The social construction of client participation: The evolution and transformation of the role of service recipients in child welfare and mental disabilities

Journal of Sociology and Social Welfare

Volumn 36, Issue 2, 2009, Pages 35-61

  Mizrahi, Terry ^a   Humphreys, Mayra Lopez ^b   Torres, Denise ^a  

^a CITY UNIVERSITY OF NEW YORK   (United States)

^b New York She feels blessed to teach our future nurses and advocate for those in need   (United States)

Author keywords

Child welfare; Client participation; Mental health system; Mental retardation systems; Parent advocacy; Social construction theory

Indexed keywords

EID: 77949708363     PISSN: 01915096     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (102)

1. Abatena, H. (1997). The significance of planned community participation in problem solving and developing a viable community capacity. Journal of Community Practice, 4(2), 13-34.
2. The Adoption and Safe Families Act of 1997, Pub. L. 105-89, 111 Stat. 2115.
3. Advisory Commission on Intergovernmental Relations (1980). Citizen participation in the American federal system. Washington, DC: US GPO.
4. Akinyela, M. (1997). Culture and power in practice: cultural democracy and the family support movement. Chicago, IL: Family Resource Coalition of America. (ERIC Document Reproduction Service No. 423055).
5. Alpert, L. (2005). Research review: Parent's service experience-a missing element on foster care outcomes. Child and Family Social Work, 10(4), 361-366.
6. American with Disabilities Act of 1990, 42 U.S.C. § § 12101
7. Anderson, H. (1997). Conversation, language and possibilities: A postmodern approach to therapy. New York: Basis Books.
8. Arnstein, S. R. (1969). A ladder of citizen participation. Journal of the American Institute of Planners, 35(4), 216-224.
9. Aronson, J. (1993). Giving consumers a say in policy development: Influencing policy or just being heard. Canadian Public Policy, XIX, 367-378.
10. Bernstein, N. (2002). The lost children of Wilder: The epic struggle to change foster care. New York: First Vintage Books.
11. Blau, J. (2003). The dynamics of social welfare policy. NY: Oxford University Press.
12. Bogard, C. J. (2001) Claimsmakers and contexts in early constructions of homelessness: A comparison of New York City and Washington, D.C. Symbolic Interaction, 24(4), 425-455.
13. Bogdan, R., & Taylor, S. J. (1989). Relationships with severely disabled people: The social construction of humanness. Social Problems, 36(2), 135-148.
14. Burford, G. (2005). Families: Their role as architects of civil society and social inclusion. Practice, 17(2), 79-88.
15. Campbell, J. (1997). How consumers/survivors are evaluating the quality of psychiatric care. Evaluation Review, 21, 357-363.
16. Campbell, P. (1992). A survivor's view of community psychiatry. Journal of Mental Health, 1(2), 2117-2122. Retrieved November 24, 2007, from CINAHL Plus with Full Text database.
17. Charlton, J. I. (2000). Nothing about us without us: Disability oppression and empowerment. Berkeley: University of California Press.
18. Code of Federal Regulations, Title 45, Volume 4 §1356.21 (2004). (45CFR1356.21)
19. Community Mental Health Centers Act of 1963, Pub. L. 88-164, title II, 77 Stat. 290.
20. Conrad, P. & Schneider, J. W. (1992). Deviance and medicalization: From badness to sickness. Philadelphia: Temple University Press.
21. Crane, K. D. & Ellis, R. A. (2004). Benevolent intervention aor oppression perpetuated: Minority overrepresentation in children's services. Journal of Human Behavior in the Social Environment, 9(1/2), 19-38.
22. Cross, B. (1971). Justice and protection for retarded children and youth. Peabody Journal of Education, 48(3), 206-211
23. Danforth, S. & Rhodes, W. C. (1997). Deconstructing disability: A philosophy for inclusion. Remedial and Special Education, 18(6), 357-366.
24. D'Cruz, H. (2004). The social construction of child maltreatment: The role of medical practitioners. Journal of Social Work, 4(1), 99-123.
25. Developmental Disabilities Assistance and Bill of Rights Act of 2000, Pub.L.106-402, 114 Stat. 1677.
