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Volumn 15, Issue , 2006, Pages 113-145

Reweaving a tapestry of care: Religion, nursing, and the meaning of hospice, 1945-1978

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EID: 77349085772     PISSN: 10628061     EISSN: None     Source Type: Journal    
DOI: 10.1891/1062-8061.15.113     Document Type: Article
Times cited : (14)

References (157)
  • 6
    • 0002252541 scopus 로고    scopus 로고
    • Originating a Movement: Cicely Saunders and the Development of St. Christopher's Hospice, 1957-1967
    • David Clark, "Originating a Movement: Cicely Saunders and the Development of St. Christopher's Hospice, 1957-1967," Mortality, 3, no. 1 (1998): 43-63.
    • (1998) Mortality , vol.3 , Issue.1 , pp. 43-63
    • Clark, D.1
  • 7
    • 84937341918 scopus 로고    scopus 로고
    • Waiting for the Last Summons: The Establishment of the First Hospices in England 1878-1914
    • Claire Humphreys, "Waiting for the Last Summons: The Establishment of the First Hospices in England 1878-1914," Mortality, 6, no. 2 (2001): 147.
    • (2001) Mortality , vol.6 , Issue.2 , pp. 147
    • Humphreys, C.1
  • 8
    • 84921431436 scopus 로고    scopus 로고
    • From Home to Hospital: Parallels in Birthing and Dying in Twentieth-Century Canada
    • Susan L. Smith and Dawn D. Nickel, " From Home to Hospital: Parallels in Birthing and Dying in Twentieth-Century Canada," Canadian Bulletin of Medical History, 16, no. 1 (1999): 49-64.
    • (1999) Canadian Bulletin of Medical History , vol.16 , Issue.1 , pp. 49-64
    • Smith, S.L.1    Nickel, D.D.2
  • 11
    • 77349103334 scopus 로고    scopus 로고
    • Waiting for the Last Summons
    • For additional information, see
    • For additional information, see Humphreys, "Waiting for the Last Summons," 146-165.
    • Humphreys1
  • 14
    • 0027589341 scopus 로고
    • Mother Mary Aikenhead, the Irish Sisters of Charity, and Our Lady's Hospice for the Dying
    • Derek Kerr, "Mother Mary Aikenhead, the Irish Sisters of Charity, and Our Lady's Hospice for the Dying," American Journal of Hospice & Palliative Care, 10, no. 3 (1993): 13-20.
    • (1993) American Journal of Hospice & Palliative Care , vol.10 , Issue.3 , pp. 13-20
    • Kerr, D.1
  • 15
    • 77349113028 scopus 로고    scopus 로고
    • Mother Mary Aikenhead
    • See and Stoddard, The Irish Sisters of Charity were a nineteenth-century religious order founded to care for the poor and terminally ill. Mother Mary Aikenhead, founder of the order, devoted her life to works of mercy with the poor Irish in Dublin. Roman Catholic archbishop Daniel Murray was a strong supporter of Mother Aikenhead's commitment to the "poorest of poor" and her ability to motivate others to work for the cause. In 1816, he secured papal approval for a new congregation and the Irish Sisters of Charity, an institution of women called to serve the poor and terminally ill was born
    • See Kerr, "Mother Mary Aikenhead," and Stoddard, The Hospice Movement, 87. The Irish Sisters of Charity were a nineteenth-century religious order founded to care for the poor and terminally ill. Mother Mary Aikenhead, founder of the order, devoted her life to works of mercy with the poor Irish in Dublin. Roman Catholic archbishop Daniel Murray was a strong supporter of Mother Aikenhead's commitment to the "poorest of poor" and her ability to motivate others to work for the cause. In 1816, he secured papal approval for a new congregation and the Irish Sisters of Charity, an institution of women called to serve the poor and terminally ill was born.
    • The Hospice Movement , pp. 87
    • Kerr1
  • 20
    • 77349103334 scopus 로고    scopus 로고
    • The rules also disallowed the sisters from entering hospitals or homes of "heretics" unless there was hope of conversion to Catholicism
    • Humphreys, "Waiting for the Last Summons," 159. The rules also disallowed the sisters from entering hospitals or homes of "heretics" unless there was hope of conversion to Catholicism.
    • Waiting for the Last Summons , pp. 159
    • Humphreys1
  • 22
    • 0002128580 scopus 로고
    • Foreword
    • Derek Doyle, Geoffrey W.C. Hanks, and Neil MacDonald, eds., (London: Oxford University Press)
    • Cicely Saunders, "Foreword," in Derek Doyle, Geoffrey W.C. Hanks, and Neil MacDonald, eds., Oxford Textbook of Palliative Medicine (London: Oxford University Press, 1993), v-viii.
