The orphaning experience: Descriptions from Ugandan youth who have lost parents to HIV/AIDS

Child and Adolescent Psychiatry and Mental Health

Volumn 4, Issue , 2010, Pages

  Harms, Sheila ^a   Jack, Susan ^a   Ssebunnya, Joshua ^b   Kizza, Ruth ^b  

^a MCMASTER UNIVERSITY   (Canada)

^b MAKERERE UNIVERSITY   (Uganda)

Author keywords

[No Author keywords available]

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; ADOLESCENT; ADULT; ARTICLE; CHILD; CLINICAL ARTICLE; CONFLICT; CULTURAL FACTOR; DESCRIPTIVE RESEARCH; EDUCATIONAL STATUS; FEMALE; HEALTH CARE DELIVERY; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; MALE; ORPHANED CHILD; PARENTAL DEPRIVATION; PERSONAL EXPERIENCE; POVERTY; PRIORITY JOURNAL; QUALITATIVE RESEARCH; SCHOOL CHILD; SOCIAL CAPITAL; SOCIAL STATUS; STIGMA; UGANDA;

EID: 77349117048     PISSN: None     EISSN: 17532000     Source Type: Journal    
DOI: 10.1186/1753-2000-4-6     Document Type: Article

References (43)

1. UNICEF Africa's Orphaned and Vulnerable Generations: Children Affected by AIDS 2006, UNICEF, New York, UNICEF.
2. UNICEF The Sate of the World's Children 2005; Childhood Under Threat 2004, UNCIEF, New York, UNICEF.
3. Wood K, Chase E, Aggleton P. 'Telling the truth is the best thing': Teenage orphans' experiences of parental AIDS-related illness and bereavement in Zimbabwe. Social Science & Medicine 2006, 63:1923-1933.
4. Satzinger F, Kipp W, Rubaale T. Ugandan HIV/AIDS orphans in charge of their households speak out: A study of their health-related worries. Global Public Health 2009, First published on 20 October 2009 (iFirst).
5. Cluver L, Gardner F. Risk and protective factors for psychological well-being of children orphaned by AIDS in Cape Town: A qualitative study of children and caregivers' perspectives. AIDS Care 2007, 19:318-325. 10.1080/09540120600986578, 17453564.
6. Harms S, Kizza R, Sebunnya J, Jack S. Conceptions of mental health among Ugandan youth orphaned by AIDS. African Journal of AIDS Research 2009, 8:7-16.
7. Abebe T, Aase A. Children, AIDS and the politics of orphan care in Ethiopia: The extended family revisited. Social Science & Medicine 2007, 64:2058-2069.
8. Oleke C, Blystad A, Rekdal OB. "When the obvious brother is note there": Political and cultural contexts of the orphan challenge in northern Uganda. Social Science & Medicine 2005, 61:2628-2638.
9. Nyambedha E, Wandibba S, Aagaard-Hansen J. Changing patterns of orphan care due to the HIV epidemic in Western Kenya. Social Science & Medicine 2004, 57:301-311.
10. Hosegood V, Floyd S, Marston M, Hill C, McGrath N, Isingo R, Crampin A, Zaba B. The effects of high HIV prevalence on orphanhood and living arrangement of children in Malawi, Tanzania and South Africa. Population Studies 2007, 61:327-336. 10.1080/00324720701524292, 2216069,2216069, 17979006.
11. Kuo C, Operario D. Caring for AIDS-orphaned children: A systematic review of studies on caregivers. Vulnerable Children and Youth Studies 2009, 4:1-12.
12. Stover J, Bollinger L, Walker N, Monasch R. Resource needs to support orphans and vulnerable children in Sub-Saharan Africa. Health Policy and Planning 2007, 22:21-27. 10.1093/heapol/czl033, 17237491.
13. Miller C, Gruskin S, Subramanian M, Raharaman D, Heymann J. Orphan care in Botswana's working households: Growing responsibilities in the absence of adequate support. American Journal of Public Health 2006, 96:1429-1434. 10.2105/AJPH.2005.072280, 1522103, 16809585.
14. Howard B, Phillips C, Matinhure N, Goodman K, McCurdy S, Johnson S. Barriers and incentives to orphan care in a time of AIDS and economic crisis: a cross-sectional survey of caregivers in rural Zimbabwe. BMC Public Health 2006, 6:27. 10.1186/1471-2458-6-27, 1403763, 16469104.
15. Miller C, Gruskin S, Subramanian S, Heymann J. Emerging health disparities in Botswana: Examining the situation of AIDS orphans during the AIDS epidemic. Social Science & Medicine 2007, 64:2476-2486.
16. Mishra V, Arnold F, Otieno F, Cross A, Hong R. Education and nutritional status of orphans and children of HIV-infected parents in Kenya. AIDS Education & Prevention 2007, 9:383-395.
17. Cluver L, Gardner F, Operario D. Psychological distress amongst AIDS-orphaned children in urban South Africa. Journal of Child Psychiatry and Psychology 2007, 48:755-763.
18. Atwine B, Cantor-Braae E, Bajunirwe F. Psychological distress among AIDS orphans in rural Uganda. Social Science & Medicine 2005, 61:555-564.
