Race and shared decision-making: Perspectives of African-Americans with diabetes

Social Science and Medicine

Volumn 71, Issue 1, 2010, Pages 1-9

  Peek, Monica E ^a   Odoms Young, Angela ^b   Quinn, Michael T ^a   Gorawara Bhat, Rita ^a   Wilson, Shannon C ^a   Chin, Marshall H ^a  

^a UNIVERSITY OF CHICAGO   (United States)

^b UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

Author keywords

African Americans; Diabetes; Health disparities; Patient provider communication; Physicians; Race; Shared decision making; USA

Indexed keywords

INSULIN;

AFRICAN AMERICAN; COMMUNICATION; CULTURAL INFLUENCE; DECISION MAKING; DIABETES; HEALTH CARE; HEALTH SURVEY; PERCEPTION; RACIAL DISPARITY; RACISM;

ADULT; AFRICAN AMERICAN; AGED; ARTICLE; CLINICAL ARTICLE; COMMUNICATION DISORDER; DECISION MAKING; DIABETES MELLITUS; FEMALE; HEALTH CARE; HUMAN; HYPERTENSION; INTERVIEW; LIFESTYLE MODIFICATION; MALE; MEDICAL INFORMATION; OUTCOME ASSESSMENT; PATIENT CARE; PHYSICIAN; RACE DIFFERENCE; RACISM; SEMI STRUCTURED INTERVIEW; SHARED DECISION MAKING; UNITED STATES; URBAN AREA;

ACADEMIC MEDICAL CENTERS; ADOLESCENT; ADULT; AFRICAN AMERICANS; AGED; ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; CHICAGO; DIABETES MELLITUS; FOCUS GROUPS; HEALTHCARE DISPARITIES; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PATIENT PARTICIPATION; PHYSICIAN-PATIENT RELATIONS; PREJUDICE; QUALITATIVE RESEARCH; TAPE RECORDING; URBAN HEALTH SERVICES; YOUNG ADULT;

CHICAGO; ILLINOIS; UNITED STATES;

EID: 77953619314     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2010.03.014     Document Type: Article

References (86)