    • (1993) Oxford Textbook of Palliative Medicine , pp. 5-8
    • Saunders, C.1
  • 23
    • 77349123667 scopus 로고    scopus 로고
    • Note
    • Humphreys attributes these distinctions to middle-and upper-class morality during the Victorian Era. There were clear distinctions made between poverty and pauperism and the respectable and nonrespectable poor. It was believed that the nonworking or undeserving poor should be cared for in workhouse infirmaries. The conditions in these institutions were deliberately harsh to serve as a deterrent for reliance on them. The stigma of pauperism was used as a social tool to reduce it.
  • 25
    • 77349102604 scopus 로고    scopus 로고
    • Methodist theology and the Protestant ethic of dying was in contrast to a traditional Catholic death. Catholic deathbed rituals were intended to prepare believers for death and served as a bridge between life on earth and life in heaven. To the Methodists, dying was part of living, and as such, Protestants could achieve a good death by the art of holy living. See PhD dissertation, University of California at Berkeley
    • Methodist theology and the Protestant ethic of dying was in contrast to a traditional Catholic death. Catholic deathbed rituals were intended to prepare believers for death and served as a bridge between life on earth and life in heaven. To the Methodists, dying was part of living, and as such, Protestants could achieve a good death by the art of holy living. See Shai Lavi, "The Modern Art of Dying: The History of Euthanasia in America," PhD dissertation, University of California at Berkeley, 2001.
    • (2001) The Modern Art of Dying: The History of Euthanasia in America
    • Lavi, S.1
  • 32
    • 77349112079 scopus 로고
    • (New York: The Servants of Relief for Incurable Cancer)
    • Sister Mary Joseph, Out of Many Hearts (New York: The Servants of Relief for Incurable Cancer, 1981), 22.
    • (1981) Out of Many Hearts , pp. 22
    • Joseph, S.M.1
  • 33
    • 77349126192 scopus 로고    scopus 로고
    • Note
    • Hawthorne and Huber received permission from the Dominicans to form a religious community. Rose took the religious name SisterMary Alphonsa and Alice became Sister Mary Rose. On December 8, 1900, they professed vows as members of their new community, the Dominican Sisters, Congregation of St. Rose of Lima.
  • 35
    • 0038400071 scopus 로고
    • The "quest for cure" and use of experimental treatments and surgeries in terminally ill cancer patients was of concern to Lathrop and other reformers during the early twentieth century. See, for example, (New York: Ferris Printing Company)
    • The "quest for cure" and use of experimental treatments and surgeries in terminally ill cancer patients was of concern to Lathrop and other reformers during the early twentieth century. See, for example, Richard Cabot and Russell Dicks, The Art of Ministering to the Sick (New York: Ferris Printing Company, 1936).
    • (1936) The Art of Ministering to the Sick
    • Cabot, R.1    Dicks, R.2
  • 36
    • 77349103548 scopus 로고    scopus 로고
    • Note
    • The authors discussed problems associated with care for the sick and dying in research and teaching hospitals. They listed common patient complaints about physicians and nurses, including the tendency of physicians to focus too much on research and teaching rather than on the patient.
  • 40
    • 77349087224 scopus 로고    scopus 로고
    • These words were written in a letter to James Walsh, MD, PhD, a benefactor, supporter, and historian of nursing
    • Burton, Sorrow Built a Bridge, 253. These words were written in a letter to James Walsh, MD, PhD, a benefactor, supporter, and historian of nursing.
    • Sorrow Built a Bridge , pp. 253
    • Burton1
  • 41
    • 77349121110 scopus 로고    scopus 로고
    • Note
    • The window remains at the entrance of St. Christopher's. Tasma's story has been repeated frequently in books and articles about Saunders and St. Christopher's. The author was told the story by Saunders in person, while looking through the window in May 2003.
  • 42
    • 0011885412 scopus 로고    scopus 로고
    • Brompton's Cocktail was developed in 1896 when a surgeon, Herbert Snow, demonstrated that a combination of morphine and cocaine could relieve pain in cancer patients. This concoction was introduced in the early 1930s at St. Luke's, as was aroundthe-clock dosing. Although there was considerable interest in the mixture in the 1960s and 1970s, physician Robert Twycross asserts it has no place in modern palliative medicine, despite the almost cult-like following who believe in the mixture as a panacea for cancer pain. Although the formulations vary, Brompton's Cocktail typically contains 15 mg morphine hydrochloride and 10 mg cocaine hydrochloride per 10 ml of the cocktail. For more information about early hospice symptom-management guidelines, see
    • Brompton's Cocktail was developed in 1896 when a surgeon, Herbert Snow, demonstrated that a combination of morphine and cocaine could relieve pain in cancer patients. This concoction was introduced in the early 1930s at St. Luke's, as was aroundthe-clock dosing. Although there was considerable interest in the mixture in the 1960s and 1970s, physician Robert Twycross asserts it has no place in modern palliative medicine, despite the almost cult-like following who believe in the mixture as a panacea for cancer pain. Although the formulations vary, Brompton's Cocktail typically contains 15 mg morphine hydrochloride and 10 mg cocaine hydrochloride per 10 ml of the cocktail. For more information about early hospice symptom-management guidelines, see Stoddard, The Hospice Movement, 292-305.
