Social features in online communities for healthcare consumers - A review

Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)

Volumn 5621 LNCS, Issue , 2009, Pages 682-689

  Lau, Annie Y S ^a   Kwok, Trevor M Y ^a  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

Author keywords

Healthcare consumer; Online community; Social features

Indexed keywords

COLLABORATIVE HEALTH CARE; ONLINE COMMUNITIES; ONLINE COMMUNITY; PERSONAL EXPERIENCE; SOCIAL SUPPORT; WEB 2.0;

HEALTH CARE;

ONLINE SYSTEMS;

EID: 76649110184     PISSN: 03029743     EISSN: 16113349     Source Type: Book Series    
DOI: 10.1007/978-3-642-02774-1_73     Document Type: Conference Paper

References (35)

1. Lorig, K.R., Laurent, D.D., Deyo, R.A., Marnell, M.E., Minor, M.A., Ritter, P.L.: Can a Back Pain E-mail Discussion Group improve health status and lower health care costs?: A randomized study. Arch. Intern. Med. 167, 792-796 (2002)
2. Lieberman, M.A., Golant, M., Giese-Davis, J., Winzlenberg, A., Benjamin, H., Humphreys, K., Kronenwetter, C., Russo, S., Spiegel, D.: Electronic support groups for breast carcinoma: A clinical trial of effectiveness. Cancer 97, 920-925 (2003)
3. Dawes, M., Sampson, U.: Knowledge management in clinical practice: A systematic review of information seeking behavior in physicians. Int. J. Med. Inform. 71, 9-15 (2003)
4. Coumou, H.C.H., Meijman, F.J.: How do primary care physicians seek answers to clinical questions? A literature review. J. Med. Libr. Assoc. 94, 55-56 (2006)
5. Shaw, B.R., McTavish, F., Hawkins, R., Gustafson, D.H., Pingree, S.: Experiences of women with breast cancer: Exchanging social support over the chess computer network. J. Health Commun. 5, 135-159 (2000)
6. McGettigan, P., Golden, J., Fryer, J., Chan, R., Feely, J.: The sources of information used by doctors for prescribing suggest that the medium is more important than the message. Br. J. Clin. Pharmacol. 51, 184-189 (2001)
7. Johnson, G.J., Ambrose, P.J.: Neo-tribes: the power and potential of online communities in health care. Commun. ACM 49, 107-113 (2006)
8. Eysenbach, G., Powell, J., Englesakis, M., Rizo, C., Stern, A.: Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. BMJ 328, 1166-1171 (2004)
9. Kamel Boulos, M.N., Maramba, I., Wheeler, S.: Wikis, blogs and podcasts: a new generation of Web-based tools for virtual collaborative clinical practice and education. BMC Med. Educ. 6, 41 (2006)
10. Karkalis, G.I., Koutsouris, D.D.: E-health and the Web 2.0. In: The International Special Topic Conference on Information Technology in Biomedicine, Greece (2006)
11. Kamel Boulos, M.N., Wheeler, S.: The emerging Web 2.0 social software: an enabling suite of sociable technologies in health and health care education. Health Info. Libr. J. 24, 2-23 (2007)
12. Murray, P.J., Cabrer, M., Hansen, M., Paton, C., Elkin, P.L., Erdley, W.S.: Towards addressing the opportunities and challenges of Web 2.0 for health and informatics. Yearb Med. Inform., 44-51 (2008)
13. Murray, P.J.: Web 2.0 and social technologies: what might they offer for the future of health informatics (2008), http://hcro.enigma.co.nz/website/ index.cfm?fuseaction=articledisplay&FeatureID=010608 (retrieved October 29, 2008)
14. Murray, E., Burns, J., See, T.S., Lai, R., Nazareth, I.: Interactive Health Communication Applications for people with chronic disease. Cochrane Database Syst. Rev. CD004274 (2005)
15. van Uden-Kraan, C.F., Drossaert, C.H.C., Taal, E., Lebrun, C.E.I., Drossaers-Bakker, K.W., Smit, W.M., Seydel, E.R., van de Laar, M.A.F.J.: Coping with somatic illnesses in online support groups: Do the feared disadvantages actually occur? Comput Human Behav. 24, 309-324 (2008)
16. Sillence, E., Briggs, P., Harris, P.R., Fishwick, L.: How do patients evaluate and make use of online health information? Soc. Sci. Med. 64, 1853-1862 (2007)