19. Cluver L, Gardner F. The psychological well-being of children orphaned by AIDS in Cape Town, South Africa. Annals of General Psychiatry 2006, 5:8. 10.1186/1744-859X-5-8, 1557503, 16848910.
20. Makame V, Ani C, Grantham-McGregor S. Psychological well-being of orphans in Dar El Salaam, Tanzania. Acta Peadeiatrica 2002, 91:459-465.
21. Pelton J, Forehand R. Orphans of the AIDS epidemic: An examination of clinical level problems of children. Journal of the American Academy of Child and Adolescent Psychiatry 2005, 44:585-591. 10.1097/01.chi.0000157551.71831.57, 15908841.
22. Bhargava A. AIDS epidemic and the psychological well-being and school participation in Ethiopian orphans. Psychology, Health & Medicine 2005, 10:263-275.
23. Nyamukapa C, Gregson S, Lopman B, Saito S, Watts H, Monasche R, Jukes M. HIV-associated orphanhood and children's psychosocial distress: Theoretical framework tested with data from Zimbabwe. American Journal of Public Health 2008, 98:133-141. 10.2105/AJPH.2007.116038, 2156069, 18048777.
24. Segendo J, Nambi J. The psychological effect of orphanhood: A study of orphans in Rakai district. Health Transition Review 1997, (S7):105-124.
25. Thurman T, Brown L, Richter L, Maharaj P, Magnani R. Sexual risk behaviour among South African adolescents: Is orphan status a factor?. AIDS Behavior 2006, 10:627-635.
26. Sandelowski M. Whatever happened to qualitative description?. Research in Nursing and Health 2000, 23:334-340. 10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G, 10940958.
27. Jack SM. The utility of qualitative research findings in evidence-based public health practice. Public Health Nursing 2006, 23:278-284.
28. DiCicco-Bloom B, Crabtree BF. The qualitative research interview. Medical Education 2006, 40:314-321. 10.1111/j.1365-2929.2006.02418.x, 16573666.
29. Miles MB, Huberman AM. Qualitative data analysis 1994, Thousand Oaks, Sage.
30. Priest H, Roberts P, Woods L. An overview of three different approaches to the interpretation of qualitative data. Part 1: Theoretical issues. Nurse Researcher 2002, 10:30-42.
31. Krefting L. Rigour in qualitative research: The assessment of trustworthiness. American Journal of Occupational Therapy 1991, 45:214-222.
32. Alliance Uganda. , http://www.aidsalliance.org/linkingorganisationdetails.aspx?id=7
33. Bauman L, Siver E, Draimin B, Hudis J. Children of mothers with HIV/AIDS: Unmet mental health needs. Pediatrics 2007, 120:1141-1147.
34. Rotheram-Borus MJ, Stein J, Lin YY. Impact of parent death on an intervention on the adjustment of adolescents whose parents have HIV/AIDS. Journal of Consulting and Clinical Psychology 2001, 5:763-773.
35. Rotheram-Borus MJ, Weiss R, Alber S, Lester P. Adolescent adjustment before and after HIV-related parental death. Journal of Consulting and Clinical Psychology 2005, 73:221-228. 10.1037/0022-006X.73.2.221, 15796629.
36. Rotheram-Borus MJ, Lee M, Lin YY, Lester P. Six-year intervention outcomes for adolescent children of parents with the Human Immunodeficiency Virus. Archives of Pediatric and Adolescent Medicine 2004, 158:742-748.
37. Withell B. The prebereavement psychological needsof AIDS-affected adolescents in Uganda. International Journal of Palliative Nursing 2009, 15:128-133.
38. Murphy D, Greenwell L, Resell J, Brecht M, Schuster M. Early and middle adolescents' autonomy development: Impact of maternal HIV/AIDS. Clinical Child Psychology and Psychiatry 2008, 13:253-276. 10.1177/1359104507088346, 2366907, 18540228.
39. Parikh P, DeSilva M, Cakwe M, Quinlan T, Simon J, Scaliky A, Zhuwau T. Exploring the Cinderella myth: Intrahousehold differences in child wellbeing between orphans and non-orphans in Amajuba District, South Africa. AIDS 2007, 21(S7):S95-S103.
40. Floyd S, Crampin C, Glynn J, Madise N, Mwenebabu M, Mnkhondia S, Nguwira B, Zaba B, Fine P. The social and economic impact of parental HIV status on children in Northern Malawi: A retrospective population-based study. AIDS Care 2007, 19:781-790. 10.1080/09540120601163227, 17573599.
41. Timaeus I, Bohler T. Father figures: The progress at school of orphans in South Africa. AIDS 2007, 21(S7):S83-S93. 10.1097/01.aids.0000300539.35720.a0, 18040169.
42. Cluver L, Orkin M. Cumulative risk and AIDS-orphanhood: Interactions of stigma, bullying and poverty on child mental health in South Africa. Social Science & Medicine 2009, 69:1186-1193.
43. Cluver L, Gardner F, Operario. Effects of stigma on the mental health of adolescents orphaned by AIDS. Journal of Adolescent Health 2008, 42:410-417. 10.1016/j.jadohealth.2007.09.022, 18346667.