Being a close relative of a person with aphasia

Scandinavian Journal of Occupational Therapy

Volumn 17, Issue 1, 2010, Pages 18-28

  Sjöqvist Nätterlund, Birgitta ^a  

^a Rebro County Council   (Sweden)

Author keywords

Aphasia; Close relatives; Everyday activities; Interviews; Qualitative content analysis; Social support

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; APHASIA; ARTICLE; CAREGIVER; DAILY LIFE ACTIVITY; FAMILY RELATION; FEMALE; HEALTH CARE DELIVERY; HUMAN; INTERVIEW; MALE; MIDDLE AGED; PSYCHOLOGICAL ASPECT;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; APHASIA; CAREGIVERS; FAMILY RELATIONS; FEMALE; HEALTH SERVICES ACCESSIBILITY; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED;

EID: 77649087896     PISSN: 11038128     EISSN: 16512014     Source Type: Journal    
DOI: 10.3109/11038120902833218     Document Type: Conference Paper

References (44)

1. van der Gaag A, Smith L, Davis S, Moss B, Cornelius V, Laing S, et al. Therapy and support services for people with long-term stroke and aphasia and their relatives: A six-month follow-up study. Clin Rehabil. 2005;/19:/372-80.
2. Servaes P, Draper B, Conroy P, Bowring G. Informal carers of aphasic stroke patients: Stresses and interventions. Aphasiology. 1999;/13:/889-900.
3. Socialstyrelsen. Livssituationen två år efter stroke. En uppföljning av strokedrabbade och deras närstående [Life two years after stroke: A follow-up study of stroke and their relatives]. Report No.: artikel nr 2004-123-40.Stockholm: Socialstyrelsen [Swedish Board of Health and Welfare]; 2004.
4. Walsh F, McGoldrick M. Living beyond loss. New York:W.W. Norton; 1991.
5. Visser-Meily JMA, Post MWM, Schepers VPM, Ketelaar M, van Heugten CM, Lindeman E. Spouses' satisfaction with caregiver support in stroke rehabilitation. Scand J Caring Sci. 2005;/19:/310-6.
6. Lau A, McKenna K. Perception of quality of life by Chinese elderly persons with stroke. Disabil Rehabil. 2002;/24(4):/ 203-18.
7. Le Dorze G, Brassard C. A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic diseases. Aphasiology 9 1995;3:239-95.
8. Elliott TR, Shewchuk RM, Scott Richards J. Caregiver social problem-solving abilities and family member adjustment to recent-onset physical disability. Rehabil Psychol. 1999;/44:/ 104-23.
9. Wells A. Family support systems: Their role in aphasia. Aphasiology. 1999;/13:/911-4.
10. Stoltz P, Willman A, Uden G. The meaning of support as narrated by family carers who care for a senior relative at home. Qual Health Res. 2006;/16:/594-610.
11. Gilliland MP, BushHA.. Social support for family caregivers: Toward a situation-specific theory. J Theory Construction & Testing. 2001;/5:/53-62.
12. Denman A. Determining the needs of spouses caring for aphasic partners. Disabil Rehabil. 1998;/20:/411-23.
13. Worrall L. Professionalism and functional outcomes. J Communication Disord. 2006;/39:/320-7.
14. Choi NG, Wodarski JS. The relationship between social support and health status of elderly people: Does social support slow down physical and functional deterioration? Social Work Res. 1996;/20:/52-63.
15. McColl MA, Lei H, Skinner H. Structural relationships between social support and coping. Soc Sc Med. 1995;/41:/ 395-407.
16. Nätterlund B, Ahlström G. Experience of social support in rehabilitation: A phenomenological study. J Adv Nurs. 1999;/ 30:/1332-40.
17. Lazarus RS. Coping theory and research: Past, present and future. Psychosom Med. 1993;/55:/234-47.
18. Forsberg-Wärleby G, Moller A, Blomstrand C. Spouses of first-ever stroke patients: Their view of the future during the first phase after stroke. Clin Rehabil. 2002;/16:/506-14.