26. Drake, R. F. (1992). Consumer participation: The voluntary sector and the concept of power. Disability, Handicap & Society, 7(3), 267-278.
27. Dusenbury, P., Liner, B. & Vinson, E. (September, 2000). States, citizens, and local performance management. Washington, D.C.: Urban Institute. Retrieved April 4, 2007 from http://www.urban.org/expert.cfm?ID=PatDusenbury
28. Dwyer, J. G. (1997). Setting standards for parenting-By what right? Child Psychiatry and Human Development, 27(3), 165-177.
29. El-Askari, G. & Walton, S. (2005). Local government and resident collaboration to improve health: A case study in capacity building and cultural humility. In M. Minkler (Ed.), Community organizing and community building for health (2nd ed.) [pp. 254-271]. New Brunswick, NJ: Rutgers University Press.
30. Fabricant, M. & Fisher, R. (2002). Agency-based community building in low income neighborhoods: A praxis framework. Journal of Community Practice, 10(2), 1-22.
31. The Family Violence Education and Research Center (2004). Citizen's review panels State of New York annual report. Stony Brook, NY: State University of New York at Stony Brook, School of Social Welfare.
32. Farley, S. (1995). Leadership for developing citizen-professional partnerships. Nursing & Healthcare, 16(4), 226-228.
33. Fellin, P. (1996) Mental health and mental illness: Policies, programs and services. Itasca, Ill. Peacock.
34. Fisher, D. B. (1994). Health care reform based on an empowerment model of recovery by people with psychiatric disabilities. Hospital and Community Psychiatry, 45, 913-915.
35. Fleischer, D. Z. & Zames, F. (2001). The Disabilities Rights Movement: From charity to confrontation. Philadelphia: Temple University Press.
36. Fluke, J., Ying-Ying, T., Yuan, J., & Patrick, C. (2003). Disproportionate representation of race and ethnicity in child maltreatment: investigation and victimization. Children and Youth Services Review, 25(5), 359-373.
37. Forest, C. (2003). Empowerment skills for family workers: The comprehensive curriculum of the Cornell Family Development Credential. Ithaca, NY: Family Development Press, Cornell University.
38. Friedman, J. (1977) The transactive style of planning. In N. Gilbert & H. Specht, (Eds.), Planning for social welfare (pp. 113-118). Englewood Cliffs, NJ: Prentice Hall.
39. Gamble, D. M. & Weil, M. O. (1995). Citizen participation. In R. Edwards (Ed.), Encyclopedia of social work (19th ed.) [pp. 483-494]. Washington, DC: National Association of Social Workers.
40. Ghose, R. (2005). The complexities of citizen participation through collaborative governance. Space & Polity, 9(1), 61-75.
41. Gittell, M., Hoffacker, B., Rollins, E., Foster, S., & Hoffaker, M. (1980). Limits to citizen participation: The decline of community organizations. Beverly Hills, CA: Sage Publications.
42. Goode, D. (December, 1998). The history of AHRC. Retrieved April 12, 2007 from http://www.ahrcnyc.org
43. Goffman, E. (1961). Asylums: Essays on the social situation of mental patients and other inmates. New York: Doubleday.
44. Grason, H. & Guyer, B. (1995). Rethinking the organization of children's programs: Lessons from the elderly. The Milbank Quarterly, 73(4) 565-597.
45. Halpern, R. (1999). Fragile families, fragile solutions: A history of supportive services for families in poverty. New York: Columbia University Press.
46. Hardina, D. (2003). Linking citizen participation to empowerment practice: A historical overview. Journal of Community Practice, 11(4), 11-38.
47. Hardina, D. & Malott, O. W. (1996). Strategies for the empowerment of low income consumers on community-based planning boards. Journal of Progressive Human Services, 7(2), 43-61
48. Haynes, K. S. & Mickelson, J. S. (2005). Affecting change: Social workers in the political arena (6th ed.). Boston: Allyn & Bacon.
49. Hess, P., Folaron, G., & Jefferson, A. (1992). Effectiveness of family reunification services: An innovative evaluative model. Social Work, 37(4), 304-311.
50. Hollingsworth, L. D. (2000). Adoption policy in the United States: A word of caution. Social Work, 45(2), 183-186.