    • The Hospice Movement , pp. 292-305
    • Stoddard1
  • 43
    • 0018794156 scopus 로고
    • The BromptonMixture VersusMorphine Solution GivenOrally: Effects on Pain
    • For more information, see
    • For more information, see Ronald Melzack, Balfour Mount, and J.M. Gordon, "The BromptonMixture VersusMorphine Solution GivenOrally: Effects on Pain," Canadian Medical Association Journal, 120 (1979): 435-8.
    • (1979) Canadian Medical Association Journal , vol.120 , pp. 435-438
    • Melzack, R.1    Mount, B.2    Gordon, J.M.3
  • 47
    • 0033291895 scopus 로고    scopus 로고
    • Origins: International Perspectives Then and Now
    • 3. Both Clark and du Boulay detail this era of Saunders's life in some detail
    • Cicely Saunders, "Origins: International Perspectives Then and Now," Hospice Journal, 14, no. 3/4 (1999): 3. Both Clark and du Boulay detail this era of Saunders's life in some detail.
    • (1999) Hospice Journal , vol.14 , Issue.3-4
    • Saunders, C.1
  • 48
  • 49
    • 77349101691 scopus 로고    scopus 로고
    • Note
    • There is little documentation of Saunders's research methods or statistical analysis. She often cited anecdotal evidence, patients' stories, and, beginning in 1960, pictures of patients as evidence, which raises questions about the limitations of her research.
  • 50
    • 0017609078 scopus 로고
    • Choice of Analygesic in Terminal Cancer Care: Morphine or Diamorphine?
    • Saunders, although prolific in her writing and a propagandist for palliative care, spent more time focusing on patient care, fund-raising, and administrative duties at St. Christopher's. Two of the researchers who have played prominent roles in palliative-care research are Robert Twycross and Balfour Mount. In fact, Saunders preferred the use of diamorphine instead of morphine for management of cancer pain. When the actual effectiveness was studied by Twycross, however, there was no clinically observable difference between the two drugs given orally with adjuvant treatment. See
    • Saunders, although prolific in her writing and a propagandist for palliative care, spent more time focusing on patient care, fund-raising, and administrative duties at St. Christopher's. Two of the researchers who have played prominent roles in palliative-care research are Robert Twycross and Balfour Mount. In fact, Saunders preferred the use of diamorphine instead of morphine for management of cancer pain. When the actual effectiveness was studied by Twycross, however, there was no clinically observable difference between the two drugs given orally with adjuvant treatment. See Robert Twycross, "Choice of Analygesic in Terminal Cancer Care: Morphine or Diamorphine?" Pain 3 (1977): 93-104.
    • (1977) Pain , vol.3 , pp. 93-104
    • Twycross, R.1
  • 51
    • 77349086742 scopus 로고    scopus 로고
    • Although in Saunders's earlier writings she speaks of the compassion that the Sisters of Charity had for patients, in later descriptions she states that they were more concerned for patients' souls
    • Saunders, "The Treatment of Intractable Pain," 195. Although in Saunders's earlier writings she speaks of the compassion that the Sisters of Charity had for patients, in later descriptions she states that they were more concerned for patients' souls.
    • The Treatment of Intractable Pain , pp. 195
    • Saunders1
  • 53
    • 2542463669 scopus 로고
    • The Challenges of Terminal Care
    • Thomas Symington and R. L. Carter, eds., (London: Heinemann Medical Books)
    • Cicely Saunders, "The Challenges of Terminal Care," in Thomas Symington and R. L. Carter, eds., Scientific Foundations of Oncology (London: Heinemann Medical Books, 1976), 673-9.
    • (1976) Scientific Foundations of Oncology , pp. 673-679
    • Saunders, C.1
  • 55
    • 77349098156 scopus 로고    scopus 로고
    • Saunders contacted various experts in cancer care, including Dr. Robert Loberfield of the New York City Cancer Committee, Professor W. Bean of the University of Iowa, and Dr. JohnHeller of the U.S. National Cancer Institute. See, for more documentation of her correspondence with American scholars
    • Saunders contacted various experts in cancer care, including Dr. Robert Loberfield of the New York City Cancer Committee, Professor W. Bean of the University of Iowa, and Dr. JohnHeller of the U.S. National Cancer Institute. See Clark, Cicely Saunders: Selected Letters, for more documentation of her correspondence with American scholars.
