Maximizing community inclusion through mainstream communication services for adults with severe disabilities

International Journal of Speech-Language Pathology

Volumn 11, Issue 3, 2009, Pages 180-190

  Johnson, Hilary ^a,b   Douglas, Jacinta ^b   Bigby, Christine ^b   Iacono, Teresa ^b,c,d  

^a Scope Communication Resource Centre   (Australia)

^b LA TROBE UNIVERSITY   (Australia)

^c Centre for Developmental Disabilities Health Victoria   (Australia)

^d MONASH UNIVERSITY   (Australia)

Author keywords

Adults; Augmentative and Alternative Communication AAC; Complex communication needs

Indexed keywords

EID: 77149123960     PISSN: 17549515     EISSN: 17549507     Source Type: Journal    
DOI: 10.1080/17549500902825265     Document Type: Article

References (87)

1. Abbeduto, L., & Boudreau, D. (2004). Theoretical influences on research on language development and intervention in individuals with mental retardation. Mental Retardation and Developmental Disabilities Research Reviews, 10, 184-192.
2. Anderson, M. D., Sherman, J. A., Sheldon, J. B., & McAdam, D. (1997). Picture activity schedules and engagement of adults with mental retardation in a group home. Research in Developmental Disabilities, 18, 231-250.
3. Australian Institute of Health and Welfare (AIHW) (2003). Communication restrictions: The experience of people with a disability in the community. Canberra: AIHW.
4. Bartlett, C., & Bunning, K. (1997). The importance of communication partnerships: A study to investigate the communicative exchanges between staff and adults with learning disabilities. British Journal of Developmental Disabilities, 25, 148-158.
5. Bedrosian, J., & Prutting, C. A. (1978). Communicative performance of mentally retarded adults in four conversational settings. Journal of Speech and Hearing Research, 21, 79-95.
6. Beukelman, D., & Mirenda, P. (2005). Augmentative and Alternative Communication: Supporting children and adults with complex communication needs (3rd ed.). Baltimore, MD: Paul H. Brookes.
7. Bloom, Y., & Treloar, S. (1997). Let's talk together: The great ideas manual creating augmentative communication opportunities. Beecroft: Innovative Programming.
8. Bloom, Y., Walker, A., & Grant, D. (1999). Communication and collaboration: It won't happen overnight but it will happen. AGOSCI news, 42-47.
9. Bloomberg, K. (1996). PrAACtically speaking. Melbourne: Yooralla.
10. Bloomberg, K., & West, D. (1999). The Triple C-Checklist of Communication Competencies. Melbourne: Scope.
11. Bloomberg, K., West, D., & Iacono, T. A. (2003). PICTURE IT: An evaluation of a training program for carers of adults with severe and multiple disabilities. Journal of Intellectual & Developmental Disability, 28, 260-282.
12. Bloomberg, K., West, D., & Johnson, H. (2004). InterAACtion: Strategies for intentional and unintentional communicators. Box Hill: Scope.
13. Bogdan, R., & Taylor, S. (1998). The social construction of humanness: Relationships with people with severe retardation. In R. Bogdan, & S. Taylor (Eds.), Introduction to qualitative research methods: A guidebook and resource (pp. 242-258). Chichester: John Wiley & Sons.
14. Bradshaw, J. (1998). Assessing and intervening in the communication environment. British Journal of Learning Disabilities, 26, 62-66.
15. Bradshaw, J. (2001). Complexity of staff communication and reported level of understanding skills in adults with intellectual disability. Journal of Intellectual Disability Research, 45, 233-243.
16. Calculator, S. (1988). Exploring the language of adults with mental retardation. In S. Calculator, & J. Bedrosian (Eds.), Communication assessment and intervention for adults with mental retardation (pp. 95-106). San Diego, CA: College-Hill Press.
17. Cambridge, P., Carpenter, J., Beecham, J., Hallam, A., Knapp, M., Forrester-Jones, R., Wooff, D. Coolen-Schrijner, P. (2002). Twelve years on: the long-term outcomes and costs of deinstitutionalisation and community care for people with learning disabilities. Tizard Learning Disability Review, 7, 34-42.
18. Cascella, P. W. (2004). Receptive communication abilities among adults with significant intellectual disability. Journal of Intellectual and Developmental Disability, 29, 70-78.
