Narrative nuances on good and bad deaths: Internists' tales from high-technology work places

Social Science and Medicine

Volumn 58, Issue 5, 2004, Pages 939-953

  DelVecchio Good, Mary Jo ^a   Gadmer, Nina M ^b   Ruopp, Patricia ^a   Lakoma, Matthew ^b   Sullivan, Amy M ^b   Redinbaugh, Ellen ^c   Arnold, Robert M ^c   Block, Susan D ^b  

^a HARVARD MEDICAL SCHOOL   (United States)

^b BRIGHAM AND WOMEN S HOSPITAL   (United States)

^c UNIVERSITY OF PITTSBURGH MEDICAL CENTER   (United States)

Author keywords

Bad death; Culture of medicine; Good death; High technology medicine; Narrative analysis; Palliative care

Indexed keywords

HEALTH CARE;

CONFERENCE PAPER; DEATH; DYING; HUMAN; INTERNAL MEDICINE; INTERPERSONAL COMMUNICATION; MEDICAL CARE; MEDICAL TECHNOLOGY; PHYSICIAN; QUALITATIVE ANALYSIS; SOCIOLOGY; TECHNOLOGY; TREATMENT OUTCOME; UNITED STATES; WORKPLACE;

EID: 0345830580     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2003.10.043     Document Type: Conference Paper

References (52)

