The critical value of focus group discussions in research with women living with HIV in Malawi

Qualitative Health Research

Volumn 20, Issue 5, 2010, Pages 684-696

  Mkandawire Valhmu, Lucy ^a   Stevens, Patricia E ^a  

^a UNIVERSITY OF WISCONSIN MILWAUKEE   (United States)

Author keywords

Africa; Against women; Critical method; Ethnography; Feminism; Focus groups; Gender; HIV AIDS; Marginalized populations; Postcolonial theory; Poverty; Power; Violence; Womens health

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ETHNOLOGY; FEMALE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTED PATIENT; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INFORMATION PROCESSING; MALAWI; MIDDLE AGED; PSYCHOLOGICAL ASPECT; SOCIAL PSYCHOLOGY;

ADOLESCENT; ADULT; FEMALE; FOCUS GROUPS; HIV INFECTIONS; HIV LONG-TERM SURVIVORS; HUMANS; MALAWI; MIDDLE AGED; STEREOTYPING; YOUNG ADULT;

EID: 77952407443     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732309354283     Document Type: Article

References (50)

1. Abdool Karim, Q., & Frohlich, J. (2000). Women try to protect themselves from HIV/AIDS in Kwazulu-Natal, South Africa. In M. Turshen (Ed.), African womens health (pp. 69-82). Trenton, NJ: Africa World Press.
2. Abma, T.A., Nierse, C.J., & Widdershoven, G. A. M. (2009). Patients as partners in responsive research: Methodological notions for collaborations in mixed research teams. Qualitative Health Research, 19, 401-415.
3. Anderson, J.M. (2004). Lessons from a postcolonial-feminist perspective: Suffering and a path to healing. Nursing Inquiry, 11, 238-246.
4. Anderson, J.M., & McCann, E.K. (2002). Toward a postcolonial feminist methodology in nursing research: Exploring the convergence of post-colonial and Black feminist scholarship. Nurse Researcher, 9 (3). 7-27.
5. Anderson, N., Cockcroft, A., & Shea, B. (2008). Gender-based violence and HIV: Relevance for HIV prevention in hyper-endemic countries of southern Africa. AIDS, 22 (Suppl. 4). S73 - S86.
6. Barrett, H.R. (1997). Women, occupation and health in rural Africa: Adaptation to a changing socioeconomic climate. Journal of Occupational Science, 4 (3). 93-105.
7. Chersich, M.F., & Rees, H.V. (2008). Vulnerability of women in southern Africa to infection with HIV: Biological determinants and priority sector interventions. AIDS, 22 (Suppl. 4). S27 - S40.
8. Chiweza, A.L. (2005). Womens inheritance rights in Malawi: The role of district assemblies. Development in Practice, 15 (1). 83-89.
9. Culley, L., Hudson, N., & Rapport, F. (2007). Using focus groups with minority ethnic communities: Researching infertility in British South Asian communities. Qualitative Health Research, 17, 102-112.
10. Dahl, V., Mellhammer, L., Bajunirwe, F., & Bjorkman, P. (2008). Acceptance of HIV testing among women attending antenatal care in south-western Uganda: Risk factors and reasons for test refusal. AIDS Care, 20, 746-752.
11. Dembele, D.M. (2005). The International Monetary Fund and World Bank in Africa: A "disastrous" record. International Journal of Health Services, 35 (2). 389-398.
12. Dunkle, K.L., Jewkes, R.K., Brown, H.C., Gray, G.E., McIntyre, J.A., & Harlow, S.D. (2004). Gender-based violence, relationship power, and risk of HIV infection in women attending antenatal clinics in South Africa. Lancet, 363, 1415-1421.
13. Foley, D.E. (2002). Critical ethnography: The reflexive turn. Qualitative Studies in Education, 15 (5). 469-490.
14. Ghosh, J., & Kalipeni, E. (2005). Women in Chinsapo, Malawi: Vulnerability and risk to HIV/AIDS. SAHARA: Journal of Social Aspects of HIV/AIDS Research Alliance, 2, 320-332.
15. Groleau, D., Zelkowitz, P., & Cabral, I.E. (2009). Enhancing generalizability: Moving from an intimate to a political voice. Qualitative Health Research, 19, 416-426.
16. Hall, J.M., & Stevens, P.E. (1991). Rigor in feminist research. Advances in Nursing Science, 13 (3). 16-29.
17. Hall, J.M., Stevens, P.E., & Meleis, A.I. (1994). Marginalization: A guiding concept for valuing diversity in nursing knowledge development. Advances in Nursing Science, 16 (4). 23-41.
18. Haraway, D.J. (1991). Simians, cyborgs and women: The reinvention of nature. New York: Routledge.
19. Kapur, R. (2002). The tragedy of victimization rhetoric: Resurrecting the "native" subject in international/post-colonial feminist legal politics. Harvard Human Rights Journal, 15, 1-38.
20. Kathewera-Banda, M., Gomile-Chidyaonga, F., Hendriks, S., Kachika, T., Mitole, Z., & White, S. (2005). Sexual violence and womens vulnerability to HIV transmission in Malawi: A rights issue. International Social Science Journal, 57, 649-660.
21. Kawewe, S.M., & Dibie, R. (2000). The impact of economic structural adjustment programs (ESAPs) on women and children: Implications for social welfare in Zimbabwe. Journal of Sociology and Social Welfare, 27 (4). 79-107.
22. Kayumba, A. (2000). The role of women in taking care of sick family members in this era of HIV/AIDS. Journal of Social Philosophy, 31 (4). 447-452.