51. Jones, R. L. (2005, September 28). Two plead guilty in child's death in New Jersey. The New York Times, p. B1.
52. Jurkowski, E., Jovanovic, B., & Rowitz, L. (2002). Leadership/citizen participation: Perceived impact of advocacy activities by people with physical disabilities on access to health care, attendant care and social services. Journal of Health and Social Policy, 14(4), 49-61.
53. Kahn, S. & Minnich, W. (2005) The fox in the henhouse: How privatization threatens democracy. San Francisco, CA: Berrett-Koehhler.
54. Kirlin, J. J., & Kirlin, M. K. (2002). Strengthening effective governmentcitizen connections through greater civic engagement. Public Administration Review, 62(4), 80-85.
55. Koneya, M. (1978). Citizen participation is not community development. Journal of Community Development Society of America, 9(2), 23-29.
56. Kopolow, L. E. (1981). Client participation in mental health service delivery. Community Mental Health Journal, 17(1), 46-53.
57. Lammers, J. & Happell, B. (2003). Consumer participation in mental health services: Looking from a consumer perspective. Journal of Psychiatric and Mental Health Nursing, 10, 385-392
58. Linhorst, D. M., & Eckert, A. (2003). Conditions for empowering people with severe mental illness. Social Service Review, 77(2), 279-305.
59. Linhorst, D. M., Eckert, A., & Hamilton, G. (2005). Promoting participation in organizational decision making by clients with severe mental illness. Social Work, 50(1), 21-30.
60. Littell, J. H., & Taylor, E. A. (2000). A multi-level model of client participation in intensive family preservation. Social Service Review, 74(3), 405-435.
61. Lukes, S. (1974). Power: A radical view. London: Macmillan.
62. Lu, Y., Landsverk, J., Ellis-Macleod, E., Newton, R., Ganger, W., & Johnson, I. (2004). Race, ethnicity, and case outcomes in child protective services. Children and Youth Services Review, 26, 447-461.
63. Madison, A. M. (2000). Language in defining social problems and in evaluating social programs. In R. Hopson (Ed.), How and why language matters. New directions for evaluation, No.86 (pp. 17-28). San Francisco: Jossey-Bass.
64. McPhatter, A. R., & Ganaway, T. L. (2003). Beyond the rhetoric: Strategies for implementing culturally effective practice with children, families, and communities. Child Welfare, 82(2), 103-124.
65. Mechanic, D. (1989). Mental health and social policy (3rd ed.). Englewood Cliffs, NJ: Prentice Hall.
66. Mental Health Consumer/Survivors Create National Coalition. (2007). Retrieved April 9, 2008 from www.ncmhco.org/downloads/ncmhcso-accomplishments of our second year.pdf.
67. Mental Health Study Act of 1955, Pub. L. 84-182.
68. Mental Hygiene Law, Laws of New York (1977), Ch.
69. Miller, A. B., & Keys, C. B. (1996). Awareness, action, and collaboration: How the self-advocacy movement is empowering people with developmental disabilities. Mental Retardation, 34(5), 312-319.
70. Mizrahi, T. (1992). The right to treatment and the treatment of mentally ill people. Health and Social Work, 17(1), 7-12.
71. Mizrahi, T. (1999). Strategies for effective collaboration in the human services. Social Policy, 29(4), 5-20.
72. Mizrahi, T. (2004). Models of client and citizen participation in the US. Jerusalem: Ministry of Social Affairs. http://www.molsa.gov.il/NR/rdonlyres/ 9CBF46BE-A0E9-482F-B5ECE3D8C3AB1A07/4730/TERRYMIZRAHIMODELSOFCLIENT1.pdf.
73. Montague, P. (2000). The myth of parental rights. Social Theory and Practice, 26(1), 47-68.
74. Mulroy, E., Nelson, K., & Gour, D. (2005). Community building and family-centered service collaboratives. In M. Weil (Ed.), The handbook of community practice. Thousand Oaks, CA: Sage Publications.
75. Nanetti, R. Y. (1980). From the top down: Government promoted citizen participation. Journal of Voluntary Action Research, 9, 149-164.
76. National Coalition on Disability [NCD]. (2000). From privileges to rights: People labeled with psychiatric disabilities speak for themselves. National Association for Rights Protection and Advocacy, Washington, DC. Retrieved August 8, 2007 from http://www.ncd.gov/newsroom/publications/2000/ privileges.htm
