothwell A, Cameron P, Ayton G, Nelms RGD. Cognitive and behavioral outcome following mild traumatic head injury in children. The Journal of Head Trauma Rehabilitation 1999;14:360-372.
38. Pradat-Diehl P, Peskine A, Chevignard M. Evaluation des troubles neuropsychologiques en vie quotidienne. Paris: Springer-Verlag; 2006. p 162.
39. Thompson MD, Irby WJ. Recovery from mild head injury in pediatric populations. Seminars in Pediatric Neurology 2003;10:130-139.
40. Belanger ME. La reanimation cerebrale des victimes d'un traumatisme cranien grave. Le medecin du Quebec 2000;35: 91-99.
41. Garcia JG, Krankowski T, Jones LL. Collaborative interventions for assisting students with acquired brain injuries in school. Professional School Counselling 1998;2:33-38.
42. Bourque C. Cadre de reference clinique pour l'elaboration de programmes de réadaptation pour la clientele ayant subi un traumatisme cranio-cerebral (enfants-adolescents). Rapport du comite conseil de readaptation en traumatologie. Service de la programmation en readaptation: Societe de l'Assurance Automobile du Quebec; 2000. p 108.
43. Dube C. L'accident, c'est aussi dans la tete. Quebec Science 2001;39:22-25.
44. Shanmukhi S, Panigrahi M. Serial pattern learning after mild head injury. Neurology India 2003;51:518-521.
45. McLean A, Dikmen SS, Temkin NR. Psychosocial recovery after head injury. Achives of Physical Medicine Rehabilitation 1993;74:1041-1046.
46. NIH Consensus Development Panel on Rehabilitation of Persons with Traumatic Brain Injury. Rehabilitation of persons with traumatic brain injury. Journal of the American Medical Association 1999;282:974-983.
47. Francois N. Traumatisms craniens ... et apres: Reeducation et appropriation a l'adolescence. In: Alvin P, editor. L'annonce du handicap a l'adolescence. Paris: Viubert; 2005. pp 58-68.
48. Braga LW, Da Paz Jr AC, Ylvisaker M. Direct clinician- delivered versus indirect family-supported rehabilitation of children with traumatic brain injury: A randomized controlled trial. Brain Injury 2005;19:819-831.
49. Bragg RM, Klockars AJ, Bern Inger VW. Comparison of families with and without adolescents with traumatic brain injury. Journal of Head Trauma Rehabilitation 1992;7: 94-108.
50. Leon-Carrion J, Perino C, Zitnay GA. The role of family in the rehabilitation of traumatic brain injury patients: Advocate or co-therapist. In: Leon-Carrion J, Von Wild, Zitnay KRH, GA, editors. Brain injury treatment: Theories and practices. Philadelphia: Taylor & Francis; 2006. pp513-526.
51. Malec EA. A descriptive study of families with a closed head injuries adolescent. Dissertation Abstracts International: Section B: The Sciences and Engineering 1993;55:222.
52. Fraser SN. Exploring social factors affecting health in cardiac rehabilitation patients. Dissertation Abstracts International: Section B: The Sciences and Engineering 2006;67:253.
53. Paquet M, Bolduc N, Xhignesse M, Vanasse A. Re-engineering cardiac rehabilitation programmes: Considering the patient's point of view. Journal of Advanced Nursing 2005;51:567-576.
54. Wong SY, Lai AC, Martinson I, Wong TKS. Effects of an education programme on family participation in the rehabilitation of children with developmental disability. Journal of Intellectual Disabilities 2006;10:168-189.
55. Yazicioglu K, Duyan V, Karatas K, Ozgul H, Yilmaz B, Duyan G, Aksu S. Effects of sociodemographic characteristics, illness process, and social support on the levels of perceived qualite of life in veterans. Military Medicine 2006;171:1083-1088.
56. Bee HL, Boyd DR. Les ages de la vie: Psychologie du developpement humain. Adaptation sous la direction de Gosselin F. 3rd ed. Quebec: ERPI; 2008. p 468.
57. Olds SW, Papalia DE. Le developpement de la personne. Adaptation sous la direction de Brieve A. 6th ed. Quebec: Editions Etudes Vivantes; 2005. p 399.
58. Ewing-Cobbs L, Thompson NM, Miner ME. Gunshot wounds to the brain in children and adolescents: Age and neurobehavioural development. Neurosurgery 1994;35: 225-233.
59. Farmer JE, Clippard DS, Luehr-Wiemman Y, Wright E, Owings S. Assessing children with traumatic brain injury during rehabilitation: Promoting school and community reentry. Journal of Learning Disabilities 1996;29: 532-548.
60. Lepage C, Beaupre P, Picard R, Bedard ME, Boudreault P, Bouchard A, Desrosiers L, Turcotte D. Impact de la réadaptation en milieu scolaire sur la famille, les services de réadaptation et les relations avec le reseau scolaire. In: Beaupre P, Kalubi JC, Trahan J, Gratton M, editors. Partenariat en recherche: Un atout pour les intervenants et les familles des personnes vivant avec des incapacites. Montreal: Editions Nouvelles; 2000. pp 35-45.