Go figure! Public pedagogies, invisible impairments and the performative paradoxes of visibility as veracity

International Journal of Inclusive Education

Volumn 13, Issue 7, 2009, Pages 677-698

  Roman, Leslie G ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

Invisible impairment; Invisible impairments; Media campaigns; Public pedagogy

Indexed keywords

EID: 76649132346     PISSN: 13603116     EISSN: 14645173     Source Type: Journal    
DOI: 10.1080/13603110903041920     Document Type: Article

References (59)

1. Agamben, G. 1998. Homo sacer: Sovereign power and bare life. Trans. D. Heller-Roazen. Stanford, CA: Stanford University Press
2. Alfredsson, D. 2008. Daniel Alfredsson - A champion for mental health. June 17. Royal Ottawa Foundation for Mental Health. http://www.youknowwhoiam. com/story-alfredsson.html (accessed September 9, 2009)
3. Boyle, B. 2005. Phantom pains: Disability, masculinity and the normal in Viet Nam War representations. Prose Studies 27, nos. 1-2: 93-107
4. Butler, J. 1999. Gender trouble: Feminism and the subversion of identity. New York, NY: Routledge
5. Carnevale, F., and J. Kelsey. 2007. Art of the possible: An interview with Jacques Ranciere. Artform March: 260-2
6. Charmaz, K. 1991. Good days and bad days. The self in chronic illness and time. New Brunswick, NJ: Rutgers University Press
7. Deutsch, H. 2002. Exemplary aberration: Samuel Johnson and the English canon. In Disability studies: Enabling the humanities, ed. S. Snyder, B. Brueggemann and R. Garland-Thomson, 197-210. New York, NY: Modern Language Association of America
8. Ferri, B. 2008. Changing the script: Changing the script: race and disability in Lynn Manning's Weights. International Journal of Inclusive Education 12, nos. 5 - 6: 497-509
9. Foley, N. 2006. The stigma of not working. Ragged Edge Online, May 26. http://www.raggededgemagazine.com/departments/closerlook/001095.html (accessed May 3, 2008)
10. Giroux, H. 2008. Hollywood film as public pedagogy: Education in the crossfire. Afterimage, March - April. http://findarticles.com/p/search/?qa= Henry%20A.%20Giroux&tag=content; col1
11. Goffman, E. 1963. Stigma. Notes on the management of spoiled identity. New York, NY: Penguin
12. Gruneau, R., and D. Whitson. 1994. Hockey night in Canada: Sport, identities and cultural politics. Toronto, ON: Garamond
13. Hel, L.D. 2007. Stop and think: Invisible access for invisible disabilities. Blog, May 4. http://hoydenabouttown.com/20070504.517/stop-and- think-invisible-access-for-invisible-disabilities (accessed May 8, 2008)
14. Hel, L.D. 2009. Bringing more awareness to chronic fatigue syndrome. Blog, April 11. http://stanford.wellsphere.com/chronic-fatigue-syndrome-article/ bringing-more-awareness-to-chronic-fatigue-nbsp-syndrome/645656 (accessed May 8, 2008)
15. Jones, M. 1997. 'Gee, you don't look handicapped': Why I use a white cane to tell people that I'm deaf. Ragged Edge Online, July/August. http://www.ragged-edge-mag.com/archive/look.htm (accessed May 26, 2008)
16. Konur, O. 2002. Assessment of disabled students in higher education: Current public policy issues. Assessment & Evaluation in Higher Education 27, no.2: 131-152
17. Lee, C.M. 2003. From passing to coming out. Ragged Edge Online September/October. http://www.raggededgemagazine.com/0903/0903ft2.html (accessed May 7, 2008)
18. Lingsom, S. 2004. Detour ahead. A personal account of the long road home. Nova Scotia: Glen Margaret
19. Lingsom, S. 2008. Invisible impairments: Dilemmas of concealment and disclosure. Scandinavian Journal of Disability Research 10, no. 1: 2-16
20. Luke, C. 1996. Feminisms and pedagogies of everyday life. Albany, NY: State University of New York Press
21. Matthews, C., and N. Harrington. 2000. Invisible disability. In Handbook of communication and people with disabilities. Research and application, ed, D. Braithwaite and T. Thompson, 405-21. Mahwah, NJ: Lawrence Erlbaum Associates
22. Maxwell, V. 2008. Crazy for Life, a solo original play performed for 'Salon Six: Mad Bodies and Minds: Theatre as Knowledge'. The Unruly Salon Series, Green College, Reception Room, March 20, 2008. Vancouver, British Columbia: University of British Columbia
23. McMurchy, G., L.G. Roman, and C. Frazee. 2009. Opening generative and innovative public spaces for disability arts, culture and scholarship. Review of Disability Studies: An International Journal 5, no. 1: 10-16
24. Milchalko, R. 2009. The excessive appearance of disability. International Journal of Qualitative Studies in Education 22, no.2 [Special Issue]: 65-74
25. Ranciere, J. 2007. The future of the image. London: Verso
26. Reeves, W.C., A. Lloyd, S.D. Vernon, N. Klimas, L.A. Jason, G. Bleinjenberg, B. Evengard, et al. and the International Chronic Fatigue Syndrome Study Group. 2003. Identification of ambiguities in the 1994 chronic fatigue syndrome research case definition and recommendations for resolution. Biomedical Center Health Services Research 3: 25. http://www.biomedcentral.com/1472-6963/ 3/25 (accessed May 1, 2008)
27. Roman, L.G. 1988. Intimacy, labor, and class: ideologies of feminine sexuality in the punk slam dance. In Becoming feminine: The politics of popular culture, ed. L.G. Roman and L. Christian-Smith, 143-84. London: Falmer
