Pediatric brain tumor patients: Their parents' perceptions of the hospital experience

Journal of Pediatric Oncology Nursing

Volumn 24, Issue 2, 2007, Pages 95-105

  Jackson, Alun C ^a,b   Stewart, Helen ^c   O'Toole, Maree ^c   Tokatlian, Nicole ^c   Enderby, Kate ^c   Miller, Jane ^c   Ashley, David ^c  

^a UNIVERSITY OF MELBOURNE   (Australia)

^b MURDOCH CHILDREN'S RESEARCH INSTITUTE   (Australia)

^c ROYAL CHILDREN'S HOSPITAL   (Australia)

Author keywords

Family experience; Hospitalization; Pediatric brain tumors

Indexed keywords

ADAPTIVE BEHAVIOR; ARTICLE; ATTITUDE TO HEALTH; AUSTRALIA; BRAIN TUMOR; CHILD; CHILD HOSPITALIZATION; CONTROL; DECISION MAKING; EDUCATION; EMPATHY; FEAR; HEALTH SERVICE; HUMAN; HUMAN RELATION; INTERPERSONAL COMMUNICATION; MENTAL STRESS; NURSING METHODOLOGY RESEARCH; PARENT; PROSPECTIVE STUDY; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; QUALITATIVE RESEARCH; QUESTIONNAIRE; SOCIAL SUPPORT; TRUST;

ADAPTATION, PSYCHOLOGICAL; ATTITUDE TO HEALTH; BRAIN NEOPLASMS; CHILD; CHILD, HOSPITALIZED; COMMUNICATION; DECISION MAKING; EMPATHY; FEAR; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INTERNAL-EXTERNAL CONTROL; MODELS, PSYCHOLOGICAL; NURSING METHODOLOGY RESEARCH; PARENTS; PROFESSIONAL-FAMILY RELATIONS; PROSPECTIVE STUDIES; QUALITATIVE RESEARCH; QUESTIONNAIRES; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL; TRUST; VICTORIA;

EID: 33847221148     PISSN: 10434542     EISSN: 15328457     Source Type: Journal    
DOI: 10.1177/1043454206296030     Document Type: Article

References (27)

