What "best practice" could be in Palliative Care: An analysis of statements on practice and ethics expressed by the main Health Organizations

BMC Palliative Care

Volumn 9, Issue , 2010, Pages

  Barazzetti, Gaia ^a,e   Borreani, Claudia ^b   Miccinesi, Guido ^c   Toscani, Franco ^d  

^a VITA SALUTE SAN RAFFAELE UNIVERSITY   (Italy)

^b NATIONAL CANCER INSTITUTE   (Italy)

^c Institute for Cancer Study and Prevention   (Italy)

^d Lino Maestroni Foundation Palliative Medicine Research Institute   (Italy)

^e UNIVERSITY OF LAUSANNE   (Switzerland)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; AUSTRALIA; CANADA; CLINICAL PRACTICE; CULTURAL ANTHROPOLOGY; FAMILY CENTERED CARE; HEALTH CARE ORGANIZATION; HEALTH CARE POLICY; HUMAN; MEDICAL ETHICS; MEDICAL STAFF; PALLIATIVE THERAPY; PATIENT CARE; PRACTICE GUIDELINE; PROFESSIONAL PRACTICE; TERMINAL CARE; UNITED KINGDOM; UNITED STATES;

EID: 77249174846     PISSN: None     EISSN: 1472684X     Source Type: Journal    
DOI: 10.1186/1472-684X-9-1     Document Type: Article

References (64)