17. White, M., Dorman, S.M.: Receiving social support online: implications for health education. Health Educ. Res. 16, 693-707 (2001)
18. Davison, K.P., Pennebaker, J.W., Dickerson, S.S.: Who talks? The social psychology of illness support groups. Am. Psychol. 55, 205-217 (2000)
19. Dickerson, S.S., Boehmke, M., Ogle, C., Brown, J.K.: Seeking and managing hope: patients' experiences using the Internet for cancer care. Oncol Nurs. Forum 33, E8-17 (2006)
20. Overberg, R.I., Alpay, L.L., Verhoef, J., Zwetsloot-Schonk, J.H.: Illness stories on the internet: what do breast cancer patients want at the end of treatment? Psychooncology 16, 937-944 (2007)
21. Ziebland, S.: The importance of being expert: the quest for cancer information on the Internet. Soc. Sci. Med. 59, 1783-1793 (2004)
22. Buunk, A.P., Gibbons, F.X.: Social comparison orientation: a new perspective on those who do and those who don't compare with others. In: Guimond, S. (ed.) Social comparison and social psychology: understanding cognition, intergroup relations and culture, pp. 15-32. Cambridge University Press, New York (2006)
23. Redersdorff, S., Guimond, S.: Comparing oneself over time: the temporal dimension in social comparison. In: Guimond, S. (ed.) Social comparison and social psychology: understanding cognition, intergroup relations and culture, pp. 76-96. Cambridge University Press, New York (2006)
24. Keselman, A., Logan, R., Smith, C.A., Leroy, G., Zeng-Treitler, Q.: Developing informatics tools and strategies for consumer-centered health communication. J. Am. Med. Inform. Assoc. M2744 (2008)
25. Mayer, D.K., Terrin, N.C., Kreps, G.L., Menon, U., McCance, K., Parsons, S.K., Mooney, K.H.: Cancer survivors information seeking behaviors: a comparison of survivors who do and do not seek information about cancer. Patient Educ. Couns. 65, 342-350 (2007)
26. James, N., Daniels, H., Rahman, R., McConkey, C., Derry, J., Young, A.: A study of information seeking by cancer patients and their carers. Clin. Oncol. (R Coll. Radiol.) 19, 356-362 (2007)
27. Bennenbroek, F.T.C., Buunk, B.P., van der Zee, K.I., Grol, B.: Social comparison and patient information: what do cancer patients want? Patient Educ. Couns. 47, 5-12 (2002)
28. Preece, J., Nonnecke, B., Andrews, D.: The top five reasons for lurking: improving community experiences for everyone. Computers in Human Behavior 20, 201-223 (2004)
29. Hoisl, B., Aigner, W., Miksch, S.: Social Rewarding in Wiki Systems - Motivating the Community. In: Schuler, D. (ed.) HCII 2007 and OCSC 2007. LNCS, vol.4564, pp. 362-371. Springer, Heidelberg (2007)
30. Schimke, D., Stoeger, H., Ziegler, A.: The Relationship Between Social Presence and Group Identification Within Online Communities and Its Impact on the Success of Online Communities. In: Schuler, D. (ed.) HCII 2007 and OCSC 2007. LNCS, vol.4564, pp. 160-168. Springer, Heidelberg (2007)
31. Turner, T.C., Fisher, K.E.: The Impact of Social Types within Information Communities: Findings from Technical Newsgroups. In: HICSS 2006. Proceedings of the 39th Annual Hawaii International Conference on System Sciences (2006)
32. Hu, C., Law, S.: PixelWish: Collective Wish-Making and Social Cohesion. In: Schuler, D. (ed.) HCII 2007 and OCSC 2007. LNCS, vol.4564, pp. 80-85. Springer, Heidelberg (2007)
33. Frost, J.H., Massagli, M.P.: Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another's Data. J. Med. Internet Res. 10, e15 (2008)
34. Adams, S.A.: Blog-based applications and health information: Two case studies that illustrate important questions for Consumer Health Informatics (CHI) research. J. Med. Inform (2008), doi:10.1016/j.ijmedinf.2008.06.009
35. Lau, A.Y.S., Coiera, E.W.: Impact of Web Searching and Social Feedback on Consumer Decision Making: A Prospective Online Experiment. J. Med. Internet Res. 10, e2 (2008)