Adaptation of the Psoriatic Arthritis Quality of Life (PsAQoL) instrument for Sweden

Scandinavian Journal of Rheumatology

Volumn 39, Issue 3, 2010, Pages 223-228

  Billing, E ^a   McKenna, S P ^b   Staun, M ^a   Lindqvist, U ^a  

^a UPPSALA UNIVERSITY HOSPITAL   (Sweden)

^b GALEN RESEARCH   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CLINICAL ARTICLE; CLINICAL ASSESSMENT TOOL; CONSTRUCT VALIDITY; CONTENT VALIDITY; CONTROLLED STUDY; DISEASE EXACERBATION; FEMALE; HEALTH STATUS; HUMAN; MALE; NOTTINGHAM HEALTH PROFILE; PRIORITY JOURNAL; PSORIATIC ARTHRITIS; PSORIATIC ARTHRITIS QUALITY OF LIFE QUESTIONNAIRE; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; REPRODUCIBILITY; STANDARDIZATION; SWEDEN; SYMPTOM; TEST RETEST RELIABILITY; UNITED KINGDOM;

ADULT; ARTHRITIS, PSORIATIC; FEMALE; HEALTH STATUS; HUMANS; MALE; MIDDLE AGED; PSORIASIS; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SEVERITY OF ILLNESS INDEX; SWEDEN; TIME;

EID: 77951859961     PISSN: 03009742     EISSN: 15027732     Source Type: Journal    
DOI: 10.3109/03009740903347975     Document Type: Article

References (20)

1. Lindqvist UR, Alenius GM, Husmark T, Theander E, Holmström G, Larsson PT. The Swedish early psoriatic arthritis register - 2-year followup: a comparison with early rheumatoid arthritis. J Rheumatol 2008; 4: 668-73. (Pubitemid 351500064)
2. Zachariae H, Zachariae R, Blomqvist K, Davidsson S, Molin L, Mork C, et al. Quality of life and prevalence of arthritis reported by 5795 members of the Nordic Psoriasis Association. Data from the Nordic Quality of Life Study. Acta Derm Venereol 2002; 82: 108-13. (Pubitemid 34596683)
3. Husted JA, Gladman DD, Cook RJ, Farewell VJ. Responsiveness of health status instruments to change in articular status and perceived health in patients with psoriatic arthritis. J Rheumatol 1998; 25: 2146-55.
4. Doward LC, McKenna SP. Defining patient-reported outcomes. Value Health 2004; 7 (Suppl 1) : S4-8.
5. Gladman DD, Mease PJ, Strand V, Healy P, Helliwell PS, Fitzgerald O, et al. Consensus on a core set of domains for psoriatic arthritis. J Rheumatol 2007; 34: 1167-70. (Pubitemid 46774868)
6. Mease PJ, Menter MA. Quality-of-life issues in psoriasis and psoriatic arthritis: outcome measures and therapies from a dermatological perspective. J Am Acad Dermatol 2006; 54: 685-704.
7. McKenna SP, Doward LC, Whalley D, Tennant A, Emery P, Veale DJ. Development of the PsAQoL: a quality of life instrument specific to psoriatic arthritis. Ann Rheum Dis 2004; 63: 162-9. (Pubitemid 38122135)
8. Marzo-Ortega H, McGonagle D, Rhodes LA, Tan AL, Conaghan PG, O'Connor P, et al. Efficacy of infliximab on MRI-determined bone oedema in psoriatic arthritis. Ann Rheum Dis 2007; 66: 778-81. (Pubitemid 46846697)
9. European Group for Quality of Life Assessment and Health Measurement. European Guide to the Nottingham Health Profile. Brookwood, Surrey: Brookwood Medical Publications, 1993.
10. McKenna SP, Hunt SM, Tennant A. The development of a patientcompleted index of distress from the Nottingham Health Profile: a new measure for use in cost-utility studies. Br J Med Econ 1993; 6: 13-24. (Pubitemid 24078254)
11. Swaine-Verdier A, Doward LC, Hagell P, Thorsen H, McKenna SP. Adapting quality of life instruments. Value Health 2004; 7 (Suppl 1) : S27-30. (Pubitemid 39390827)
12. Hagell P, Hedin P-J, Meads DM, Nyberg L, McKenna SP. Effects of method of translation of patient-reported health outcome questionnaires: a randomized study on the Rheumatoid Arthritis Quality of Life (RAQoL) instrument. Value in Health (in press).
13. Streiner DL, Norman GR. Health measurement scales. Oxford: Oxford University Press, 1995.
14. Weiner EA, Stewart BJ. Assessing individuals. Boston: Little Brown, 1984.
15. Doward LC, Spoorenberg A, Cook SA, Whalley, Helliwell PS, Kay LJ, et al. Development of the ASQoL: a quality of life instrument specific to ankylosing spondylitis. Ann Rheum Dis 2003; 62: 20-6. (Pubitemid 36005790)
16. McKenna SP, Hedin PJ. Adapting the Rheumatoid Arthritis Quality of Life Instrument (RAQoL) for use in Sweden. Scand J Rheumatol 2003; 32: 1-3.
17. Hedin P-J, McKenna SP, Meads DM. The Rheumatoid Arthritis Quality of Life (RAQoL) for Sweden: adaptation and validation. Scand J Rheumatol 2006; 35: 117-23.
18. Thorsen H, Hansen TM, McKenna S, Sörensen SF, Whalley D. Adaptation into Danish of the Stanford Health Assessment Questionnaire (HAQ) and the Rheumatoid Arthritis Quality of Life scale (RAQoL). Scand J Rheumatol 2001; 30: 103-9. (Pubitemid 32250800)
19. Keenan A-M, McKenna SP, Doward LC, Conaghan PG, Emery P, Tennant A. OAQoL: the development and validation of a quality of life instrument for osteoarthritis. Arthritis Care Res 2008; 15: 841-8. (Pubitemid 351847567)
20. Doward LC, McKenna SP, Whalley D, Tennant A, Griffiths B, Emery P, et al. The development of the L-QoL: a quality of life instrument specific to systemic lupus erythematosus. Ann Rheum Dis 2009; 68: 196-200.