Conducting qualitative research with palliative care patients: Applying Hammick's research ethics wheel

International Journal of Palliative Nursing

Volumn 16, Issue 2, 2010, Pages 58-68

  Whiting, Lisa S ^a   Vickers, Peter S ^a  

^a UNIVERSITY OF HERTFORDSHIRE   (United Kingdom)

Author keywords

Ethics; Palliative care; Qualitative research; Research ethics wheel

Indexed keywords

CONFIDENTIALITY; ETHICS; HUMAN; HUMAN EXPERIMENT; INFORMED CONSENT; MEDICAL ETHICS; MODEL; NEOPLASM; NURSE ATTITUDE; NURSING METHODOLOGY RESEARCH; ORGANIZATION AND MANAGEMENT; PALLIATIVE THERAPY; PATIENT RIGHT; PERSONNEL; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; REVIEW; VULNERABLE POPULATION;

CODES OF ETHICS; CONFIDENTIALITY; HUMAN EXPERIMENTATION; HUMANS; INFORMED CONSENT; MODELS, NURSING; NEOPLASMS; NURSE'S ROLE; NURSING METHODOLOGY RESEARCH; PALLIATIVE CARE; PATIENT RIGHTS; PRINCIPLE-BASED ETHICS; QUALITATIVE RESEARCH; RESEARCH PERSONNEL; VULNERABLE POPULATIONS;

EID: 77950473795     PISSN: 13576321     EISSN: None     Source Type: Journal    
DOI: 10.12968/ijpn.2010.16.2.46751     Document Type: Review

References (39)

1. Addington-Hall I (2002) Researcher sensitivities to palliative care patients. Eur J Cancer Care 11(3): 220-4
2. Andershed B (2006) Relatives in end-of-life care - part 1: a systematic review of the literature the last five years, January 1999-February 2004. J Clin Nurs 15(9): 1158-69
3. Aranda S (1995) Conducting research with the dying: ethical considerations and experience. Int J Palliat Nurs 1(1): 41-7
4. Arraf K, Cox G, Oberle K (2004) Using the Canadian code of ethics for Registered Nurses to explore ethics in palliative care research. Nurs Ethics 11(6): 600-9
5. Beauchamp T, Childress J (2001) Principles of Biomedical Ethics. 5th edn. Oxford University Press, Oxford.
6. Burns N, Grove SK (2005) The Practice of Nursing Research. Conduct, Critique and Utilization. 5th edn. WB Saunders, Philadelphia
7. Casarett DJ, Karlawish JHT (2000) Special ethical guidelines needed for palliative care research? J Pain Symptom Manage 20(2): 130-9
8. Fitzsimmons D, McAloon T (2004) The ethics of non-intervention in a study of patients awaiting coronary artery bypass. J Adv Nurs 46(4): 395-402
9. Gysels M, Shipman C, Higginson IJ (2008) 'I will do it if it will help others': motivations among patients taking part in qualitative studies in palliative care. J Pain Symptom Manage 35(4): 347-55
10. Haber J (2002) Legal and ethical issues. In: LoBiondo-wood G, Haber J, eds (2002) Nursing Research. Methods, Critical Appraisal, and Utilization. Mosby, St. Louis
11. Hammick M (1996) Managing the Ethical Process in Research. Quay Books, Salisbury
12. Heidegger M (1962) Being and Time. SCM Press, New York
13. Hermsen MA, ten Have HA (2001) Moral problems in palliative care journals. Palliat Med 15(5): 425-31
14. Hopkinson JB, Wright DNM, Corner JL (2005) Seeking new methodology for palliative care research: challenging assumptions about studying people who are approaching end of life. Palliat Med 19(7): 532-7
15. Ingleton C, Payne S, Nolan M, Caret I (2003) Respite in palliative care: a review and discussion of the literature. Palliat Med 17(7): 567-75
16. Janssens MJPA, Zylicz Z, ten Have HA (1999) Articulating the concept of palliative care: philosophical and theological perspectives. J Palliat Care 15(2): 38-44
17. Janssens R, Gordijn B (2000) Clinical trials in palliative care: an ethical evaluation. Patient Educ Counselling 41(1): 55-62
18. Karim K (2000) Conducting research involving palliative patients. Nurs Stand 15(2): 34-6
19. Keeley PW (2008) Improving the evidence base in palliative medicine: a moral imperative. J Med Ethics 34(10:) 757-60
20. Lee S, Kristjanson L (2003) Human research ethics committees: issues in palliative care research. Int J Palliat Nurs 9(1): 13-8
21. Locke LF, Wyrdick Spirduso W, Silverman SJ (2000) Proposals that Work. A guide for Planning dissertations and Grant Proposals. 4th Ed. Sage Publications, London
22. McHaffie HE (2000) Ethical issues in research. In: Cormack D, ed (2000) The Research Process in Nursing. 4th edn. Blackwell Science, Oxford
23. Morse JM, Field PA (1996) Nursing Research. The Application of Qualitative Approaches. 2nd edn. Chapman and Hall, London
24. National Institute for Health and Clinical Excellence (2004) Guidance on Cancer Services: Improving Supportive and Palliative Care for Adults with Cancer. NICE, London
25. Macnee CL (2004) Understanding Nursing Research. Reading and Using Research in Practice. Lippincott Williams and Wilkins, Philadelphia
26. Nieswiadomy RM (2002) Foundations of Nursing Research. 4th edn. Pearson Education Inc, New Jersey
27. Nursing and Midwifery Council (2008) The Code: Standards for conduct, performance and ethics for nurses and midwives. NMC, London
28. Pereira J, Hanson J, Bruera E (1997) The frequency and clinical course of cognitive impairment in patients with terminal cancer. Cancer 79(4): 835-42
29. Parahoo K (2006) Nursing Research. Principles, Process and Issues. 2nd edn. Palgrave Macmillan, Basingstoke
30. Parkes CM (2006) Guidelines for conducting ethical research in psychosocial issues in palliative care. Indian Journal of Palliative Care 12(1): 17-21
31. Polit DF, Beck CT (2006) Essentials of Nursing Research. Methods, Appraisal, and Utilization. 6th edn. Lippincott Williams and Wilkins, Philadelphia
32. Polit DF, Hungler BP (2002) Nursing Research Principles and Methods. 6th edn. Lippincott Williams and Wilkins: Philadelphia
33. Randall F, Downie RS (1999) Palliative Care Ethics. A good Companion. 2nd edn. Oxford University Press, Oxford
34. Rawls J (1971) A Theory of Justice. Oxford University Press, Oxford
35. Richards HM, Schwartz LJ (2002) Ethics of qualitative research: are there special issues for health services research? Family Pract 19(2): 135-9
36. Seymour JE, Skilbeck J (2002) Ethical considerations in researching user views. Eur J Cancer Care 11(3): 215-90
37. Slater A, Freeman E (2004) Patients' views of using an outcome measure in palliative day care: a focus group study. Int J Palliat Nurs 10(7): 343-51
38. Soothill K, Morris SM, Thomas C et al. (2003) The universal, situational, and personal needs of cancer patients and their main carers. Eur J Oncol Nurs 7(1): 5-13
39. Streubert Speziale HJ, Carpenter DR (2006) Qualitative research in Nursing. Advancing the Humanistic Imperative. 4th edn. Lippincott, Philadelphia 40 World Medical Assembly (1989) Declaration of Helsinki. World Medical Association, Helsinki