1. Callery, P. (1997). Paying to participate: Financial, social and personal costs to parents of involvement in their children's care in hospital. Journal of Advanced Nursing, 25 (4). 746-746.
2. Cresswell, J. W. (1994). Research design: Qualitative and quantitative approaches. Thousand Oaks, CA: Sage.
3. Diaz-Caneja, A., Gledhill, J., Weaver, T., Nadel, S., & Garralda, E. (2005, July 15). A child's admission to hospital: A qualitative study examining the experiences of parents. Intensive Care Medicine [Epub ahead of print]
4. Frank-Stromborg, M., & Olsen, S. J. (1997). Instruments for clinical health-care research (2nd ed.). Boston: Jones and Bartlett.
5. Glaser, B., & Strauss, A. (1967). The discovery of grounded theory. Chicago: Aldine.
6. Graetz, B. W., Shute, R. H., & Sawyer, M. G. (2000). An Australian study of adolescents with cystic fibrosis: Perceived supportive and non-supportive behaviours from family and friends and psychological adjustment. Journal of Adolescent Health, 26, 64-67.
7. Hallström, I., Runeson, I., & Elander, G. (2002). An observational study of the level at which parents participate in decisions during their child's hospitalization. Nursing Ethics, 9 (2). 202-214.
8. Hoddap, R., Dykens, E., & Masino, L. (1997). Families of children with Prader-Willi syndrome - stress-support and relations to child characteristics. Journal of Autism and Development Disorders, 27 (1). 11-24.
9. Homer, C. J., Marino, B., Cleary, P. D., Alpert, H. R., Smith, B., Crowley Ganser, C. M., et al. (1999). Quality of care at a children's hospital: The parent's perspective. Archives of Pediatric and Adolescent Medicine, 153 (11). 1123-1129.
10. Jackson, A. C., Tsantefski, M., Goodman, H., Johnson, B., & Rosenfeld, J. (2003). The psychosocial impacts on families of low-incidence, complex conditions in children: The case of craniopharyngioma. Social Work and Health Care, 38 (1). 81-107.
11. Kazak, A. E., & Nachman, G. S. (1991). Family research on childhood chronic illness: Pediatric oncology as an example. Journal of Family Psychology, 4 (4). 462-483.
12. Kristensson-Hallstrom, I. (1999). Strategies for feeling secure influence parents' participation in care. Journal of Clinical Nursing, 8 (5). 586-586.
13. Kupst, M. (1992). Long-term family coping with acute lymphoblastic leukemia in childhood. In A. M. La Greca, L. J. Siegel, J. L. Wallander, & C. E. Walker (Eds.), Stress and coping in child health. New York: Guilford.
14. Kupst, M., & Shulman, J. L. (1988). Long-term coping with pediatric leukemia: A six-year follow-up study. Journal of Pediatric Psychology, 13 (1). 7-22.
15. Martin, C., & Nisa, M. (1996, August). Meeting the needs of children and families in chronic illness and disease: A greater role for the G.P ? Australian Family Physician, 25 (8). 1273-1281.
16. McCubbin, M. A., & McCubbin, H. I. (1996). Resiliency in families: A conceptual model of family adjustment and adaptation in response to stress and crises. In H. I. McCubbin, A. I. Thompson, & M. A. McCubbin (Eds.), Family assessment: Resiliency, coping and adaptation - Inventories for research and practice. Madison: University of Wisconsin System.
17. Meyer, E. C., Snelling, L. K., & Myren-Manbeck, L. K. (1998). Pediatric intensive care: The parents' experience. AACN Clinical Issues: Advanced Practice in Acute & Critical Care, 9 (1). 64-74.
18. Rachel, B., Marsick, R., Drotar, D., & Kodish, E. (2000, January/February). Diagnosis, disclosure, and informed consent: Learning from parents of children with cancer. Journal of Pediatric Hematology/Oncology, 22 (1). 3-12.
19. Sawyer, M., Antoniou, G., Toogood, I., & Rice, M. (1997). Childhood cancer: A two-year prospective study of the psychological adjustment of children and parents. Journal of the American Academy of Child and Adolescent Psychiatry, 36 (12). 1736-1743.
20. Sawyer, M., & Spurrier, N. (1996, Winter). Families, parents and chronic childhood illness. Family Matters, 44, 12-15.
21. Shiminski-Maher, T. (1994). Patient/family preparation and education for complications and late sequelae of craniopharyngioma. Pediatric Neurosurgery, 21 (Suppl. 1). 114-119.
22. Sloper, P. (1996). Needs and responses of parents following the diagnosis of childhood cancer. Child: Care, Health and Development, 22 (3). 187-202.
23. Smith, L., & Daughtrey, H. (2000). Weaving the seamless web of care: An analysis of parents' perceptions of their needs following discharge of their child from hospital. Journal of Advanced Nursing, 31 (4). 812-812.
24. Speechley, K. N., & Noh, S. (1992). Surviving childhood cancer, social support, and parents' psychological adjustment. Journal of Pediatric Psychology, 17 (1). 15-31.
25. Swallow, V. M., & Jacoby, A. (2001). Mother's coping with childhood chronic illness: The effect of presymptomatic diagnosis of vesicoureric reflux. Journal of Advanced Nursing, 33 (1). 69-78.
26. Teare, J., & Smith, J. (2004). Using focus groups to explore the views of parents whose children are in hospital. Pediatric Nursing, 16 (5). 30-34.
27. Woods, N. F., Haberman, M. R., & Packard, N. J. (1993). Demands of illness and individual, dyadic, and family adaptation in chronic illness. Western Journal of Nursing Research, 15 (1). 10-30.