23. Kumwenda, N., Hoffman, I., Chirenje, M., Kelly, C., Coletti, A., Ristow, A., et al. (2006). HIV incidence among women of reproductive age in Malawi and Zimbabwe. Sexually Transmitted Diseases, 33, 646-651.
24. Lurie, M.N., Williams, B.G., Zuma, K., Mkaya-Mwamburi, D., Garnett, G.P., Sturm, A.W., et al. (2003). The impact of migration on HIV-1 transmission in South Africa: A study of migrant and nonmigrant men and their partners. Sexually Transmitted Diseases, 30, 149-156.
25. Madison, D.S. (2005). Critical ethnography: Method, ethics, and performance. Thousand Oaks, CA: Sage.
26. Madriz, E. (2001). Focus groups in feminist research. In N. Denzin & Y. Lincoln (Eds.), Handbook of qualitative research (pp. 835-850). Thousand Oaks, CA: Sage.
27. Makin, J.D., Forsyth, B.W.C., Visser, M.J., Sikkema, K.J., Neufeld, S., & Jeffery, B. (2008). Factors affecting disclosure in South African HIV-positive pregnant women. AIDS Patient Care and STDs, 22, 907-916.
28. Mkandawire-Valhmu, L., Rice, E.I., & Bathum, M.E. (2009). Applying an egalitarian approach to vulnerable populations of women. Journal of Advanced Nursing, 65 (8). 1725-1734.
29. Mkandawire-Valhmu, L., Rodriguez, R.A., Ammar, N., & Nemoto, K. (2009). Surviving life as a woman: A critical ethnography of violence in the lives of female domestic workers in Malawi. Health Care for Women International, 30 (9). 783-801.
30. Mkandawire-Valhmu, L., & Stevens, P.E. (2007). Applying a feminist approach to health and human rights research in Malawi: A study of violence in the lives of female domestic workers. Advances in Nursing Science, 30 (3). 278-289.
31. Mkandawire-Valhmu, L., & Stevens, P.E. (2009). Safety planning among HIV-infected women living with gender based violence in southern Malawi. Manuscript submitted for publication
32. Mohanty, C.T. (1991). Under Western eyes. Feminist scholarship and colonial discourses. In C. T. Mohanty, A. Russo, & L. Torres (Eds.), Third world women and the politics of feminism (pp. 314-327). Indianapolis: Indiana University Press.
33. Mtika, M.M. (2007). Political economy, labor migration, and the AIDS epidemic in rural Malawi. Social Science and Medicine, 64, 2454-2463.
34. Narayan, U. (1997). Dislocating cultures: Identities, traditions and third world feminism. New York: Routledge.
35. National Statistical Office & ORC Macro. (2005). Malawi demographic and health survey 2004. Calverton, MD: Author.
36. OMahony, J.M., & Donnelly, T.T. (2007). Health care providers perspective of the gender influences on immigrant womens mental health care experiences. Issues in Mental Health Nursing, 28, 1171-1188.
37. Opiyo, P.A., Yamano, T., & Jayne, T.S. (2008). HIV/AIDS and home-based health care. International Journal for Equity in Health, 7, 1-4.
38. Pollack, S. (2003). Focus-group methodology in research with incarcerated women: Race, power, and collective experience. Affilia, 18 (4). 461-472.
39. Racine, L. (2003). Implementing a postcolonial feminist perspective in nursing research related to non-Western populations. Nursing Inquiry, 10 (2). 91-102.
40. Reimer-Kirkham, S., & Browne, A. (2006). Toward a critical theoretical interpretation of social justice discourses in nursing. Advances in Nursing Science, 29 (4). 324-339.
41. Smith, L.T. (2000). Decolonizing methodologies: Research and indigenous peoples. London: Zed Books.
42. Stevens, P.E. (1996). Focus groups: Collecting aggregate-level data to understand community health phenomena. Public Health Nursing, 13, 170-176.
43. Stevens, P.E., & Hildebrandt, E. (2009). Pill taking from the perspective of HIV-infected women who are vulnerable to antiretroviral treatment failure. Qualitative Health Research, 19, 593-604.
44. Stirling, M., Rees, H., Kasedde, S., & Hankins, C. (2008). Introduction: Addressing the vulnerability of young women and girls to stop the HIV epidemic in southern Africa. AIDS, 22 (Suppl. 4). S1 - S3.
45. Thomas, J. (1993). Doing critical ethnography. Newbury Park, CA: Sage.
46. United Nations Development Fund. (2008). 2008 statistical update Malawi: The Human Development Index-Going beyond income. Retrieved January 31, 2009, from http://www.undp.org.mw/index.php?option=com-programme&view=HIV/ AIDS&Itemid=40
47. U.S. Department of State. (2007). Malawi. Bureau of Democracy, Human Rights, and Labor. Retrieved September 28, 2009, from www.state.gov/g/drl/rls/ hrrpt/2006/78744.htm
48. van der Horst, C., Chasela, C., Ahmed, Y., Hoffman, I., Hosseinipour, M., Knight, R., et al. (2009). Modifications of a large HIV prevention clinical trial to fit changing realities: A case study of the Breastfeeding, Antiretroviral, and Nutrition (BAN) protocol in Lilongwe, Malawi. Contemporary Clinical Trials, 30 (1). 24-33.
49. Williams, J.K., & Ayres, L. (2007). " Im like you": Establishing and protecting a common ground in focus groups with Huntington disease caregivers. Journal of Research in Nursing, 12, 655-664.
50. World Health Organization. (2005). Summary country profile for HIV/AIDS treatment scale-up: Malawi. Retrieved January 31, 2009, from http://www.who.int/hiv/HIVCP-MWI.pdf