1. Constructing death. The sociology of dying and bereavement. C Seale, Cambridge: Cambridge University Press 1998
2. Western attitudes towards death. P Ariès, Baltimore, M.D.: Hopkins University Press 1974
3. Between hope and acceptance: the medicalisation of dying. D Clark, BMJ 2002 324 7342 905 7 10.1136/bmj.324.7342.905 11950744
4. A good death. R Smith, BMJ 2000 320 129 130 10.1136/bmj.320.7228.129 10634711
5. Academy of Hospice Physicians's Position Statement on Access to Hospice and Palliative Care. IR Byock WB Forman M Appleton, Journal of Pain and Symptom Management 1996 11 2 69 70 10.1016/0885-3924(95)00154-9 8907136
6. Introduction. D Doyle GWC Hanks N MacDonald, Oxford Textbook of Palliative Medicine Oxford, New York, Tokyo: Oxford University Press, Doyle D, Hanks GWC, MacDonald N, 2 1998 3 8
7. Goals of hospice care. P Storey, Tex Med 1990 86 2 50 4 1689874
8. Care of the dying patient: the last hours or days of life. J Ellershaw C Ward, BMJ 2003 326 7379 30 4 10.1136/bmj.326.7379.30 12511460
9. Historical and social variants on the good death. T Walter, BMJ 2003 327 219 10.1136/bmj.327.7408.218
10. Narrativenuances on good and bad deaths: internists' tales from high-technology work places. MJ DelVecchio Good NM Gadmer P Ruopp M Lakoma AM Sullivan E Redinbaugh, Soc Sci Med 2004 58 5 939 53 10.1016/j.socscimed.2003.10. 043 14732607
11. Spiritual pain. C Saunders, J Palliat Care 1988 4 3 29 32 3183827
12. The good and bad perceptions of health professionals working in palliative care. JT Low S Payne, Eur J Cancer Care 1996 5 237 241 10.1111/j.1365-2354.1996.tb00241.x
13. Impact of witnessing death on hospice patients. SA Payne R Hillier A Langley-Evans T Roberts, Soc Sci Med 1996 43 12 1785 1794 10.1016/S0277-9536(96) 00077-9 8961421
14. Dignity in dying: a preliminary study of patients in the last three days of life. K Turner R Chyle, Journal of Palliative Care 1996 12 7 13 8708856
15. Quality end-of-life care: patients' perspectives. PA Singer DK Martin M Kelner, JAMA 1999 2 2 163 8 10.1001/jama.281.2.163 (Pubitemid 29045349)
16. Patient centered death. J Clark, BMJ 2003 327 174 10.1136/bmj.327.7408. 174 12881232
17. What is a good death? Minority and non-minority perspectives. E Tong SA McGraw E Dobihal R Baggish E Cherlin EH Bradley, J Palliat Care 2003 19 3 168 75 14606328
18. Can clinical interventions change care at the end of life? LC Hanson JA Tulsky M Danis, Ann Intern Med 1997 126 5 381 8 9054283
19. Perceptions of a "Good" death: a comparative study of the views of hospice staff and patients. SA Payne A Langley-Evans R Hillier, Palliative Medicine 1996 10 307 312 10.1177/026921639601000406 8931066
20. Euthanasia in palliative care journals. MA Hermsen HA ten Have, J Pain Symptom Manage 2002 23 6 517 25 10.1016/S0885-3924(02)00401-3 12067776
21. Is there a place for active euthanasia in palliative care. J Lynn, et al. J Palliat Care 1988 4 1 and 2 99 121 11653876
22. Euthanasia and physician-assisted suicide: a view from an EAPC Ethics Task Force. LJ Materstvedt D Clark J Ellershaw R Forde AM Gravgaard HC Muller-Busch, Palliat Med 2003 17 2 97 101 discussion 102-79 10.1191/0269216303pm673oa 12701848
23. Promoting a good death: an agenda for outcomes research - a review of the literature. JM Mak M Clinton, Nurs Ethics 1999 6 2 97 106 10.1177/ 096973309900600202 10358525
24. Can a "good death" be made better? A preliminary evaluation of a patient-centred quality improvement strategy for severely ill in-patients. J Powis E Etchells DK Martin SK MacRae PA Singer, BMC Palliat Care 2004 3 1 2 10.1186/1472-684X-3-2 15154968
25. Validation of a new measure of concept of a good death. CE Schwartz K Mazor J Rogers Y Ma G Reed, J Palliat Med 2003 6 4 575 84 10.1089/ 109662103768253687 14516499
26. Factors considered important at the end of life by patients, family, physicians, and other care providers. KE Steinhauser NA Christakis EC Clipp M McNeilly L McIntyre JA Tulsky, JAMA 2000 284 19 2476 82 10.1001/jama.284.19.2476 11074777
27. A very good death: measuring quality of dying in endstage renal disease. LM Cohen DM Poppel GM Cohn GS Reiter, J Palliat Med 2001 4 2 167 72 10.1089/109662101750290209 11441625
28. The illusion of patient choice in end-of-life decisions. MD Sullivan, Am J Geriatr Psychiatry 2002 10 4 365 72 12095896
29. Adherence to advance directives in critical care decision making: vignette study. T Thompson R Barbour L Schwartz, BMJ 2003 327 1011 1017 10.1136/bmj.327.7422.1011 14593032
30. The good and bad death perceptions of health professionals working in palliative care. JT Low S Payne, Eur J Cancer Care 1996 5 4 237 41 10.1111/j.1365-2354.1996.tb00241.x
31. The institutionalization of the good death. B McNamara C Waddell M Colvin, Soc Sci Med 1994 39 11 1501 8 10.1016/0277-9536(94)90002-7 7529433