    • Cicely Saunders: Selected Letters
    • Clark1
  • 56
    • 77349107043 scopus 로고    scopus 로고
    • Dame Cicely Saunders Papers, Hospice History Project, Sheffield, England, box 57, folder 2/1/92, 1 (hereinafter CSHHP). Clark reports that Saunders went through a lot of trouble to develop this report and was somewhat pessimistic about how many people would want copies. She was surprised to be contacted by so many people for copies that she ran out of them
    • Cicely Saunders, "Report of Tour in the United States of America, Spring 1963," Dame Cicely Saunders Papers, Hospice History Project, Sheffield, England, box 57, folder 2/1/92, 1 (hereinafter CSHHP). Clark reports that Saunders went through a lot of trouble to develop this report and was somewhat pessimistic about how many people would want copies. She was surprised to be contacted by so many people for copies that she ran out of them.
    • Report of Tour in the United States of America, Spring 1963
    • Saunders, C.1
  • 57
    • 84946996587 scopus 로고    scopus 로고
    • There were many people she met who did not receive a copy of the report. Quite a few people requested copies of the report. In response to their queries, Saunders explained that she had sent reports to those who had given her money. It is also interesting to note that Saunders was cautioned to downplay the role of religion in hospice, although for her it was the basis of her work
    • Saunders, "Report," 2. There were many people she met who did not receive a copy of the report. Quite a few people requested copies of the report. In response to their queries, Saunders explained that she had sent reports to those who had given her money. It is also interesting to note that Saunders was cautioned to downplay the role of religion in hospice, although for her it was the basis of her work.
    • Report , pp. 2
    • Saunders1
  • 58
    • 77349099150 scopus 로고    scopus 로고
    • Note
    • Other homes are in Philadelphia; Atlanta; Fall River, Massachusetts; St. Paul, Minnesota; and Parma, Ohio. To date, these homes have cared for some 92,000 patients of all creeds and races over the years - all of it free. To this day, the sisters do not accept contributions from patients or families, nor do they take government funding or insurance payments. Bills are paid from an endowment fund, investments, and public and private donations.
  • 61
    • 77349102143 scopus 로고    scopus 로고
    • Note
    • There were quite a few institutions in the United States, predominantly operated by religious and philanthropic groups. For example, Calvary Hospital in New York City and Youville Hospital in Cambridge, Massachusetts, were facilities dedicated solely to the care of terminally ill patients.
  • 62
    • 77349090558 scopus 로고    scopus 로고
    • Note
    • Saunders uses the word "trained" in her report. There were differences in nursing education in theUnited States and the UK. Saunders expressed some concern about nursing education and the move toward professionalism.
  • 63
    • 77349089057 scopus 로고    scopus 로고
    • Physicians, Nurses, and Patients
    • This finding is substantiated, at least to some degree, by a study done by Yale-New Haven Hospital by sociologist August Hollingshead and pediatrician Ray Duff, funded by the USPHS Division of Nursing. Based on observations of nurses working with patients, they noted there were discrepancies in the nursing staff's knowledge of patient diagnosis and treatment and their understanding of patients' emotional problems. See Raymond S. Duff and August B. Hollingshead, eds., (New York: Harper and Row)
    • This finding is substantiated, at least to some degree, by a study done by Yale-New Haven Hospital by sociologist August Hollingshead and pediatrician Ray Duff, funded by the USPHS Division of Nursing. Based on observations of nurses working with patients, they noted there were discrepancies in the nursing staff's knowledge of patient diagnosis and treatment and their understanding of patients' emotional problems. See Duff and Hollingshead, "Physicians, Nurses, and Patients," in Raymond S. Duff and August B. Hollingshead, eds., Sickness and Society (New York: Harper and Row, 1968), 217-47.
    • (1968) Sickness and Society , pp. 217-247
    • Duff1    Hollingshead2
  • 66
    • 77349105202 scopus 로고    scopus 로고
    • Note
    • This observation reflects the transition of nursing education fromtraining schools to the university. It also reflects the quality of the schools she visited.
  • 68
    • 77349124332 scopus 로고    scopus 로고
    • Note
    • This finding reflects the influence of the psychiatric/mental health nursing movement that was flourishing at Yale at this time.Wald trained withHildegarde Peplau atRutgers prior to returning to Yale to creating an MS program in mental health psychiatric nursing in the late 1950s.
  • 69
    • 77349090557 scopus 로고    scopus 로고
    • Note
    • Saunders was referring to Jeanne Quint's [Benoliel] seminal research on nursing education and care of the dying, Phyllis Verhonick's research on decubitus ulcer care and problem solving, and Harriet Werley's work on the development of nursing research.
  • 71
    • 77349126977 scopus 로고
    • Autobiographical Reflections
    • Saunders was particularly impressed with the work of existentialist philosophertheologians Paul Tillich andMartin Buber. For Tillich, see, for example, CharlesW. Kegley, ed., (New York: Pilgrim Press)
    • Saunders was particularly impressed with the work of existentialist philosophertheologians Paul Tillich andMartin Buber. For Tillich, see, for example, "Autobiographical Reflections," in CharlesW. Kegley, ed., The Theology of Paul Tillich: A Revised and Updated Classic (New York: Pilgrim Press, 1982)
    • (1982) The Theology of Paul Tillich: A Revised and Updated Classic
  • 72
    • 84861371880 scopus 로고
    • Being and Love
    • Ruth Nanda Anshen, ed., (New York: Harper and Brothers)
    • "Being and Love," in Ruth Nanda Anshen, ed., Moral Principles of Action (New York: Harper and Brothers, 1952).
