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Volumn 53, Issue 1, 2010, Pages

2009 Walter C. Randall lecture in bioethics: Autonomy and consent in biobanks

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; BIOETHICS; ETHICS; HEALTH CARE FACILITY; HUMAN; INFORMED CONSENT; NUCLEIC ACID DATABASE; PATIENT RIGHT; UNITED STATES;

EID: 77749313093     PISSN: 00319376     EISSN: None     Source Type: Trade Journal    
DOI: None     Document Type: Article
Times cited : (2)

References (28)
  • 1
    • 17844365036 scopus 로고    scopus 로고
    • Harnessing the benefits of biobanks
    • Spring
    • Andrews LB. Harnessing the benefits of biobanks. J Law Med Ethics. Spring 2005; 33 (1): 22-30.
    • (2005) J Law Med Ethics , vol.33 , Issue.1 , pp. 22-30
    • Andrews, L.B.1
  • 4
    • 73449138816 scopus 로고    scopus 로고
    • Broad consent in biobanking: Reflections on seemingly insurmountable dilemmas
    • Caulfield, T and Kaye, J.. "Broad consent in biobanking: Reflections on seemingly insurmountable dilemmas." Medical Law International 2009:10: 85-100.
    • (2009) Medical Law International , vol.10 , pp. 85-100
    • Caulfield, T.1    Kaye, J.2
  • 5
    • 45149103780 scopus 로고    scopus 로고
    • Consent, privacy, and confidentiality in longitudinal, population helath research: the Canadian legal context
    • Caulfield T, Ries NM. Consent, privacy, and confidentiality in longitudinal, population helath research: the Canadian legal context. Health Law Journal. 2003; 11(Supplement 1): 1-65.
    • (2003) Health Law Journal , vol.11 , Issue.SUPPL. 1 , pp. 1-65
    • Caulfield, T.1    Ries, N.M.2
  • 6
    • 0347750518 scopus 로고    scopus 로고
    • DNA databanks and consent: A suggested policy option involving an authorization model
    • Jan 3
    • Caulfield T, Upshur RE, Daar A. DNA databanks and consent: a suggested policy option involving an authorization model. BMC Med Ethics. Jan 3 2003; 4: E1.
    • (2003) BMC Med Ethics , vol.4
    • Caulfield, T.1    Upshur, R.E.2    Daar, A.3
  • 7
    • 77749274418 scopus 로고    scopus 로고
    • Department of Health and Human Services. Title 45: Public Welfare. Part 46: Protection of Human Subjects. Available at, Accessed November 10, 2009
    • Department of Health and Human Services. Title 45: Public Welfare. Part 46: Protection of Human Subjects. Available at: http://www.hhs.gov/ohrp/ humansubjects/guidance/45cfr46.htm. Accessed November 10, 2009.
  • 8
    • 33745596413 scopus 로고    scopus 로고
    • Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework
    • Jul
    • Elger BS, Caplan AL. Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework. EMBO Rep. Jul 2006; 7(7): 661-666.
    • (2006) EMBO Rep. , vol.7 , Issue.7 , pp. 661-666
    • Elger, B.S.1    Caplan, A.L.2
  • 9
    • 0035661369 scopus 로고    scopus 로고
    • Health information: Reconciling personal privacy with the public good of human health
    • Gostin LO. Health information: reconciling personal privacy with the public good of human health. Health Care Anal. 2001; 9(3): 321-335.
    • (2001) Health Care Anal , vol.9 , Issue.3 , pp. 321-335
    • Gostin, L.O.1
  • 10
    • 33344475590 scopus 로고    scopus 로고
    • Should donors be allowed to give broad consent to future biobank research?
    • Mar
    • Hansson MG, Dillner J, Bartram CR, Carlson JA, Helgesson G. Should donors be allowed to give broad consent to future biobank research? Lancet Oncol. Mar 2006; 7 (3): 266-269.
    • (2006) Lancet Oncol , vol.7 , Issue.3 , pp. 266-269
    • Hansson, M.G.1    Dillner, J.2    Bartram, C.R.3    Carlson, J.A.4    Helgesson, G.5
  • 11
    • 60149102137 scopus 로고    scopus 로고
    • Broadening consent-and diluting ethics?
    • Hofmann, B. "Broadening consent-and diluting ethics?" J Med Ethics 35(2): 125-129, 2009.
    • (2009) J Med Ethics , vol.35 , Issue.2 , pp. 125-129
    • Hofmann, B.1
  • 13
    • 77749317277 scopus 로고    scopus 로고