32. The Principles of Bioethics. HT Engelhardt Jr, Oxford: Oxford University press 1986
33. Life at the end of life: beliefs about individual life after death and "good death" models - a qualitative study. F Toscani P Boeri C Borreani G Miccinesi, Health Qual Life Outcomes 2003 1 1 65 10.1186/1477-7525-1- 65 14613557
34. In search of a good death: What is a good death? J Jones D Willis, BMJ 2003 327 7408 224 10.1136/bmj.327.7408.224 12881280
35. Awareness of dying: prevalence, cause and consequences. CF Seale JM Addington-Hall M McCarthy, Social Science & Medicine 1997 45 477 484 10.1016/S0277-9536(96)00379-6 (Pubitemid 27303566)
36. Spiritual issues in palliative care. P Speck, Oxford Textbook of palliative medicine Oxford, New York, Tokyo: Oxford Med Publ, Doyle D, Hanks GWC, MacDonald N, II 1998 810 814
37. Primary care providers' perceptions of care. M Keizer F Kozak J Scott, Journal of Palliative Care 1992 4 8 8 12
38. The good death, virtue and physician-assisted death: an examination of the hospice way of death. FG Miller, Cambridge Quarterly of Healthcare Ethics 1995 4 92 97 10.1017/S0963180100005703 7627373
39. Comparing the quality of death for hospice and non hospice cancer patients. K Wallston C Burger RA Smith RJ Baugher, Medical Care 1988 26 2 177 182 10.1097/00005650-198802000-00008 3339915
40. A Good Death. C McNeil, Journal of Palliative Care 1998 14 1 5 6 9575707
41. La Mort et l'Occident de 1300 nos Jours. M Vovelle, Paris: Gallimard 1983
42. The institutionalization of the good death. B Mc Namara C Waddell M Colvin, Soc Sci Med 1994 39 11 1501 1508 10.1016/0277-9536(94)90002-7 7529433
43. Pursuing a peaceful death. D Callahan, Hasting Center Report 1993
44. Facing death: images, insights and interventions. SL Bertman, Washington D.C: Hemisphere Publishing Corporation 1991
45. A Safer Death. A Gilmore S Gilmore, New York: Plenum Press 1987
46. Whose dying? A sociological critique of the "good death. B Hart P Sainsbury S Short, Mortality 1998 3 1 65 77 10.1080/713685884
47. Mourir dans la tendresse. CH Jomain, Paris: Le Centurion 1986 3567374
48. La mort provoque la culture. P Baudry, Mortality La mort et moi et nous Paris: Le Penser-Vivre Textuel, Augé M, 1995
49. A good death. Principles of palliative care are yet to be applied in acute hospital? M Brown, BMJ 2000 320 7243 1206 10.1136/bmj.320.7243.1206 10836824
50. Helping terminally ill clients experience a "good death. M Thobaben, Home Care Provid 2000 5 6 202 203 10.1067/mhc.2000.111863 11113780
51. A good death: a qualitative study of patients with advanced AIDS. CM Pierson JR Curtis DL Patrick, AIDS Care 2002 14 587 592 10.1080/ 0954012021000005416 12419108
52. Quality of life while dying: a qualitative study of terminally ill older men. EK Vig RA Pearlman, J Am Geriatr Soc 2003 51 1595 1601 10.1046/j.1532-5415. 2003.51505.x 14687389
53. Good and bad dying from the perspective of terminally ill man. EK Vig RA Pearlman, Arch Intern Med 2004 164 977 981 10.1001/archinte.164.9.977 15136306
54. Patient-focused, family-centered end-of-life medical care: views of the gudelines and bereaved family members. JM Teno VA Casey LC Welch S Edgman-Levitan, J Pain Symptom Manage 2001 22 738 751 10.1016/S0885-3924(01) 00335-9 11532587
55. Preparing for the end of life: preferences of patients, families, physicians, and other care providers. KE Steinhauser NA Christakis EC Clipp, J Pain Symptom Manage 2001 22 727 737 10.1016/S0885-3924(01)00334-7 11532586
56. The promise of a good death. EJ Emanuel LL Emanuel, Lancet 1998 351 II21 29 10.1016/S0140-6736(98)90329-4 9606363
57. Measuring and improving the quality of dying and death. DL Patrick RA Engelberg E Nielsen E McCown, Ann Intern Med 2003 139 717 726
58. Good deaths, bad deaths, and preferences for the end of life: a qualitative study on geriatric outpatients. EK Vig NA Davenport RA Pearlman, J Am Geriatr Soc 2002 50 1541 1548 10.1046/j.1532-5415.2002.50410.x 12383152
59. Moving toward peace: an analysis of the concept of a good death. KA Kehl, Am J Hospice Pall Med 2006 23 277 286 10.1177/1049909106290380 (Pubitemid 44358453)
60. In search of a good death: observations of patients, families, and providers. KE Steinhauser EC Clipp M McNelly, Ann Intern Med 2000 132 825 832 10819707
61. A good death: not just an abtract concept. G Gazelle, J Clin Oncol 2001 19 917 918 11157047
62. La "bonne mort": perceptions desprofessionnels de soins en Suisse romande. E Kabengele Mpinga P Chastonay F Pellissier, Recherche en Soins Infirmiers 2005 80 4 11 15861913
63. Evolution in measuring the quality of dying. KE Steinhauser EC Clipp JA Tulsky, J Palliat Med 2002 5 407 414 10.1089/109662102320135298 12133245
64. Evaluating the quality of dying and death. DL Patrick RA Engelberg JR Curtis, J Pain Symptom Manage 2001 22 717 726 10.1016/S0885-3924(01)00333-5 11532585