    • (1952) Moral Principles of Action
  • 73
    • 77349093674 scopus 로고    scopus 로고
    • Bibliography of the Publications of Paul Tillich
    • Kegley
    • Jack Mouw and Robert P. Scharlemann, "Bibliography of the Publications of Paul Tillich," in Kegley, The Theology of Paul Tillich, 395-423.
    • The Theology of Paul Tillich , pp. 395-423
    • Mouw, J.1    Scharlemann, R.P.2
  • 74
    • 0003647421 scopus 로고    scopus 로고
    • Buber was a renowned scholar of Jewish tradition and literature. To Buber, the basis of religious faith was the relation between man and God, the relation to the eternal Thou. Within the I-Thou relationship, any statement made about God also reflected the nature of man. For example, see (Syracuse, NY: Syracuse University Press)
    • Buber was a renowned scholar of Jewish tradition and literature. To Buber, the basis of religious faith was the relation between man and God, the relation to the eternal Thou. Within the I-Thou relationship, any statement made about God also reflected the nature of man. For example, seeMartin Buber and Judith Buber-Agassi,Martin Buber on Psychology and Psychotherapy: Essays, Letters and Dialogue (Syracuse, NY: Syracuse University Press, 1999).
    • (1999) Martin Buber on Psychology and Psychotherapy: Essays, Letters and Dialogue
    • Buber, M.1    Buber-Agassi, J.2
  • 75
    • 77349122675 scopus 로고    scopus 로고
    • Note
    • Florence Wald, interview with the author, tape recording, July 21, 2001, Branford, Connecticut
  • 76
    • 77349096309 scopus 로고
    • Wald has recently won awards for lifetime achievements in hospice/palliative care from the Hospice and Palliative Nurses Association and the American Academy of Hospice and Palliative Physicians and was named a living legend by the Academy of Nursing. U.S. Senate, 98th Congress, first sess., September 15, 1983 (Washington, DC: U.S. Government Printing Office). Senator Durenberger, chair of the committee, gave the recognition to Wald during a committee hearing on the hospice Medicare benefit
    • Wald has recently won awards for lifetime achievements in hospice/palliative care from the Hospice and Palliative Nurses Association and the American Academy of Hospice and Palliative Physicians and was named a living legend by the Academy ofNursing. "Medicare Hospice Regulations" hearing before Subcommittee on Health of the Committee on Finance, U.S. Senate, 98th Congress, first sess., September 15, 1983 (Washington, DC: U.S. Government Printing Office, 1984), 12-13. Senator Durenberger, chair of the committee, gave the recognition to Wald during a committee hearing on the hospice Medicare benefit.
    • (1984) "Medicare Hospice Regulations" hearing before Subcommittee on Health of the Committee on Finance , pp. 12-13
  • 77
    • 0013939196 scopus 로고
    • Emerging Nursing Practice
    • See
    • See Florence Wald, "Emerging Nursing Practice," American Journal of Public Health, 56, no. 8 (1966): 1252-60.
    • (1966) American Journal of Public Health , vol.56 , Issue.8 , pp. 1252-1260
    • Wald, F.1
  • 79
    • 0040478851 scopus 로고
    • Wald was not the only American nurse who was concerned about the type of care afforded terminally ill patients. Starting in the 1950s, articles in the nursing literature began calling for a new approach to care of the dying and changes in nursing education. The U.S. Public Health Service Division of Nursing funded several studies on institutional care of the dying. See, for example, (New York: Macmillan)
    • Wald was not the only American nurse who was concerned about the type of care afforded terminally ill patients. Starting in the 1950s, articles in the nursing literature began calling for a new approach to care of the dying and changes in nursing education. The U.S. Public Health Service Division of Nursing funded several studies on institutional care of the dying. See, for example, Jeanne Quint, The Nurse and the Dying Patient (New York: Macmillan, 1967).
    • (1967) The Nurse and the Dying Patient
    • Quint, J.1
  • 83
    • 0021011507 scopus 로고
    • Nursing Research on Death, Dying, & Terminal Illness: Development, Present State, & Prospects
    • See also
    • See also Jeanne Benoliel, "Nursing Research on Death, Dying, & Terminal Illness: Development, Present State, & Prospects," Annual Review of Nursing Research, 1 (1983): 101-30.
