How do mothers and fathers who have a child with a disability describe their adaptation/transformation process?

Journal of Child Health Care

Volumn 13, Issue 3, 2009, Pages 239-259

  Pelchat, Diane ^a   Levert, Marie Josée ^a,b   Bourgeois Guérin, Valérie ^b  

^a UNIVERSITÉ DE MONTRÉAL   (Canada)

^b UNIVERSITÉ DU QUÉBEC À MONTRÉAL   (Canada)

Author keywords

Adaptation; Adaptive strategies; Adjustment; Child; Disability; Experience; Father; Mother; Transformation

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; ATTITUDE TO HEALTH; CEREBRAL PALSY; CHILD PARENT RELATION; FATHER; FEMALE; HANDICAPPED CHILD; HUMAN; INFANT; INTERVIEW; MALE; MENTAL STRESS; MOTHER; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; QUALITATIVE RESEARCH;

ADAPTATION, PSYCHOLOGICAL; ADULT; CEREBRAL PALSY; CHILD, PRESCHOOL; DISABLED CHILDREN; FATHERS; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INFANT; INTERVIEWS AS TOPIC; MALE; MODELS, PSYCHOLOGICAL; MOTHERS; PARENT-CHILD RELATIONS; PARENTING; QUALITATIVE RESEARCH; STRESS, PSYCHOLOGICAL;

EID: 77952504907     PISSN: 13674935     EISSN: 17412889     Source Type: Journal    
DOI: 10.1177/1367493509336684     Document Type: Article

References (46)

