Impact of additional disabilities on adaptive behavior and support profiles for people with intellectual disabilities

American Journal on Intellectual and Developmental Disabilities

Volumn 114, Issue 4, 2009, Pages 237-253

  Harries, Julia ^a   Guscia, Roma ^a   Nettelbeck, Ted ^a   Kirby, Neil ^a  

^a UNIVERSITY OF ADELAIDE   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; AUSTRALIA; CLASSIFICATION; COMORBIDITY; CROSS-SECTIONAL STUDY; DAILY LIFE ACTIVITY; DISABILITY; DISABLED PERSON; FEMALE; HEALTH SERVICE; HEALTH SERVICES RESEARCH; HUMAN; MALE; MENTAL DEFICIENCY; MENTAL DISEASE; MIDDLE AGED; NEEDS ASSESSMENT; PSYCHOLOGICAL ASPECT; RESIDENTIAL HOME; STATISTICS;

ACTIVITIES OF DAILY LIVING; ADULT; AGED; COMORBIDITY; CROSS-SECTIONAL STUDIES; DISABILITY EVALUATION; DISABLED PERSONS; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HEALTH SERVICES RESEARCH; HUMANS; MALE; MENTAL DISORDERS; MENTAL RETARDATION; MIDDLE AGED; NEEDS ASSESSMENT; RESIDENTIAL FACILITIES; SOUTH AUSTRALIA; YOUNG ADULT;

EID: 77950381676     PISSN: 19447558     EISSN: None     Source Type: Journal    
DOI: 10.1352/1944-7558-114.4.237-253     Document Type: Article

References (56)

