Using focus groups with minority ethnic communities: Researching infertility in British South Asian communities

Qualitative Health Research

Volumn 17, Issue 1, 2007, Pages 102-112

  Culley, Lorraine ^a   Hudsong, Nicky ^a   Rapport, Frances ^b  

^a DE MONTFORT UNIVERSITY   (United Kingdom)

^b SWANSEA UNIVERSITY   (United Kingdom)

Author keywords

Diversity; Ethics; Focus groups; Infertility; Minority ethnic; Reciprocity; Recruitment; Sensitivity

Indexed keywords

ARTICLE; ATTITUDE TO ILLNESS; CHILDLESSNESS; CLINICAL ARTICLE; CULTURAL ANTHROPOLOGY; CULTURAL FACTOR; ETHNIC GROUP; ETHNOLOGY; FEMALE; HEALTH AUXILIARY; HEALTH BELIEF; HEALTH CARE ACCESS; HEALTH CARE DELIVERY; HEALTH SERVICES RESEARCH; HUMAN; INFERTILITY; LANGUAGE ABILITY; MALE; METHODOLOGY; PATIENT SELECTION; PRIORITY JOURNAL; RESEARCH ETHICS; RURAL HEALTH CARE; SEXUAL HEALTH; SOCIAL ATTITUDE; SOUTH ASIA;

ASIAN CONTINENTAL ANCESTRY GROUP; CULTURAL CHARACTERISTICS; EPIDEMIOLOGIC METHODS; ETHNIC GROUPS; FEMALE; FOCUS GROUPS; GREAT BRITAIN; HUMANS; INFERTILITY; LANGUAGE; MALE; MINORITY GROUPS; QUALITATIVE RESEARCH;

EID: 33845409244     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732306296506     Document Type: Article

References (62)

