The prevalence of autism spectrum disorders: Impact of diagnostic instrument and non-response bias

Social Psychiatry and Psychiatric Epidemiology

Volumn 45, Issue 3, 2010, Pages 319-327

  Posserud, M ^a   Lundervold, Astri J ^b   Lie, Stein Atle ^c   Gillberg, Christopher ^d  

^a Centre for Child and Adolescent Mental Health   (Norway)

^b UNIVERSITY OF BERGEN   (Norway)

^c Centre for Child and Adolescent Mental Health   (Norway)

^d UNIVERSITY OF GOTHENBURG   (Sweden)

Author keywords

Assessment method; Autism spectrum disorders; Diagnostic instrument; Non response bias; Prevalence

Indexed keywords

ARTICLE; ASPERGER SYNDROME; AUTISM; CHILD; COMPARATIVE STUDY; EPIDEMIOLOGY; FEMALE; HUMAN; INFORMATION PROCESSING; LONGITUDINAL STUDY; MALE; MASS SCREENING; METHODOLOGY; NEUROPSYCHOLOGICAL TEST; PREVALENCE; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL RATING SCALE; PSYCHOMETRY; QUESTIONNAIRE; REPRODUCIBILITY; STATISTICS; TEACHING;

ASPERGER SYNDROME; AUTISTIC DISORDER; BIAS (EPIDEMIOLOGY); CHILD; CHILD DEVELOPMENT DISORDERS, PERVASIVE; DATA COLLECTION; FEMALE; HUMANS; LONGITUDINAL STUDIES; MALE; MASS SCREENING; NEUROPSYCHOLOGICAL TESTS; PREVALENCE; PSYCHIATRIC STATUS RATING SCALES; PSYCHOMETRICS; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; RESEARCH DESIGN; TEACHING;

EID: 77949375925     PISSN: 09337954     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00127-009-0087-4     Document Type: Article

References (36)