77. National Mental Health Act of 1946, Pub.L. 79-487.
78. New York State Office of Mental Health. Annual Report 1981. Albany: New York State Office of Mental Health.
79. Omnibus Budget Reconciliation Act of 1981, Pub. L. 97-35, 95 Stat. 357.
80. Parker, E., Margolis, L. H., Eng, E., & Henriquez-Roldan, H. (2003). Assessing the capacity of health departments to engage in community-based participatory public health. American Journal of Public Health, 93(3), 472-477.
81. Pederson, E. L., Chaikin, M., Campbell, A. & Arcand, M. (1993). Strategies that close the gap between research, planning, and self-advocacy. In E. Sutton, A. R. Factor, B. A. Hawkins, T. Heller, & G. B. Seltzer, (Eds.), Older adults with developmental disabilities: Optimizing choice and change (pp. 277-313). Baltimore: Brooks.
82. Phillips, R., Gregory, P., & Nelson, M. (2003). Moving toward collaboration: Using funding streams to advance partnerships in child welfare practice. Journal of Human Behavior in the Social Environment, 7, (1/2) 115-133.
83. Raco, M. (2000). Assessing community participation in local economic development-Lessons for the new urban policy. Political Geography, 19(5), 573-599.
84. Rehabilitation Act of 1973, Title I, Part B, Sec. 112; 29 U.S.C. §§732.
85. Rose-Ackerman, S. (1982). Mental retardation and society: The ethics and politics of normalization. Ethics, 93(1), 81-101.
86. Russ, H. (November, 2004). Learning from experience: Rights won by parents and consumers in the developmental disabilities system and lessons learned for parents and young people in the child welfare system. New York: Fund for Social Change.
87. Saegert, S., Thompson, J. T., & Warren, M., (Eds.). (2001). Social capital and poor communities. New York: Russell Sage Foundation.
88. Savas, E. S. (2000). Privatization and public-private partnerships. NY: Chatham House Publishers/Seven Bridges Press.
89. Segal, S. P. (2008). Deinstitutionalization. In T. Mizrahi & L. Davis, (Eds.), Encyclopedia of Social Work (2nd ed.) [pp. 10-20]. New York: Oxford University Press.
90. Small Business Job Protection Act of 1996, Pub. L. 104-88, 110 Stat. 1755.
91. Staples, L. (1992). Powerful ideas about empowerment. Administration in Social Work, 14(2), 29-42.
92. Stringfellow, J. W., & Muscari, K. D. (2003). A program of support for consumer participation in systems change. Journal of Disability Policy Studies, 14(3), 142-147.
93. Stroman, D. F. (2003). The disability rights movement: From deinstitutionalization to self-determination. Lantham, MD: University Press of America.
94. Szasz, T. S. (1960). The myth of mental illness. The American Psychologist, 15, 113-118.
95. Wagner, D., & Cohen, M. B. (1991). The power of the people: Homeless protestors in the aftermath of social movement participation. Social Problems, 38(4), 543-561.
96. Walter R. McDonald & Associates, Inc., (2001, March). National study of child protective services systems and reform efforts: Literature review Prepared for U.S. Department of Health and Human Services Administration for Children and Families, Children's Bureau and Assistant Secretary for Planning and Evaluation. Retrieved November 4, 2007 from http://aspe.hhs.gov/hsp/ protective01/index.htm
97. Wehmeyer, M. L. (2003). Perspectives and sterilization in the heartland. Mental Retardation, 41(1), 57-60.
98. Weil, M., & Gamble, D. N. (2005). Evolution, models and the changing context of community practice. In M. Weil (Ed.), The handbook of community practice (pp. 117-150). Thousand Oaks, CA: Sage Publications.
99. White, A., Rosenbaum, N., Lerner, S., & Nyary, S. (2005). Community collaboratives in NYC: Charting a course for a neighborhoodbased safety net. NY: The New School University.
100. White, E. S. (1999, May). Competition and choice in New York City social services. Privatization Research Organization, School of Public Affairs, Baruch College, NY.
101. Wyatt v. Stickney, 325 F.Supp. 781, 784 (M.D.Ala.1971)
102. Wyatt v. Stickney, 344 F.Supp. 373, 378-86 (M.D.Ala.1972)