SMART cognitive training combined with a parental coaching programme for three children treated for medulloblastoma

NeuroRehabilitation

Volumn 26, Issue 2, 2010, Pages 105-113

  Van'T Hooft, Ingrid ^a   Norberg, Annika Lindahl ^b  

^a KAROLINSKA UNIVERSITY HOSPITAL   (Sweden)

^b KAROLINSKA INSTITUTE   (Sweden)

Author keywords

Acquired brain injury; Childhood brain tumour; Cognitive training; Parent coaching; Self image

Indexed keywords

ANTINEOPLASTIC AGENT;

ADOLESCENT; ARTICLE; ATTENTION; ATTENTION DISTURBANCE; CASE REPORT; CHILD; COACHING; COGNITIVE REHABILITATION; FAMILY; FATHER; FEMALE; HUMAN; HUMAN RELATION; MALE; MEDULLOBLASTOMA; MEMORY; MEMORY DISORDER; MOTHER; NEUROPSYCHOLOGICAL TEST; PARENT; PARENTAL STRESS; PATIENT EDUCATION; SCHOOL CHILD; SELF CONCEPT; SKILL; SWEDISH MEMORY AND ATTENTION RETRAINING; TRAINING;

ADOLESCENT; BRAIN NEOPLASMS; CHILD; COGNITION DISORDERS; EXECUTIVE FUNCTION; FAMILY HEALTH; FAMILY THERAPY; FEMALE; HUMANS; MALE; MEDULLOBLASTOMA; NEUROPSYCHOLOGICAL TESTS; PARENT-CHILD RELATIONS; PARENTS; PILOT PROJECTS; QUESTIONNAIRES; SELF CONCEPT; STRESS, PSYCHOLOGICAL;

EID: 77950204181     PISSN: 10538135     EISSN: None     Source Type: Journal    
DOI: 10.3233/NRE-2010-0541     Document Type: Article

References (28)

