A toolkit for incorporating genetics into mainstream medical services: Learning from service development pilots in England

BMC Health Services Research

Volumn 10, Issue , 2010, Pages

  Bennett, Catherine L ^a   Burke, Sarah E ^b   Burton, Hilary ^c   Farndon, Peter A ^a  

^a BIRMINGHAM CHILDREN S HOSPITAL NHS FOUNDATION TRUST   (United Kingdom)

^b UNIVERSITY OF BIRMINGHAM   (United Kingdom)

^c PHG FOUNDATION   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; FEMALE; HEALTH SERVICE; HOSPITAL DEPARTMENT; HUMAN; INTEGRATED HEALTH CARE SYSTEM; INTERVIEW; MEDICAL GENETICS; MEDICINE; METHODOLOGY; ORGANIZATION AND MANAGEMENT; PILOT STUDY; PREGNANCY; PROFESSIONAL STANDARD; QUESTIONNAIRE; UNITED KINGDOM; UTILIZATION REVIEW;

ADULT; DELIVERY OF HEALTH CARE, INTEGRATED; ENGLAND; FEMALE; GENETICS, MEDICAL; HEALTH SERVICES; HOSPITAL DEPARTMENTS; HUMANS; INTERVIEWS AS TOPIC; MEDICINE; PILOT PROJECTS; PREGNANCY; PROFESSIONAL ROLE; QUESTIONNAIRES;

EID: 77952087607     PISSN: None     EISSN: 14726963     Source Type: Journal    
DOI: 10.1186/1472-6963-10-125     Document Type: Article

References (28)

1. Genetics Moves Into the Medical Mainstream. FS Collins AE Guttmacher, Journal of the American Medical Association 2001 286 2322 2324 10.1001/jama.286.18.2322 11710899
2. Delivery of Genomic Medicine for Common Chronic Adult Diseases: A Systematic Review. MT Scheuner P Sieverding PG Shekelle, Journal of the American Medical Association 2008 299 1320 1334 10.1001/jama.299.11.1320 18349093
3. Developing a curriculum statement based on clinical practice: genetics in primary care. S Burke M Martyn A Stone C Bennett H Thomas P Farndon, British Journal of General Practice 2009 59 99 10.3399/bjgp09X395094 19192373
4. The development of core learning outcomes relevant to clinical practice: identifying priority areas for genetics education for non-genetics specialist registrars. S Burke M Martyn H Thomas P Farndon, Clinical Medicine 2009 9 49 19271601
5. Establishing the Essential Nursing Competencies for Genetics and Genomics. J Jenkins KA Calzone, Journal of Nursing Scholarship 2007 39 10 16 10.1111/j.1547-5069.2007.00137.x 17393960
6. A survey of genetics knowledge of health professionals: Implications for physical therapists. TM Long R Brady EV Lapham, Pediatric Physical Therapy 2001 13 156 163 17053633
7. The gap between practice and genetics education of health professionals: HuGEM survey results. EV Lapham C Kozma JO Weiss JL Benkendorf MA Wilson, Genetics in Medicine 2000 2 226 231 10.1097/00125817-200007000-00005 11252707
8. Integrated regional genetic services: current and future provision Commentary: The future development of regional genetic services will rely on partnerships. D Donnai R Elles D Ravine J Sampson, BMJ 2001 322 1048 1052 10.1136/bmj.322.7293.1048 11325774
9. Delivering cancer genetics services - new ways of working. R Eeles G Purland J Maher DG Evans, Familial Cancer 2007 6 163 167 10.1007/s10689-007- 9137-9 17530452
10. Department of Health, Our Inheritance, Our Future: Realising the potential of genetics in the NHS The Stationery Office 2003
11. Genetics education for health professionals: strategies and outcomes from a national initiative in the United Kingdom. PA Farndon C Bennett, Journal of Genetic Counseling 2008 17 161 169 10.1007/s10897-007-9144-x 18247106
12. G Currie R Dingwall R Finn G Martin, Mainstreaming Genetics. Report of an External Evaluation Nottingham: Institute for Science and Society, The University of Nottingham 2008
13. Familial breast cancer: the classification and care of women at risk of familial breast cancer in primary secondary and tertiary care (partial update of CG14). Clinical guideline CG41. http://www.nice.org.uk/guidance/CG41
14. Identification and management of familial hypercholesterolaemia. Clinical guideline CG71. http://www.nice.org.uk/guidance/CG71
15. How can genetic tests be evaluated for clinical use? Experience of the UK Genetic Testing Network. M Kroese RL Zimmern P Farndon F Stewart J Whittaker, European Journal of Human Genetics 2007 15 917 921 10.1038/sj.ejhg.5201867 17534375
16. Genetics in Mainstream Healthcare: A Toolkit for Developing Services. http://www.geneticseducation.nhs.uk/genetics-in-practice/developing-services- and-new-roles/a-toolkit-for-developing-new-services.aspx
17. Inherited cardiovascular conditions: the challenges of genomic medicine. H Burton C Alberg A Hall GS Sagoo A Stewart, Heart 2010 96 474 476 10.1136/hrt.2009.189159 20299419
18. Department of Health, The NHS Plan: a plan for investment, a plan for reform The Stationery Office 2000
19. A Darzi, High quality care for all: NHS Next Stage Review final report London: Department of Health 2008
20. Ten years experience of a genetic eye clinic: 1978-1987. S Bundey SJ Crews, Journal of the Royal Society of Medicine 1989 82 406 2585426
21. Analysis of referrals to a multi-disciplinary breast cancer genetics clinic: practical and economic considerations. MM Reis D Young L McLeish D Goudie A Cook F Sullivan H Vysny A Fordyce R Black M Tavakoli M Steel, Familial Cancer 2006 5 297 10.1007/s10689-006-7849-x 16819594
22. Psychosocial impact of specialized cardiac genetic clinics for hypertrophic cardiomyopathy. J Ingles JM Lind P Phongsavan C Semsarian, Genetics in Medicine 2008 10 117 10.1097/GIM.0b013e3181612cc7 18281919
23. Can a GP be a generalist and a specialist? Stakeholders views on a respiratory General Practitioner with a special interest service in the UK. M Moffat A Sheikh D Price A Peel S Williams J Cleland H Pinnock, BMC Health Services Research 2006 6 62 10.1186/1472-6963-6-62 16734893
24. Competences, education and support for new roles in cancer genetics services: outcomes from the cancer genetics pilot projects. C Bennett H Burton P Farndon, Familial Cancer 2007 6 171 10.1007/s10689-007-9127-y 17520353
25. Ethnicity, equity, and access to genetic services - the UK perspective. P Mehta AK Saggar, Annals of Human Biology 2005 32 204 10.1080/03014460500075043 16096218
26. Barriers to access: results from focus groups to identify genetic service needs in the community. RY Beene-Harris C Wang JV Bach, Community Genetics 2007 10 10 10.1159/000096275 17167245
27. Concern for families and individuals in clinical genetics. M Parker A Lucassen, Journal of Medical Ethics 2003 29 70 73 10.1136/jme.29.2.70 12672885
28. Royal College of Physicians, Royal College of Pathologists, British Society for Human Genetics, Consent and confidentiality in genetic practice. Guidance on genetic testing and sharing genetic information. A report of the Joint Committee on Medical Genetics London: Royal College of Physicians of London 2006