Developing Informatics Tools and Strategies for Consumer-centered Health Communication

Journal of the American Medical Informatics Association

Volumn 15, Issue 4, 2008, Pages 473-483

  Keselman, Alla ^a,b   Logan, Robert ^a   Smith, Catherine Arnott ^c   Leroy, Gondy ^d   Zeng Treitler, Qing ^e  

^a NATIONAL INSTITUTES OF HEALTH   (United States)

^b Aquilent Inc   (United States)

^c University of Wisconsin   (United States)

^d CLAREMONT GRADUATE UNIVERSITY   (United States)

^e BRIGHAM AND WOMEN S HOSPITAL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; BEHAVIORAL RESEARCH; CONSUMER; HEALTH BEHAVIOR; HUMAN; INFORMATION TECHNOLOGY; INTERNET; MEDICAL INFORMATICS; MEDICAL INFORMATION SYSTEM; PATIENT DECISION MAKING;

COMMUNICATION BARRIERS; CONSUMER HEALTH INFORMATION; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INFORMATION STORAGE AND RETRIEVAL; INFORMATION THEORY;

EID: 45849111880     PISSN: 10675027     EISSN: None     Source Type: Journal    
DOI: 10.1197/jamia.M2744     Document Type: Article

References (78)

1. Paisely W.J. Public communication campaigns: The American experience. In: Rice R.E., and Atkin C.K. (Eds). Public Communication Campaigns. 3rd ed. (2001), Sage, Thousand Oaks, CA 3-21
2. Pettegrew L., and Logan R.A. Health communication: Review of theory and research. In: Berger C.R., and Chaffee S.H. (Eds). Handbook of Communication Science (1987), Sage, Beverly Hills, CA 675-710
3. Napoli P.M. Consumer use of medical information from electronic to paper media: A literature review. In: Rice R.E., and Katch J.E. (Eds). The Internet and Health Communication: Experiences and Expectations (2001), Sage, Thousand Oaks, CA 79-98
4. Logan R.A., and Tse T. A multidiscipline conceptual framework for consumer health informatics. Medinfo 12 (2007) 1169-1173
5. McGuire W.J. Input and output variables currently promising for construction persuasive communications. In: Rice R.E., and Atkin C.K. (Eds). Public Communication Campaigns. 3rd ed. (2001), Sage, Thousand Oaks, CA 22-48
6. Kreps G.L., and Thornton B.C. Heath communication: Theory and practice (1992), Waveland Press, Prospect Heights, IL
7. Wimmer R.D., and Dominick J.R. Mass Communication Research: An Introduction. 8th ed. (2006), Wadsworth, Belmont, CA
8. Flynn B.S., Worden J.K., Seckerwalker R.H., Badger G.J., Geller B.M., and Costanza M.C. Prevention of cigarette-smoking through mass-media intervention and school programs. Am J Public Health 82 (1992) 827-834
9. National Cancer Institute. Strategies to Control Tobacco Use in the United States: A Blueprint for Public Health Action in the 1990s (1991), National Cancer Institute, Washington, DC
10. Evans R.I., and Raines B.E. Applying a social psychological model across health promotion interventions: Cigarettes to smokeless tobacco. In: Edwards J., Tindale R.S., Heath L., and Posavac E.J. (Eds). Social Influence Process and Prevention: Social Psychological Applications of Social Issues (1990), Plenum Press, New York, NY
11. Kendall P.C., and Holon S.D. Cognitive-Behavioral Intentions: Theory, Research and Practice (1979), Academic Press, New York, NY
12. Botvin G.J., and Eng A. The efficacy of a multicomponent approach to the prevention of cigarette-smoking. Prev Med 11 (1982) 199-211
13. Dutta Bergman M. Theory and practice in health communication campaigns: A critical interrogation. Health Commun 18 (2005) 103-122
14. Stephenson W. The Play Theory of Mass Communication (1967), University of Chicago Press, Chicago, IL
15. Hara N., and Hew K.F. Knowledge-sharing in an online community of health-care professionals. Inform Technol People 20 (2007) 235-261
16. Wuerdeman L, Volk L, Pizziferri L, et al. How accurate is information that patients contribute to their electronic health record? Paper presented at: AMIA Annual Symposium, Washington, DC, October 22-26, 2005.
17. Johnson G.J., and Ambrose P.J. Neo-tribes: The power and potential of online communities in health care. Communications of the ACM 49 (2006) 107-113
18. Esquivel A., Meric-Bernstam F., and Bernstam E. Accuracy and self correction of information received from an internet breast cancer list: Content analysis. BMJ 332 (2006) 939-942
19. Madden M. Internet Penetration and Impact: Pew Internet and American Life Project, 2006. http://pewinternet.org/PPF/r/182/report_display.asp/ Accessed May 22, 2008
20. Fox S. Internet Usage Trends-Through the Demographic Lens: Pew Internet and American Life Project, 2006.
21. Institute of Medicine of the National Academies. Health Literacy: A Prescription to End Confusion (2004), The National Academies Press, Washington, DC