1. American Psychiatric Association (2000) Diagnostic and statistical manual of mental disorders, 4th edn (text revision). American Psychiatric Association, Washington
2. Baird G, Simonoff E, Pickles A, Chandler S, Loucas T, Meldrum D et al (2006) Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: the special needs and autism project (SNAP). Lancet 368(9531):210-215
3. Barbaresi WJ, Colligan RC, Weaver AL, Katusic SK (2008) The incidence of clinically diagnosed versus research-identified autism in olmsted county, Minnesota, 1976-1997: results from a retrospective, population-based study. J Autism Dev Disord Epub ahead of print
4. Brugha TS, Bebbington PE, Jenkins R, Meltzer R, Taub NA, Janas M et al (1999) Cross validation of a general population survey diagnostic interview: a comparison of CIS-R with SCAN ICD-10 diagnostic categories. Psychol Med 29(5):1029-1042
5. Brugha TS, Bebbington PE, Jenkins R (1999) A difference that matters: comparisons of structured and semi-structured psychiatric diagnostic interviews in the general population. Psychol Med 29(5):1013-1020
6. Fombonne E (2003) Epidemiological surveys of autism and other pervasive developmental disorders: an update. J Autism Dev Disord 33(4):365-382
7. Fombonne E, Simmons H, Ford T, Meltzer H, Goodman R (2001) Prevalence of pervasive developmental disorders in the British nationwide survey of child mental health. J Am Acad Child Adolesc Psychiatry 40(7):820-827 (Pubitemid 32595267)
8. Fombonne E, Zakarian R, Bennett A, Meng L, McLean-Heywood D (2006) Pervasive developmental disorders in Montreal, Quebec, Canada: prevalence and links with immunizations. Pediatrics 118(1):e139-e150
9. Gerrits MH, van den Oord EJ, Voogt R (2001) An evaluation of nonresponse bias in peer, self, and teacher ratings of children's psychosocial adjustment. J Child Psychol Psychiatr 42(5):593-602
10. Gillberg C, Wing L (1999) Autism: not an extremely rare disorder. Acta Psychiatr Scand 99(6):399-406
11. Goodman R (1997) The strengths and difficulties questionnaire: a research note. J Child Psychol Psychiatr 38(5):581-586
12. Goodman R, Ford T, Richards H, Gatward R, Meltzer H (2000) The development and well-being assessment: description and initial validation of an integrated assessment of child and adolescent psychopathology. J Child Psychol Psychiatr 41(5):645-655
13. Hansen V, Jacobsen BK, Arnesen E (2001) Prevalence of serious psychiatric morbidity in attenders and nonattenders to a health survey of a general population: the Tromso Health Study. Am J Epidemiol 154(10):891-894
14. Haslam N (2006) Bias in psychopathology research. Curr Opin Psychiatry 19(6):625-630
15. Heiervang E, Stormark KM, Lundervold AJ, Heimann M, Goodman R, Posserud MB et al (2007) Psychiatric disorders in Norwegian 8-to 10-year-olds: an epidemiological survey of prevalence, risk factors, and service use. J Am Acad Child Adolesc Psychiatry 46(4):438-447
16. Honda H, Shimizu Y, Rutter M (2005) No effect of MMR withdrawal on the incidence of autism: a total population study. J Child Psychol Psychiatr 46(6):572-579
17. Hysing M, Elgen I, Gillberg C, Lie SA, Lundervold AJ (2007) Chronic physical illness and mental health in children. Results from a large-scale population study. J Child Psychol Psychiatr 48(8):785-792
18. Haapea M, Miettunen J, Veijola J, Lauronen E, Tanskanen P, Isohanni M (2007) Non-participation may bias the results of a psychiatric survey: an analysis from the survey including magnetic resonance imaging within the Northern Finland 1966 Birth Cohort. Soc Psychiatry Psychiatr Epidemiol 42(5):403-409
19. Kaufman J, Birmaher B, Brent D, Rao U, Flynn C, Moreci P et al (1997) Schedule for affective disorders and schizophrenia for school-age children-present and lifetime version (K-SADS-PL): initial reliability and validity data. J Am Acad Child Adolesc Psychiatry 36(7):980-988
20. Leekam SR, Libby SJ, Wing L, Gould J, Taylor C (2002) The diagnostic interview for social and communication disorders: algorithms for ICD-10 childhood autism and wing and gould autistic spectrum disorder. J Child Psychol Psychiatr 43(3):327-342
21. Lord C, Risi S, Lambrecht L, Cook EH Jr, Leventhal BL, DiLavore PC et al (2000) The autism diagnostic observation schedule-generic: a standard measure of social and communication deficits associated with the spectrum of autism. J Autism Dev Disord 30(3):205-223
22. Lord C, Rutter M, Le Couteur A (1994) Autism diagnostic interview-revised: a revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. J Autism Dev Disord 24(5):659-685
23. Lundberg I, Damstrom Thakker K, Hallstrom T, Forsell Y (2005) Determinants of non-participation, and the effects of non-participation on potential cause-effect relationships, in the PART study on mental disorders. Soc Psychiatry Psychiatr Epidemiol 40(6): 475-483
24. Madsen KM, Hviid A, Vestergaard M, Schendel D, Wohlfahrt J, Thorsen P et al (2002) A population-based study of measles, mumps, and rubella vaccination and autism. N Engl J Med 347(19):1477-1482 (Pubitemid 35257586)
25. Mullick MS, Goodman R (2005) The prevalence of psychiatric disorders among 5-10 year olds in rural, urban and slum areas in Bangladesh: an exploratory study. Soc Psychiatry Psychiatr Epidemiol 40(8):663-671
26. Posserud MB, Lundervold AJ, Gillberg C (2006) Autistic features in a total population of 7-9-year-old children assessed by the ASSQ (autism spectrum screening questionnaire). J Child Psychol Psychiatr 47(2):167-175
27. Posserud M, Lundervold AJ, Gillberg C (2008) Validation of the autism spectrum screening questionnaire in a total population sample. J Autism Dev Disord Epub ahead of print
28. Rutter M, Cox A, Tupling C, Berger M, Yule W (1975) Attainment and adjustment in two geographical areas. I-the prevalence of psychiatric disorder. B J Psychiatry 126:493-509
29. Sponheim E, Skjeldal O (1998) Autism and related disorders: epidemiological findings in a Norwegian study using ICD-10 diagnostic criteria. J Autism Dev Disord 28(3):217-227
30. Stang A (2003) Nonresponse research-an underdeveloped field in epidemiology. Eur J Epidemiol 18(10):929-931
31. Stormark KM, Heiervang E, Heimann M, Lundervold A, Gillberg C (2008) Predicting nonresponse bias from teacher ratings of mental health problems in primary school children. J Abnorm Child Psychol 36(3):411-419
32. Volkmar FR, Lord C, Bailey A, Schultz RT, Klin A (2004) Autism and pervasive developmental disorders. J Child Psychol Psychiatr 45(1):135-170
33. Wakefield AJ, Murch SH, Anthony A, Linnell J, Casson DM, Malik M et al (1998) Ileal-lymphoid-nodular hyperplasia, nonspecific colitis, and pervasive developmental disorder in children. Lancet 351(9103):637-641
34. Williams JG, Higgins JP, Brayne CE (2006) Systematic review of prevalence studies of autism spectrum disorders. Arch Dis Child 91(1):8-15
35. Wing L, Leekam SR, Libby SJ, Gould J, Larcombe M (2002) The diagnostic interview for social and communication disorders: background, inter-rater reliability and clinical use. J Child Psychol Psychiatr 43(3):307-325
36. Wing L, Potter D (2002) The epidemiology of autistic spectrum disorders: is the prevalence rising? Ment Retard Dev Disabil Res Rev 8(3):151-161