1. Australian Institute of Health and Welfare. (2002). Data guide: Data items and definitions 20022003. Canberra, Australian Capital Territory: Author.
2. Australian Institute of Health and Welfare. (2003). Disability prevalence and trends (Australian Institute of Health and Welfare cat. no. DIS 34). Canberra, Australian Capital Territory: Author.
3. Australian Institute of Health and Welfare. (2004). Disability and its relationship to health conditions and other factors (Australian Institute of Health and Welfare cat. no. DIS 37). Canberra, Australian Capital Territory: Author.
4. Australian Institute of Health and Welfare. (2005). Disability support services 2003-04: National data on services provided under the Commonwealth/State Disability Agreement (Australian Institute of Health and Welfare cat. no. DIS 40). Canberra, Australian Capital Territory: Author.
5. Australian Institute of Health and Welfare. (2007). Interactive disability data: 2004-05 CSTDA NMDS service user data [Data file]. Available from the Australian Institute of Health and Welfare website http://www.aihw.gov. au/cognos/cgi-bin/ppdscgi.exe?DC=Q&E=/Disabilities/all-20045
6. Bruininks, R., Hill, B., Weatherman, R., & Woodcock, R. (1986). Examiner's manual. Inventory for Client and Agency Planning (ICAP). Chicago: Riverside.
7. Carvill, S. (2001). Sensory impairments, intellectual disability and psychiatry. Journal of Intellectual Disability Research, 45, 467-483.
8. Christianson, A. L., Zwane, M. E., Manga, P., Rosen, E., Venter, A., Downs, D., & Kromberg, J. G. R. (2002). Children with intellectual disability in rural South Africa: Prevalence and associated disability. Journal of Intellectual Disability Research, 46, 179-186.
9. Cooper, S. A., Smiley, E., Morrison, J., Williamson, A., & Allan, L. (2007). Mental ill-health in adults with intellectual disabilities: Prevalence and associated factors. British Journal of Psychiatry, 190, 27-35.
10. Crews, W. D., Bonaventura, S., & Rowe, F. (1994). Dual diagnosis: Prevalence of psychiatric disorders in a large state residential facility for individuals with mental retardation. American Journal on Mental Retardation, 98, 724-731.
11. Drews, C. D., Yeargin-Allsopp, M., Decouflé, P., & Murphy, C. C. (1995). Variation in the influence of selected sociodemographic risk factors for mental retardation. American Journal of Public Health, 85, 329-334.
12. Evenhuis, H. M., Theunissen, M., Denkers, I., Verschuure, H., & Kemme, H. (2001). Prevalence of visual and hearing impairment in a Dutch institutionalized population with intellectual disability. Journal of Intellectual Disability Research, 45, 457-464.
13. Felce, D., Perry, J., Romeo, R., Robertson, J., Meek, A., Emerson, E., & Knapp, M. (2008). Outcomes and costs of community living: Semi-independent living and fully staffed group homes. American Journal on Mental Retardation, 113, 87-101.
14. Gould, A. (1998). The Service Need Assessment Profile (Version 1.0, Computer software and manual). Sydney, New South Wales: ATG & Associates Pty Ltd.
15. Guscia, R., Harries, J., Kirby, N., Nettelbeck, T., & Taplin, J. (2005). Reliability of the Service Need Assessment Profile (SNAP): A measure of support for people with disabilities. Journal of Intellectual & Developmental Disability, 30, 24-30.
16. Guscia, R., Harries, J., Kirby, N., Nettelbeck, T., & Taplin, J. (2006). Construct and criterion validities of the Service Need Assessment Profile (SNAP): A measure of support for people with disabilities. Journal of Intellectual & Developmental Disability, 31, 148-155.
17. Gustavson, K.-H., Umb-Carlsson, O., & Sonnander, K. (2005). A follow-up study of mortality, health conditions and associated disabilities of people with intellectual disabilities in a Swedish county. Journal of Intellectual Disability Research, 49, 905-914.
18. Harries, J., Guscia, R., Kirby, N., Nettelbeck, T., & Taplin, J. (2005). Support needs and adaptive behavior. American Journal on Mental Retardation, 110, 393-404.
19. Harrison, P. L. (1987). Research with adaptive behavior scales. Journal of Special Education, 21, 37-68.
20. Holden, B., & Gitlesen, J. P. (2004). The association between severity of intellectual disability and psychiatric symptomatology. Journal of Intellectual Disability Research, 48, 556-562.
21. Iverson, J. C., & Fox, R. A. (1989). Prevalence of psychopathology among mentally retarded adults. Research in Developmental Disabilities, 10, 77-83.
22. Jacobson, J. W., & Janicki, M. P. (1983). Observed prevalence of multiple developmental disabilities. Mental Retardation, 21, 87-94.
23. Janicki, M. P., & Dalton, A. J. (1998) Sensory impairments among older adults with intellectual disability. Journal of Intellectual and Developmental Disability, 23, 3-11.
24. Kapell, D., Nightingale, B., Rodriguez, A., Lee, J. H., Zigman, W. B., & Schupf, N. (1998). Prevalence of chronic medical conditions in adults with mental retardation: Comparison with the general population. Mental Retardation, 36, 269-279.
25. Kerr, A. M., McCulloch, D., Oliver, K., McLean, B., Coleman, E., Law, T., et al. (2003). Medical needs of people with intellectual disability require regular reassessment, and the provision of client- and carer-held reports. Journal of Intellectual Disability Research, 47, 134-145.
26. Koskentausta, T., Iivanainen, M., & Almqvist, F. (2002). Psychiatric disorders in children with intellectual disability. Nordic Journal of Psychiatry, 56, 126-131.
27. La Malfa, G., Notarelli, A., Hardoy, M. C., Bertelli, M., & Cabras, P. L. (1997). Psychopathology and mental retardation: An Italian epidemiological study using the PIMRA. Research in Developmental Disabilities, 18, 179-184.
28. Lawton, M. P., & Nahemow, L. (1973). Ecology and the aging process. In C. Eisdorfer & M. P. Lawton (Eds.), The psychology of adult development and aging (pp. 619-674). Washington, DC: American Psychological Association.
