-
1
-
-
17844365036
-
Harnessing the benefits of biobanks
-
Spring
-
Andrews LB. Harnessing the benefits of biobanks. J Law Med Ethics. Spring 2005; 33 (1): 22-30.
-
(2005)
J Law Med Ethics
, vol.33
, Issue.1
, pp. 22-30
-
-
Andrews, L.B.1
-
4
-
-
73449138816
-
Broad consent in biobanking: Reflections on seemingly insurmountable dilemmas
-
Caulfield, T and Kaye, J.. "Broad consent in biobanking: Reflections on seemingly insurmountable dilemmas." Medical Law International 2009:10: 85-100.
-
(2009)
Medical Law International
, vol.10
, pp. 85-100
-
-
Caulfield, T.1
Kaye, J.2
-
5
-
-
45149103780
-
Consent, privacy, and confidentiality in longitudinal, population helath research: the Canadian legal context
-
Caulfield T, Ries NM. Consent, privacy, and confidentiality in longitudinal, population helath research: the Canadian legal context. Health Law Journal. 2003; 11(Supplement 1): 1-65.
-
(2003)
Health Law Journal
, vol.11
, Issue.SUPPL. 1
, pp. 1-65
-
-
Caulfield, T.1
Ries, N.M.2
-
6
-
-
0347750518
-
DNA databanks and consent: A suggested policy option involving an authorization model
-
Jan 3
-
Caulfield T, Upshur RE, Daar A. DNA databanks and consent: a suggested policy option involving an authorization model. BMC Med Ethics. Jan 3 2003; 4: E1.
-
(2003)
BMC Med Ethics
, vol.4
-
-
Caulfield, T.1
Upshur, R.E.2
Daar, A.3
-
7
-
-
77749274418
-
-
Department of Health and Human Services. Title 45: Public Welfare. Part 46: Protection of Human Subjects. Available at, Accessed November 10, 2009
-
Department of Health and Human Services. Title 45: Public Welfare. Part 46: Protection of Human Subjects. Available at: http://www.hhs.gov/ohrp/ humansubjects/guidance/45cfr46.htm. Accessed November 10, 2009.
-
-
-
-
8
-
-
33745596413
-
Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework
-
Jul
-
Elger BS, Caplan AL. Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework. EMBO Rep. Jul 2006; 7(7): 661-666.
-
(2006)
EMBO Rep.
, vol.7
, Issue.7
, pp. 661-666
-
-
Elger, B.S.1
Caplan, A.L.2
-
9
-
-
0035661369
-
Health information: Reconciling personal privacy with the public good of human health
-
Gostin LO. Health information: reconciling personal privacy with the public good of human health. Health Care Anal. 2001; 9(3): 321-335.
-
(2001)
Health Care Anal
, vol.9
, Issue.3
, pp. 321-335
-
-
Gostin, L.O.1
-
10
-
-
33344475590
-
Should donors be allowed to give broad consent to future biobank research?
-
Mar
-
Hansson MG, Dillner J, Bartram CR, Carlson JA, Helgesson G. Should donors be allowed to give broad consent to future biobank research? Lancet Oncol. Mar 2006; 7 (3): 266-269.
-
(2006)
Lancet Oncol
, vol.7
, Issue.3
, pp. 266-269
-
-
Hansson, M.G.1
Dillner, J.2
Bartram, C.R.3
Carlson, J.A.4
Helgesson, G.5
-
11
-
-
60149102137
-
Broadening consent-and diluting ethics?
-
Hofmann, B. "Broadening consent-and diluting ethics?" J Med Ethics 35(2): 125-129, 2009.
-
(2009)
J Med Ethics
, vol.35
, Issue.2
, pp. 125-129
-
-
Hofmann, B.1
-
13
-
-
77749317277
-
Policy barriers in coherent population-based research
-
Knoppers BM, Kent A. "Policy barriers in coherent population-based research." Nature Reviews Genetics. 2006; 7: 8.
