Information needs of parents of children with attention-deficit/ hyperactivity disorder

Clinical Pediatrics

Volumn 49, Issue 2, 2010, Pages 150-157

  Sciberras, Emma ^a,b   Iyer, Shobha ^a   Efron, Daryl ^a,b,c   Green, Julie ^a,b,c  

^a ROYAL CHILDREN'S HOSPITAL   (Australia)

^b MURDOCH CHILDREN'S RESEARCH INSTITUTE   (Australia)

^c UNIVERSITY OF MELBOURNE   (Australia)

Author keywords

Children with disabilities; Education; Information needs; Patient preferences; Patient centered care; Pediatric practice

Indexed keywords

ADOLESCENT; ARTICLE; ATTENTION DEFICIT DISORDER; AUSTRALIA; CHILD; CLINICAL FEATURE; CLINICAL PRACTICE; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; EDUCATION; FEMALE; GENERAL PRACTITIONER; HUMAN; INFORMATION PROCESSING; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; PARENTAL NOTIFICATION; PATIENT CARE; PEDIATRIC HOSPITAL; PRESCHOOL CHILD; QUESTIONNAIRE; SCHOOL; SCHOOL CHILD; SUPPORT GROUP; VERBAL COMMUNICATION;

ADOLESCENT; ADULT; ATTENTION DEFICIT DISORDER WITH HYPERACTIVITY; CHILD; CHILD, PRESCHOOL; COHORT STUDIES; CONSUMER HEALTH INFORMATION; CROSS-SECTIONAL STUDIES; HUMANS; INFORMATION SEEKING BEHAVIOR; NEEDS ASSESSMENT; PARENTS; PATIENT EDUCATION AS TOPIC; SOCIOECONOMIC FACTORS;

EID: 77949362527     PISSN: 00099228     EISSN: None     Source Type: Journal    
DOI: 10.1177/0009922809346730     Document Type: Article

References (38)