    • (1983) Annual Review of Nursing Research , vol.1 , pp. 101-130
    • Benoliel, J.1
  • 84
    • 77349122205 scopus 로고    scopus 로고
    • Note
    • Wald, interview, July 21, 2001
  • 87
    • 77349098156 scopus 로고    scopus 로고
    • Although some of Saunders's expenses were covered by travel grants, she was dependent on consultation fees to cover travel expenses and donations that were sent to support St. Christopher's. Issues about money appear quite often in correspondence with Wald and other Americans
    • Clark, Cicely Saunders: Selected Letters, 87. Although some of Saunders's expenses were covered by travel grants, she was dependent on consultation fees to cover travel expenses and donations that were sent to support St. Christopher's. Issues about money appear quite often in correspondence with Wald and other Americans.
    • Cicely Saunders: Selected Letters , pp. 87
    • Clark1
  • 88
    • 77349110805 scopus 로고    scopus 로고
    • Note
    • Both Saunders andWald wanted the visiting professorship to be longer than six weeks, but there was not enough money in the endowment to allow for this.
  • 89
    • 77349124333 scopus 로고    scopus 로고
    • Note
    • During Saunders's stay at Yale, she met with Dr. Elisabeth Kübler-Ross and Dr. Colin Murray Parkes. These two psychiatrists would play a significant role in the advancement of terminal-care reform.
  • 91
    • 0013854605 scopus 로고
    • Watch with Me
    • Wald, interview, July 21, 2001. Saunders was a prolific contributor to both medical and nursing literature during the 1960s, 1970s, and 1980s. Her philosophy was well received in nursing circles, less so in medical circles. See, for example
    • Wald, interview, July 21, 2001. Saunders was a prolific contributor to both medical and nursing literature during the 1960s, 1970s, and 1980s. Her philosophy was well received in nursing circles, less so in medical circles. See, for example, Cicely Saunders, "Watch with Me," Nursing Times, 61, no. 48 (1965): 1615-17.
    • (1965) Nursing Times , vol.61 , Issue.48 , pp. 1615-1617
    • Saunders, C.1
  • 92
    • 0012801633 scopus 로고
    • Care of the Dying
    • Cicely Saunders, "Care of the Dying," Nursing Times, 9 (1959): 960-1.
    • (1959) Nursing Times , vol.9 , pp. 960-961
    • Saunders, C.1
  • 95
    • 77349122440 scopus 로고    scopus 로고
    • Publications based on research funded by the Division include Quint
    • Publications based on research funded by the Division include Quint, The Nurse and the Dying Patient.
    • The Nurse and the Dying Patient
  • 100
    • 77349089057 scopus 로고    scopus 로고
    • Physicians, Nurses, and Patients
    • Duff and Hollingshead, eds
    • Duff and Hollingshead, "Physicians, Nurses, and Patients," in Duff and Hollingshead, eds., Sickness and Society, 217-47.
    • Sickness and Society , pp. 217-247
    • Duff1    Hollingshead2
  • 101
    • 77349088636 scopus 로고    scopus 로고
    • Note
    • Letter from Florence Wald to Cicely Saunders dated October 1968, CSHHP, box 58, folder 2/1/100.
  • 102
    • 77349089393 scopus 로고    scopus 로고
    • Note
    • Interdisciplinary Study, Research Record, 10-29-1970, 1, Florence and Henry Wald Papers, Manuscripts and Archives, Yale University (hereinafter FHWYU), box 24, folder 60.
  • 103
    • 77349110804 scopus 로고    scopus 로고
    • Note
    • Interdisciplinary Study, 2-5.Many of the nurses at St. Christopher's were Anglican nuns, and the Christian religious symbols incorporated into the structure are unmistakable, even if there was not overt discussion of a particular religious paradigm.Non-Christians might well interpret this differently than Saunders.
  • 104
    • 77349101421 scopus 로고    scopus 로고
    • Note
    • Interdisciplinary Study, 3
  • 105
    • 77349093166 scopus 로고    scopus 로고
    • Note
    • The differences in approach were immediately apparent to Dobihal, who served as director of the chaplaincy program at Yale-New Haven Hospital. Although he met with some success in changing the culture of the hospital, it was an uphill battle.
  • 106
    • 77349108483 scopus 로고
    • Progress Report: First Observation and Impressions of St. Christopher's Hospice
    • Edward Dobihal Papers, Manuscripts and Archives, Yale University, box 1, folder 14 (hereinafter EDYU)
    • Edward Dobihal, "Progress Report: First Observation and Impressions of St. Christopher's Hospice" (1970), 10, Edward Dobihal Papers, Manuscripts and Archives, Yale University, box 1, folder 14 (hereinafter EDYU).
    • (1970) , pp. 10
    • Dobihal, E.1
  • 109
    • 84906466143 scopus 로고    scopus 로고
    • July 21
    • Wald, interview, July 21, 2001.
