Burden of Disease Resulting from Hemophilia in the U.S.

American Journal of Preventive Medicine

Volumn 38, Issue 4 SUPPL., 2010, Pages

  Siddiqi, Azfar e Alam ^a   Ebrahim, Shahul H ^a   Soucie, J Michael ^a   Parker, Christopher S ^a   Atrash, Hani K ^a  

^a NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

DISABILITY; DISABILITY ADJUSTED LIFE YEAR; FEMALE; HEMOPHILIA; HETEROZYGOTE; HUMAN; MAJOR CLINICAL STUDY; MALE; MORTALITY; PREDICTION; QUALITY OF LIFE; REVIEW; SENSITIVITY ANALYSIS; UNITED STATES;

AGE DISTRIBUTION; CENSUSES; COST OF ILLNESS; DISABILITY EVALUATION; FEMALE; HEMOPHILIA A; HEMOPHILIA B; HUMANS; MALE; MORBIDITY; POPULATION SURVEILLANCE; PREVALENCE; QUALITY-ADJUSTED LIFE YEARS; QUESTIONNAIRES; SEVERITY OF ILLNESS INDEX; SEX DISTRIBUTION; UNITED STATES;

EID: 77949478345     PISSN: 07493797     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.amepre.2009.12.016     Document Type: Review

References (25)

1. Stedman's Medical Dictionary. 28th ed. (2006), Lippincott Williams & Wilkins, Baltimore MD
2. Terence L.C., Robert C.H., Tara W.S., Matthew J.C., and Bruce L.E. Changes in longevity and causes of death among persons with hemophilia A. Am J Hematol 45 2 (1994) 112-121
3. Soucie J.M., Nuss R., Evatt B., et al. Mortality among males with hemophilia: relations with source of medical care. Blood 96 2 (2000) 437-442
4. In: Murray C.J.L., and Lopez A.D. (Eds). The global burden of disease: a comprehensive assessment of mortality and disability from diseases, injuries, and risk factors in 1990 and projected to 2020 (1996), Harvard School of Public Health on behalf of the WHO and the World Bank, Cambridge MA distributed by Harvard University Press
5. Mathers C.D., Vos E.T., Stevenson C.E., and Begg S.J. The burden of disease and injury in Australia. Bull World Health Organ 79 11 (2001) 1076-1084
6. Melse J.M., Essink-Bot M.L., Kramers P.G., and Hoeymans N. A national burden of disease calculation: Dutch disability-adjusted life-years. Dutch Burden of Disease Group. Am J Public Health 90 8 (2000) 1241-1247
7. McKenna M.T., Michaud C.M., Murray C.J., and Marks J.S. Assessing the burden of disease in the United States using disability-adjusted life years. Am J Prev Med 28 5 (2005) 415-423
8. Schopper D., Pereira J., Torres A., et al. Estimating the burden of disease in one Swiss canton: what do disability adjusted life years (DALY) tell us?. Int J Epidemiol 29 5 (2000) 871-877
9. Jankovic S., Vlajinac H., Bjegovic V., et al. The burden of disease and injury in Serbia. Eur J Public Health 17 1 (2007) 80-85
10. Dodhia H., and Phillips K. Measuring burden of disease in two inner London boroughs using Disability Adjusted Life Years. J Public Health (Oxf) 30 3 (2008) 313-321
11. Fernandez de Larrea-Baz N., Alvarez-Martin E., Morant-Ginestar C., et al. Burden of disease due to cancer in Spain. BMC Public Health 9 (2009) 42
12. Soucie J.M., Evatt B., and Jackson D. Occurrence of hemophilia in the U.S. The Hemophilia Surveillance System Project investigators. Am J Hematol 59 4 (1998) 288-294
13. U.S. Census Bureau. Estimates of the population by sex and five-year age groups for the U.S. April 1, 2000, to July 1, 2007. www.census.gov/popest/national/asrh/NC-EST2007/NC-EST2007-01.xls
14. CDC. Universal Data Collection Project (UDC). www2.cdc.gov/ncbddd/htcweb/UDC_Report/UDC_Report.asp
15. EuroQol-a new facility for the measurement of health-related quality of life. The EuroQol Group. Health Policy 16 3 (1990) 199-208
16. Brooks R. EuroQol: the current state of play. Health Policy 37 1 (1996) 53-72
17. Byams V.R., Soucie J.M., and Owens S. Baseline Quality Of Life (QoL) in hemophilia patients receiving care at U.S. centers. J Thromb Haemost 5 2S (2007) P-S-142
18. Szende A., Schramm W., Flood E., et al. Health-related quality of life assessment in adult haemophilia patients: a systematic review and evaluation of instruments. Haemophilia 9 6 (2003) 678-687
19. Michaud C.M., Murray C.J.L., and Bloom B.R. Burden of disease-implications for future research. JAMA 285 5 (2001) 535-539
20. Miners A.H., Sabin C.A., Tolley K.H., Jenkinson C., Ebrahim S., and Lee C.A. Assessing health-related quality-of-life in patients with severe haemophilia A and B. Psychol Health Med 4 1 (1999) 5-15
21. James A.H., Ragni M.V., and Picozzi V.J. Bleeding disorders in premenopausal women: (another) public health crisis for hematology?. Hematology 2006 1 (2006) 474-485
22. Shaw R.W. Treating the patient with menorrhagia. Br J Obstet Gynaecol 101 Suppl 11 (1994) 1-2
23. Wasserman J., Aday L.A., Begley C.E., Ahn C., and Lairson D.R. Measuring health state preferences for hemophilia: development of a disease-specific utility instrument. Haemophilia 11 1 (2005) 49-57
24. Anand S., and Hanson K. Disability-adjusted life years: a critical review. In: Anand S., Peter F., and Sen A.K. (Eds). Public health, ethics, and equity (2004), Oxford University Press, New York
25. Barendregt J.J., Bonneux L., and Van der Maas P.J. DALYs: the age-weights on balance. Bull World Health Organ 74 4 (1996) 439-443