1. Adams R.J., Smith B.J., Ruffin R.E. Impact of the physician's participatory style in asthma outcomes and patient satisfaction. Annals of Allergy, Asthma & Immunology 2001, 86(3):263-271.
2. Ajzen I., Fishbein M. Understanding attitudes and predicting social behavior 1980, Prentice-Hall, Englewood Cliffs, N.J.
3. Ajzen I. The theory of planned behavior. Organizational Behavior & Human Decision Processes 1991, 50(2):179-211.
4. Anderson R.M., Funnell M.M., Butler P.M., Arnold M.S., Fitzgerald J.T., Feste C.C. Patient empowerment: results of a randomized control trial. Diabetes Care 1995, 18:943-949.
5. Anderson R.M., Barr P.A., Edwards G.J., Funnell M.M., Fitzgerald J.T., Wisdom K. Using focus groups to identify psychosocial issues of urban black individuals with diabetes. Diabetes Educator 1996, 22(1):28-33.
6. Aubert R.E., Herman W.H., Waters J., Moore W., Sutton D., Peterson B.L., et al. Nurse case management to improve glycemic control in diabetic patients in a health maintenance organization. A randomized, controlled trial. Annals of Internal Medicine 1998, 129(8):605-612.
7. Banks K.H., Kohn-Wood L.P., Spencer M. An examination of the African American experience of everyday discrimination and symptoms of psychological distress. Community Mental Health Journal 2006, 42(6):555-570.
8. Bem D. Self-perception theory. Advances in experimental social psychology 1972, Academic Press, New York. L. Berkowitz (Ed.).
9. Benbassat J., Pilpel D., Tidhar M. Patients' preferences for participation in clinical decision making: a review of published surveys. Behavioral Medicine 1998, 24(2):81-88.
10. Bird S.T., Bogart L.M. Perceived race-based and socioeconomic status-based discrimination in interactions with health care providers. Ethnicity & Disease 2001, 11:554-563.
11. Bird S.T., Bogart L.M., Delahanty D.L. Health-related correlates of perceived discrimination in HIV care. AIDS Patient Care & STDS 2004, 18:19-26.
12. Blanchard J., Lurie N. R-E-S-P-E-C-T: Patient reports of disrespect in the health care setting and its impact on care. Journal of Family Practice 2004, 53(9):721-730.
13. Blassingame J.W. The Slave Community 1979, Oxford University Press, Cary.
14. Bogart L.M., Kelly J.A., Catz S.L., Sosman J.M. Impact of medical and nonmedical factors on physician decision making for HIV/AIDS antiretroviral treatment. Journal of Acquired Immune Deficiency Syndromes 2000, 23(5):396-404.
15. Bogle D. Toms, coons, mulattoes, mammies, & bucks: An interpretive history of Blacks in American films 1992, Continuum Publishing Co, New York.
16. Bonds D.E., Zaccaro D.J., Karter A.J., Selby J.V., Saad M., Goff D.C. Ethnic and racial differences in diabetes care: the Insulin Resistance Atherosclerosis Study. Diabetes Care 2003, 26(4):1040-1046.
17. Boulware L.E., Cooper L.A., Ratner L.E., LaVeist T.A., Powe N.R. Race and trust in the health care system. Public Health Reports 2003, 118(4):358-365.
18. Brancati F.L., Kao W.H., Folsom A.R., Watson R.L., Szklo M. Incident type 2 diabetes mellitus in African American and white adults: the Atherosclerosis Risk in Communities Study. JAMA 2000, 283(17):2253-2259.
19. Brown S.A. Interventions to promote diabetes self-management: state of the science. Diabetes Educator 1999, 25(S):52-61.
20. Caravalho J.Y., Saylor C.R. An evaluation of a nurse case-managed program for children with diabetes. Pediatric Nursing 2000, 26(3):296-300. 328.
21. Charles C., Gafni A., Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Social Science & Medicine 1997, 44(5):681-692.
22. Charles C., Gafni A., Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Social Science & Medicine 1999, 49(5):651-661.
23. Coffman M.J. Effects of tangible social support and depression on Diabetes self-efficacy. Journal of Gerontological Nursing 2008, 34(4):32-39.
24. Cooper L.A., Roter D.L., Johnson R.L., Ford D.E., Steinwachs D.M., Powe N.R. Patient-centered communication, ratings of care, and concordance of patient and physician race. Annals of Internal Medicine 2003, 139(11):907-915.
25. Cooper-Patrick L., Gallo J.J., Gonzales J.J., Vu H.T., Powe N.R., Nelson C., et al. Race, gender, and partnership in the patient-physician relationship. JAMA 1999, 282(6):583-589.
26. Davidson J.E., Powers K., Hedayat K.M., Tieszen M., Kon A.A., Shepard E., et al. Clinical practice guidelines for support of the family in the patient-centered intensive care unit: American College of Critical Care Medicine Task Force 2004-2005. Critical Care Medicine 2007, 35(2):605-622.
27. Doty M.M., Holmgren A.L. Unequal access: insurance instability among low-income workers and minorities. Issue Brief (Commonwealth Fund) 2004, (729), 1-6.
28. Finucane T.E., Carrese J.A. Racial bias in presentation of cases. Journal of General Internal Medicine 1990, 5(2):120-121.
29. Gamble V.N. Under the shadow of Tuskegee: African Americans and health care. American Journal of Public Health 1997, 87(11):1773-1778.
30. Gary T.L., McGuire M., McCauley J., Brancati F.L. Racial comparisons of health care and glycemic control for African American and white diabetic adults in an urban managed care organization. Disease Management 2004, 7(1):25-34.