1. AMA Council on Ethical and Judicial Affairs (1992). Decisions near the end of life. Council Report. Journal of the American Medical Association, 267(16), 2229-2233.
2. American Board of Internal Medicine (1996). Caring for the dying: Identification and promotion of physician competencies. Philadelphia: American Board of Internal Medicine.
3. Asch D.A., Hansen-Flaschen J., Lanken P. Decisions to limit or continue life-sustaining treatment by critical care physicians in the united state. Conflicts between physicians' practices and patients' wishes American Journal of Respiratory and Critical Care Medicine. 151:1995;288-292.
4. ATLAS.ti® Release 4.2. Muhr, T. (1997-2000). Berlin: Scientific Software Development.
5. Billings J.A., Block S.D. Palliative care in undergraduate medical education. Status report and future directions Journal of the American Medical Association. 278:1997;733-738.
6. Block, S. (2001). Chaos and comfort: medicine's internal critique of end-of-life care in high-technology hospitals. Lecture to Harvard Medical School course, HST 930: Social Studies of Bioscience and Biotechnology, December 4.
7. Burt R. The Supreme Court speaks - not assisted suicide but a constitutional right to palliative care. New England Journal of Medicine. 337:1997;1234-1236.
8. Carver C.S. You want to measure coping but your protocol's too long. Consider the brief cope International Journal of Behavioral Medicine. 4(1):1997;92-100.
9. Center for Ethics in Health Care (1999). The Oregon report card: improving care of the dying. Portland, OR: OHSU.
10. Chappel, H. S (2001). Retrospective study of dying in the hospital. Presentation and abstract, American Anthropological Association meetings, December 2.
11. Christakis N. Death foretold. Prophecy and prognosis in medical care:1999;University of Chicago Press, Chicago.
12. Dunn F. Traditional Asian medicine and cosmopolitan medicine as adaptive systems. Leslie C. Asian medical systems. 1976;133-158 University of California Press, Los Angeles.
13. Field M.J., Cassel C.K. Approaching death. Improving care at the end of life:1997;National Academy Press, Washington, DC.
14. Gadmer, N., Ruopp, P. G., Arnold, R. M., Redinbaugh, E. M., McDonald, M. C., Seltzer, D. L., Good, M. J. D. V., & Block, S. D. (2000). Grief, gratitude and chaos: strangers at the death bed. Abstract and presentation for Society for General Internal Medicine, May.
15. Glaser B.G., Strauss A.L. Awareness of dying. 1965;Aldine, Chicago.
16. Glaser B.G., Strauss A.L. A Time for dying. 1968;Aldine, Chicago.
17. Good B.J. Medicine, rationality, and experience. An anthropological perspective:1994;Cambridge University Press, Cambridge, UK.
18. Good M.J.D.V. Cultural studies of biomedicine. An agenda for research Social Science & Medicine. 41(4):1995;461-473.
19. Good M.J.D.V. American medicine. The quest for competence: 1998;University of California Press, Los Angeles.
20. Horowitz M., Wilner N., Alvarez W. Impact of event scale. A measure of subjective stress Psychosomatic Medicine. 41:1979;209-218.
21. Jacobs S.C., Kasl S.V., Ostfeld A.M., Berkman L., Kosten T.R., Charpentier P. The measurement of grief. Bereaved versus non-bereaved Hospice Journal. 2(4):1986;21-36.
22. Johnson N., Cook D., Giacomini M., Willms D. Towards a "good" death. End-of-life narratives constructed in an intensive care unit Culture, Medicine and Psychiatry. 24(3):2000;275-295.
23. Jonsen A.R., Veatch R.M., Walters L. Source book in bioethics. A documentary history:1998;Georgetown University Press, Washington, DC.
24. Leslie C. Asian medical systems. A comparative study:1976;University of California Press, Los Angeles.
25. Leslie C., Young A. Paths to Asian medical knowledge. 1992;University of California Press, Los Angeles.
26. Lester D. The Collett-Lester fear of death scale. Neimeyer R.A. Death anxiety handbook: research, instrumentation, and application. 1994;Taylor & Francis, New York.
27. Lynn J. Unexpected returns-insight from SUPPORT. Isaacs S.L., Knickman J.R. To improve health and healthcare, 1997: The Robert Wood Johnson Foundation anthology. 1997;161-186 Jossey-Bass, San Francisco.
28. Lynn J., Harrell F. Jr., Cohn F., Wagner D., Connors A.F. Jr. Prognoses of seriously ill hospitalized patients on the days before death. Implications for patient care and public policy New Horizons. 5(1):1997;56-61.
29. MacLeod R.D. On reflection. Doctors learning to care for people who are dying Social Science & Medicine. 52:2001;1719-1727.
30. Maslach C., Jackson S.E., Leiter M.P. Maslach burnout inventory manual. 3rd ed. 1996;Consulting Psychologists Press, Palo Alto, CA.
31. Mattingly C. Healing dramas and clinical plots. The narrative structure of experience:1998;Cambridge University Press, Cambridge, UK; New York, NY, USA.
32. Mattingly C., Garro L.C. Narrative and the cultural construction of illness and healing. 2000;University of California Press, Berkeley.
33. Meier D.E., Back A.L., Morrison R.S. The inner life of physicians and care of the seriously ill. Journal of the American Medical Association. 286(23):2001;3007-3014.
34. Menikoff J.A., Sachs G.A., Siegler M. Beyond advance directives - health care surrogate laws. New England Journal of Medicine. 327(16):1992;1165-1169.
35. New York Times. (1996). High Court to say if the dying have a right to suicide help. Page A1, October 2.
36. New York Times. (1999a). Oregon considers challenge. Page A1, October 28.
37. New York Times. (1999b). Oregon chafes at measures to stop assisted suicides. Page A1, October 29.
38. Orentlicher D. The illusion of patient choice in end-of-life decisions. Journal of the American Medical Association. 267(15):1992;2101-2104.
39. Redinbaugh E.M., Sullivan A.M., Block S.D., Gadmer N.M., Lakoma M., Mitchell A.M., Seltzer D., Wolford J., Arnold R.M. Doctors' emotional reactions to recent death of a patient. Cross sectional study of hospital doctors British Medical Journal. 327:2003;185.
40. Ruopp, P. G. (2002). Medical school socialization for death and dying. Thesis for Doctorate in Education, Graduate School of Education, Harvard University, June.
41. Seale C.F. A comparison of hospice and conventional care. Social Science & Medicine. 32(2):1991;147-152.
42. Seale C.F. Theories in health care and research. Theories and studying the care of dying people British Medical Journal. 317(7171):1998;1518-1520.
43. Solomon M.Z. Innovations in end-of-life care. Improving quality by focusing on the process of change Journal of Palliative Medicine. 3(1):2000;111-114.
44. Solomon M.Z., O'Donnell L., Jennings B., Guilfoy V., Wolf S.M., Nolan K., Jackson R., Koch-Weser D., Donnelley S. Decisions near the end of life. Professional views on life-sustaining treatments American Journal of Public Health. 83:1993;14-23.
45. Sullivan A.M., Lakoma M., Block S.D. Medical education in end-of-life care. A national study Journal of General Internal Medicine. 18:2003;685-695.
46. SUPPORT Principal Investigators (1995). A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). Journal of the American Medical Association, 274, 1591-1598.
47. Teno J., Lynn J., Wenger N., Phillips R.S., Murphy D.P., Connors A.F. Jr., Desbiens N., Fulkerson W., Bellamy P., Knaus W.A. Advance directives for seriously ill hospitalized patients. Effectiveness with the patient self-determination act and the support intervention Journal of American Geriatrics. 45:1997;500-507. (for the SUPPORT Investigators).
48. Truog R.D. Is it time to abandon brain death? Hastings Center Report. 27(1):1997;29-37.
49. Weissman D.E., Block S.D. ACGME requirements for end-of-life training in selected residency and fellowship programs. A status report Academic Medicine. 77(4):2002;299-304.
50. Wolf S.M., Boyle P., Callahan D., Fins J.J., Jennings B., Nelson J.L., Barondess J.A., Brock D.W., Dresser R., Emanuel L. Sources of concern about the patient self-determination act. Special report. New England Journal of Medicine. 325(23):1991;1666-1671.
51. www. hospiceinfo.org/public/articles/benefit , copyright. (2000).
52. www.nhpco.org. (2001).