Development of a disease-specific quality of life questionnaire in Addison's disease

Journal of Clinical Endocrinology and Metabolism

Volumn 95, Issue 2, 2010, Pages 545-551

  Løvås, Kristian ^a,b,c   Curran, Suzanne ^a   Øksnes, Marianne ^b   Husebye, Eystein S ^b,c   Huppert, Felicia A ^a   Chatterjee, V Krishna K ^a  

^a UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^b UNIVERSITY OF BERGEN   (Norway)

^c HAUKELAND UNIVERSITY HOSPITAL   (Norway)

Author keywords

[No Author keywords available]

Indexed keywords

ACROMEGALY; ADDISON DISEASE; ADRENAL CORTEX INSUFFICIENCY; ADULT; AGED; ANXIETY; ARTICLE; COPING BEHAVIOR; DEPRESSION; FEMALE; GROWTH HORMONE DEFICIENCY; HEALTH STATUS; HUMAN; INTERNAL CONSISTENCY; INTERVIEW; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; RASCH ANALYSIS; SELF ESTEEM; SHORT FORM 36; STATISTICAL ANALYSIS; SYMPTOM; WELLBEING;

EID: 76149133631     PISSN: 0021972X     EISSN: 0021972X     Source Type: Journal    
DOI: 10.1210/jc.2009-1711     Document Type: Article

References (26)

1. Arlt W, Allolio B 2003 Adrenal insufficiency. Lancet 361:1881-1893
2. Arlt W, Callies F, van Vlijmen JC, Koehler I, Reincke M, Bidlingmaier M, Huebler D, Oettel M, Ernst M, Schulte HM, Allolio B 1999 Dehydroepiandrosterone replacement in women with adrenal insufficiency. N Engl J Med 341:1013-1020
3. Hunt PJ, Gurnell EM, Huppert FA, Richards C, Prevost AT, Wass JA, Herbert J, Chatterjee VK 2000 Improvement in mood and fatigue after dehydroepiandrosterone replacement in Addison's disease in a randomized, double blind trial. J Clin Endocrinol Metab 85:4650-4656
4. Løvås K, Gebre-Medhin G, Trovik TS, Fougner KJ, Uhlving S, Nedrebø BG, Myking OL, Kämpe O, Husebye ES 2003 Replacement of dehydroepiandrosterone in adrenal failure: no benefit for subjective health status and sexuality in a 9-month, randomized, parallel group clinical trial. J Clin Endocrinol Metab 88:1112-1118
5. Gurnell EM, Hunt PJ, Curran SE, Conway CL, Pullenayegum EM, Huppert FA, Compston JE, Herbert J, Chatterjee VK 2008 Longterm DHEA replacement in primary adrenal insufficiency: a randomized, controlled trial. J Clin Endocrinol Metab 93:400-409
6. Crown A, Lightman S 2005 Why is the management of glucocorticoid deficiency still controversial: a review of the literature. Clin Endocrinol (Oxf) 63:483-492
7. Newell-Price J, WhitemanM,Rostami-Hodjegan A, Darzy K, Shalet S, Tucker GT, Ross RJ 2008 Modified-release hydrocortisone for circadian therapy: a proof-of-principle study in dexamethasone-suppressed normal volunteers. Clin Endocrinol (Oxf) 68:130-135
8. Løvås K, Husebye ES 2007 Continuous subcutaneous hydrocortisone infusion in Addison's disease. Eur J Endocrinol 157:109-112
9. Arlt W, Rosenthal C, Hahner S, Allolio B 2006 Quality of glucocorticoid replacement in adrenal insufficiency: clinical assessment vs. timed serum cortisol measurements. Clin Endocrinol (Oxf) 64:384-389
10. Howlett TA 1997An assessment of optimal hydrocortisone replacement therapy. Clin Endocrinol (Oxf) 46:263-268
11. Peacey SR, Guo CY, Robinson AM, Price A, Giles MA, Eastell R, Weetman AP 1997 Glucocorticoid replacement therapy: are patients over treated and does it matter? Clin Endocrinol (Oxf) 46: 255-261
12. Wong V, Yan T, Donald A, McLeanM2004 Saliva and bloodspot cortisol: novel sampling methods to assess hydrocortisone replacement therapy in hypoadrenal patients. Clin Endocrinol (Oxf) 61: 131-137
13. Løvås K, Thorsen TE, Husebye ES 2006 Saliva cortisol measurement: simple and reliable assessment of the glucocorticoid replacement therapy in Addison's disease. J Endocrinol Invest 29:727-731
14. Labrie F, Bélanger A, Cusan L, Candas B 1997 Physiological changes in dehydroepiandrosterone are not reflected by serum levels of active androgens and estrogens but of their metabolites: intracrinology. J Clin Endocrinol Metab 82:2403-2409
15. Løvås K, Loge JH, Husebye ES 2002 Subjective health status in Norwegian patients with Addison's disease. Clin Endocrinol (Oxf) 56:581-588
16. Hahner S, Loeffler M, Fassnacht M, Weismann D, Koschker AC, Quinkler M, Decker O, Arlt W, Allolio B 2007 Impaired subjective health status in 256 patients with adrenal insufficiency on standard therapy based on cross-sectional analysis. J Clin Endocrinol Metab 92:3912-3922
17. Heijmans M 1999 The role of patients' illness representations in coping and functioning with Addison's disease. Br J Health Psychol 4:137-149
18. McKenna SP, Doward LC, Alonso J, Kohlmann T, Niero M, Prieto L, Wíren L 1999 The QoL-AGHDA: an instrument for the assessment of quality of life in adults with growth hormone deficiency. Qual Life Res 8:373-383
19. Webb SM, Prieto L, Badia X, Albareda M, Catalá M, Gaztambide S, Lucas T, Páramo C, Picó A, Lucas A, Halperin I, Obiols G, Astorga R 2002 Acromegaly Quality of Life Questionnaire (ACROQOL) a new health-related quality of life questionnaire for patients with acromegaly: development and psychometric properties. Clin Endocrinol Oxf 57:251-258
20. Webb SM, Badia X, Barahona MJ, Colao A, Strasburger CJ, Tabarin A, van Aken MO, Pivonello R, Stalla G, Lamberts SW, Glusman JE 2008 Evaluation of health-related quality of life in patients with Cushing's syndrome with a new questionnaire. Eur J Endocrinol 158:623-630
21. Juniper EF, Guyatt GH, Jaeschke R 1996 How to develop and validate a new health-related quality of life instrument. In: Spilker B, ed. Quality of life and pharmacoeconomics in clinical trials. 2nd ed. New York: Lippincott-Raven; 49-56
22. Malterud K 2001 Qualitative research: standards, challenges, and guidelines. Lancet 358:483-488
23. Bond TG, Fox CM 2007 Applying the Rasch model: fundamental measurement in the human sciences. 2nd ed. Mahwah, NJ: Lawrence Erlbaum Associates
24. Thomsen AF, Kvist TK, Andersen PK, Kessing LV 2006 The risk of affective disorders in patients with adrenocortical insufficiency. Psychoneuroendocrinology 31:614-622
25. Riedel M, Wiese A, Schü rmeyer TH, BrabantG 1993 Quality of life in patients with Addison's disease: effects of different cortisol replacement modes. Exp Clin Endocrinol 101:106-111
26. Wright JG, Feinstein AR 1992 A comparative contrast of clinimetric and psychometric methods for constructing indexes and rating scales. J Clin Epidemiol 45:1201-1218