1. Ahmad, W. I. U. (Ed.). (1993). "Race" and health in contemporary Britain. Buckingham, UK: Open University Press.
2. Ahmed, S., Hussain, M., & Vournas, G. (2001, November). Consultation with "hidden" and hard-to-reach groups: Methods, techniques and research practice. Paper presented at Consulting Hard to Reach Groups: Laria Seminar, Aston Business School, Birmingham, UK. Retrieved May 3, 2004, from http://www.laria.gov.uk/content/features/68/feat1.htm
3. Asch, S. (1951). Effect of group pressure upon the modification and distortion of judgements. In H. Guetzkow (Ed.), Groups, leadership, and men (pp. 177 - 190). Pittsburgh: Carnegie.
4. Aspinall, P., & Jacobson, B. (2004). Ethnic disparities in health and health care. London: Department of Health.
5. Baker, R., & Hinton, R. (1999). Do focus groups facilitate meaningful participation in social research? In R. Barbour & J. Kitzinger (Eds.), Developing focus group research: Politics, theory, and practice (pp. 79 - 98). London: Sage.
6. Barbour, R., & Kitzinger, J. (Eds.). (1999). Developing focus group research: Politics, theory, and practice. London: Sage Bhatti,
7. L., Fikree, F. F., & Khan, A. (1999). The quest of infertile women in squatter settlements of Karachi, Pakistan: A qualitative study. Social Science and Medicine, 49, 637-649.
8. Bhopal, K. (1995). Women and feminism as subjects of Black study: The difficulties and dilemmas of carrying out re-search. Journal of Gender Studies, 4(2), 153-168.
9. Butt, J., & O'Neil, A. (2004). Let's move on: Black and ethnic minority older people's views on research findings. York, UK: Joseph Rowntree Foundation.
10. Carey, M. A. (1994). The group effect in focus groups: Planning, implementing and interpreting focus group research. In J. M. Morse (Ed.), Critical issues in qualitative research methods (pp. 225-241). London: Sage.
11. Carey, M. A., & Smith, M. W. (1994). Capturing the group effect in focus groups: A special concern in analysis. Qualitative Health Research, 4, 123-127.
12. Chapple, A. (1998). Interviewing women from an ethnic minority group: Finding the sample, negotiating access and conducting semi-structured interviews. Nurse Researcher, 6(1) 85-92.
13. Chui, L.-F., & Knight, D. (1999). How useful are focus groups for obtaining the views of minority groups? In R. Barbour & J. Kitzinger (Eds.), Developing focus group research: Politics, theory, and practice (pp. 99-112). London: Sage.
14. Cohen, L., & Manion, L. (1989). Research methods in education (3rd ed.). London: Routledge.
15. Crossley, M. (2002). "Could you please pass one of those health leaflets along?": Exploring health, morality and resistance through focus groups. Social Science and Medicine, 55, 1471 - 1483.
16. Culley, L., Hudson, N., Rapport, F., Katbamna, S., & Johnson, M. (2006). British South Asian communities and infertility services. Human Fertility, 9(1), 37-45.
17. Culley, L. A., Rapport, F., Katbamna, S., Johnson, M., & Hudson, N. (2004). Improving policy and practice: A study of the provision of infertility services to South Asian communities. Leicester, UK: Report to Dept of Health, DMU.
18. Dignan, M., Michielutte, R., Sharp, P., Bahnson, J., Yong, L., & Beal, P. (1990). The role of focus groups in health education for cervical cancer among minority women. Journal of Community Heath, 15(6), 369-375.
19. Douglas, J. (1998). Developing appropriate research methodologies with Black and minority ethnic communities, Part I: Reflections on the research process. Health Education Journal, 57(4), 329-338.
20. Elam, G., & Fenton, K. (2003). Researching sensitive issues and ethnicity: Lessons from sexual health. Ethnicity and Health, 8(1), 15-27.
21. Espin, O. M. (1995). "Race," racism and sexuality in the life narratives of immigrant women. Feminism and Psychology, 5(2), 223-238.
22. Esposito, N. (2001). From meaning to meaning: The influence of translation techniques on non-English focus group research. Qualitative Health Research, 11, 568-579.
23. Fallon, G. R., & Brown, B. R. (2002). Focusing on focus groups: Lessons from a research project involving a Bangladeshi community. Qualitative Research, 2(2), 195-208.
24. Farquhar, C. (1999). Are focus groups suitable for "sensitive" topics? In R. Barbour & J. Kitzinger (Eds.), Developing focus group research: Politics, theory, and practice (pp. 47-63). London: Sage.
25. Fleming, J., & Ward, D. (2004). Methodology and practical application of the social action research model. In F. Maggs-Rapport (Ed.), New qualitative research methodologies in health and social care: Putting ideas into practice (pp. 162-178). London, Routledge.
26. Greil, A. L. (1997). Infertility and psychological distress: A critical review of the literature. Social Science and Medicine, 45(11), 1679-1704.
27. Gunaratnam, Y. (2003). Researching "race" and ethnicity: Methods, knowledge, and power. London: Sage.
28. Human Fertilisation and Embryology Authority. (2003). Sex selection: Options for regulation. Retrieved January 12, 2006, from http:// www.hfea.gov.uk/AboutHFEA/Consultations/ Final%20sex%20selection%20main%20report.pdf
29. Inhorn, M. (1994). Quest for conception: Gender, infertility, and Egyptian medical traditions. Philadelphia: University of Pennsylvania Press.