19. Chambers, M., & Rehfeldt, R. A. (2003). Assessing the acquisition and generalization of two mand forms with adults with severe developmental disabilities. Research in Developmental Disabilities, 24, 265-280.
20. Chan, J., & Iacono, T. (2001). Gesture and word production in children with Down syndrome. Augmentative and Alternative Communication, 17, 73-87.
21. Coles, J. (2001). The social model of disability: What does it mean for practice in services for people with a learning disability. Disability and Society, 16, 501-510.
22. Coupe, J., & Goldbart, J. (Eds.). (1988). Communication before speech. London: Croom Helm.
23. Dennis, R. (2002). Nonverbal narratives: Listening to people with severe intellectual disability. Research and Practice for Persons with Severe Disabilities, 27, 239-249.
24. Department of Health. (2001). Valuing people: A new strategy for learning disability for the 21st century. Retrieved 16 July, 2008, from http://www.archive.official-documents.co.uk/document/cm50/5086/5086.htm
25. Department of Human Services. (2002). Victorian State Disability Plan 2002-2012. Melbourne: Disability Services, Department of Human Services.
26. Department of Human Services. (2006). Partnering for the future (draft). The Victorian Industry development plan-for the provision of support for people with a disability. Melbourne: KPMG.
27. Dobson, S., Upadhyaya, S., & Stanley, B. (2002). Using an interdisciplinary approach to training to develop the quality of communication with adults with profound learning disabilities by care staff. International Journal of Language and Communication Disorders, 37, 41-57.
28. Dowden, P. (2006). Continuum of communication independence. Retrieved 3 May, 2006, from http://depts.washington.edu/augcomm/03-cimodel/commind1-intro. htm
29. Duchan, J. F. (2003). The innermost thoughts of speech-language pathologists. Paper presented at the Speech Pathology Australia National Conference, Hobart, Tasmania.
30. Dunst, C. J. (1980). A clinical and educational manual for use with the Uzgiris and Hunt Scales of Infant Psychological Development. Austin, TX: Industrial Oaks Boulevard.
31. Fenwick, A. (1995). On attribution theory: Challenging behaviour and staff beliefs. Clinical Psychology Forum, 79, 29-31.
32. Frost, L. A., & Bondy, A. S. (1996). The Picture Exchange Communication System: Training Manual. Brighton: Pyramid Educational Consultants.
33. Gleason, J. J. (1993). The creation of meaning: what persons with severe or profound multiple developmental disabilities do in context. Australian and New Zealand Journal of Developmental Disabilities, 18, 157-167.
34. Granlund, M., & Olsson, C. (1993). Investigating communicative functions in profoundly retarded persons: A comparison of two methods of obtaining information about communicative behaviour. Mental Handicap Research, 6, 112-130.
35. Granlund, M., Björck-Åkesson, E., Brodin, J., & Olsson, C. (1995). Communication intervention for persons with profound disabilities: A Swedish perspective. Augmentative and Alternative Communication, 11, 49-59.
36. Granlund, M., Terneby, J., & Olsson, C. (1992). Creating communicative opportunities through a combined in-service training and supervision package. European Journal of Special Needs, 7, 229-252.
37. Gray, C. (2003). Social Stories TM10. Retrieved 25 June, 2008, from http://www.thegraycenter.org/store/index.cfm?fuseaction=page. display&page-id=30
38. Grove, N., & Walker, M. (1990). The Makaton Vocabulary: Using Manual signs and graphic symbols to develop interpersonal communication. Augmentative and Alternative Communication, 6, 15-28.
39. Hatton, C., Rose, J., & Rose, D. (2004). Researching staff. In E. Emerson, C. Hatton, T. Thompson, & T. R. Parmenter (Eds.), The international handbook of applied research in Intellectual Disabilities (pp. 581-605). Chichester: John Wiley & Sons.
40. Hodgdon, L. A. (1999). Solving behaviour problems in autism: Improving communication with visual strategies. Troy, MI: QuirkRoberts Publishing.
41. Hodgdon, L. A. (2000). Visual strategies for improving communication: Practical supports for school and communication. Troy, MI: QuirkRoberts Publishing.
42. Holbourn, S., & Vietze, P. M. (Eds.). (2002). Person-centered planning: Research, practice and future directions. Baltimore, MA: Paul H Brookes.