22. Kaufman D.R., Patel V.L., Hilliman C., et al. Usability in the real world: Assessing medical information technologies in patients' homes. J Biomed Inform 36 (2003) 45-60
23. Baker D.W. The meaning and the measure of health literacy. J Gen Intern Med 21 (2006) 878-883
24. Zarcadoolas C., Pleasant A., and Greer D. Advancing health literacy: A framework for understanding and action (2006), Jossey-Bass, San Francisco, CA
25. Nielsen-Bohlman N., Panzer A.M., and Kindig D.A. Health Literacy: A Prescription to End Confusion Institute of Medicine (IOM) (2004), The National Academies Press, Washington, DC
26. Baker D.W., Gazmararian J.A., Williams M.V., et al. Functional health literacy and the risk of hospital admission among Medicare managed care enrollees. Am J Public Health 92 (2002) 1278-1283
27. Schillinger D., Grumbach K., Piette J., et al. Association of health literacy with diabetes outcomes. J Am Med Assoc 288 (2002) 475-482
28. National Center for Education Statistics. National Assessment of Adult Literacy. http://nces.ed.gov/naal/ Accessed 2003
29. Eysenbach G., Powell J., Kuss O., and Sa E.-R. Empirical studies assessing the quality of health information for consumers on the World Wide Web: A systematic review. JAMA 287 (2002) 2691-2700
30. Burkel J. What are the chances?. Evaluating risk and benefit information in consumer health materials. J Med Libr Assoc 92 (2004) 200-208
31. Kalichman S.C., Cain D., Fuhrel A., Eaton L., Di Fonzo K., and Ertl T. Assessing medication adherence self-efficacy among low-literacy patients: Development of a pictographic visual analogue scale. Health Educ Res 20 (2005) 24-35
32. Scott J.T., and Thompson D.R. Assessing the information needs of post-myocardial infarction patients: A systematic review. Patient Educ Couns 50 (2003) 167-177
33. Scriven A., and Chesterton A. Information needs of hysterectomy patients. Nurs Stand 9 (1994) 36
34. Leino-Kilpi H., Iire L., Suominen T., Vuorenheimo J., and Valimaki M. Client and information: A literature review. J Clin Nurs 2 (1993) 331-340
35. Mossman J., Boudioni M., and Slevin M.L. Cancer information: A cost-effective intervention. Eur J Cancer 35 (1999) 1587-1591
36. Prostate Cancer Charity. Survey special-listening to you. Prostate Cancer Charity Newsletter (2000) 10
37. Nguyen G.T., and Bellamy S.L. Cancer information seeking preferences and experiences: Disparities between Asian Americans and Whites in the Health Information National Trends Survey (HINTS). J Health Commun 11 Suppl 1 (2006) 173-180
38. Echlin K.N., and Rees C.E. Information needs and information-seeking behaviors of men with prostate cancer and their partners: A review of the literature. Cancer Nurs 25 (2002) 35-41
39. Timmins F., and Kaliszer M. Information needs of myocardial infarction patients. Eur J Cardiovasc Nurs 2 (2003) 57-65
40. Meric F., Bernstam E., Mirza N., et al. Breast cancer on the world wide web: Cross sectional survey of quality of information and popularity of websites. BMJ 324 (2002) 577-581
41. Spatz M.A. Providing consumer health information in the rural setting: Planetree Health Resource Center's approach. Bull Med Libr Assoc 88 (2000) 382-388
42. Cosgrove T.L. Planetree Health Information Service: Public access to the information people want. Bull Med Libr Assoc 82 (1994) 57-63
43. Brennan P.F., and Aronson A.R. Towards linking patients and clinical information: Detecting UMLS concepts in e-mail. J Biomed Inform 36 (2003) 334-341
44. McCray A.T., and Tse T. Understanding search failures in consumer health information systems. Proc AMIA Symp (2003) 430-434
45. Patrick T.B., Monga H.K., Sievert M.E., Houston Hall J., and Longo D.R. Evaluation of controlled vocabulary resources for development of a consumer entry vocabulary for diabetes. J Med Internet Res 3 (2001) E24
46. Smith C.A., Stavri P.Z., and Chapman W.W. In their own words?. A terminological analysis of e-mail to a cancer information service. Proc AMIA Symp (2002) 697-701
47. Tse T., and Soergel D. Exploring medical expressions used by consumers and the media: An emerging view of consumer health vocabularies. AMIA Annu Symp Proc (2003) 674-678
48. Zeng Q., Kogan S., Ash N., Greenes R.A., and Boxwala A.A. Characteristics of consumer terminology for health information retrieval. Methods Inf Med 41 (2002) 289-298
49. Zeng Q.T., and Tse T. Exploring and developing consumer health vocabularies. J Am Med Inform Assoc 13 (2006) 24-29
50. Leroy G, Miller T, Rosemblat G, Browne A. A balanced approach to health information evaluation: A vocabulary-based naïve Bayes classifier and readability formulas. J Am Soc Inform Science. In press.
51. Leroy G. Improving Health Literacy with Information Technology. In: Wickramasinghe N (ed). Encyclopaedia of Healthcare Information Systems. Idea Group, Inc. In press.