    • (2001) interview
    • Wald1
  • 110
    • 0014655172 scopus 로고
    • Development of an Interdisciplinary Team to Care for Dying Patients and Their Families
    • Edward Dobihal, interview with the author, July 20, 2001. See also
    • Edward Dobihal, interview with the author, July 20, 2001. See also Florence Wald, "Development of an Interdisciplinary Team to Care for Dying Patients and Their Families," ANA Clinical Conferences (1969): 47-55.
    • (1969) ANA Clinical Conferences , pp. 47-55
    • Wald, F.1
  • 111
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    • Terminal Care and Nursing Education
    • Florence Wald, "Terminal Care and Nursing Education," American Journal of Nursing, 67 (1979): 1762-4.
    • (1979) American Journal of Nursing , vol.67 , pp. 1762-1764
    • Wald, F.1
  • 112
    • 77349119495 scopus 로고    scopus 로고
    • Note
    • Steering Committee Minutes, 3/3/1971, FHWYU. Israel used social science frameworks and methods to create "meaningful communities." Her area of interest was small-group dynamics and social communication.
  • 113
    • 77349096058 scopus 로고    scopus 로고
    • Note
    • Steering Committee Minutes, 3.
  • 114
    • 77349098392 scopus 로고    scopus 로고
    • Note
    • Steering Committee Minutes, 3.
  • 115
    • 77349115290 scopus 로고    scopus 로고
    • Note
    • Steering Committee Minutes, 1-5.
  • 116
    • 77349121735 scopus 로고    scopus 로고
    • Note
    • Steering Committee Minutes, 2. In this assertion, Saunders is similar to the approach taken to spiritual care at St. Luke's Hospice. In this context, Christianity was the unifying framework rather than any specific denominational orthodoxy.
  • 117
    • 77349088161 scopus 로고    scopus 로고
    • Note
    • Steering Committee Minutes, 5.
  • 118
    • 77349114565 scopus 로고    scopus 로고
    • Note
    • Steering Committee Minutes, 4-7.
  • 119
    • 77349091922 scopus 로고    scopus 로고
    • Note
    • St. Christopher's Hospice: Discussion Group on Religious Foundation 6, September 22, 1971, EDYU, box 1, folder 3, 1-12.
  • 120
    • 77349085434 scopus 로고    scopus 로고
    • Note
    • Hospice Planning Group Steering Committee Minutes, Philosophy Statement, April 7, 1971, EDYU, box 1, folder 5.
  • 121
    • 77349104434 scopus 로고
    • LSD and Heroin Found Helpful in Treatment of Terminally Ill
    • November. LSD is one of the major drugs making up the hallucinogen class
    • Lawrence Altman, "LSD and Heroin Found Helpful in Treatment of Terminally Ill," New York Times, November 13, 1971, 1. LSD is one of the major drugs making up the hallucinogen class.
    • (1971) New York Times , vol.13 , pp. 1
    • Altman, L.1
  • 122
    • 77349083363 scopus 로고    scopus 로고
    • For more information on hallucinogens see. The modern antidrugmovement or "war against drugs" officially began with the Nixon administration. For more on the history of the drug wars in the United States
    • For more information on hallucinogens see http://www.nida.nih.gov/Infofax/lsd.html. The modern antidrugmovement or "war against drugs" officially began with the Nixon administration. For more on the history of the drug wars in the United States.
  • 125
    • 77349115036 scopus 로고    scopus 로고
    • Note
    • These concerns were well founded. There was a significant antidrug sentiment during this time, and in some areas, criminal charges were brought against physicians who ordered narcotics for patients.
  • 126
    • 77349116485 scopus 로고
    • Letter to Mr. C. Pierce Taylor, Executive Director, Connecticut Hospital Planning Commission
    • EDYU, box 1, folder 3
    • Edward Dobihal, "Letter to Mr. C. Pierce Taylor, Executive Director, Connecticut Hospital Planning Commission" (1971), 1-3, EDYU, box 1, folder 3.
    • (1971) , pp. 1-3
    • Dobihal, E.1
  • 127
    • 77349121481 scopus 로고    scopus 로고
    • Note
    • Wald, interview, 2001. Dobihal, interview, 2001.
  • 129
    • 77349093165 scopus 로고    scopus 로고
    • Hospice, Inc., "To Honor All Life: A National Demonstration Center to Protect the Rights of the Terminally Ill," appendix D, 1-2, FHWYU, Series I, box 3, folder 23
    • Yo-Li Chan, "Thoughts," 2; Hospice, Inc., "To Honor All Life: A National Demonstration Center to Protect the Rights of the Terminally Ill," appendix D, 1-2, FHWYU, Series I, box 3, folder 23.
    • Thoughts , pp. 2
    • Chan, Y.-L.1
  • 130
    • 77349125716 scopus 로고    scopus 로고
    • Note
    • Wald, interview, 2001; Dobihal, interview, 2001
  • 131
    • 77349101200 scopus 로고    scopus 로고
    • Note
    • Hospice, Inc., "Hospice: A Vision," October 1973, 2, EDYU, box 1, folder 4.