43. Horne, J. (2005). Changing communication interaction with clients with an intellectual disability. Paper presented at the AGOSCI conference Brisbane, Australia.
44. Hunt, P., Alwell, M., & Goetz, L. (1991). Interacting with peers through conversation turntaking with a communication book adaptation. Augmentative and Alternative Communication, 7, 117-126.
45. Iacono, T. (1999). Language intervention in early childhood. International Journal of Disability, Development and Education, 46, 383-420.
46. Iacono, T., Johnson, H., Humphreys, J., & McAllister, L. (2007). Recruitment of speech pathologists into positions considered less attractive. Advances in Speech-Language Pathology, 9, 204-212.
47. Johnson, H. (2004). Developing services for people with complex communication needs. ACQuiring Knowledge in Speech, Language and Hearing, 6, 162-163.
48. Johnson, H., Bloomberg, K., & Butler, P. (1999). Communication services in partnership: 80 clients in 40 days. AGOSCI news, 31-34.
49. Johnson, H., Bloomberg, K., & Iacono, T. (2008). Student and professional attitudes and interests in working with people with complex communication needs International Journal of Speech-Language Pathology, 10, 286-296.
50. Jones, S. E. (1990). INTECOM: A package designed to integrate carers into assessing and developing the communication skills of people with learning difficulties: Windsor: NFER-Nelson.
51. Kennedy, C. H., Horner, R. H., & Newton, S. (1990). The social networks and activity patterns of adults with severe disabilities: A correlational analysis. The Association for Persons with Severe Handicaps, 15, 86-90.
52. Kent-Walsh, J., & McNaughton, D. (2005). Communication partner instruction in AAC: Present practices and future directions. Augmentative and Alternative Communication, 21, 195-204.
53. Lecompt, J., & Mercier, C. (2007). The Montreal Declaration on Intellectual Disabilities of 2004: An important first step. Journal of Policy and Practice in Intellectual Disabilities, 4, 66-69.
54. Liddle, K. (2001). Implementing the Picture Exchange Communication System (PECS). International Journal of Language and Communication Disorders, 36(Supplement), 391-395.
55. Life's for Living. (2008). What I'd like you to know about me. Adelaide: Life's for Living.
56. Lobato, D., Barrera, R., & Feldman, R. (1981). Sensorimotor functioning and prelinguistic communication of severely and profoundly retarded individuals. American Journal of Mental Deficiency, 85, 489-496.
57. Maes, B., Lambrechts, G., Hostyn, I., & Petry, K. (2007). Quality-enhancing interventions for people with profound intellectual and multiple disabilities: A review of the empirical literature. Journal of Intellectual and Developmental Disability, 32, 163-178.
58. McConkey, R., Morris, I., & Purcell, M. (1999). Communications between staff and adults with intellectual disabilities in naturally occuring settings. Journal of Intellectual and Disability Research, 43, 194-205.
59. McConkey, R., Purcell, M., & Morris, I. (1999). Staff perceptions of communication with a partner who is intellectually disabled. BILD, 12, 204-210.
60. McLean, L. K., & McLean, J. E. (1993). Communication intervention for adults with severe mental retardation. Topics in Language Disorders, 13, 47-60.
61. McLean, L. K., Brady, N. C., & McLean, J. E. (1996). Reported communication abilities of individuals with severe mental retardation. American Journal of Mental Retardation, 100, 580-589.
62. McLeod, H., Houston, M., & Seyfort, B. (1996). Communicative interactive skills training for caregivers of nonspeaking adults with severe disabilities. International Journal of Practical Approaches to Disability, 19, 5-11.
63. Millar, S., & Aitken, S. (2003). Personal communication passports - Guidelines for good practice. Edinburgh: CALL Centre.
64. Nigam, R., Schlosser, R., & Lloyd, L. (2006). Concomitant use of the matrix strategy and the mand-model procedure in teaching graphic symbol combinations. Augmentative and Alternative Communication, 22, 160-177.
65. O'Brien, J. (1989). What's worth working for? Leadership for better quality human services Retrieved 18 November, 2008, from http://thechp.syr.edu/ whatsw.pdf.