1. Beresford B. Positively Parents: Caring for a Severely Disabled Child. London, UK: Her Majestygs Stationary Office ; 1994.
2. Chamba R., Ahmad W., Hirst M., Lawton D., Beresford B. On the Edge: A National Survey of Minority Ethnic Parents Caring for a Severely Disabled Child. West Sussex, UK: Bristol Policy Press; 1999.
3. Fisher HR The needs of parents with chronically sick children: a literature review. J Adv Nurs. 2001 ; 36: 600-607.
4. Noyes J. Voices and Choices: Young People Who Used Assisted Ventilation: Their Health and Social Care and Education. London, UK: Stationery Office; 1999.
5. Quine L., Pahl J. Stress and Coping in Families Caring for a Child With Severe Mental Handicap. Canterbury, UK: Institute of Social and Applied Psychology and Centre for Health Studies, University of Kent ; 1989.
6. Sloper P. Service needs of families of children with severe physical disability. Child Care Health Dev. 1992 ; 18: 259-282.
7. Dale N. Working With Families of Children With Special Needs: Partnership and Practice. London, UK: Routledge; 1996.
8. Philip M., Duckworth D. Children With Disabilities and Their Families. London, UK: NFER / Nelson ; 1982.
9. Pain H. Coping with a child with disabilities from the parentsg perspective: the function of information. Child Care Health Dev. 1999 ; 25: 299-312.
10. Bruegel R. Patient empowerment: a trend that matters. J AHIMA. 1998 ; 69: 30-33.
11. World Health Organisation. Ottawa charter for health promotion. http://www.who.int/hpr/NPH/docs/ottawa-charter-hp.pdf.
12. Institute of Medicine. Health Literacy: A Prescription to End Confusion. Washington, DC: Institute of Medicine, Board on Neuroscience and Behavioral Health, Committee on Health Literacy ; 2004.
13. Darbyshire P. Empowering parents of children with special needs. Nurs Times. 1995 ; 91: 26-28.
14. Rodwell C. An analysis of the concept of empowerment. J Adv Nurs. 1996 ; 23: 305-313.
15. Coulter A. Sharing decisions with patients: is the information good enough ? Br Med J. 1999 ; 18: 318-322.
16. Mitchell W., Sloper P. Information that informs rather than alienates families with disabled children: developing a model of good practice. Health Soc Care Community. 2002 ; 10: 74-81.
17. Rahi JS, Manaras I., Barr K. Information sources and their use by parents of children with ophthalmic disorders. Invest Ophthalmol Vis Sci. 2003 ; 44: 2457-2460.
18. DeShazo BT, Lyman RD, Klinger LG Academic under-achievement and attention-deficit/hyperactivity disorder: the negative impact of symptom severity on school performance. J Sch Psychol. 2002 ; 40: 259-283.
19. Biederman J., Farone S., Milberger S., Guite J., Mick E., Chen L. A prospective 4-year follow-up study of attention-deficit hyperactivity and related disorders. Arch Gen Psychiatry. 1996 ; 53: 437-446.
20. Rappley MD Attention deficit-hyperactivity disorder. N Engl J Med. 2005 ; 352: 165-173.
21. Ghanizadeh A. Educating and counseling of parents of children with attention-deficit hyperactivity disorder. Patient Educ Couns. 2007 ; 68: 23-28.
22. Brook U., Boaz M. Attention deficit and hyperactivity disorder/learning disabilities (ADHD/LD): parental characteristics and perception. Patient Educ Couns. 2005 ; 57: 96-100.
23. Eysenbach G., Powell J., Kuss O., Sa ER Empirical studies assessing the quality of health information for consumers on the World Wide Web: a systematic review. JAMA. 2002 ; 287: 2691-2700.
24. Khoo K., Bolt P., Babl FE, Goldman RD Health information seeking by parents in the Internet age. J Paediatr Child Health. 2008 ; 44: 419-423.
25. Sawyer MG, Arney FM, Baghurst PA, Clark JJ, Graetx BW, Kosky RJ The mental health of young people in Australia: key findings from the child and adolescent component of the national survey of mental health and well-being. Aust N Z J Psychiatry. 2001 ; 35: 806-814.
26. Brook U., Watemburg G., Geva D. Attitude and knowledge of ADHD and learning disability among high school teachers. Patient Educ Couns. 2000 ; 40: 247-252.
27. Bussing R., Gary FA, Leon CE, Wilson-Garvan C., Reid R. General classroom teachersg information and perceptions of attention deficit hyperactivity disorder. Behav Disord. 2002 ; 27: 327-339.
28. Jerome L., Gordon M., Hustler P. A comparison of American and Canadian teachergs knowledge and attitudes towards ADHD. Can J Psychiatry. 1994 ; 39: 563-567.
29. Kasten EF, Coury DL, Heron TE Educatorsg knowledge and attitudes regarding stimulants in the treatment of ADHD. J Dev Behav Pediatr. 1995 ; 16: 238-243.
30. Roy M. Information needs of parents about learning disabilities. J Learn Disabil. 2003 ; 7: 211-219.
31. Jackson R., Baird W., Davis-Reynolds L., Smith C., Black-burn S., Allsebrook J. Qualitative analysis of parentsg information needs and psychosocial experiences when supporting children with health care needs. Health Soc Care Community. 2008 ; 25: 31-37.
32. Ley P. Improving Patientsg Understanding, Recall, Satisfaction and Compliance. Health Psychology: Processes and Applications. London, UK: Chapman & Hall ; 1989.
33. Sandler D., Mitchell J., Fellows A., Garner S. Is an information booklet for patients leaving hospital helpful and useful ? Br Med J. 1989 ; 298: 870-874.
34. Peterson S., Michas M., Villejo L. Evaluation of a learning resource for cancer patients. Health Educ Res. 1989 ; 4: 495-500.
35. DgAlessandro DM, Dosa NP Empowering children and families with information technology. Arch Pediatr Adolesc Med. 2001 ; 155: 1131-1136.
36. Kind T., Huang ZJ, Farr D., Pomerantz KL Internet and computer access and use for health information in an underserved community. Ambul Pediatr. 2005 ; 5: 117-121.
37. Tuffrey C., Finlay F. Use of the Internet by parents of pediatric outpatients. Arch Dis Child. 2002 ; 87: 534-536.
38. Wainstein BK, Sterling-Levis K., Baker SA, Taitz J., Brydon M. Use of the Internet by parents of pediatric patients. J Paediatr Child Health. 2006 ; 42: 528-532.