  • 132
    • 77349092461 scopus 로고    scopus 로고
    • Note
    • Wald, interview, 2001; Dobihal, interview, 2001; Donna Diers, interview by author, tape recording, December 19, 2000, New Haven, Connecticut.
  • 136
    • 77349092931 scopus 로고    scopus 로고
    • Note
    • Hospice, Inc., Progress Report and Program Plan Regional Hospice Development Program, January 29, 1973, 10, FHWYU, box 22, folder 11.
  • 137
    • 77349100038 scopus 로고    scopus 로고
    • Note
    • Hospice, Inc., Progress Report, 10.
  • 141
    • 77349121237 scopus 로고    scopus 로고
    • Note
    • Kübler-Ross's work has been criticized by some for describing the grieving process as being linear. K̈ubler-Ross asserts, however, that the process is neither linear nor predictable. The stages were meant to provide a framework to help professionals and lay people normalize rather than pathologize death and grief.
  • 142
    • 77349096553 scopus 로고    scopus 로고
    • Note
    • The euthanasiamovement clearly had a more grassroots foundation and focused on the individual. The death-and-dying movement remained predominantly in the world of academia among philosophers, theologians, and psychologists.
  • 145
    • 77349127453 scopus 로고    scopus 로고
    • Note
    • Hospice, Inc., Annual Report to National Institutes of Health Contract No. N01-CN-55053, September 1, 1975, 55, EDYU, box 1, folder 4.
  • 146
    • 77349117644 scopus 로고    scopus 로고
    • For more on the development of hospice during this time frame, see
    • For more on the development of hospice during this time frame, see Buck, "Rights of Passage," 148-223.
    • Rights of Passage , pp. 148-223
    • Buck1
  • 147
    • 0346150293 scopus 로고    scopus 로고
    • Home Hospice Versus Home Health: Cooperation, Competition, and Co-optation
    • Joy Buck, "Home Hospice Versus Home Health: Cooperation, Competition, and Co-optation," Nursing History Review, 12 (2004): 25-46.
    • (2004) Nursing History Review , vol.12 , pp. 25-46
    • Buck, J.1
  • 148
    • 0018271856 scopus 로고
    • The Hospice Movement
    • February 18
    • "The Hospice Movement," Washington Post, February 18, 1978, A16.
    • (1978) Washington Post
  • 149
    • 77349083134 scopus 로고    scopus 로고
    • Note
    • Florence Wald, interview with author, December 18, 2000, New Haven, Connecticut.
  • 151
    • 0028825863 scopus 로고
    • A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients
    • SUPPORT Study Investigators
    • SUPPORT Study Investigators, "A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients," Journal of the American Medical Association, 274, no. 20 (1995): 1591-9.
    • (1995) Journal of the American Medical Association , vol.274 , Issue.20 , pp. 1591-1599
  • 152
    • 77349115363 scopus 로고    scopus 로고
    • Note
    • Last Acts, Means to a Better End
  • 153
    • 34247514609 scopus 로고    scopus 로고
    • The Sixties False Dawn: Awakenings, Movements, & Postmodern Decision Making
    • See for example, in Brian Balogh, ed., (University Park: Pennsylvania University Press)
    • See for example, Hugh Heclo, "The Sixties False Dawn: Awakenings, Movements, & Postmodern Decision Making," in Brian Balogh, ed., Integrating the Sixties: The Origins, Structure, and Legitimacy of Public Policy in a Turbulent Decade (University Park: Pennsylvania University Press, 1996).
    • (1996) Integrating the Sixties: The Origins, Structure, and Legitimacy of Public Policy in a Turbulent Decade
    • Heclo, H.1
  • 154
    • 77349089392 scopus 로고    scopus 로고
    • A Great Society and the Rise of Rights-Consciousness
    • (New York: Oxford University Press)
    • James T. Patterson, "A Great Society and the Rise of Rights-Consciousness," in Grand Expectations: The United States, 1945-1974 (New York: Oxford University Press, 1996), 562-93.
    • (1996) Grand Expectations: The United States, 1945-1974 , pp. 562-593
    • Patterson, J.T.1
  • 155
    • 85013589227 scopus 로고    scopus 로고
    • Challenging Authority, Seeking Community, & Empowerment in the New Left, Black Power, & Feminism
    • W.J. Rorabaugh, "Challenging Authority, Seeking Community, & Empowerment in the New Left, Black Power, & Feminism," in Balogh, Integrating the Sixties, 106-43.
    • Balogh, Integrating the Sixties , pp. 106-143
    • Rorabaugh, W.J.1
  • 156
    • 0018532969 scopus 로고
    • Terminal Care and Nursing Education
    • Florence Wald, "Terminal Care and Nursing Education," American Journal of Nursing, 67 (1979): 1762-4.
    • (1979) American Journal of Nursing , vol.67 , pp. 1762-1764
    • Wald, F.1


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