31. Glaser B.G., Strauss A.L. The discovery of grounded theory; strategies for qualitative research 1967, Aldine Pub. Co, Chicago.
32. Green A.R., Carney D.R., Pallin D.J., Ngo L.H., Raymond K.L., Iezzoni L.I., et al. Implicit bias among physicians and its prediction of thrombolysis decisions for black and white patients. Journal of General Internal Medicine 2007, 22(9):1231-1238.
33. Greenfield S., Kaplan S., Ware J.E. Expanding patient involvement in care. Effects on patient outcomes. Annals of Internal Medicine 1985, 102(4):520-528.
34. Greenfield S., Kaplan S.H., Ware J.E., Yano E.M., Frank H.J. Patients' participation in medical care: effects on blood sugar control and quality of life in diabetes. Journal of General Internal Medicine 1988, 3(5):448-457.
35. Hamilton D.L. Cognitive processes in stereotyping and intergroup behavior Hillsdale 1981, L. Erlbaum Associates, N.J.
36. Harrell S.P. A multidimensional conceptualization of racism-related stress: implications for the well-being of people of color. American Journal of Orthopsychiatry 2000, 70(1):42-57.
37. Harris M.I. Racial and ethnic differences in health care access and health outcomes for adults with type 2 diabetes. Diabetes Care 2001, 24(3):454-459.
38. Hasnain-Wynia R., Baker D.W., Nerenz D., Feinglass J., Beal A.C., Landrum M.B., et al. Disparities in health care are driven by where minority patients seek care: examination of the hospital quality alliance measures. Archives of Internal Medicine 2007, 167(12):1233-1239.
39. Heisler M., Smith D.M., Hayward R.A., Krein S.L., Kerr E.A. Racial disparities in diabetes care processes, outcomes, and treatment intensity. Medical Care 2003, 41(11):1221-1232.
40. Jackson B.O. The effects of racial group consciousness on political mobilization in American cities. Western Political Quarterly 1987, 40:631-646.
41. Jackson J.S. Methodologic approach. Life in black America 1991, Sage, Newbury Park, CA. J.S. Jackson (Ed.).
42. Jacobs E.A., Rolle I., Ferrans C.E., Whitaker E.E., Warnecke R.B. Understanding African Americans' views of the trustworthiness of physicians. Journal of General Internal Medicine 2006, 21(6):642-647.
43. Jha A.K., Varosy P.D., Kanaya A.M., Hunninghake D.B., Hlatky M.A., Waters D.D., et al. Differences in medical care and disease outcomes among black and white women with heart disease. Circulation 2003, 108(9):1089-1094.
44. Johnson R.L., Roter D., Powe N.R., Cooper L.A. Patient race/ethnicity and quality of patient-physician communication during medical visits. American Journal of Public Health 2004, 94(12):2084-2090.
45. Jones C.P. Levels of racism: a theoretic framework and a gardener's tale. American Journal of Public Health 2000, 90(8):1212-1215.
46. Jones E.E., Davis K.E. From acts to dispositions: the attribution process in person perception. Advances in experimental social psychology 1965, 219-266. Academic Press, New York. L. Berkowitz (Ed.).
47. Kelley H.H. Attribution theory in social psychology. Nebraska symposium on motivation 1967, 192-238. University of Nebraska Press, Lincoln, NE. D. Levine (Ed.).
48. Kitzinger J. The methodology of focus groups: the importance of interaction between research participants. Sociology of Health & Illness 1994, 16:103-121.
49. Krieger N., Stephen S. Racial discrimination and blood pressure: the CARDIA study of young black and white adults. American Journal of Public Health 1996, 86:1370-1380.
50. LaVeist T.A., Rolley N.C., Diala C. Prevalence and patterns of discrimination among U.S. health care consumers. International Journal of Health Services: Planning Administration Evaluation 2003, 33:331-344.
51. Larson E.B., Fihn S.D., Kirk L.M., Levinson W., Loge R.V., Reynolds E., et al. The future of general internal medicine. Report and recommendations from the Society of General Internal Medicine (SGIM) Task Force on the Domain of General Internal Medicine. Journal of General Internal Medicine 2004, 19(1):69-77.
52. Lerman C.E., Brody D.S., Caputo G.C., Smith D.G., Lazaro C.G., Wolfson H.G. Patients' perceived involvement in care scale: relationship to attitudes about illness and medical care. Journal of General Internal Medicine 1990, 5(1):29-33.
53. Levinson W., Hudak P.L., Feldman J.J., Frankel R.M., Kuby A., Bereknyei S., et al. " It's not what you say.": racial disparities in communication between orthopedic surgeons and patients. Medical Care 2008, 46(4):410-416.
54. Lewin K., Gullickson T. Resolving social conflicts: field theory in social science. PsychCRITIQUES 1997, 42(8):756.
55. Malat J., Hamilton M.A. Preference for same-race health care providers and perceptions of interpersonal discrimination in health care. Journal of Health and Social Behavior 2006, 47:173-187.
56. McLeroy K.R., Bibeau D., Sleckler A., Glanz K. An ecological perspective on health promotion programs. Health Education & Behavior 1988, 15(4):351-377.
57. McBean A.M., Li S., Gilbertson D.T., Collins A.J. Differences in diabetes prevalence, incidence, and mortality among the elderly of four racial/ethnic groups: whites, blacks, hispanics, and asians. Diabetes Care 2004, 27(10):2317-2324.