28. Roman, L.G. 1996. Spectacle in the dark: Youth as transgression, display, and repression. Educational Theory 46, no.1: 1-22
29. Roman, L.G., ed. 2003a. Conditions, contexts, and controversies of truth-making: Rigoberta Menchú and the perils of everyday witnessing. International Journal of Qualitative Studies in Education 16, no. 3 [Special Issue]: 275-469
30. Roman, L.G. 2003b. Ghostly evidence: official and structural registers of voice, veracity, avarice, and violence in the Rigoberta Menchú controversy. International Journal of Qualitative Studies in Education 16, no.3: 307-362
31. Roman, L.G. 2004. States of insecurity: Cold War legacies, globalization and its discontents. Discourse: Studies in the Cultural Politics of Education 25, no. 2: 231-59
32. Roman, L.G. 2006. This earthly world: Edward Said: the praxis of secular humanisms and situated cosmopolitanisms. Discourse: The Cultural Politics of Education 27, no.3: 357-368
33. Roman, L.G., ed. 2009a. Disability arts, culture, and politics: New epistemologies for qualitative research. International Journal of Qualitative Studies in Education 22, no. 1: 1-132
34. Roman, L.G. 2009b. The Unruly Salon: Unfasten your seatbelts, take no prisoners, make no apologies! International Journal of Qualitative Studies in Education 22, no.1: 1-16
35. Roman, L.G., S. Brown, S. Noble, R. Wainer, and A.E. Young. 2009. No time for nostalgia! Asylum-making, medicalized colonialism in British Columbia (1859-1897) and artistic praxis for social transformation. International Journal of Qualitative Studies in Education 22, no. 1: 17-63
36. Roman, L.G., and C. Frazee, eds. 2008. Forum: The Unruly Salon. Review of Disability Studies: An International Journal 5, no.1: 1-52
37. Roman, L.G., and C. Frazee. 2009. Introduction: Coming to pride - Joining The Unruly Salon. Review of Disability Studies: An International Journal 5, no. 1
38. Samuels, E. 2003. My body, my closet. Invisible disability and the limits of the coming-out discourse, GLQ: A Journal of Lesbian and Gay Studies 9: 233-255
39. Siebers, T. 2008. Disability theory. Ann Arbor, MI: University of Michigan Press
40. Simmel, G. 1906. The sociology of secrecy: The background and consequences of American security policies. Glencoe, IL: Free Press
41. Snow, K. 2005, The disability hierarchy. Tourette's Syndrome Newsletter November: 1-3
42. Somers, M. 1994. The narrative construction of identity. A relational and network approach. Theory and Society 23: 605-649
43. Stewart, R. 2004. The really disabled: Disability hierarchy in John Hockenberry's Moving Violations. Review of Disability Studies: An International Journal 1, no. 2: 113-16
44. Stone, S. 2005. Reactions to invisible disability. The experiences of young women survivors of hemorrhagic stoke. Disability and Rehabilitation 27: 293-304
45. Stone, S.D. 2007. A change of plans: Women's stories of hemorrhagic stroke. Toronto: Sumach Press
46. Swain, J., and C. Cameron. 1999. Unless otherwise stated: Discourses of labeling and identity in coming out. In Disability discourse, ed. M. Corker and S. French, 68-78. Buckingham: Open University Press
47. Taylor, S. 2004. The right not to work: Power and disability. Monthly Review 55, no. 10. http://www.monthlyreview.org/index.php (accessed September 9, 2008)
48. The Making of a Perfect Storm: The Unruly Salon. Edited by L.G. Roman and G. McMurchy, directed by T. Buchan. Short motion picture. Vancouver: University of British Columbia, 2009
49. Thomas, C. 1999a. Female forms. Experiencing and understanding disability. Buckingham: Open University Press
50. Thomas, C. 1999b. Narrative identity and the disabled self. In Disability discourse, ed. M. Corker and S. French. Buckingham: Open University Press
51. Thomas, C. 2007. Sociologies of disability and illness: Contested ideas in disability studies and medical sociology. Basingstoke: Palgrave Macmillan
52. US Department of Health and Human Services, Centers for Disease Control and Prevention. 2006a. Chronic fatigue syndrome, Definition. http://www.cdc.gov/cfs/cfsdefinition.htm (accessed May 1, 2008)
53. US Department of Health and Human Services, Centers for Disease Control and Prevention. 2006b. 'Missing my life', 30 second TV public service announcement. http://www.cdc.gov/cfs/PSAMissingMyLife.htm (accessed May 1, 2008)
54. US Department of Health and Human Services, Centers for Disease Control and Prevention. 2006c. 'Get informed', 30 second chronic fatigue syndrome radio script. Document CFS06-01R. http://www.cdc.gov/cfs/PSAs/GetInformed30.pdf (accessed May 8, 2008)
55. Ward, J., and D. Winstanley. 2005. Coming out at work: Performativity and the recognition and renegotiation of identity. Sociological Review 53: 447-75
56. Ware, L. 2008. Worlds remade: Inclusion through engagement with disability art. International Journal of Inclusive Education 12, nos. 5-6: 563-583
57. Ware, L.P. 2002. A moral conversation on disability: Risking the personal in educational contexts. Hypatia 17, no. 3: 143-72
58. Wendell, S. 1996. The rejected body. Feminist philosophical reflections on disability. New York, NY: Routledge
59. Zitzelsberger, H. 2005. (In)visibility: Accounts of embodiment of women with physical disabilities and differences. Disability and Society 20: 389-404