1. Aubert-Godard, A. and Scelles, R. (2004) 'Écouter les pères, leur ménager une place, une mesure de prévention pour le devenir de l'enfant handicapé et de ses proches', Pratiques Psychologiques 10(2): 169-185.
2. Baribeau, C. (1996) 'La rétroaction vidéo et la construction des données', Revue des sciences de l'éducation 22(3): 577-598.
3. Blacher, J., Feinfield, K.A. and Kraemer, B.R. (2007) 'Supporting Families Who Have Children with Disabilities', in A. Carr, G. O'Reilly, P.N. Walsh and J. McEvoy (eds) The Handbook of Intellectual Disability and Clinical Psychology Practice, pp. 303-335. New York: Routledge/Taylor & Francis.
4. Boss, P. (2003) Family Stress Management (2nd edn) Thousand Oaks, CA: Sage.
5. Bristol, M.M., Galagher, J.J. and Schopler, E. (1988) 'Mothers and Fathers of Young Developmentally Disabled and Non-disabled Boys: Adaptation and Spousal Support', Developmental Psychology 24(3): 441-451.
6. Crowe, T.K. and Florez, S.I. (2006) 'Time Use of Mothers with School-age Children: a Continuing Impact of a Child's Disability', American Journal of Occupational Therapy 60(2): 194-203.
7. Crowe, T.K., Vanleit, B. and Berghmans, K.K. (2000) 'Mothers' Perceptions of Child Care Assistance: the Impact of a Child's Disability', American Journal of Occupational Therapy 54(1): 52-58.
8. Daly, K. (2004) 'L'évolution de la culture parentale', L'Institut Vanier de la Famille, URL (consulted 29 April 2009): http://www.vifamily.ca/library/cft/parenting_fr.html.
9. Ebersold, S. (2007) Parents, professionnels, face au dévoilement du handicap. Dires et regards. Saint-Agne: Erès.
10. Frey, K.S., Fewell, R.R. and Vadasy, P.F. (1989) 'Parental Adjustment and Changes in Child Outcome among Families of Young Handicapped Children', Topics in Early Childhood Special Education 8(4): 38-57.
11. Gage, J.D. and Kirk, R. (2002) 'First-time Fathers: Perceptions of Preparedness for Fatherhood', Canadian Journal of Nursing 34(4): 15-24.
12. Glaser, B.G. and Strauss, A.L. (1967) The Discovery of Grounded Theory. Strategies for Qualitative Research. Chicago, IL: Aldine.
13. Graungaard, A.H. and Skov, L. (2006) 'Why Do We Need a Diagnosis? A Qualitative Study of Parents' Experiences, Coping and Needs, When the Newborn Child Is Severely Disabled', Child: Care, Health and Development 33(3): 296-307.
14. Gray, D.E. (2003) 'Gender and Coping: the Parents of Children with High Functioning Autism', Social Science and Medicine 56(3): 631-642.
15. Hastings, R., Thomas, H. and Delwiche, N. (2002) 'Grandparent Support for Families of Children with Down's Syndrome', Journal of Applied Research in Intellectual Disabilities 15(1): 97-104.
16. Hastings, R.P., Beck, A. and Hill, C. (2005) 'Positive Contributions Made by Children with an Intellectual Disability in the Family: Mothers' and Fathers' Perceptions', Journal of Intellectual Disabilities 9(2): 155-165.
17. Heath, D.T. and Orthner, D.K. (1999) 'Stress and Adaptation among Male and Female Single Parents', Journal of Family Issues 20(4): 557-587.
18. Jones, J. and Passey, J. (2005) 'Family Adaptation, Coping Resources: Parents of Children with Developmental Disabilities and Behaviour Problems', Journal of Developmental Disabilities 11(1): 31-46.
19. Keller, D. and Honig, A.S. (2004) 'Maternal and Paternal Stress in Families with Schoolaged Children with Disabilities', American Journal of Orthopsychiatry 74(3): 337-48.
20. Kersh, J., Hedvat, T.T., Hauser-Cram, P. and Warfield, M.E. (2006) 'The Contribution of Marital Quality to the Well-being of Parents of Children with Developmental Disabilities', Journal of Intellectual Disability Research 50(12): 883-893.
21. King, G.A., King, S.M. and Rosenbaum, P.L. (1996) 'How Mothers and Fathers View Professional Caregiving for Children with Disabilities', Developmental Medicine and Child Neurology 38(5): 397-407.
22. Knafl, K. and Zoeller, L. (2000) 'Childhood Chronic Illness: a Comparison of Mothers' and Fathers' Experiences', Journal of Family Nursing 6(3): 287-302.
23. Landsman, G.H. (1998) 'Reconstructing Motherhood in the Age of "Perfect" Babies: Mothers of Infants and Toddlers with Disabilities', Signs: Journal of Women in Culture and Society 24(1): 69-97.
24. Lazarus, R.S. and Folkman, S. (1984) Stress, Appraisal and Coping. New York: Springer.
25. Lefebvre, G. (2006) 'Attachement, handicap et paternité', Sommaire de la Lettre No. 46, Fondation pour L'enfance, URL (consulted 29 April 2009): http://www.fondation-enfance.org/final/publications/Lettre46/part4.htm.
26. Lemanek, K.L., Jones, M.L. and Lieberman, B. (2000) 'Mothers of Children with Spina Bifida: Adaptational and Stress Processing', Children's Health Care 29(1): 19-35.
27. Mendell, D., Curtis, R., Gold, M. and Hardie, S. (2005) 'Anaphylaxis: How Do You Live with It?', Health and Social Work 30(4): 325-335.
28. Merton, R.K., Fiske, M. and Kendall, P.L. (1990) The Focused Interview: a Manual of Problems and Procedures. New York: Free Press.
29. Morse, J.M., Wilson, S. and Janice, P. (2000) 'Mothers and Their Disabled Children: Refining the Concept of Normalization', Health Care for Women International 21(8): 659-676.
30. Mucchielli, A. (1996) Dictionnaire des méthodes qualitatives en sciences humaines et sociales. Paris: Armand Colin.
31. Murphy, A. (1990) 'Human Responses to Transitions: a Holistic Nursing Perspective', Holistic Nursing Practice 4(3): 1-7.
32. Neyrand, G. (2000) L'enfant, la mère et la question du père: un bilan critique de l'évolution des savoirs sur la petite enfance. Paris: Presses Universitaires de France.
33. Peck, B. and Lillibridge, J. (2005) 'Normalization Behaviours of Rural Fathers Living with Chronically-ill Children: an Australian Experience', Journal of Child Health Care 9(1): 31-45.
34. Pelchat, D. (1989) 'Programme d'intervention précoce auprès des parents d'un enfant atteint d'un déficience physique', PhD thesis, University of Montreal (available at: http://www.scinf.umontreal.ca/famille/publications/2004).
35. Pelchat, D. and Lefebvre, H. (2004a) 'A Holistic Intervention Program for Families with a Child with a Disability', Journal of Advanced Nursing 48(2): 124-131.
36. Pelchat, D. and Lefebvre, H. (2005) Apprendre ensemble. Le PRIFAM, programme d'intervention interdisciplinaire et familiale. Montreal: Chenelière/McGraw-Hill.
37. Pelchat, D., Bisson, J., Ricard, N., Perreault, M. and Bouchard, J.M. (1999) 'The Longitudinal Effects of an Early Family Intervention Program on the Adaptation of Families of Children with a Disability', International Journal of Nursing Studies 36(6): 465-477.
38. Pelchat, D., Lefebvre, H. and Damiani, C. (2002) 'Deuil. Appropriation de compétences. Transformation. L'apport du PRIFAM au soutien de la résilience des familles' ['Grief. Empowerment. Transformation. The Contribution of PRIFAM to the Resilience of Families'], Pratiques Psychologiques 1: 41-52.
39. Pelchat, D., Lefebvre, H. and Perreault, M. (2003) 'Differences and Similarities between Mothers' and Fathers' Experiences of Parenting a Child with a Disability', Journal of Child Health Care 7(4): 231-247.
40. Pelchat, D., Lefebvre, H., Proulx, M., Bouchard, J., Perreault, M. and Bouchard, L. (2004b) 'Acquisition de savoirs professionnels et de savoirs parentaux dans le cadre du programme d'intervention PRIFAM'. Revue Internationale de L'Éducation Familiale 8(2): 53-72.
41. Pelchat, D., Lefebvre, H. and Levert, M.J. (2007) 'Gender Differences and Similarities in the Experience of Parenting a Child with a Health Problem: Current State of Knowledge', Journal of Child Health Care 11(2): 112-131.
42. Saloviita, T., Itälinna, M. and Leinonen, E. (2003) 'Explaining the Parental Stress of Fathers and Mothers Caring for a Child with Intellectual Disability: a Double ABCX Model', Journal of Intellectual Disability Research 47(4): 300-312.
43. Scorgie, K. and Sobsey, D. (2000) 'Transformational Outcomes Associated with Parenting Children Who Have Disabilities', Mental Retardation 38(3): 195-206.
44. Simmerman, S. and Blacher, J. (2001) 'Fathers' and Mothers' Perceptions of Father Involvement in Families with Young Children with a Disability', Journal of Intellectual and Developmental Disability 26(4): 325-338.
45. Singer, L.T., Salvator, A., Guo, S., Collin, M., Lilien, L. and Baley, J. (1999) 'Maternal Psychological Distress and Parenting Stress after the Birth of a Very Low birthweight Infant', Journal of the American Medical Association 281(9): 799-805.
46. Tamres, L.K., Janicki, D. and Helgeson, V.S. (2002) 'Sex Differences in Coping Behavior: a Meta-analytic Review and an Examination of Relative Coping', Personality and Social Psychology Review 6(1): 2-30.