58. Michel D.M., Moss A.H. Communicating prognosis in the dialysis consent process: a patient-centered, guideline-supported approach. Advances in Chronic Kidney Disease 2005, 12(2):196-201.
59. Montori V.M., Gafni A., Charles C. A shared treatment decision-making approach between patients with chronic conditions and their clinicians: the case of diabetes. Health Expect 2006, 9(1):25-36.
60. Morgan D.L. Why things (sometimes) go wrong in focus groups. Qualitative Health Research 1995, 5:516-523.
61. Morgan D.L. Focus groups as qualitative research 1997, Sage Publications, Thousand Oaks, Calif.
62. Nelson K., Norris K., Mangione C.M. Disparities in the diagnosis and pharmacologic treatment of high serum cholesterol by race and ethnicity: data from the Third National Health and Nutrition Examination Survey. Archives of Internal Medicine 2002, 162(8):929-935.
63. Oliver M.N., Goodwin M.A., Gotler R.S., Gregory P.M., Stange K.C. Time use in clinical encounters: are African-American patients treated differently?. Journal of the National Medical Association 2001, 93(10):380-385.
64. Patton M.Q. Qualitative research & evaluation methods 2002, Sage, Thousand Oaks, CA. 3rd ed.
65. Peek M.E., Cargill A., Huang E.S. Diabetes health disparities: a systematic review of health care interventions. Medical Care Research & Review 2007, 64(5 Suppl):101S-156S.
66. Peek M.E., Quinn M.T., Gorawara-Bhat R., Odoms-Young A., Wilson S.C., Chin M.H. How is shared decision-making defined among African-Americans with diabetes?. Patient Education and Counseling 2008, 72(3):450-458.
67. Peek M.E., Wilson S.C., Gorawara-Bhat R., Odoms-Young A., Quinn M.T., Chin M.H. Barriers and facilitators to shared decision-making among African Americans with diabetes. Journal of General Internal Medicine 2009, 24(10):1135-1139.
68. Peyrot M. Behavior change in diabetes education. Diabetes Educator 1999, 25(S):62-73.
69. Pittinsky T.L., Shih M., Ambady N. Identity adaptiveness. Affect across multiple identities. Journal of Social Issues 1999, 1-13.
70. Post D.M., Cegala D.J., Marinelli T.M. Teaching patients to communicate with physicians: the impact of race. Journal of National Medical Association 2001, 93:6-12.
71. Purdie-Vaughns V., Steele C.M., Davies P.G., Ditlmann R., Crosby J.R. Social identity contingencies: how diversity cues signal threat or safety for African Americans in mainstream institutions. Journal of Personality and Social Psychology 2008, 94(4):615-630.
72. Rathore S.S., Lenert L.A., Weinfurt K.P., Tinoco A., Taleghani C.K., Harless W., et al. The effects of patient sex and race on medical students' ratings of quality of life. American Journal of Medicine 2000, 108(7):561-566.
73. Ren X.S., Amick B.C., Williams D.R. Racial/ethnic disparities in health: the interplay between discrimination and socioeconomic status. Ethnicity & Disease 1999, 9:151-165.
74. Richardson W.C., Berwick D.M., Bisgard J.D., Bristow L.R., Buck C.R., Cassel C.K., et al. Crossing the quality chasm: A new health system for the 21st century 2001, Institute of Medicine, Washington, D.C.
75. Van Houtven C.H., Voils C.L., Oddone E.Z., Weinfurt K.P., Friedman J.Y., Schulman K.A., Bosworth H.B. Perceived discrimination and reported delay of pharmacy prescriptions and medical tests. Journal of General Internal Medicine 2005, 20:578-583.
76. van der Weijden T., van Veenendaal H., Timmermans D. Shared decision-making in the Netherlands-current state and future perspectives. Zeitschrift für ärztliche Fortbildung und Qualitätssicherung 2007, 101(4):241-246.
77. van Ryn M., Burke J. The effect of patient race and socio-economic status on physicians' perceptions of patients. Social Science & Medicine 2000, 50(6):813-828.
78. van Ryn M., Hanan E., Burke J., Besculides M. An examination of factors associated with physician recommendation for revascularization 1999, American Public Health Association, Washingtion, DC.
79. Schneider E.C., Zaslavsky A.M., Epstein A.M. Racial disparities in the quality of care for enrollees in medicare managed care. JAMA 2002, 287(10):1288-1294.
80. Sellers R.M., Shelton J.N. The role of racial identity in perceived racial discrimination. Journal of Personality and Social Psychology 2003, 84(5):1079-1092.
81. Sheridan S.L., Harris R.P., Woolf S.H. Shared decision making about screening and chemoprevention. a suggested approach from the U.S. Preventive Services Task Force. American Journal of Preventive Medicine 2004, 26(1):56-66.
82. Shi L. The convergence of vulnerable characteristics and health insurance in the US. Social Science & Medicine 2001, 53(4):519-529.
83. Unequal treatment: Confronting racial and ethnic disparities in health care 2002, National Academies Press, Washington, D.C., Institute of Medicine. B.D. Smedley, S.Y. Stith, A.R. Nelson (Eds.).
84. Stewart M.A. Effective physician-patient communication and health outcomes: a review. CMAJ 1995, 152(9):1423-1433.
85. Stewart M., Brown J.B., Donner A., McWhinney I.R., Oates J., Weston W.W., et al. The impact of patient-centered care on outcomes. Journal of Family Practice 2000, 49(9):796-804.
86. Washington H.A. Medical apartheid: The dark history of medical experimentation on Black Americans from colonial times to the present 2006, Doubleday, New York.