Ethnicity, equity, and access to genetic services - The UK perspective

Annals of Human Biology

Volumn 32, Issue 2, 2005, Pages 204-210

  Mehta, P ^a   Saggar, A K ^b  

^a Genetic Interest Group   (United Kingdom)

^b ST GEORGE'S UNIVERSITY OF LONDON   (United Kingdom)

Author keywords

Access; Equity; Ethnicity; Genetic services

Indexed keywords

EQUITY; ETHNICITY; HEALTH SERVICES; POPULATION GENETICS;

CONFERENCE PAPER; CULTURAL ANTHROPOLOGY; ETHNIC GROUP; GENETIC SERVICE; HEALTH CARE DELIVERY; HUMAN; LANGUAGE; ORGANIZATION AND MANAGEMENT; PUBLIC HEALTH; SOCIOECONOMICS; UNITED KINGDOM;

CULTURAL DIVERSITY; ETHNIC GROUPS; GENETIC SERVICES; GREAT BRITAIN; HEALTH SERVICES ACCESSIBILITY; HUMANS; LANGUAGE; NATIONAL HEALTH PROGRAMS; SOCIOECONOMIC FACTORS;

EASTERN HEMISPHERE; EURASIA; EUROPE; UNITED KINGDOM; WESTERN EUROPE; WORLD;

EID: 22344440487     PISSN: 03014460     EISSN: None     Source Type: Journal    
DOI: 10.1080/03014460500075043     Document Type: Conference Paper

References (28)

1. Acheson D. 1998. Independent enquiry into inequalities in health. London: HMSO.
2. Alexander C, Edwards R, Temple B, Kanani U, Zhuang L, Miah M, Sam A. 2004. Access to services with interpreters - users views. York: Joseph Rowntree Foundation.
3. Baker P, Eversley J. 2000. Multilingual capital. London: Battlebridge Publications.
4. Barbujani G, Magagni A, Minch E, Cavalli-Sforza LL. 1997. An apportionment of human DNA diversity. Proc Natl Acad Sci USA 94:4516-4519.
5. Bhatt A. 1997. Many voices, one message. Guidelines for the development and translation of health information. London: London Health Education Authority.
6. Bittles AH. 2004. Endogamy, consanguinity and community disease profiles. Community Genet 8:17-20.
7. Cargill M, Altshuler D, Ireland J, Sklar P, Ardlie K, Patil N, Shaw N, Lane CR, Lim EP, Kalyanaraman N, et al. 1999. Characterisation of single-nucleotide polymorphisms in coding regions of human genes. Nat Genet 22:231-239.
8. Chui DHK. 2005. Alpha-thalassaemia and population health in South East Asia. Ann Hum Biol 23:123-130, this issue.
9. Collins FS. 2004. The case for a US prospective cohort Study of genes and environment. Nature 429:475-477.
10. Darr A, Modell B. 2002. Genetic counselling and customary consanguineous marriage. Nat Rev Genet 3:225-229.
11. Garewal G, Das R, Jaur J, Marhawa RK, Gupta I. 2005. Establishment of prenatal diagnosis for β-thalassaemia: A step towards its control in a developing country. Ann Hum Biol 32:138-144, this issue.
12. Gill C. 2004. Review of current materials to support haemoglobinopathy screening programmes: www-phm. umds.ac.uk/haemscreening/Documents/ ServicesReport.pdf.
13. Halushka MK, Fan JB, Bentley K, Hsie L, Shen N, Weder A, Cooper R, Lipschutz R, Chakravarti A. 1999. Patterns of single-nucleotide polymorphisms in candidate genes for blood-pressure homeostasis. Nat Genet 22:239-247.
14. HMSO. 2003. Our inheritance, our future. London: HMSO.
15. Lewontin RC. 1972. Apportionment of human diversity. Evol Biol 6:381-398.
16. Macmillan/Department of Health. 2004. Macmillan Cancer Relief, Department of Health Genetics Pilot Project. www.macmillan.org.uk/news/pressreleases.asp? nid=1194.
17. Mehta P. 2003. Ethnic monitoring in clinical genetics. www.gig.org.uk.
18. Multicultural Health Services and Programs. 2004. Multicultural Health Services and Programs in NSW, www.mhcs.health.nsw.gov.au/health-public-affairs/ mhcs/images/pdfs/booklet.pdf.
19. National Statistics. 2003. Census 2001, www.nationalstatistics.gov.uk/ census2001.
20. NHS. 2004a. The NHS Plan, putting people at the heart of public services, www.publications.doh.gov.uk/nhsplan
21. NHS. 2004b. Sickle Cell & Thalassaemia Screening Programme Implementation Plan Policy Document, www-phm.umds.ac.uk.
22. NHS/CRE. 2004. Race Equality Guide 2004, a performance framework. NHS Strategic Health Authority, Commission for Racial Equality. www.cre.gov.uk/pdfs/ sha_race_equality_guide.pdf.
23. Reid J, Crisp N. 2004. NHS Leaders Conference. www.dh.gov.uk/NewsHome/ ConferenceAndEventReports/ConferenceReportsConferenceReportsArticle/fs/en? CONTENT_ID=4072486&chk=g0NCfX).
24. Rosenberg NA, Pritchard JK, Weber JL, Cann HM, Kidd KK, Zhivotovsky LA, Feldman MW. 2002. Genetic structure of human populations. Science 298:2381-2385.
25. Shaw A, Ahmed M. 2004. Translating genetics leaflets into languages other than English: Lessons from an assessment of Urdu leaflets. J Genet Counseling 13:321-342.
26. Tate SK, Goldstein DB. 2004. Will tomorrow's medicines work for everyone? Nat Genet 36:S34-S42.
27. US Department of Health and Human Services. 2000. National standards on Culturally and Linguistically Appropriate Services (CLAS) in health care. US Department of Health, Human Services Office of Minority Health. Washington, DC: United States Government Printing Office.
28. Weatherall DJ. 2005. The global problem of genetic disease. Ann Hum Biol 32:117-122, this issue.