52. Leroy G., Eryilmaz E., and Laroya B.T. Health information text characteristics. AMIA Annu Symp Proc (2006) 479-483
53. Dalrymple PW, Zeng-Treitler Q, Kim H, Browne A, Keselman A. The effect of vocabulary support and text coherence on consumers' comprehension of medical texts. In press.
54. Miller T, Leroy G. Dynamic Generation of a health topics overview from consumer health information documents. Int J Biomed Eng Technol. In press.
55. Impiccatore P., Pandolfino C., Casella N., and Bonati M. Reliability of health information for the public on the world wide web: Systematic survey of advice on managing fever in children at home. BMJ 314 (1997) 1875
56. Ahmann E. Supporting families' savvy use of the Internet for health research. Pediatr Nurs 26 (2000) 419-423
57. Jadad A., and Gagliardi A. Rating health information on the Internet. Navigating to knowledge or to Babel?. J Am Medical Assoc 279 (1998) 611-614
58. Hernandez-Borges A.A., Macias-Cervi P., Gaspar-Guardado M.A., et al. Can examination of WWW usage statistics and other indirect quality indicators distinguish the relative quality of medical web sites?. J Med Internet Res 1 (1999) E1
59. Bernstam E., Sagaram S., Walji M., Johnson C., and Meric-Bernstam F. Usability of quality measures for online health information: Can commonly used technical quality criteria be reliably assessed?. Int J Med Inform 74 (2005) 675-683
60. Fallis D., and Fricke M. Indicators of accuracy of consumer health information on the internet: A study of indicators relating to information for managing fever in children in the home. J Am Med Inform Assoc 9 (2002) 73-79
61. Gagliardi A., and Jadad A.R. Examination of instruments used to rate quality of health information on the internet: Chronicle of a voyage with an unclear destination. BMJ 324 (2002) 569-573
62. Dutta-Bergman M. Trusted online sources of health information: Differences in demographics, health beliefs, and health-information orientatio. Med Internet Res 5 (2003) e21
63. Mechanic D. Public trust and initiatives for new health care partnerships. Milbank Q 76 (1998) 281-302
64. Eysenbach G. From intermediation to disintermediation and apomediation: New models for consumers to access and assess the credibility of health information in the age of Web2.0. Paper presented at: Medinfo, 2007.
65. Cullen R. The medical specialist: Information gateway or gatekeeper for the family practitioner. Bull Med Libr Assoc 85 (1997) 348-355
66. Demiris G., Finkelstein S.M., and Speedie S.M. Considerations for the design of a Web-based clinical monitoring and educational system for elderly patients. J Am Med Inform Assoc 8 (2001) 468-472
67. Evangelista L.S., Stromberg A., Westlake C., Ter-Galstanyan A., Anderson N., and Dracup K. Developing a Web-based education and counseling program for heart failure patients. Prog Cardiovasc Nurs 21 (2006) 196-201
68. U.S. Department of Health and Human Services. Learn about your users. http://www.usability.gov/analyze/learn.html Accessed: Oct 2, 2007
69. Chason L. Giving patrons what they want: Creating the Florida psychiatric facilities list. Behav Soc Sci Librarian 21 (2003) 49-55
70. Ritter F.E., Freed A.R., and Haskett O.L.M. Discovering user information needs: The case of university department Web sites. Interactions 12 (2005) 19-27
71. Grama L.M., Beckwith M., Bittinger W., et al. The role of user input in shaping online information from the National Cancer Institute. J Med Internet Res 7 (2005) e25
72. Cole C., Cantero P., and Sauve D. Intelligent information retrieval: Diagnosing information need, part II: Uncertainty expansion in a prototype of a diagnostic IR tool. Inform Processing Manag 34 (1998) 721-737
73. Kuhlthau C.C. Developing a model of the library search process: Investigation of cognitive and affective aspects. Ref Q 28 (1988) 232-242
74. Gillen J.E., Tse T., Ide N.C., and McCray A.T. Design, implementation and management of a web-based data entry system for ClinicalTrials.gov. Medinfo 11 (2004) 1466-1470
75. Marill J.L., Miller N., and Kitendaugh P. The MedlinePlus public user interface: Studies of design challenges and opportunities. J Med Libr Assoc 94 (2006) 30-40
76. Davis T.C., Long S.W., Jackson R.H., et al. Rapid estimate of adult literacy in medicine: A shortened screening instrument. Fam Med 25 (1993) 391-395
77. Parker R.M., Baker D.W., Williams M.V., and Nurss J.R. The test of functional health literacy in adults: A new instrument for measuring patients' literacy skills. J Gen Intern Med 10 (1995) 537-541
78. Campbell A., Kirsch I., and Kolstad A. Assessing literacy: The framework for the National Adult Literacy Survey (1992), U.S. Department of Education, Washington, DC