30. Inhorn, M. C., & van Balen, F. (Eds.). (2002). Infertility around the globe: New thinking on childlessness, gender, and reproductive technologies. Berkeley: University of California Press.
31. Jackson, F. M. (2002). Considerations for community-based research with African American women. American Journal of Public Health, 92(4), 561-564.
32. Katbamna, S., Bhakta, P., Parker, G., Ahmad, W. I. U., & Baker, R. (1998). Experiences and needs of carers from the South Asian communities. Leicester, UK: University of Leicester, Nuffield Community Care Studies Unit.
33. Kidd, P., & Marshall, M. (2000). Getting the focus and the group: Enhancing analytical rigor in focus group research. Qualitative Health Research, 10, 293-308.
34. Kitzinger, J. (1994). The methodology of focus groups: The importance of interaction between research participants. Sociology of Health and Illness, 16(1), 103-121.
35. Kitzinger, J. (1995). Qualitative research: Introducing focus groups. British Medical Journal, 311, 299-302.
36. Kitzinger, J., & Farquhar, C. (1999). The analytical potential of "sensitive moments" in focus group discussions. In R. Barbour & J. Kitzinger (Eds.), Developing focus group research: Politics, theory, and practice (pp. 156-172). London: Sage.
37. Krueger, R., & Casey, M. A. (2000). Focus groups: A practical guide for applied research (3rd ed.). Thousand Oaks, CA: Sage.
38. Lee, R. M. (1993). Doing research on sensitive topics. London: Sage.
39. Maynard-Tucker, G. (2000). Conducting focus groups in developing countries: Skill training for local bilingual facilitators. Qualitative Health Research, 10, 396-410.
40. Merton, R. K., & Kendall, P. K. (1946). The focused interview. American Journal of Sociology, 51, 541-557.
41. Mirza, M. (1998). "Same voices, same lives?": Revisiting Black feminist standpoint epistemology. In P. Connolly & B. Troyna (Eds.), Researching racism in education: Politics, theory, and practice (pp. 79-94). Buckingham, UK: Open University Press.
42. Morgan, D. L. (1988). Focus groups as qualitative research. London: Sage.
43. Morgan, D. L., & Krueger, R. A. (1993). When to use focus groups and why. In D. L. Morgan (Ed.), Successful focus groups: Advancing the state of the art (pp. 1-19). London: Sage.
44. Nazroo, J. (1997). The health of Britain's ethnic minorities. London: Policy Studies Institute.
45. Neff, D. (1994). The social construction of infertility: The case of the matrilineal Nayars in South India. Social Science and Medicine, 39(4), 475-485.
46. O'Brien, K. (1993). Using focus groups to develop health surveys: An example from research on social relationships and AIDS-preventative behavior. Health Education Quarterly, 20(3), 361-372.
47. Papreen, N., Sharma, A., Sabin, K., Begum, L., Ahsan, S. K., & Baqui, A. H. (2000). Living with infertility: Experiences from urban slum populations in Bangladesh. Reproductive Health Matters, 8(15), 33-44.
48. Pfeffer, N., & Woollett, A. (1983). The experience of infertility. London: Virago.
49. Phoenix, A. (1994). Practicing feminist research: The intersection of gender and "race" in the research process. In M. Maynard & J. Purvis (Eds.), Researching women's lives from a feminist perspective (pp. 53-68). London: Taylor & Francis.
50. Reed, J., & Payton, V. (1997). Focus groups: Issues of analysis and interpretation. Journal of Advanced Nursing, 26, 765-771.
51. Reissman, C. K. (2000). Stigma and everyday practices: Childless women in south India. Gender & Society, 14(1), 111-135.
52. Rhodes, P. J. (1994). Race-of-interviewer effects: A brief comment. Sociology, 28(2), 547-558.
53. Ruppenthal, L., Tuck, J., & Gagnon, A. J. (2005). Enhancing research with migrant women through focus groups. Western Journal of Nursing Research, 27(6), 735-754.
54. Song, M., & Parker, D. (1995). Cultural identity: Disclosing commonality in in-depth interviewing. Sociology, 29(2), 421-456.
55. Stanfield, J. (1993). Epistemological considerations. In J. H. Stanfield & R. M. Dennis (Eds.), Race and ethnicity in research methods (pp. 16-36). Newbury Park, CA: Sage.
56. Twinn, S. (1998). An analysis of the effectiveness of focus groups as a method of qualitative data collection with Chinese populations in nursing research. Journal of Advanced Nursing, 28(3), 654-661.
57. Waterton, C., & Wynne, B. (1999). Can focus groups access community views? In R. Barbour & J. Kitzinger (Eds.), Developing focus group research: Politics, theory, and practice (pp. 127-143). London: Sage.
58. Whiteford, L. M., & Gonzalez, L. (1994). Stigma: The hidden burden of infertility. Social Science and Medicine, 40(1), 27-36.
59. Wilkins Winslow, W., Honein, G., & Elzubeir, M. A. (2002). Seeking Emirati women's voices: The use of focus groups with an Arab population. Qualitative Health Research, 12, 566-575.
60. Wilkinson, S. (1999). How useful are focus groups in feminist research? In R. Barbour & J. Kitzinger (Eds.), Developing focus group research: Politics, theory, and practice (pp. 64-78). London: Sage.
61. Winkvist, A., & Zareen Aktar, H. (2000). "God should give daughters to rich families only": Attitudes towards childbearing among low-income women in Punjab Pakistan. Social Science and Medicine, 51, 73-81.
62. Yelland, J., & Gifford, S. M. (1995). Problems of focus group methods in cross-cultural research: A case study of the beliefs about sudden infant death syndrome. Australian Journal of Public Health, 19(3), 257-263.