Remaining hopeful in early-stage dementia: A qualitative study

Aging and Mental Health

Volumn 14, Issue 4, 2010, Pages 450-460

  Wolverson, Emma L ^a   Clarke, Christopher ^b   Moniz Cook, Esme ^b  

^a Department of Clinical Psychology and Ageing   (United Kingdom)

^b UNIVERSITY OF HULL   (United Kingdom)

Author keywords

Dementia; Hope; Psychosocial interventions; Quality of life

Indexed keywords

AGED; ARTICLE; ATTITUDE; CROSS-SECTIONAL STUDY; DEMENTIA; FEMALE; HUMAN; INTERVIEW; MALE; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; UNITED KINGDOM;

AGED; AGED, 80 AND OVER; ATTITUDE; CROSS-SECTIONAL STUDIES; DEMENTIA; ENGLAND; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; QUALITY OF LIFE;

EID: 77952013272     PISSN: 13607863     EISSN: 13646915     Source Type: Journal    
DOI: 10.1080/13607860903483110     Document Type: Article

References (74)

1. Alexopoulos, G., Abrams, R., Young, R., & Shamoian, C. (1988). Cornell scale for depression in dementia. Biological Psychiatry, 23, 271-284.
2. Averill, J.R., Catlin, G., & Chon, K.K. (1990). Rules of hope. New York: Springer.
3. Bergin, L., & Walsh, S. (2005). The role of hope in psychotherapy with older adults. Aging and Mental Health, 9(1), 7-15.
4. Bryden, C. (2005). Dancing with Dementia: My story of living positively with dementia. UK: Jessica Kingsley Publishers.
5. Cahill, S., Begley, E., Topo, P., Saarikalle, K., Macijauskiene, J., Budraitiene, A., et al. (2004). 'I know where this is going and I know it won't go back'. Hearing the individual's voice in dementia quality of life assessments. Dementia, 3(3), 313-330.
6. Carver, C., & Scheier, M. (2005). Optimism. In C. Snyder & S. Lopez (Eds.), Handbook of positive psychology. Oxford: Oxford University Press.
7. Cheavens, J., & Gum, A. (2000). Grey power: Hope for the ages. In C. Snyder (Ed.), Handbook of hope: Theory, measures, and applications. San Diego: Academic Press.
8. Clare, L. (2002). We'll fight it as long as we can: Coping with the onset of Alzheimer's disease. Aging and Mental Health, 6(2), 139-148.
9. Cohen, D. (1991). The subjective experience of Alzheimer's disease: The anatomy of illness as perceived by patients and their family. American Journal of Alzheimer's Care and Related Disorders, 8, 202-210.
10. Conrad, P. (1987). The experience of illness: Recent and new directions. Research in the Sociology of Health Care, 6, 1-31.
11. Cutcliffe, J.R., & Grant, G. (2001). What are the principles and processes of inspiring hope in cognitively impaired older adults within a continuing care environment? Journal of Psychiatric and Mental Health Nursing, 8, 427-436.
12. Department of Health (2009). Living well with dementia- a national dementia strategy. Retrieved June 27, 2009, from http://www.dh.gov.uk/en/ SocialCare/Delivering adultsocialcare/Olderpeople/NationalDementiaStrategy/ DH-083362
13. Dufault, K., & Martocchio, B. (1985). Hope: Its spheres and dimensions. Nursing Clinics of North America, 20(2), 379-391.
14. Duggleby, W., Williams, A., Wright, K., & Bollinger, S. (2009). Renewing everyday hope: The hope experience of family caregivers of persons with dementia. Issues in Mental Health Nursing, 30, 514-521.
15. Erickson, E. (1977). Childhood and society. London: Paladine.
16. Erickson, R., Post., R., & Paige, A. (1975). Hope as a psychiatric variable. Journal of Clinical Psychology, 31, 324-330.
17. Farran, C. (1985). A survey of community-based older adults: Stressful life events, mediating variables, hope and health. Unpublished doctoral dissertation, Rush University, Chicago.
18. Farran, C., Herth, K., & Popovich, J. (1995). Hope and hopelessness: Critical clinical constructs. London: Sage Publications Ltd.
19. Farran, C., Salloway, J., & Clark, D. (1990). Measurement of hope in community-based older population. Western Journal of Nursing Research, 12(1), 42-59.
20. Folstein, M., Folstein, S., & McHugh, P. (1975). 'Minimental state': A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189-198.
21. Friedell, M. (2002). Awareness: A personal memoir on the declining quality of life in Alzheimer's. Dementia, 1(3), 359-366.
22. Fryback, P. (1991). Perceptions of health by persons with a terminal disease: Implications for nursing. Unpublished doctoral dissertation, University of Texas, Austin.