    • Policy barriers in coherent population-based research
    • Knoppers BM, Kent A. "Policy barriers in coherent population-based research." Nature Reviews Genetics. 2006; 7: 8.
    • (2006) Nature Reviews Genetics , vol.7 , pp. 8
    • Knoppers, B.M.1    Kent, A.2
  • 16
    • 72249092345 scopus 로고    scopus 로고
    • Public perspectives on informed consent for biobanking
    • Murphy, J, Scott J, et al. "Public perspectives on informed consent for biobanking." Am J Public Health 99 (12): 2128-34, 2009.
    • (2009) Am J Public Health , vol.99 , Issue.12 , pp. 2128-2134
    • Murphy, J.1    Scott, J.2
  • 17
    • 77749274414 scopus 로고    scopus 로고
    • Research involving human biological materials: Ethical issues and policy guidance
    • NBAC, Bethesda, MD: US Government Printing Office
    • NBAC. Research Involving Human Biological Materials: Ethical Issues and Policy Guidance,Vol II: Commissioned papers. . Bethesda, MD: US Government Printing Office; 2000.
    • (2000) Commissioned Papers , vol.2
  • 18
    • 77749261641 scopus 로고    scopus 로고
    • Nuremberg Code, Available at
    • Nuremberg Code. Available at: http://ohsr.od.nih.gov/guidelines/ nuremberg.html
  • 19
    • 77749317279 scopus 로고    scopus 로고
    • Biobanks
    • Available at, Accessed Novemeber 10
    • Park A. Biobanks. What's Next: 10 Ideas Changing the World Right Now. Available at: [http://www.time.com/time/specials/packages/0,28757,1884779,00. html. Accessed Novemeber 10, 2009.
    • (2009) What's Next: 10 Ideas Changing the World Right Now
    • Park, A.1
  • 20
    • 53149117252 scopus 로고    scopus 로고
    • Biobanks' "Engagements": Engendering trust or engineering consent?
    • Petersen A. Biobanks' "engagements": engendering trust or engineering consent?' Genomics, Society and Policy. 2007; 3(No.1): 31-43.
    • (2007) Genomics, Society and Policy , vol.3 , Issue.1 , pp. 31-43
    • Petersen, A.1
  • 23
    • 17944366421 scopus 로고    scopus 로고
    • Expanding the ethical analysis of biobanks
    • Spring
    • Rothstein MA. Expanding the ethical analysis of biobanks. J Law Med Ethics. Spring 2005; 33(1): 89-101.
    • (2005) J Law Med Ethics , vol.33 , Issue.1 , pp. 89-101
    • Rothstein, M.A.1
  • 24
    • 59649110565 scopus 로고    scopus 로고
    • Informed consent in biobank research: A deliberative approach to the debate
    • Feb
    • Secko DM, Preto N, Niemeyer S, Burgess MM. Informed consent in biobank research: a deliberative approach to the debate. Soc Sci Med. Feb 2009; 68 (4): 781-789.
    • (2009) Soc Sci Med. , vol.68 , Issue.4 , pp. 781-789
    • Secko, D.M.1    Preto, N.2    Niemeyer, S.3    Burgess, M.M.4
  • 25
    • 0003101980 scopus 로고
    • The liberalism of fear
    • Rosenblum NL, ed., Cambridge, MA: Harvard University Press
    • Shklar JN. The liberalism of fear. In: Rosenblum NL, ed. Liberalism and the Moral Life. Cambridge, MA: Harvard University Press; 1989: 21-38.
    • (1989) Liberalism and the Moral Life , pp. 21-38
    • Shklar, J.N.1
  • 26
    • 33746391956 scopus 로고    scopus 로고
    • One-time general consent for research on biological samples: Is it compatible with the health insurance portability and accountability act?
    • Jul 24
    • Wendler D. One-time general consent for research on biological samples: is it compatible with the health insurance portability and accountability act? Arch Intern Med. Jul 24 2006; 166 (14):1449-1452.
    • (2006) Arch Intern Med , vol.166 , Issue.14 , pp. 1449-1452
    • Wendler, D.1
  • 27
    • 0141679157 scopus 로고    scopus 로고
    • The charitable trust as a model for genomic biobanks
    • Sep 18
    • Winickoff DE,Winickoff RN. The charitable trust as a model for genomic biobanks. N Engl J Med. Sep 18 2003; 349 (12): 1180-1184.
    • (2003) N Engl J Med. , vol.349 , Issue.12 , pp. 1180-1184
    • Winickoff, D.E.1    Winickoff, R.N.2


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