1. N.E. Anderson, Late complications in childhood central nervous system tumour survivors, Current Opinion in Neurology 16 (2003), 677-683.
2. L.W. Braga, A.C. Da Paz and M. Ylvisaker, Direct cliniciandelivered versus indirect family-supported rehabilitation of children with traumatic brain injury: a randomized controlled trial, Brain Injury 19 (2005), 819-831.
3. R.W. Butler and D.R. Copeland, Attentional processes and their remediation in children treated for cancer: a literature review and the development of a therapeutic approach, Journal of the International Neuropsychological Society 8 (2002), 115-124.
4. J.M. Butler, S.R. Rapp and E.G. Shaw, Managing the cognitive effects of brain tumor radiation therapy, Current treatment options in oncology 7 (2006), 517-523.
5. S.C. Carpentieri, E.A. Meyer, B.L. Delaney, M.L. Victoria, B.K. Gannon, J.M. Doyle and M.W. Kieran, Psychosocial and behavioral functioning among pediatric brain tumor survivors, Journal of Neuro-Oncology 63 (2003), 279-287.
6. K.D. Cicerone, C. Dahlberg, K. Kalmar, D.M. Langenbahn, J.F. Malec, T.F. Bergquist, T. Felicetti, J.T. Giacino, J.P. Harley, D.E. Harrington, J. Herzog, S. Kneipp, L. Laatsch and P.A. Morse, Evidence-based cognitive rehabilitation: recommendations for clinical practice, Archives of Physical Medicine and Rehabilitation 81 (2000), 1596-1615.
7. G.A. Gioia, P.K. Isquith, S.C. Guy and L. Kenworthy, The Behavior Rating Inventory of Executive Function Professional Manual, Psychological Assessment Resources, Odessa, FL, 2000.
8. M. Gordon and B.B. Mettelman, The assessment of attention: I. Standardization and reliability of a behavior-based measure, Journal of Clinical Psychology 44 (1988), 682-690.
9. G. Grossi, A. Perski, B. Evengard, V. Blomkvist and K. Orth-Gomer, Physiological correlates of burnout among women, Journal of Psychosomatic Research 55 (2003), 309-316.
10. C.M.C.M. Hendriks and T.M. van den Broek-Sandmann, ATAG-k, Amsterdamse Training van Aandacht en Geheugen voor Kinderen (AMAT-c, the Amsterdam Method for Attention and memory Training for Children), Swets & Zeitlinger B.V., Lisse, 1996.
11. A.C. Jackson, H. Stewart, M. O'Toole, N. Tokatlian, K. Enderby, J. Miller and D. Ashley, Pediatric brain tumor patients: their parents' perceptions of the hospital experience, Journal of Pediatric Oncology Nursing 24 (2007), 95-105.
12. R. Karasek and T. Theorell, Healthy work: Stress, Productivity, and the Reconstruction of Working Life, Basic Books, New York, 1990.
13. L. Laatsch, D. Harrington, G. Hotz, J. Marcantuono, M.P. Mozzoni, V.Walsh and K.P. Hersey, Anevidence-based review of cognitive and behavioral rehabilitation treatment studies in children with acquired brain injury, Journal of Head Trauma Rehabilitation 22 (2007), 248-256.
14. M.D. Lezak, D.B. Howieson and D.W. Loring, Neuropsychological Assessment, Oxford University Press, New York, 2004.
15. A. Lindahl Norberg and S. Steneby, Parents of children surviving brain tumour: A happy ending and a rough beginning, European Journal of Cancer Care (English Language Edition) (Published Online: May 21 2009. DOI: 10.1111/j.1365-2354.2008.00976.x).
16. A. Lindahl Norberg, Burnout in parents of children surviving brain tumour, Journal of Clinical Psychology in Medical Settings 14 (2007), 130-137.
17. D.J. Mabbott, B.J. Spiegler, M.L. Greenberg, J.T. Rutka, D.J. Hyder and E. Bouffet, Serial evaluation of academic and behavioral outcome after treatment with cranial radiation in childhood, Journal of Clinical Oncology 23 (2005), 2256-2263.
18. S. Melamed, T. Kushnir and A. Shirom, Burnout and risk factors for cardiovascular diseases, Behavioral Medicine 18 (1992), 53-60.
19. P. Ouvinen-Birgerstam, Jag tycker jag̈ar. . . Manual [Swedish], Psykologiförlaget, Stockholm, 1985.
20. K.A. Schultz, K.K. Ness, J. Whitton, C. Recklitis, B. Zebrack, L.L. Robison, L. Zeltzer and A.C. Mertens, Behavioral and social outcomes in adolescent survivors of childhood cancer: a report from the childhood cancer survivor study, Journal of Clinical Oncology 25 (2007), 3649-3656.
21. J.E.W.M.Van Dongen-Melman, F.J. Van Zuuren and F.C. Verhulst, Experiences of parents of childhood cancer survivors: a qualitative analysis, Patient Education and Counseling 34 (1998), 185-200.
22. I. van't Hooft, K. Andersson, B. Bergman, T. Sejersen, L. von Wendt and A. Bartfai, Sustained favorable effects of cognitive training in children with acquired brain injuries, NeuroRehabilitation 22 (2007), 109-116.
23. I. van't Hooft, K. Andersson, B. Bergman, T. Sejersen, L. Von Wendt and A. Bartfai, Beneficial effect from a cognitive training programme on children with acquired brain injuries demonstrated in a controlled study, Brain Injury 19 (2005), 511-518.
24. I. van't Hooft, K. Andersson, T. Sejersen, A. Bartfai and L. von Wendt, Attention and memory training in children with acquired brain injuries, Acta Paediatrica 92 (2003), 935-940.
25. I. van't Hooft, U. Brodin, T. Sejersen, L. von Wendt and A. Bartfai, Measuring effects on behaviour after cognitive training in children with acquired brain injuries, (submitted manuscript).
26. D. Wechsler, Wechsler Intelligence Scale for Children, Harcourt Assessment Inc., San Antonio, TX, 2003.
27. L. Wichstrom, Harter's Self-Perception Profile for Adolescents: reliability, validity, and evaluation of the question format, Journal of Personality Assessment 65 (1995), 100-116.
28. M. Ylvisaker and T. Feeney, Executive functions, selfregulation, and learned optimism in paediatric rehabilitation: a review and implications for intervention, Pediatric Rehabilitation 5 (2002), 51-70.