-
(2006)
Nature Reviews Genetics
, vol.7
, pp. 8
-
-
Knoppers, B.M.1
Kent, A.2
-
16
-
-
72249092345
-
Public perspectives on informed consent for biobanking
-
Murphy, J, Scott J, et al. "Public perspectives on informed consent for biobanking." Am J Public Health 99 (12): 2128-34, 2009.
-
(2009)
Am J Public Health
, vol.99
, Issue.12
, pp. 2128-2134
-
-
Murphy, J.1
Scott, J.2
-
17
-
-
77749274414
-
Research involving human biological materials: Ethical issues and policy guidance
-
NBAC, Bethesda, MD: US Government Printing Office
-
NBAC. Research Involving Human Biological Materials: Ethical Issues and Policy Guidance,Vol II: Commissioned papers. . Bethesda, MD: US Government Printing Office; 2000.
-
(2000)
Commissioned Papers
, vol.2
-
-
-
18
-
-
77749261641
-
-
Nuremberg Code, Available at
-
Nuremberg Code. Available at: http://ohsr.od.nih.gov/guidelines/ nuremberg.html
-
-
-
-
19
-
-
77749317279
-
Biobanks
-
Available at, Accessed Novemeber 10
-
Park A. Biobanks. What's Next: 10 Ideas Changing the World Right Now. Available at: [http://www.time.com/time/specials/packages/0,28757,1884779,00. html. Accessed Novemeber 10, 2009.
-
(2009)
What's Next: 10 Ideas Changing the World Right Now
-
-
Park, A.1
-
20
-
-
53149117252
-
Biobanks' "Engagements": Engendering trust or engineering consent?
-
Petersen A. Biobanks' "engagements": engendering trust or engineering consent?' Genomics, Society and Policy. 2007; 3(No.1): 31-43.
-
(2007)
Genomics, Society and Policy
, vol.3
, Issue.1
, pp. 31-43
-
-
Petersen, A.1
-
23
-
-
17944366421
-
Expanding the ethical analysis of biobanks
-
Spring
-
Rothstein MA. Expanding the ethical analysis of biobanks. J Law Med Ethics. Spring 2005; 33(1): 89-101.
-
(2005)
J Law Med Ethics
, vol.33
, Issue.1
, pp. 89-101
-
-
Rothstein, M.A.1
-
24
-
-
59649110565
-
Informed consent in biobank research: A deliberative approach to the debate
-
Feb
-
Secko DM, Preto N, Niemeyer S, Burgess MM. Informed consent in biobank research: a deliberative approach to the debate. Soc Sci Med. Feb 2009; 68 (4): 781-789.
-
(2009)
Soc Sci Med.
, vol.68
, Issue.4
, pp. 781-789
-
-
Secko, D.M.1
Preto, N.2
Niemeyer, S.3
Burgess, M.M.4
-
25
-
-
0003101980
-
The liberalism of fear
-
Rosenblum NL, ed., Cambridge, MA: Harvard University Press
-
Shklar JN. The liberalism of fear. In: Rosenblum NL, ed. Liberalism and the Moral Life. Cambridge, MA: Harvard University Press; 1989: 21-38.
-
(1989)
Liberalism and the Moral Life
, pp. 21-38
-
-
Shklar, J.N.1
-
26
-
-
33746391956
-
One-time general consent for research on biological samples: Is it compatible with the health insurance portability and accountability act?
-
Jul 24
-
Wendler D. One-time general consent for research on biological samples: is it compatible with the health insurance portability and accountability act? Arch Intern Med. Jul 24 2006; 166 (14):1449-1452.
-
(2006)
Arch Intern Med
, vol.166
, Issue.14
, pp. 1449-1452
-
-
Wendler, D.1
-
27
-
-
0141679157
-
The charitable trust as a model for genomic biobanks
-
Sep 18
-
Winickoff DE,Winickoff RN. The charitable trust as a model for genomic biobanks. N Engl J Med. Sep 18 2003; 349 (12): 1180-1184.
-
(2003)
N Engl J Med.
, vol.349
, Issue.12
, pp. 1180-1184
-
-
Winickoff, D.E.1
Winickoff, R.N.2
|