29. Leonard, H., & Wen, X. (2002). The epidemiology of mental retardation: Challenges and opportunities in the new millennium. Mental Retardation and Developmental Disabilities Research Reviews, 8, 117-134.
30. Lewis, J., Tonge, B., Mowat, D., Einfeld, S., Siddons, H., & Rees, V. (2000). Epilepsy and associated psychopathology in young people with intellectual disability. Journal of Paediatrics and Child Health, 36, 172-175.
31. Luckasson, R., Borthwick-Duffy, S., Buntinx, W. H. E., Coulter, D. L., Craig, E. M., Reeve, A., Schalock, R. L., et al. (2002). Mental retardation: Definition, classification, and systems of supports. Washington, DC: American Association on Mental Retardation.
32. McDermott, S., Moran, R., Platt, T., Wood, H., Isaac, T., & Dasari, S. (2005). Prevalence of epilepsy in adults with mental retardation and related disabilities in primary care. American Journal on Mental Retardation, 110, 48-56.
33. McGrother, C. W., Bhaumik, S., Thorp, C. F., Hauck, A., Branford, D., & Watson, J. M. (2006). Epilepsy in adults with intellectual disabilities: Prevalence, associations and service implications. Seizure, 15, 376-386.
34. McLaren, J., & Bryson, S. E. (1987). Review of recent epidemiological studies of mental retardation: Prevalence, associated disorders, and etiology. American Journal on Mental Retardation, 92, 243-254.
35. Meyers, C. E., Nihira, K., & Zetlin, A. (1979). The measurement of adaptive behavior. In N. R. Ellis (Ed.), Handbook of mental deficiency: Psychological theory and research (pp. 431-481). Hillsdale, NJ: Erlbaum.
36. Moore, K. D., VanHaitsma, K., Curyto, K., & Saperstein, A. (2003). A pragmatic environmental psychology: A meta theoretical inquiry into the work of M. Powell Lawton. Journal of Environmental Psychology, 23, 471-482.
37. Morgan, C. L., Baxter, H., & Kerr, M. P. (2003). Prevalence of epilepsy and associated health service utilization and mortality among patients with intellectual disability. American Journal on Mental Retardation, 108, 293-300.
38. Murphy, C. C., Boyle, C., Schendel, D., Decouflé, P., & Yeargin-Allsopp, M. (1998). Epidemiology of mental retardation in children. Mental Retardation and Developmental Disabilities Research Reviews, 4, 6-13.
39. Murphy, C. C., Yeargin-Allsopp, M., Decouflé, P., & Drews, C. D. (1995). The administrative prevalence of mental retardation in 10-year-old children in metropolitan Atlanta, 1985 through 1987. American Journal of Public Health, 85, 319-323.
40. Rohde, J., Farmer, R., Glover, G., & Nursey, A. (1989). A method of displaying assessment information about people with multiple handicaps as a disability profile. Journal of Mental Deficiency Research, 33, 95-98.
41. Severance, D. D. (2007, May). A comparison of the SIS and ICAP in predicting individual budget amounts. Paper presented at the annual meeting of the American Association on Intellectual and Developmental Disabilities, Atlanta.
42. Slone, M., Durrheim, K., Kaminer, D., & Lachman, P. (1999). Issues in the identification of comorbidity of mental retardation and psychopathology in a multicultural context. Social Psychiatry and Psychiatric Epidemiology, 34, 190-194.
43. Smiley, E. (2005). Epidemiology of mental health problems in adults with learning disability: An update. Advances in Psychiatric Treatment, 11, 214-222.
44. Stark, S. (2001). Creating disability in the home: The role of environmental barriers in the United States. Disability & Society, 16, 37-49.
45. Stromme, P., & Diseth, T. H. (2000). Prevalence of psychiatric diagnoses in children with mental retardation: Data from a populationbased study. Developmental Medicine and Child Neurology, 42, 266-270.
46. Thompson, J. R., Bryant, B., Campbell, E. M., Craig, E. M., Hughes, C., Rotholz, D. A., et al. (2004). Supports Intensity Scale: Users manual. Washington, DC: American Association on Mental Retardation.
47. Thompson, J. R., Tassé, M. J., & McLaughlin, C. A. (2008). Interrater reliability of the Supports Intensity Scale (SIS). American Journal on Mental Retardation, 113, 231-237.
48. Traci, M. A., Seekins, T., Szalda-Petree, A., & Ravesloot, C. (2002) Assessing secondary conditions among adults with developmental disabilities: A preliminary study. Mental Retardation, 40, 119-131.
49. van Isterdael, C. E. D., Stilma, J. S., Bezemer, P. D., & Tijmes, N. T. (2006). 6220 institutionalised people with intellectual disability referred for visual assessment between 1993 and 2003 : Overview and trends. British Journal of Ophthalmology, 90, 1297-1303.
50. van Schrojenstein Lantman-de Valk, H. M. J. (2005). Health in people with intellectual disabilities: Current knowledge and gaps in knowledge. Journal of Applied Research in Intellectual Disabilities, 18, 325-333.
51. Vlaskamp, C. (2005). Interdisciplinary assessment of people with profound intellectual and multiple disabilities. In J. Hogg & A. Langa (Eds.), Assessing adults with intellectual disabilities: A service providers' guide, (pp. 39-51). Malden, MA: Blackwell.
52. Warburg, M. (2001). Visual impairment in adult people with intellectual disability: Literature review. Journal of Intellectual Disability Research, 45, 424-438.
53. Whitaker, S., & Read, S. (2006). The prevalence of psychiatric disorders among people with intellectual disabilities: An analysis of the literature. Journal of Applied Research in Intellectual Disabilities, 19, 330-345.
54. White, P., Chant, D., Edwards, N., Townsend, C., & Waghorn, G. (2002). Prevalence of intellectual disability and comorbid mental illness in an Australian community sample. Australian and New Zealand Journal of Psychiatry, 37, 395-400.
55. World Health Organization. (2001). The international classification of functioning disability and health. Geneva: Author.
56. Zijlstra, H. P., & Vlaskamp, C. (2005). The impact of medical conditions on the support of children with profound intellectual and multiple disabilities. Journal of Applied Research in Intellectual Disabilities, 18, 151-161.