23. Fukushima, T., Nagahata, K., Ishibashi, N., Takahashi, Y., & Moriyama, M. (2004). Quality of life from the viewpoint of patients with dementia in Japan: Nurturing through an acceptance of dementia by patients, their families and care professionals. Health and Social Care in the Community, 13(1), 30-37.
24. Gottschalk, L. (1974). A hope scale applicable to verbal samples. Archives of General Psychiatry, 30, 779-785.
25. Herth, K. (1988). Relationship of hope to wellness in the noninstitutionalized well elderly, Unpublished doctoral dissertation, University of Oklahoma, Oklahoma.
26. Herth, K. (1990). Fostering hope in terminally ill people. Journal of Advanced Nursing, 15, 1250-1259.
27. Herth, K. (1993). Hope in older adults in community and institutional settings. Issues in Mental Health Nursing, 14(2), 139-156.
28. Hinds, P., & Martin, J. (1988). Hopefulness and the self sustaining process in adolescents with cancer. Nursing Research, 37(6), 336-339.
29. Katsuno, T. (2005). Dementia from the inside: How people with early-stage dementia evaluate their quality of life. Aging and Society, 25, 197-214.
30. Kellehear, A., & Fook, J. (1989). Sociological factors in death denial by the terminally ill. In J. Sheppard (Ed.), Advances in behavioral medicine. Sydney: Cumberland College of Health Sciences.
31. Linley, P., & Joseph, S. (2004). Positive change following trauma and adversity: A review. Journal of Traumatic Stress, 17, 11-21.
32. Lockenhoff, C., & Carstensen, L. (2004). Socio-emotional selectivity theory, aging, and health: The increasingly delicate balance between regulating emotions and making tough choices. Journal of Personality, 72(6), 1395-1424.
33. Lynch, W.F. (1965). Images of hope: Imagination as healer of the hopeless. Baltimore: Helicon.
34. Masten, A., Best, K., & Garmezy, N. (1990). Resilience processes in development: Contributions form the study of children who overcome adversity. Development and Psychopathology, 2, 425-444.
35. Mercier, M., Fawcett, J., & Clark, D. (1984). Hopefulness: A preliminary examination. Unpublished doctoral dissertation, St Luke's Medical Center, Chicago.
36. Miles, M., & Huberman, A. (1994). Qualitative data analysis (2nd ed.). London: Sage.
37. Miller, J.F. (1985). Inspiring hope. American Journal of Nursing, 85, 22-25.
38. Moltmann, J. (1975). The experiment hope. London: Fortress.
39. Moniz-Cook, E.D. (2008). Assessment and psychosocial intervention for older people with suspected dementia: A memory clinic perspective. In K. Laidlaw & B. Knight (Eds.), Handbook of emotional disorders in late life: Assessment and treatment. Oxford: Oxford University Press.
40. Moniz-Cook, E.D., Gibson, G., Harrison, J.,&Wilkinson, H. (2008). Timely Psychosocial Interventions in a Memory Clinic. In E. Moniz-Cook & J Manthorpe (Eds.), Early psychosocial interventions in dementia: Evidence-based practice, (Ch. 3, pp. 50-70). London: Jessica Kingsley.
41. Moniz-Cook, E.D., & Manthorpe, J. (2008). Early psychosocial interventions: Evidence based practice. In E. Moniz-Cook & J. Manthorpe (Eds.), Early psychosocial interventions in dementia: Evidence-based Practice, (Ch.1, pp. 11-36). London: Jessica Kingsley.
42. Moniz-Cook, E.D., Manthorpe, J., Carr, I., Gibson, G., & Vernooij-Dassen, M. (2006). Facing the future: A qualitative study of older people referred to a memory clinic prior to assessment and diagnosis. Dementia, 5(3), 375-395.
43. Moon, C., Snyder, C., & Rapoff, M. (2001). The relationship of hope to children asthma treatment adherence. Unpublished doctoral dissertation, University of Kansas, Lawrence.
44. Morse, J., & Doberneck, B. (1995). Delineating the concept of hope, Image. Journal of Nursing Scholarship, 27(4), 277-286.
45. Mountain, G.A., & Moniz-Cook, E.D. (2007). Rehabilitation for people with dementia: Development of an evidence-based framework. In P. Dorenlot (Ed.), Non-pharmacological interventions in dementia: Benefits, potentials, perspectives (Vol. 3, pp. 57-66). Paris: Les Cahiers De la Fondation Médé ric Alzheimer.
46. Nowotny, M.L. (1989). Assessment of hope in patients with cancer: Development of an instrument. Oncology Nursing Forum, 16(1), 57-61.
47. Nurmi, J. (1992). Age differences in adult life goals, concerns, and their temporal extension: A life course approach to future orientated motivation. International Journal of Behavioral Development, 15, 487-508.
