Information and communication needs of individuals living with advanced cancer

Seminars in Oncology Nursing

Volumn 26, Issue 3, 2010, Pages 151-156

  Marcusen, Carol ^a  

^a UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

Author keywords

Cancer patient; Patient information; Patient centered communication

Indexed keywords

ARTICLE; HUMAN; INFORMATION DISSEMINATION; INTERPERSONAL COMMUNICATION; METHODOLOGY; NEOPLASM; NURSE PATIENT RELATIONSHIP; NURSING; ONCOLOGY NURSING; PATIENT EDUCATION; PSYCHOLOGICAL ASPECT; PROCEDURES; PSYCHOLOGY;

COMMUNICATION; HUMANS; INFORMATION DISSEMINATION; NEOPLASMS; NURSE-PATIENT RELATIONS; ONCOLOGIC NURSING; PATIENT EDUCATION AS TOPIC; ONCOLOGY NURSING;

EID: 77955084446     PISSN: 07492081     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.soncn.2010.05.006     Document Type: Article

References (27)

1. Levy M.H. Doctor-patient communication: the lifeline to comprehensive cancer care. American Society of Clinical Oncology Educational Book: 34th Annual Meeting, Spring 1998 1998, 1950-2020. American Society of Clinical Oncology, Alexandria, VA. M.C. Perry (Ed.).
2. McInnes D.K., Cleary P.D., Stein K.D., et al. Perceptions of cancer-related information among cancer survivors. Cancer 2008, 113:1471-1479.
3. Hürny C. Do patients with advanced cancer get appropriate information?. Support Care Cancer 2002, 10:383-384.
4. Wong R.K., Franssen E., Szumacher E., et al. What do patients living with advanced cancer and their carers want to know? A needs assessment. Support Care Cancer 2002, 10:408-415.
5. Mayer M, Grober SE. Silent voices: women with advanced (metastatic) breast cancer share their needs and preferences for information, support, and practical resources. Living Beyond Breast Cancer. Available at: (accessed June 22, 2009). http://www.lbbc.org/data/news/LBBCsilentvoices.pdf.
6. Health Information National Trends Survey. Available at: (accessed May 2, 2010). http://hints.cancer.gov/.
7. Hesse B.W., Arora N.K., Beckjord E.B., et al. Information support for cancer survivors. Cancer 2008, 112(suppl):2529-2540.
8. Harwell A. Ready to live: prepared to die: a provocative guide to the rest of your life 1995, IL Harold Shaw, Wheaton.
9. Coyle N. The hard work of living in the face of death. J Pain Symptom Manage 2006, 32:266-274.
10. Mack J.W., Nilsson M., Balboni T., et al. Peace, equanimity, and acceptance in the cancer experience (PEACE): validation of a scale to assess acceptance and struggle with terminal illness. Cancer 2008, 112:2509-2517.
11. Davis T.C., Williams M.V., Marin E., et al. Health literacy and cancer communication. CA Cancer J Clin 2002, 52:134-149.
12. Zulick K.M., Rothrock J.C. Patient education and health literacy. Periop Nurs Clin 2009, 4:131-139.
13. The cancer survival toolbox: finding information 2008, National Coalition for Cancer Survivorship, National Coalition for Cancer Survivorship, Silver Spring, MD, Available at, (accessed May 10, 2010). http://www.canceradvocacy.org/toolbox/.
14. Jennifer Diamond Foundation. What we do: programs and project. Available at: (accessed Jan 6, 2010). http://www.jenniferdiamondfoundation.org.
15. Siminoff L.A., Zyzanski S.J., Rose J.H., et al. The cancer communication assessment tool for patients and families (CCAT-PF): a new measure. Psychooncology 2008, 17:1216-1224.
16. Reb A.M. Transforming the death sentence: elements of hope in women with advanced ovarian cancer. Oncol Nurs Forum 2007, 34:E70-E81.
17. Richardson W.C., Berwick D.M., Bisgard J.C., et al. Crossing the quality chasm: a new health system for the 21st century 2001, Committee on Quality of Health Care in America, Institute of Medicine, National Academies Press, Washington, DC.
18. Keating N.L., Landrum M.B., Rogers S.O., et al. Physician factors associated with discussions about end of life care. Cancer 2010, 116:998-1006.
19. National Cancer Institute. Good communication between patients, family caregivers, and the health care team is very important in cancer care. Available at: (accessed Jan 6, 2010). http://www.cancer.gov/cancertopics/pdq/supportivecare/communication/Patient.
20. El-Jawahri A., Podgurski L.M., Eichler A.F., et al. Use of video to facilitate end-of-life discussions with patients with cancer: a randomized controlled trial. J Clin Oncol 2010, 28:305-310.
21. Butow P.N., Maclean M., Dunn S.M., et al. The dynamics of change: cancer patients' preferences for information, involvement and support. Ann Oncol 1997, 8:857-863.
22. Mead N., Bower P. Patient-centeredness: a conceptual framework and review of the empirical literature. Soc Sci Med 2000, 51:1087-1110.
23. Epstein R.M., Franks P., Fiscella K., et al. Measuring patient-centered communication in patient-physician consultations: theoretical and practical issues. Soc Sci Med 2005, 61:1516-1528.
24. Epstein R.M., Street R.L. Patient-centered communication in cancer care. National Institutes of Health publication no. 07-6225 October 2007, US Department of Health and Human Services, National Institutes of Health, National Cancer Institute, Bethesda, MD.
25. Sheldon L.K. Communication in oncology care: the effectiveness of skills training workshops for healthcare providers. Clin J Oncol Nurs 2005, 9:305-312.
26. Auria M.M., Clark E.J., Hermann J.F., et al. Social work in oncology: supporting survivors, families, and caregivers 2001, American Cancer Society, Atlanta, GA.
27. Walsh-Burke D., Marcusen C. Self-advocacy training for cancer survivors: the cancer survival toolbox. Cancer Pract 1999, 7:297-301.