19. Sarason BR, Sarason IG. Assessment of social support. In: Shumaker SA, Czajkowskis SM, editors. Social support and cardiovascular disease. New York: Plenum Press; 1994. p. 41-63.
20. Lazarus RS, Folkman S. Stress, appraisal and coping. New York: Springer Verlag; 1984.
21. House JS. Work, stress and social support. Reading, MA: Addison-Wesley; 1981.
22. Lock S, Wilkinson R, Bryan K, Maxim J, Edmundson A, Bruce C, et al. Supporting partners of people with aphasia in relationships and conversation (SPPARC). Int J Lang Communication Disord. 2001;/36(Suppl):/25-30.
23. Hibbard MR, Cantor J, Charatz H, Rosenthal R, Ashman T, Gundersen N, et al. Peer support in the community: Initial findings of a mentoring program for individuals with traumatic brain injury and their families. J Head Trauma Rehabil. 2002;/17:/112-31.
24. Sjöqvist Nätterlund B. A new life with aphasia: everyday activities and social support. Scand J Occup Ther. 2009 [Epub ahead of print].
25. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;/24:/105-12.
26. Krippendorff K. Content analysis: An introduction to its methodology. Beverly Hills, CA: Sage Publications; 1980.
27. Downe-Wanboldt B. Content analysis: Methods, applications and issues. Health Care for Women Int. 1992;/13:/313-21.
28. Richards L. Computer monitor. Data alive! The thinking behind NVivo. Qual Health Res. 1999;/9:/412-28.
29. Richards L. Using NVivo in qualitative research, 3rd ed. Melbourne: Director of Research Service, QSR International; 2002.
30. Cavanagh S. Content analysis concepts, methods and applications. Nurs Res. 1997;/4:/1-14.
31. Parr S. Living with severe aphasia: Tracking social exclusion. Aphasiology. 2007;/21:/98-123.
32. Stoltz P, Uden G, Willman A. Support for family carers who care for an elderly person at home: A systematic literature review. Scand J Caring Sci. 2004;/18:/111-9.
33. Forsberg-Wärleby G, Moller A, Blomstrand C. Psychological well-being of spouses of stroke patients during the first year after stroke. Clin Rehab. 2004;/18:/430-7.
34. Fox LE, Poulsen SB, Bawden KC, Packard D. Critical elements and outcomes of a residential family-based intervention for aphasia caregivers. Aphasiology. 2004;/18:/ 1177-99.
35. Grant JS, Elliott TR, Weaver M, Glandon GL, Raper JL, Giger JN. Social support, social problem-solving abilities, and adjustment of family caregivers of stroke survivors. Arch Phys Med Rehabil. 2006;/87:/343-50.
36. House JS, Kahn RL, McLeod JD, Williams D. Measures and concepts of social support. In: Cohen S, Syme SL, editors. Social support and health. San Diego, CA: Academic Press, Inc; 1985. p. 83-108.
37. Anderson D, Deshaies G, Jobin J. Social support, social networks and coronary artery disease rehabilitation: A review. Can J Cardiol. 1996;/12:/739-44.
38. Hilari K, Northcott S. Social support in people with chronic aphasia. Aphasiology. 2006;/20:/17-36.
39. Polit DF, Hungler BP. Nursing research: Principles and methods, 6th ed. Philadelphia, PA: Lippincott; 1999.
40. Kvale S, editor. Interview an introduction to qualitative research interviewing. London: Sage Publications; 1994.
41. Streubert HJ, Carpenter DR. Qualitative research in nursing: Advancing the humanistic imperative, 2nd ed. Philadelphia, PA: Lippincott; 1999.
42. Gauld R, McMillan J. Ethics committees and qualitative health research in New Zealand. N Z Med J. 1999;/112:/ 195-7.
43. Lincoln YS, Guba EG. Naturalistic inquiry. Newbury Park, CA: Sage Publications; 1985.
44. Wallengren C, Friberg F, Segesten K. Like a shadow: On becoming a stroke victim's relative. Scand J Caring Sci. 2008;/ 22:/48-55.