48. Obayuwana, A., & Carter, A. (1982). The anatomy of hope. Journal of the National Medical Association, 74(8), 229-234.
49. Owen, D. (1989). Nurse's perspective on the meaning of hope in patients with cancer: A qualitative study. Oncology Nursing Forum, 16(1), 75-79.
50. Portail du Gouvernement Français (2008). Plan Présidentiel Alzheimer 2008-2012. Retrieved June 27, 2008, from www.premier-ministre.gouv.fr/ information/es-dossiers- actualites-19/plan-presidentiel-alzheimer-2008-943/
51. Radbourne, E., Clarke, C., & Moniz-Cook, E.D. (2008). Remaining hopeful in early dementia. Paper presented at the Alzheimer's Europe Annual Conference (May), Oslo, Norway.
52. Roth, M., Tym, E., Mountjoy, C., Huppert, F., Hendrie, H., Verma, S., et al. (1986). CAMDEX: A standardized instrument for the diagnosis of mental disorder in the elderly with special reference to the early detection of dementia. British Journal of Psychiatry, 149, 698-709.
53. Smith, J. (1996). Beyond the divide between cognition and discourse: Using interpretative analysis in health psychology. Psychology and Health, 11, 261-271.
54. Smith, J., Osborn, M., & Jarman, M. (1999). Doing interpretative phenomenological analysis. In M. Murray & K. Chamberlain (Eds.), Qualitative health psychology.. London: Sage.
55. Snyder, C. (2002). Hope theory: Rainbows in the mind. Psychological Inquiry, 13(4), 249-275.
56. Snyder, C., Feldman, D., Taylor, J., Schroeder, L., & Adams, V. (2000). The roles of hopeful thinking in preventing problems and enhancing strengths. Applied and Preventative Psychology, 15, 262-295.
57. Snyder, C., Harris, C., Anderson, J., Holleran, S., Irving, L., Sigmon, S., et al. (1991). The will and the ways: Development and validation of an individual-differences measure of hope. Journal of Personality and Social Psychology, 60(4), 570-585.
58. Snyder, L. (2001). The lived experience of Alzheimer's disease: Understanding the feelings and subjective accounts of persons with disease. Alzheimer's Care Quarterly, 2(2), 8-22.
59. Snyder, L. (2003). Satisfactions and challenges in spiritual faith and practice for persons with dementia. Dementia, 2(3), 299-313.
60. Spector, A., & Orrell, M. (2006). Quality of life (QoL) in dementia: A comparison of the perceptions of people with dementia and care staff in residential homes. Alzheimer Disease & Associated Disorders, 20(3), 160-165.
61. Staats, S. (1989). Hope: A comparison of two self-report measures for adults. Journal of Personality Assessment, 53(2), 366-375.
62. Stanley, A. (1978). The common lived experience of hope: The isolation of discrete descriptive elements to the experience of hope in healthy young adults.
63. Dissertations Abstract International, 39, (1212B), (UMI No. 78-16 899).
64. Stephenson, C. (1991). The concept of hope revisited for nursing. Journal of Advanced Nursing, 16, 1456-1461.
65. Stoner, M. (1982). Hope in cancer patients. Dissertations Abstract International, 43 (1983B-2592B), (UMI No. 83-12,243).
66. Stoner, M., & Keampfer, S. (1985). Recalled life expectancy, phase of illness, and hope in cancer patients. Research in Nursing and Health, 8, 269-274.
67. Stotland, E. (1969). The psychology of hope. San Francisco: Jossey-Bass.
68. Verhey, F., Ponds, R., Rozendall, N., & Jolles, J. (1995). Depression, insight and personality changes in Alzheimer's disease and vascular dementia. Journal of Geriatric Psychiatry Neurology, 8(1), 23-27.
69. Windle, G., Markland, D., & Woods, R. (2008). Examination of a theoretical model of psychological resilience in older age. Aging and Mental Health, 12(3), 285-293.
70. Wolverson (Radbourne), E.L., Clarke, C., & Moniz-Cook, E.D. (2009). Hope - Is it a relevant concept for dementia research? PSIGE Newsletter, 106, 11-16.
71. Woods, R. (2007). Recovery: Is it relevant to older people? Signpost, 12(1), 30-31.
72. World Health Organization (1998). Medical care and rehabilitation. Retrieved June 27, 2008, from http:// www.who.int/disabilities/care/en/
73. Wright, B., & Shontz, F. (1968). Process and tasks in hoping. Rehabilitation Literature, 29(11), 322-331.
74. Yardley, L. (2000). Dilemmas in qualitative health research. Psychology and Health, 15, 251-1228