66. O'Halloran, R., & Larkins, B. (2008). The ICF Activities and Participation related to speech-language pathology. International Journal of Speech-Language Pathology, 10, 18-26.
67. Purcell, M., McConkey, R., & Morris, I. (2000). Staff communication with people with intellectual disabilities: the impact of a work-based training programme. International Journal of Language and Communication Disorders, 35, 147-158.
68. Purcell, M., Morris, I., & McConkey, R. (1999). Staff perceptions of the communicative competence of adult persons with intellectual disabilities. British Journal of Developmental Disabilities, 45, 16-25.
69. Robertson, J., Emerson, E., Gregory, N., Hatton, C., Kessissoglou, S., Hallam, A., & Linehan, C. (2001). Social networks of people with mental retardation in residential settings. Mental Retardation, 39, 201-214.
70. Romski, M. A., Sevcik, R. A., & Rumbaugh, D. (1985). Retention of symbolic communication skills by severely mentally retarded persons. American Journal of Mental Deficiency, 89, 441-444.
71. Romski, M. A., Sevcik, R. A., Hyatt, A. M., & Cheslock, M. (2002). A continuum of AAC language intervention strategies for beginning communicators. In J. Reichle, D. Beukelman, & J. C. Light (Eds.), Exemplary practices for beginning communicators: Implications for AAC (pp. 1-23). Baltimore, MD: Paul H. Brookes.
72. Romski, M. A., White, R. A., Millen, C. E., & Rumbaugh, D. (1984). Effects of computer keyboard teaching on the symbolic communication of severely retarded persons: Five case studies. The Psychological Record, 34, 39-54.
73. Rowland, C., Schweigart, P., & Dorinson, A. (2001). Communicating with individuals who use alternative communication systems. Portland, OR: Oregon Health Sciences University.
74. Simeonsson, R. J., Granlund, M., & Bjorck-Akesson, E. (2006). The concept and classification of mental retardation. In H. N. Switzky, & S. Greenspan (Eds.), What is mental retardation?: Ideas for an evolving disability in the 21st century (pp. 247-282). Washington, DC: American Association on Mental Retardation.
75. Smidt, A., Balandin, S., Reed, V., & Sigafoos, J. (2007). A communication training programme for residential staff working with adults with challenging behaviour: Pilot data on intervention effects. Journal of Applied Research in Intellectual Disabilities, 20, 16-29.
76. United Nations. (2006). the Convention on the Rights of Persons with Disabilities Retrieved 16 July, 2008, from http://www.un.org/esa/socdev/enable/ rights/convtexte.htm
77. University of Newcastle. (2008). Welcome to the Makaton website. Retrieved 19 June, 2008, from http://www.newcastle.edu.au/centre/sed/makaton/
78. van der Gaag, A. (1988). Communication Assessment Profile. London: Speech Profiles Ltd.
79. van der Gaag, A. (1989). The view from Walter's window: Social environment and the communicative competence of adults with a mental handicap. Journal of Mental Deficiency Research, 33, 221-227.
80. van der Gaag, A. (1998). Communication skills and adults with learning disabilities: Eliminating professional myopia. British Journal of Learning Disabilities, 26, 88-93.
81. Victorian State Government. (2006). Disability Act 2006 (Vol. Part 2 s.6).
82. von Tetzchner, S., & Martinsen, H. (2000). Introduction to augmentative and alternative communication (2nd ed.). London: Whurr.
83. Wen, X. (1997). Definition and prevalence of intellectual disability in Australia. Canberra: Australian Institute of Health and Welfare.
84. World Health Organization (WHO). (2001). ICF: International Classification of Functioning, Disability and Health. Geneva: WHO.
85. World Health Organization. (2006). International Classification of Functioning, Disability and Health (ICF). Retrieved 24 October, 2006, from http://www.who.int/classifications/icf/en/
86. Young, L., Sigafoos, J., Suttie, J., Ashman, A., & Grevell, P. (1998). Deinstitutionalisation of persons with intellectual disabilities: A review of Australian studies. Journal of Intellectual and Developmental Disability, 23, 155-170.
87. Zilber, D., Shaddock, A., Dowse, L., Rawlings, M., Guggenheimer, S., & Browne, F. (1994). Communication patterns in services for people with severe intellectual disabilities: Function, form and responsiveness. Australian Journal of Communication Disorders, 22, 85-98.